Any one here have diabetes ?

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katdanash
katdanash Posts: 1,390 Member
I found out very recently the my pre diabetes had developed into diabetes. Struggling with highs and lows . finding a filling breakfast (I don't like to even eat breakfast) lunch and dinner and not snacking at night has always been an issue but this makes if worst ..

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  • BarneyRubbleMD
    BarneyRubbleMD Posts: 1,092 Member
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    Yes. I've been an insulin-dependent diabetic for years and struggling again (due to ignoring my diabetes) to get my blood sugars (especially after meals) under control using a fast-acting insulin (Humalog), but I'm getting there. Back in mid-March2016, my fasting (i.e. morning) blood sugar was 455 mg/dL and today it's 121 mg/dL. Anything containing sugar really spikes my readings as well as mashed potatoes, bread and especially rice, so, I'm trying to avoid those types of foods. My goal is to get my fasting blood sugar to be around 90 mg/dL and my post-meal blood sugar peaks (1 or 2 hours after the start of a meal) to be under 140 mg/dL.

    In the past, I didn't like to eat breakfast either but I'm finding if I do, I typically don't have as much of a ravenous appetite in the afternoon which makes it easier to make better food choices & also to have a smaller meal which keeps my post-meal blood sugar spikes down and requires less insulin. Since I'm not that hungry in the morning I just have a protein shake (i.e. 8 oz of 2% milk & 1 scoop of GNC Total Lean protein powder) which holds me until lunch.
  • ClarissaCLD
    ClarissaCLD Posts: 212 Member
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    Yes I have diabetes, diagnosed 9 years ago in August. Pretty much been ignoring it. Not liking my levels but still eating. I've been on insulin two years and In that time I gained 35lb. Most probably because I was eating the wrong thing and just taking extra insulin for it. I am now on day 30 on here and within one week of eating right and exercising my levels were that good I had a hypo. 3 times now I've had to take dextrose as I was too low to legally drive. It is amazing how quickly you can get them under control by eating right and exercising. But I also know that if I go back to where I was they will be straight back up to dangerous levels. At my last retinopathy appointment I was told I had background retinopathy. I don't ever want to be told that again! Feel free to ask anything you want. I'm no expert but I have lived it.
  • katdanash
    katdanash Posts: 1,390 Member
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    Protein shake sounds like a good option. