New (okay, back, not new) and looking for HYPO friends

NerdieMcChub
NerdieMcChub Posts: 153 Member
edited November 8 in Social Groups
I'm trying to fill my friends list with hypo friends. I have Hashimoto's. Been struggling for 7-8 years with this disease. I am finally beginning to get everything under control with the help of my doctor who's actually wanting me to feel better. :)
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Replies

  • Hi there, I'm hypo... never diagnosed hashimoto's officially but I did see a test result that showed my own body is attacking my thyroid :( so... I take synthroid and cytomel daily, I recently got back on here (2 months) to track what I eat, I'm changing a lot in that area and it's helping. I've lost 30 lbs so far, and I've got energy for the first time in decades, mostly by cutting out all junk and focusing on real unprocessed food. My goal is to lose a total of 100 lbs, and hopefully to lower meds over time and maybe one day be rid of them altogether.
  • Etherlily1
    Etherlily1 Posts: 974 Member
    I have hypo as well. I don't know of any specific for it other than hypothyroidism. Mine was caused by lithium. I was recently put on it again in February and it again left its mark on my thyroid. I am losing weight with a fair amount of effort, but getting there.
  • LadyLots2Lose
    LadyLots2Lose Posts: 110 Member
    I'm hypo as well. Mine was diagnosed as a congenital condition when I was 9 months old so, I don't remember life without medication. My current attempt to get to a healthy weight has so far taken 3 years and 9 months and I'm almost there with 4 kilos to go. (Yay for me!)
    The depressing reality of hypo is that it seems to take so much more effort to get to (and maintain) a healthy weight. It has taken determination and dedication to tracking food and exercise but, I'm getting on top of it this time.
  • VastBreak
    VastBreak Posts: 322 Member
    Oh my goodness, 7-8 years, that is awful and discouraging! I'm just coming up on 2 years with my diagnosis but I believe my problems started about 6 years ago. The past couple of years have been quite a struggle, trying to narrow down what helps and what makes things worse. This also affects me mentally, at times I'm very positive and ready to fight, fight, fight and other times I give up hope and don't try hard at all. I have a good Dr and also nurse practitioner who I feel listen well but at times are quite conservative. Once I found out that I was hypo with Hashi's, I expected to flip a switch and have my life improve and feel better. Quite the opposite is this roller coaster of feeling good to awful and back to partially ok to awful.

    I'll send a friend request! Keep up the fight and share what is helping along the way :)
  • monicagarris
    monicagarris Posts: 1 Member
    Hypo and Hashi here. I was diagnosed about 14 years ago and never have felt well since!
    Exhausted, losing hair and no energy.
    Now on Armour which was better than the Synthroid and Tirosint and Cytomel.
    Just found out I have an enlarged thyroid and going in for a needle biopsy on the 23rd to check nodules. Worried.
    Anyone else out there has gone through this?
  • allergictodiets
    allergictodiets Posts: 233 Member
    Feel free to add me - hypo ( diagnosed in 2009, but had been symptomatic for years before ) caused by Hashi ( diagnosed in 2012 after my pregnancy ).
  • Betsyx72
    Betsyx72 Posts: 19 Member
    Monicagarris - I I haven't had that done. I hope everything will be ok!
  • allergictodiets
    allergictodiets Posts: 233 Member
    edited December 2014
    VastBreak wrote: »
    Once I found out that I was hypo with Hashi's, I expected to flip a switch and have my life improve and feel better.
    That's exactly what I hoped for as well!!! "Hey, I finally know what is wrong with me! I'll pop the pills and feel fine". LOOOL.

  • ggeise14
    ggeise14 Posts: 387 Member
    monicagarris,
    I had nodules and a biopsy a few years ago. The tests came back as benign so I was put on a monitoring schedule. Over the last couple of years the nodules slowly continued to grow so a year ago the endocrinologist advised a TT. That took place the beginning of Feb. I have been on 125 mg of Levothyroxine since surgery. I have and did read the book, Stop the Thyroid Madness. Because the Levo has worked ok, I haven't pushed for a switch to Armour -- yet. Best of luck to you!
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    I lost way more slowly than most MFPers, so please be patient. But I did it all before my thyroid levels ever reached the "normal" range.

    Synthroid & Cytomel reduce the fatigue so I can be more active. But I credit all my loss to learning to log everything I eat & drink accurately & honestly. Logging is simple, but it ain't easy. Logging works.

    I was diagnosed with Hashimoto's in 2012, and I've maintained my weight loss for six months. Anyone can friend me or PM me with any questions.
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    Never diagnosed hashimoto's officially but I did see a test result that showed my own body is attacking my thyroid. I take synthroid and cytomel daily.

    My goal is to lose a total of 100 lbs, and hopefully to lower meds over time and maybe one day be rid of them altogether.

    Thyroid damage is irreversible, so you need to take your meds for the rest of your life. Synthroid is synthetic T4, and Cytomel is synthetic T3—they replace the hormones that your body is no longer able to produce. Just like a Type 1 diabetic's pancreas doesn't make enough insulin.

    Making "get off thyroid meds" a goal is just setting yourself up for failure. In addition to losing the weight, focus on building strength & endurance—and being less tired.
  • g8rgirljax
    g8rgirljax Posts: 2 Member
    Rejoining MFP to make 2015 the year I do something for myself! My goal is to lose 50lbs. Right now I'm waiting to see the doctor for new blood work as I think my meds are not doing the job, my doctor's office is transitioning to a new provider/facility for 2015. I was diagnosed as Hypo almost 10+ years ago and its been a battle ever since. But of course hitting the 50's hasn't helped my metabolism either! Either way, I'm re-dedicating to myself! Thought joining a group of "like minded" people would help in the journey!
  • awasko1218
    awasko1218 Posts: 15 Member
    Hey! Hypo friend here...non-Hashimoto's. Like another poster above, I also thought that once I was diagnosed and my meds were figured out (a year later), I could return to my "normal life". Um, no. The medical profession tends to make us feel this way, but while I am DEFINITELY not as tired as I was before medication, I still struggle more than I used to, and I really feel that the weight just doesn't come off as much as it should considering how much I exercise. BUT, it has only taken me a couple of years to come to this conclusion: it is a journey, not a destination. I am ALWAYS going to need to pay attention to how much I eat and I am ALWAYS going to need to force myself to exercise when I am "too tired" to do it. lol... oh, and I am ALWAYS going to need to argue with my mother about the fact that I need a nap every day. lol. It is actually reassuring to have you all here to confirm that it is NOT all in my head, and the struggle is real.
  • Winonoir
    Winonoir Posts: 3 Member
    I really need to get posting in my food diary again. My thyroid has been going from passable to crap, it's currently in the crap stage so a few months ago it was a 10kg weight gain and hair falling out. It'd be nice to have a few friends with similar experiences/problems. I've sent a few friend requests and if anyone wants to send me one feel free. I didn't sent a request to everyone because it turns out its a really difficult thing to do on a phone, different apps opening up all over the place.
  • duckykissy
    duckykissy Posts: 285 Member
    Oh please add me! I was diagnosed with Hashimotos about 3 years ago, although I started having problems more than 15 years ago. When I'm hypo, I'm really hypo -hair loss, brittle nails, dry skin, joint pain/swelling, brain fog, fatigue, bloating, panic attacks, depression, and other.. fun tummy problems (although never a TSH over 6). It's been an awful long road to treatment, but I'm feel pretty good these days. I still have the occasional bad day and would love to talk with people who get it.

    Anyway, I've got 101 lbs to go and an open diary so if anyone would like to join me for a long haul feel free to add me!
  • lindsey1979
    lindsey1979 Posts: 2,395 Member
    Hashi's here too. I was diagnosed about a year ago, though I'd suspected a thyroid problem for 10+ years. After several docs, I finally forked over the dough for an out-of-pocket thyroid specialist, got the diagnosis and treatment.

    For thyroid, I use Nature-throid which is just another manufacturer like Armor, of the natural dessicated thyroid. My doc says those with auto-immune thyroid disorders seem to fare better on the natural stuff, though he doesn't have any reason why that is specifically -- it's just what he has observed in his patients. So that's what he suggested I start with and it's worked well for me (but never went the synthroid/cytomel route so I can't compare). I also have a host of other vitamins/supps I take to help out with accessory issues. Those include Vitamin D, magnesium, DHEA and metformin (I've got insulin resistance too, which the doc says is common in in long untreated hypo patients but it may not be necessary in the long run once I get down to my ideal weight) in addition to a multi-vitamin, omega-3s and probiotics.

    I've found that once I got all of this figured out, I lose weight right in line with my calculated deficits (so far). I learned the hard way recently about how important DHEA was for me -- I stopped taking it for some stupid reason and my weight loss totally stalled. I also track/weigh everything I eat, so I know exactly what I'm consuming. But, I'm hoping that once I get to my ideal weight, I won't need to do this so scrupulously -- we'll see.

    I also lift 3x per week (Starting Strength) and walk a lot as my main exercise with a session of HIIT or two per week. I tend to eat a Primal diet for the most part (sort of Paleo with dairy) and am currently doing a carb cycling leangain style program (I was doing low carb, but found the cycling works better for me). For me, this combination is working well. But, it's been a very long road to find that combination that works well for me. I always love to hear about others' experiences and what worked best for them.
  • StarryG
    StarryG Posts: 10 Member
    I'm a non-hashi hypo (doesn't that sound evil! *grin*) and in the same boat as a lot of others, where I thought that once I was diagnosed and got the pills, everything would be good again. And it wasn't. And it still isn't. I'm hoping to one day find a GP that will be knowledgeable about Hypothyroidism and doesn't shut down my questions just because of their fake belief that if my TSH is within "normal" range, there is nothing wrong with me and it is all in my head. To top it all off, I have been diagnosed with Early Onset Menopause at the ripe old age of 43.

