New (okay, back, not new) and looking for HYPO friends

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  • Betti2
    Betti2 Posts: 30 Member
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    Hypo here 15 year struggle, Had biospy 7 years ago mine were benign...I keep a close watch on things. I take a NDT. Hope all goes ok for you, feel free to add me.
  • onlymugwump
    onlymugwump Posts: 4 Member
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    I'm hypo too, diagnosed after the birth of number 1 son 14 yrs ago, I take levothyroxine and find it near impossible to lose weight despite lost of exercise and not eating more than 1400 cals a day. How's has everyone else lost weight ? Would love some ideas on how to control my thyroid xx
  • Lindachilikjohnson
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    Hypo and hashi for the past 15 years. Anyone from the Orlando fl area?
  • barbdevine89
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    Hi! I am hypo due to having thyroid cancer and total thyroidectomy, going on two years in August.
  • beeceezee
    beeceezee Posts: 46 Member
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    Hey guys! I am not new around here, but my weight has spiked to its highest ever. I have a Hypoactive thyroid and not officially diagnosed with Hashimoto's, but dr says most likely I do have it. I'm also looking for some support as I have around 75 to lose. Feel free to add me.
  • deschepperc12
    deschepperc12 Posts: 4 Member
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    I am new here and have hypo as well long line of bad family health history. Because I was told once a old autoimmune disease there's more to come. I also have psoriasis. I am 22 now and was diagnosed with it in the 6th grade. Years and years on and off the medication because I personally don't like to take medication, I started a pattern of taking it regularly once I got pregnant because the outcome of my baby without it could have been bad. So now battling my thyroid to loose weight and baby weight I'm ready for it to come off and stay off.
  • countrygirl336
    countrygirl336 Posts: 15 Member
    edited February 2015
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    Hi all! I'm hypo after having RAI a few years ago to treat Graves Disease. I haven't been on meds for two years because I have heart palpitations and my doctor is afraid of giving me synthroid. I've seen 3 doctors last year, and I've given up on modern medicine to treat this evil disease! I've been self-medicating with FOOD. I've switched from regular salt to iodized salt, I eat more sushi, I drink more water, I drink red wine almost every day, I drink Bolthouse nutritional drinks, protein shakes, eat veggies every day, only eat beef once or twice a week, and I take MSM (sulphur) along with Garcinia Cambogia. This is just a small glimpse into what I've been doing since I've been under-medicated. So far so good. Even though I still can't lose weight, I haven't gained any either, so whatever.

    I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx
  • smasters2014
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    Hypo! Add me! Having trouble losing weight but I had stopped my thyroid medicine for 6 months dumb choice ended up in the er because I was having narcolepsy spells while driving and my thyroid levels were over 900 and now it's back to normal but out of meds again and already feel so horrible after 2 days
  • Fuzzipeg
    Fuzzipeg Posts: 2,299 Member
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    Country girl 336. "I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx[/quote]
    ............................................................................................................................................

    Thank you for these links.

    It has been good to read information I discovered else where and better to read what I had not found for myself. Your calorie calculator equation, weight x calorie per kg certainly gives substance to my own thoughts that I have not been eating enough to give me the minerals I need. It seems I too could have more than 2000.

    This certainly is food for thought. and maybe digestion.
  • allergictodiets
    allergictodiets Posts: 233 Member
    edited February 2015
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    Thanks for the links. I've seen Mary's article before - I would like to know whether the amount of calories the equation gives me is netto or brutto, i.e. whether I should eat my exercise calories back.
  • kkauz42
    kkauz42 Posts: 537 Member
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    Hi all! I am hypo non hashi as well! I was diagnosed about 5-6 years ago but was symptomatic well before! I am almost 30 and newly single after a 5+ year relationship! I am focused and want to look better for myself and I'm excited to see who I meet!

    I also have had trouble losing weight which my naturopath told me is normal with hypo. I was on levothyroxine but switched to armour about a year ago or so.

    As for workouts, I am following a 12 week plan. I lift 4-5 days/week and have sports 2x/week! Anyone who wants to, feel free to add me.
  • RatherBeInTheShire
    RatherBeInTheShire Posts: 561 Member
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    Hypo/hashi's here! Just diagnosed last week. Feel free to add me~
  • RebuildingMyself
    RebuildingMyself Posts: 70 Member
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    Hypo here, non-Hashi. I was only officially diagnosed last year, so I have only been dealing with this for a couple of months. I am on Synthroid. Just starting to try to lose weight.
    Feel free to send me a friend request.
  • kkauz42
    kkauz42 Posts: 537 Member
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    Hashi's here too. I was diagnosed about a year ago, though I'd suspected a thyroid problem for 10+ years. After several docs, I finally forked over the dough for an out-of-pocket thyroid specialist, got the diagnosis and treatment.

    For thyroid, I use Nature-throid which is just another manufacturer like Armor, of the natural dessicated thyroid. My doc says those with auto-immune thyroid disorders seem to fare better on the natural stuff, though he doesn't have any reason why that is specifically -- it's just what he has observed in his patients. So that's what he suggested I start with and it's worked well for me (but never went the synthroid/cytomel route so I can't compare). I also have a host of other vitamins/supps I take to help out with accessory issues. Those include Vitamin D, magnesium, DHEA and metformin (I've got insulin resistance too, which the doc says is common in in long untreated hypo patients but it may not be necessary in the long run once I get down to my ideal weight) in addition to a multi-vitamin, omega-3s and probiotics.

    I've found that once I got all of this figured out, I lose weight right in line with my calculated deficits (so far). I learned the hard way recently about how important DHEA was for me -- I stopped taking it for some stupid reason and my weight loss totally stalled. I also track/weigh everything I eat, so I know exactly what I'm consuming. But, I'm hoping that once I get to my ideal weight, I won't need to do this so scrupulously -- we'll see.

    I also lift 3x per week (Starting Strength) and walk a lot as my main exercise with a session of HIIT or two per week. I tend to eat a Primal diet for the most part (sort of Paleo with dairy) and am currently doing a carb cycling leangain style program (I was doing low carb, but found the cycling works better for me). For me, this combination is working well. But, it's been a very long road to find that combination that works well for me. I always love to hear about others' experiences and what worked best for them.

    Is there a site that you use to get your calories for the carb cycling? I did zig zagging a while back(basically the same thing) and it seemed to work well while I was focused. I think I may try it again!
  • kkauz42
    kkauz42 Posts: 537 Member
    Options
    Hi all! I'm hypo after having RAI a few years ago to treat Graves Disease. I haven't been on meds for two years because I have heart palpitations and my doctor is afraid of giving me synthroid. I've seen 3 doctors last year, and I've given up on modern medicine to treat this evil disease! I've been self-medicating with FOOD. I've switched from regular salt to iodized salt, I eat more sushi, I drink more water, I drink red wine almost every day, I drink Bolthouse nutritional drinks, protein shakes, eat veggies every day, only eat beef once or twice a week, and I take MSM (sulphur) along with Garcinia Cambogia. This is just a small glimpse into what I've been doing since I've been under-medicated. So far so good. Even though I still can't lose weight, I haven't gained any either, so whatever.

    I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx

    Has anyone or is anyone currently eating the calories suggested from the about.com article? I am tempted to try but it makes me nervous!
  • lindsey1979
    lindsey1979 Posts: 2,395 Member
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    kkauz42 wrote: »
    Hashi's here too. I was diagnosed about a year ago, though I'd suspected a thyroid problem for 10+ years. After several docs, I finally forked over the dough for an out-of-pocket thyroid specialist, got the diagnosis and treatment.

    For thyroid, I use Nature-throid which is just another manufacturer like Armor, of the natural dessicated thyroid. My doc says those with auto-immune thyroid disorders seem to fare better on the natural stuff, though he doesn't have any reason why that is specifically -- it's just what he has observed in his patients. So that's what he suggested I start with and it's worked well for me (but never went the synthroid/cytomel route so I can't compare). I also have a host of other vitamins/supps I take to help out with accessory issues. Those include Vitamin D, magnesium, DHEA and metformin (I've got insulin resistance too, which the doc says is common in in long untreated hypo patients but it may not be necessary in the long run once I get down to my ideal weight) in addition to a multi-vitamin, omega-3s and probiotics.

    I've found that once I got all of this figured out, I lose weight right in line with my calculated deficits (so far). I learned the hard way recently about how important DHEA was for me -- I stopped taking it for some stupid reason and my weight loss totally stalled. I also track/weigh everything I eat, so I know exactly what I'm consuming. But, I'm hoping that once I get to my ideal weight, I won't need to do this so scrupulously -- we'll see.

    I also lift 3x per week (Starting Strength) and walk a lot as my main exercise with a session of HIIT or two per week. I tend to eat a Primal diet for the most part (sort of Paleo with dairy) and am currently doing a carb cycling leangain style program (I was doing low carb, but found the cycling works better for me). For me, this combination is working well. But, it's been a very long road to find that combination that works well for me. I always love to hear about others' experiences and what worked best for them.

    Is there a site that you use to get your calories for the carb cycling? I did zig zagging a while back(basically the same thing) and it seemed to work well while I was focused. I think I may try it again!

    I didn't use a specific site or calculator, but I read up on a few different sites. Since I was doing the leangains style carb cycling, I basically started with my TDEE (my average TDEE is around 2800 because I lift 3x week and walk 8+ miles plus 5 days/week), figured out how many calories that was for the week, put in how much I wanted to cut (1.2-1.3 lbs/week) and then calculated as follows:

    On lifting days: TDEE - 300 (so usually total calories of 2500 or so).
    On resting days: Calories would be TDEE - 1000 (1800 or so).

    I'd be sure to hit my protein everyday, which for me is 156 g (1.2g per 1 lb LBM). Then on lifting days, I'd aim for about 55 g fat, and the rest in carbs (which was 300+). On rest days, it was the opposite. I'd still hit 156 g protein, about 70 g carbs and then the rest fat -- which was about 100 g fat.

    True leangains will be a little more extreme depending on what you're looking to do (lean bulk, body recomp or cut). Since I was looking to lose fat (i.e cut), I ran deficits both days, but my lifting days was much closer to my TDEE and somedays it was at my TDEE. If I was just body recomping, then the lifting day cals would be slightly higher than my TDEE on lifting days and lower on rest days so the weekly average would be no net change. Bulk, of course, more calories overall than your TDEE.

    I personally like this calculator a good deal because it lets you vary your protein needs, adjust for activity level, put in your body fat percentage if you know it and customize the cut/gain (I opted for -10% on lifting days and -35% on rest days since I was cutting). Whatever you start with, you'll have to adjust as you go, especially if you don't really know your TDEE yet.

    http://sareyko.net/leancalc/#/g=male/a=NaN/w=NaN/h=NaN/b=NaN/m=1.2/r=-20/t=20/p=2.5/e=NaN

  • lindsey1979
    lindsey1979 Posts: 2,395 Member
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    kkauz42 wrote: »
    Hi all! I'm hypo after having RAI a few years ago to treat Graves Disease. I haven't been on meds for two years because I have heart palpitations and my doctor is afraid of giving me synthroid. I've seen 3 doctors last year, and I've given up on modern medicine to treat this evil disease! I've been self-medicating with FOOD. I've switched from regular salt to iodized salt, I eat more sushi, I drink more water, I drink red wine almost every day, I drink Bolthouse nutritional drinks, protein shakes, eat veggies every day, only eat beef once or twice a week, and I take MSM (sulphur) along with Garcinia Cambogia. This is just a small glimpse into what I've been doing since I've been under-medicated. So far so good. Even though I still can't lose weight, I haven't gained any either, so whatever.

    I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx

    Has anyone or is anyone currently eating the calories suggested from the about.com article? I am tempted to try but it makes me nervous!

    I personally find this about.com article AWFUL for calories -- it's going to vary so much for a person with different activity levels that it is pretty much meaningless. Literally, if I have a day where I'm totally sedentary, I burn about 2000 calories. If I have an "average day at work" (for me has 8+ miles on my treadmill desk) and lift that night, I burn over 3000 calories for the day. That's a HUGE difference and wouldn't be accounted for at all in this article.

    You're much better off getting a conservative estimate for your TDEE, which you generally start with your BMR and then add activity on, then adjust over the longterm based on what your results are (i.e. your initial TDEE calculation may be too high or too low based on what you're actually losing). Many start conservatively and just put a sedentary into TDEE calculators and start there. You can find quite a few calculators online.

    Or if you really like gadgets, look into getting one of the bodymedia fit devices. You wear it on your upper arm and it tracks your calories through the day. I have one and LOVE it and have found it to be very, very accurate.
  • helenleeeeee
    helenleeeeee Posts: 12 Member
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    Hi! I Just got diagnosed hypo this week. Started with Synthroid 25mcg. Would love some more friends on here, especially hypo.
  • kkauz42
    kkauz42 Posts: 537 Member
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    kkauz42 wrote: »
    Hi all! I'm hypo after having RAI a few years ago to treat Graves Disease. I haven't been on meds for two years because I have heart palpitations and my doctor is afraid of giving me synthroid. I've seen 3 doctors last year, and I've given up on modern medicine to treat this evil disease! I've been self-medicating with FOOD. I've switched from regular salt to iodized salt, I eat more sushi, I drink more water, I drink red wine almost every day, I drink Bolthouse nutritional drinks, protein shakes, eat veggies every day, only eat beef once or twice a week, and I take MSM (sulphur) along with Garcinia Cambogia. This is just a small glimpse into what I've been doing since I've been under-medicated. So far so good. Even though I still can't lose weight, I haven't gained any either, so whatever.

    I found an article which helps you to calculate how much you're supposed to be eating to lose weight with a thyroid problem. Maybe I really do need to eat more calories. I usually eat between 1500-1700, but when I did the math from the article, I'm supposed to be eating 2015 freaking calories per day to LOSE weight! That's right....to LOSE weight.

    Hope this helps if you're trying to lose weight.
    Iodine Article: http://www.thyroid.org/iodine-deficiency/
    Article about calories: http://thyroid.about.com/cs/dietweightloss/a/eatingenough.htm
    Article about sulphur: http://articles.mercola.com/sites/articles/archive/2011/09/12/the-third-abundant-mineral-in-your-body-are-you-getting-enough.aspx

    Has anyone or is anyone currently eating the calories suggested from the about.com article? I am tempted to try but it makes me nervous!

    I personally find this about.com article AWFUL for calories -- it's going to vary so much for a person with different activity levels that it is pretty much meaningless. Literally, if I have a day where I'm totally sedentary, I burn about 2000 calories. If I have an "average day at work" (for me has 8+ miles on my treadmill desk) and lift that night, I burn over 3000 calories for the day. That's a HUGE difference and wouldn't be accounted for at all in this article.

    You're much better off getting a conservative estimate for your TDEE, which you generally start with your BMR and then add activity on, then adjust over the longterm based on what your results are (i.e. your initial TDEE calculation may be too high or too low based on what you're actually losing). Many start conservatively and just put a sedentary into TDEE calculators and start there. You can find quite a few calculators online.

    Or if you really like gadgets, look into getting one of the bodymedia fit devices. You wear it on your upper arm and it tracks your calories through the day. I have one and LOVE it and have found it to be very, very accurate.

    I have a Fitbit charge HR and so far a really like it!! I got an idea for my TDEE and have it as sedentary so I will eat back my exercise calories (or try to). I also have the calorie plan for zigzagging so I'm going to try it again! Thank you so much for all your input and information!