Let It Out Room

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Replies

  • yasef13
    yasef13 Posts: 63 Member
    cjdsign wrote: »
    HEY Everyone,
    I blew up over there in the other room and realized it was here that I should have exploded...LOL here it is...
    Here is one of my experiences that still blows my mind. Back in my 4th year of my disability,(now 20+) I had a Dr tell me it was all in my head. He stopped the meds, made me go to a shrink (no offense, I do think some are Fantastic and helpful-not this one) who told me my "problem" was not my back, butt, legs, feet, or the disabling sciatica, but my "Mother issues". I dropped him and walked out. The DR next made me go through a barrage of tests, including a "Disc O Gram"; for those of you who have never had one, they lay you out on a table, NAKED and no covering. They use NO ANESTHETICS what so ever!! Not even a topical and they drive needles into your discs to see if you are "truly in pain". Sick sadistic people..oopsie, I'm ranting... when you scream and cry and plead that they stop, they continue... When it was over, I was a wreck. I was then to drive myself home and still no pain meds. THEN a week later I get a call from this "MY" Dr who calls me in immediately for a consultation on the results. NO LIE, he walks in crying and tells me how sorry he is and that it was just a mistake and that he will have me scheduled with the neurosurgeon to get my back checked. When I asked, "what is wrong?" He says, still crying to me, "One of your screws has gone through your disc and it is causing all the trouble and pain. I left with 4 scrips for meds and a new dr apt. I never went back and to this day, I know he did not want me to take him to the cleaners. I wish he would had known I was not like that. Still am not like that. Moral of this story, if you get a "Dr test" you don't know about, google it, be informed and then get a second opinion! Hugs to you all, Oh Yes, I love water pt! I walk and do calisthenics in the deep end on a noodle around my under my arms. Gentle Hugs ! CJ
    Are you friggin kidding me??? I thought I had it bad, struggling for 5 years to get a diagnosis!
    I am so sorry you had to go through this, sweetheart. The nerve of some doctors!!! Why do they not just give the patient the benefit of the doubt?!! How hard is that? You know your own body, and you know what pain feels like!!
    This makes me so upset. I can only imagine how you felt during that barbaric "test"!
    Extremely gentle hugs to you as well.
  • loobe1066
    loobe1066 Posts: 206 Member
    cjdsign wrote: »
    HEY Everyone,
    I blew up over there in the other room and realized it was here that I should have exploded...LOL here it is...
    Here is one of my experiences that still blows my mind. Back in my 4th year of my disability,(now 20+) I had a Dr tell me it was all in my head. He stopped the meds, made me go to a shrink (no offense, I do think some are Fantastic and helpful-not this one) who told me my "problem" was not my back, butt, legs, feet, or the disabling sciatica, but my "Mother issues". I dropped him and walked out. The DR next made me go through a barrage of tests, including a "Disc O Gram"; for those of you who have never had one, they lay you out on a table, NAKED and no covering. They use NO ANESTHETICS what so ever!! Not even a topical and they drive needles into your discs to see if you are "truly in pain". Sick sadistic people..oopsie, I'm ranting... when you scream and cry and plead that they stop, they continue... When it was over, I was a wreck. I was then to drive myself home and still no pain meds. THEN a week later I get a call from this "MY" Dr who calls me in immediately for a consultation on the results. NO LIE, he walks in crying and tells me how sorry he is and that it was just a mistake and that he will have me scheduled with the neurosurgeon to get my back checked. When I asked, "what is wrong?" He says, still crying to me, "One of your screws has gone through your disc and it is causing all the trouble and pain. I left with 4 scrips for meds and a new dr apt. I never went back and to this day, I know he did not want me to take him to the cleaners. I wish he would had known I was not like that. Still am not like that. Moral of this story, if you get a "Dr test" you don't know about, google it, be informed and then get a second opinion! Hugs to you all, Oh Yes, I love water pt! I walk and do calisthenics in the deep end on a noodle around my under my arms. Gentle Hugs ! CJ