    I'm basically starting over with Jillian Michaels DVDs (I love her to bits!), in particular the 30 Day Shred six days a week, and completing the Couch to 5K three times a week. I know that I feel better when I have regular exercise, and I am hoping that the Hypo won't stop me from doing it due to tiredness issues.

  • irleshay
    irleshay Posts: 102 Member
    Hypo here, non-Hashi. I've had it 10 or 11 years now, and am on Synthroid. Lost 25 pounds, and have been in maintenance for about a year and a half.
    OP, I sent you a friend request. Anybody else can feel free to send me one.
  • ZanetaBrommer
    ZanetaBrommer Posts: 5 Member
    Hi there. Hypo as well. Had thyroid taken out so that triggered it. Have tracked calories for years and was gaining weight no matter what I did. Finally doctor's found that I needed to take it out as I had a goiter. Now on synthoid and trying to get back to the weight I was before I had my daughter 10 years ago. 50lb to go. Feel free to friend me as well.
  • mzfrizz15
    mzfrizz15 Posts: 135 Member
    I'm hypo as well and I've had it at least 10 years. I'm finally losing weight now that I'm under the care of a good endocrinologist and internist. Feel free to add!
  • Betti2
    Betti2 Posts: 30 Member
    Hypo here 15 year struggle, Had biospy 7 years ago mine were benign...I keep a close watch on things. I take a NDT. Hope all goes ok for you, feel free to add me.
  • onlymugwump
    onlymugwump Posts: 4 Member
    I'm hypo too, diagnosed after the birth of number 1 son 14 yrs ago, I take levothyroxine and find it near impossible to lose weight despite lost of exercise and not eating more than 1400 cals a day. How's has everyone else lost weight ? Would love some ideas on how to control my thyroid xx
  • Hypo and hashi for the past 15 years. Anyone from the Orlando fl area?
  • Hi! I am hypo due to having thyroid cancer and total thyroidectomy, going on two years in August.
  • beeceezee
    beeceezee Posts: 46 Member
    Hey guys! I am not new around here, but my weight has spiked to its highest ever. I have a Hypoactive thyroid and not officially diagnosed with Hashimoto's, but dr says most likely I do have it. I'm also looking for some support as I have around 75 to lose. Feel free to add me.
  • deschepperc12
    deschepperc12 Posts: 4 Member
    I am new here and have hypo as well long line of bad family health history. Because I was told once a old autoimmune disease there's more to come. I also have psoriasis. I am 22 now and was diagnosed with it in the 6th grade. Years and years on and off the medication because I personally don't like to take medication, I started a pattern of taking it regularly once I got pregnant because the outcome of my baby without it could have been bad. So now battling my thyroid to loose weight and baby weight I'm ready for it to come off and stay off.
  • countrygirl336
    countrygirl336 Posts: 15 Member
    edited February 2015
    Hi all! I'm hypo after having RAI a few years ago to treat Graves Disease. I haven't been on meds for two years because I have heart palpitations and my doctor is afraid of giving me synthroid. I've seen 3 doctors last year, and I've given up on modern medicine to treat this evil disease! I've been self-medicating with FOOD. I've switched from regular salt to iodized salt, I eat more sushi, I drink more water, I drink red wine almost every day, I drink Bolthouse nutritional drinks, protein shakes, eat veggies every day, only eat beef once or twice a week, and I take MSM (sulphur) along with Garcinia Cambogia. This is just a small glimpse into what I've been doing since I've been under-medicated. So far so good. Even though I still can't lose weight, I haven't gained any either, so whatever.

    I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx
  • Hypo! Add me! Having trouble losing weight but I had stopped my thyroid medicine for 6 months dumb choice ended up in the er because I was having narcolepsy spells while driving and my thyroid levels were over 900 and now it's back to normal but out of meds again and already feel so horrible after 2 days
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    Country girl 336. "I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx[/quote]
    ............................................................................................................................................

    Thank you for these links.

    It has been good to read information I discovered else where and better to read what I had not found for myself. Your calorie calculator equation, weight x calorie per kg certainly gives substance to my own thoughts that I have not been eating enough to give me the minerals I need. It seems I too could have more than 2000.

    This certainly is food for thought. and maybe digestion.
  • allergictodiets
    allergictodiets Posts: 233 Member
    edited February 2015
    Thanks for the links. I've seen Mary's article before - I would like to know whether the amount of calories the equation gives me is netto or brutto, i.e. whether I should eat my exercise calories back.
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