newbie

just a new girl here. diagnosed yesterday with auto-immune thyroid disease, dr said grave's.
i am clueless. LOL
not on meds since i just found out. still learning, but my main approach is going to be my own interventions, diet alterations, etc.

any input would be greatly appreciated. :smile:

Replies

  • kcvance
    kcvance Posts: 103 Member
    Neither graves disease or hashimoto's is curable or even controllable through diet changes or exercise, though changes to diet may help with some of the *symptoms*, and some people do feel better on a gluten-free diet (it didn't work for me, personally, but I won't discount anyone else's experiences).

    I would recommend http://stopthethyroidmadness.com for more information on what you are about to experience. Good luck to you.
  • La5Vega5Girl
    La5Vega5Girl Posts: 709 Member
    i am just the type that refuses to believe there is NOTHING i can do. i will always try something, even if everyone else says it would never work. LOL :tongue:
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    I second reading, consulting the web site, Stop the Thyroid Madness. There is so much information in there. There are Thyroid support sites too in the UK, US and Australia other countries probably have them too. Graves is like other thyroid problems, very complicated even doctors do not yet know all there is to know about it. Having the input of a good endocrinologist would probably be your best first step. Some Gps think they can treat thyroid problems when a specialist would be better in the long term. Its far from easy to be told this is your situation and then left hanging because you are not told the whys and wherefores, not given help to take in the information, then some idea how to manage it, what to look out for. We have all lived with our bodies for a very long time and assume it has always worked properly this is not always the case. Sometimes a combination of medication and self help eventually proves to be the best way but finding the best way takes time and someone with the right information and the ability to relate it to you. I suggest you channel your determination towards understanding what your challenge is and empower yourself to achieve the best treatment for yourself.

    Some people do believe it is possible to change ones diet in order to improve ones thyroid function. The effectiveness of this will depend on the initial cause of the problem. I have read that having the correct proportion of selenium in ones diet to balance the iodine can counter some of the antibodies but for the life in me I can't remember what site it was on. We are only supposed to need half a teaspoon of iodine in our entire lives and a fraction of that for selenium. It works out at about 150 microns for iodine and 70 for selenium. In theory some of us could be having too much others too little. Problems with the thyroid can play havoc with so many of the body's systems and it is necessary to be very careful because you can all too easily make a difficult situation worse. Sometimes avoiding foods may make symptoms easier but leave the underlying causes still active, avoiding some foods can leave one short of some essential nutrients. The right medication can simplify what may become a very complex situation.

    There are other interesting sites on the net. Not all of them are good science. If you do your own research keep to sites which have credibility and are not totally crackpot. Most importantly keep notes so you can find the information again and again. All the very best and take great care.
  • Betti2
    Betti2 Posts: 30 Member
    Well stated Fuzzipeg. One of the best pieces of advice I can give is. DON"T GIVE UP...no matter what, keep searching for answers & always researching.

    I know it's hard to accept that diet & excerise wont affect your weight, I feel like screaming at times at the trainers who say just change your diet & excerise, that will work.

    I have had Hashimotos all my life but was undiagnosed until I was in critical stages, which took a lot of coming back from as it had also affected my brain function, permanent damage there which is frustrating at times but i don't let it get to me.

    These days I excercise & watch my diet, not necessarily to lose weight but to PREVENT any further weight gain & to keep my brain function sharp.

    Honestly its a very personal journey.
    Gluten free, natural remedies & other diet changes didn't do anything for me but each to his own, my niece has had amazing success with gluten free diet. So stay open minded to treatments, just ensure they are sound medical advice.

    In Australia doctors often still don't pick the symptoms of Hashimotos & have a very bla`ze attitude towards thyroid conditions, I wasn't tested at all for years, even though there is a genetic dispostion in our family.

    Finding a good doctor & endocronologist is a MUST, I have an endochronoligist, a GP & a bio-identical GP, whom all work together really well. It took me years to find them.

    Good luck with your quest...stay focused.... if there are times when you are discouraged come have a talk to some of us here.
  • La5Vega5Girl
    La5Vega5Girl Posts: 709 Member
    thanks everyone. my thyroid is actually functioning ok right now, so i'm not instructed to take meds. the underying auto-immune disorder seems to be the main issue, esp. inflammation. thanks so much for all the info.