    I am speechless CJ I am sorry you had to experience all that. I have learnt over the years that Dr's are not gods and they don't know every thing. I have learnt this mainly through working with Dr's rather than personal experience. I do however know from personal experience if Dr's cannot find a physical cause they are inclined to believe you are imagining it. I sometimes think people taking advantage of the system for benefits or whatever has made some Dr's disbelieve what genuine people say, especially when you have had treatment to resolve the issue. When people talk about their GP (general practitioner) I tend to think of the saying "Jack of all trades, master of none". This is because they know a bit about everything and will refer you to a specialist Dr.
    You certainly are a strong and inspiring lady
  • loobe1066
    loobe1066 Posts: 206 Member
    When knee replacement was first mentioned I was scared stupid and so against the idea. However today the pain in my knee has been so bad nearly every step I have taken I have known about it now this evening I keep getting pain in knee where it's bone on bone. The way I am feeling at the moment if I am offered a knee replacement when I next see consultation I will probably ask him to replace my knee. I just hope steroid injection works. Due to constant pain I am having difficulty dealing with work stress even had the consultation I work under come to see what was wrong with me and I ended up bawling my eyes out telling her. On leave next week so gonna catch up on paperwork over the weekend then forget about work for a week
  • cjdsign
    cjdsign Posts: 202 Member
    loobe1066 wrote: »
    When knee replacement was first mentioned I was scared stupid and so against the idea. However today the pain in my knee has been so bad nearly every step I have taken I have known about it now this evening I keep getting pain in knee where it's bone on bone. The way I am feeling at the moment if I am offered a knee replacement when I next see consultation I will probably ask him to replace my knee. I just hope steroid injection works. Due to constant pain I am having difficulty dealing with work stress even had the consultation I work under come to see what was wrong with me and I ended up bawling my eyes out telling her. On leave next week so gonna catch up on paperwork over the weekend then forget about work for a week


    Oh my gosh loobe1066~~~ I am so so sorry you are dealing with so much knee pain! I do feel for you! It is terrible to be in such pain and I for one am a wimp!! My dad swears by knee replacements and he is 76 this year. He and mom walk 5 mls a day, still! So there is a bit of encouragement for you. They are for me!! Hugs and let us know what the dr says. CJ
  • loobe1066
    loobe1066 Posts: 206 Member
    @cjdsign thanks for your kind words of support. Thankfully steroid injection has helped enjoying my holiday done quite a bit of walking this week. I see consultant orthopod in a weeks time.
  • BinaryFu
    BinaryFu Posts: 240 Member
    cjdsign wrote: »
    HEY Everyone,
    I blew up over there in the other room and realized it was here that I should have exploded...LOL here it is...
    Here is one of my experiences that still blows my mind. Back in my 4th year of my disability,(now 20+) I had a Dr tell me it was all in my head. He stopped the meds, made me go to a shrink (no offense, I do think some are Fantastic and helpful-not this one) who told me my "problem" was not my back, butt, legs, feet, or the disabling sciatica, but my "Mother issues". I dropped him and walked out. The DR next made me go through a barrage of tests, including a "Disc O Gram"; for those of you who have never had one, they lay you out on a table, NAKED and no covering.

    I know how you feel. After my accident (28 years ago) I kept telling them something was wrong with my lower back. They never believed me (MRI machines were transported in 18 wheelers back then and so very seldom used) and eventually pawned me off on a chiropractor who worked for the auto insurance company, basically.

    He tried to pull a fast one thinking he could prove I was faking and slapped me on my lower back in what might have been considered a joking fashion (save for the point that you have someone with an injured lower back in your office being SEEN for said condition) weeeelllll...

    That was one of the only times in my life that I was thankful for two things.

    One, for years of martial arts training. You know the kind..."When you have just been struck with a debilitating blow - groin or vital area, know that you have seconds to react. Make sure your opponent does not have a chance to continue the assault when you go down..."

    Two, my PTSD. Yep...because of that, when they had to call the cops due to my reaction to him hitting me...well...the cops knew me, knew me as one of the good guys and their first question to them was, "WTF did you do to him?"

    So, no charges were filed and I don't think that doctor ever did that to another patient again. We'll leave the details of what happened to the imagination, shall we? :) Cool.

    Of course, the problem was, after that I gave up on doctors, seeing most of them as pocket pals to corporations, insurance firms, etc. Everyone had an angle as far as I was concerned and I just wouldn't go back.

    So, I suffered in pain for 28 years. Now, things appear to be looking up. Something that was never diagnosed (Still have no clue what joint damage was done back then, I just have the scarring and the arthritis from it now...) and had completely altered my life as the years dragged on...may be gone from my life now in only a couple months.

    I mean, when you think about it...I've had it for 28 years. I received it at 19...I've lived with it now for longer than I have been without it.

    Freaky.

    So yeah...your "procedure" that they inflicted you with...wow...If that had been done to me...I think they would have had a total Wolverine situation on their hands. No bueno.
  • rce884
    rce884 Posts: 47 Member
    so i am new to this group but this looks like the place for me. (sorry for barging in like a bull in a china shop) i will not go into a lengthy who i am you can check my profile or friend me if you want all that. (which i dont mind at all!) but for now i need a bit of a rant
    I am having bariatric surgery this winter. which is fine but my knee surgery was due for this winter too. so now i have to wait. my psychiatrist said i cant mentally handle two at once. (yes i have a severe mental illness as well as messed up knees and weight issues) my knees have had surgery when i was a child. 3 times before 16. but when it got harder and harder to walk the last 5 years i had to start using a cane. my partner was like, this is ridiculous, we are not getting any younger and you are so limited. everything makes everything else worse. the bad knee makes it (as you all know) so hard to exercise. the meds make the weight gain. the weight makes the knees hurt. and the mental illness causes stress eating. and the weight makes the mental illness worse. i thought i needed a knee replacement but when i went to the surgeon he said no. not only was it not just arthritis, and not just the one knee it was both knees and what he called "bio-mechanical failure" they are built wrong. the muscle cannot develop because of the shape of the bones. it is a major surgery and i will have to have it twice. it is 4-6 month recovery for each surgery. not just a few months of physio. as i am sure you all know it is long term and lots of pain. so now the firs knee surgery is put off till next summer. i am just sick and tired of being sick and tired. everything is such an effort. and people look at me and i can feel their judgement. thank you for giving me a place to rant. thank you so much
  • loobe1066
    loobe1066 Posts: 206 Member
    Hi rce, sorry to hear all you are going through. I myself have arthritic knees and have delayed having a partial knee replacement for 6 months, I may request it sooner if I can't control the pain. I know it must be very frustrating for you if you have psyched yourself up for both operations only to be told you can only have one.
    As you say each has a negative impact on each other. I can see the benefits of delaying knee surgery for a few months, 1- it will give you chance to recover from anaesthetic, 2- having the bariatric surgery first means being lighter for second op so hopefully less risky and better for you, 3 being lighter has got to be better for your knees 4-hopefully being lighter will aid recovery from knee op.
    I know it is hard but sometimes we have to look for that silver lining otherwise we would just give up. Having said all that it doesn't lessen the frustration you are feeling right now. Hopefully the psychiatrist has your best interests at heart.
    Lou
  • cjdsign
    cjdsign Posts: 202 Member
    @rce884 You are so right about this being the place where you can really let it all out and not be judged! I know that pain dictates life and Dr's think they are gods. I, for one, only believe in one God! And saying that, most human Dr's fall very short of that line. Most, not all.
    Lou says it all and she is right. Try not to get yourself down with date change of the one surgery. Like Lou mentioned, you will be lighter and therefore, you will have a better chance of getting good results from the knee surgery later on.
    As far as the pain, yeah, we all have it, but we all also understand you! Many of us are disabled due to the pain and daily struggle not only with our abilities, but with our brains also. My brain says, "CJ you are not disabled, let's go do this... and wham... I am flat out for 3 days. You are doing a good thing by contacting others. Keeping it all bottled in only brings on sickness & possible heart attacks. I've had my share and So I do let it out!! Welcome to the group! Add all of us on your friends list so that we can follow your progress too! Let us know when the surgery is closer what the day is. And take care of yourself. Gentle Hugs, CJ
  • rce884
    rce884 Posts: 47 Member
    Thank you Loobe 1066 and cjdsign, you are both so kind to reply to my rant. i feel better today but it was a difficult day that day. you are both right being lighter will help my knee and i want the bariatric done as soon as possible. so it will just have to wait. i am very fortunate to have a great doctor (psychiatrist) who is really in touch with what is good for me. whether i know what that is myself or not. i will keep you all updated on my surgery date. thanks again
    Rce884
  • loobe1066
    loobe1066 Posts: 206 Member
    I have come to the conclusion I am fed up with my life. I am sitting here feeling sorry for myself. The reason I am feeling sorry for myself is not due to hubby or work. It's partly due to pain in knees stopping me from doing what I want but mainly because I am a woman and my hormones are a moaning making me feel miserable and I don't like feeling this way. I have reached peri menopause and just hope it doesn't go on for years and years and years. But Murphy's law and my luck I have 5 to 10 yrs of this to look forward too. I am unable to have HRT due to previous DVT and an already increased risk of DVTs. That's it rant over
  • cjdsign
    cjdsign Posts: 202 Member
    @loobe1066
    "I have come to the conclusion I am fed up with my life. I am sitting here feeling sorry for myself. The reason I am feeling sorry for myself is not due to hubby or work. " @loobe1066 I do think it is much due to the menopause, sadly, it has been 11 years so far and I still have the hot flashes and mood swings. I am currently reading a book called, "Life on the Rock" it is good and has wonderful "changes" that help get you & hubby through tough times. But, that being said, Yesterday, I ranted, and I ranted loud. Hubby broke some of my boxed photos (glass) and knocked over a bunch of boxes in the garage and I blue a gasket!!! Or a half dozed!!! And I was so upset that my bp was out of this world at 145/101, when I went to the dentist a few hours later. It was awful! B) Mostly due to the fact that I have this brace on my hand and a sprained acu joint and then can't to anything!!! I can't cook, clean, type...it's ouchie, do laundry, can my veggies or fruits, do any "normal" activity!!! AHHHHHH!!!! And then the back pain, neck pain and sciatica... I'm a mess and yeah, yesterday it all came to a head. I then went to cut my meat, and it slid off the plate.... not a great time of it! So dear Lou, enjoy ranting, letting it out, and don't bottle it in. I hope things work out with hubby and work and you take care of yourself. Sorry it took so long in writing back, ouchie hand is making that difficult!! Gentle hugs, CJ <3
  • rce884
    rce884 Posts: 47 Member
    Loobe1066, i am approaching the time of peri menopause and my partner is just starting hers. it is a tough road to hoe. i have been reading about it ( as i am sure you have too) it is just part of that magic we call life. but i will be sending you hugs (not a great reassurance) but i will be thinking of you and know that you are valuable even if you cant see it right now. you have purpose and love in your life. you are worth it. worth getting up for worth striving for, worth fighting the good fight for.
    you go girl
  • cjdsign
    cjdsign Posts: 202 Member
    edited December 2016
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    OK! So here it is...
    I was due to have this great pain inhibitor implanted in 2014 in my hip. So, what are the Dr.s goals for me? Loose weight, get stronger. I start loosing weight, walking 30 mins per day, dropped 35 lbs. Then I fall, sprain the right wrist, separate my shoulder, and hit my neck into a box, revealing my sever arthritis in the whole of my neck.2015 Gain all that weight back. 2016Again in PT. & water PT. get better, then I fallnow my left wrist and elbow are sprained. Back in water PT. get better. Then I have teeth pulled,fixed and face pain... Then I have chest pain, heart tests, the angina is back, Dr says "NO PT, no walking". This is crazy.
    So then...I had a bad fall and sprained my knee, tore ligaments and a possible fracture . I am ok. God is good and no bones broke so I will just need to heal. I know that the closer I get to God, the more the devil hates it. But I will not blame God, as He did not do this to me. And He will help me heal quickly.
    I am a bit battered and bruised, nothing that won't heal. I fell when my right knee gave out and my right foot slipped off the landing step. My left knee was inside the door bent and could not take the weight. It bent to the left with my foot and the knee went to the right. I got wedged inside the door frame. I screamed for 5 mins till dad herd me and came to save me. We went to the hosp ER I just have a metal wrap.and I will go again on tues. I am requesting MRI for my knee. I have a black eye with having hit the door frame on the left of my face and bruised ribs from falling into the wall with my right back. bruises and scrapes will heal. God is good and gracious and I am His living testimony!2017 I'm looking for my new body that is stronger for all that it has been through in the past years!! God Bless you all my friends!! CJ

    UPDATE* I go to the Orthopedic Dr again the first week of Jan! Therapy for the knee and Pool PT. So for now, let the knee swelling go down...patience is a dirty word since I wanted my Christmas tree up and it is the 21st!! Breathe, let it out, Breathe, and repeat... hahaha Merry Christmas to my delightful & encouraging friends! CJ
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  • loobe1066
    loobe1066 Posts: 206 Member
    Sorry to hear you have been in the wars again cj I hope you heal quickly. Sending positive vibes your way. Happy New Year
  • cjdsign
    cjdsign Posts: 202 Member
    Thank You Lou! I have up and down days, company coming and want the house cleaned...but that will have to just be as well as I can do it. Thank you for the positive, it is such a comfort to know you are out there for me, my friend! Happy New Year to you and keep us updated! Hugs, CJ
  • moobaloo13
    moobaloo13 Posts: 11 Member
    Hey guys, it's been a lonnnng time since I last posted anything or even logged in my food diary on mfp.

    I'm utterly disgusted at myself and how far I've let myself slide over the last year. I'm now the heaviest & biggest I've ever been & I'm so embarrassed and yes, ASHAMED. I am the first person to support body positivity for every other person except myself! Why?! 😞

    The last year has been really stressful - I started my own business part-time, my ASD son is difficult to motivate & live with and my brother is a manipulative, narcissistic s*** and gas managed to practically tear our family to shreds and made my parents I'll with stress. It's been A LOT. It still is. And, if I'm honest with myself, I've been comfort eating to deal with the stress of it all, plus the physical exhaustion & pain of my disabilities.

    I've got to the point where I've just thought "F*** it, I'm fat, I can't lose weight so why bother trying?" But it's affecting my physical & mental health and I need to start trying again. I'm 40 in 12 days. I don't want to start another decade of my life feeling like this. 😭

    Thanks for reading if you made it this far! Just needed to actually let it all out.
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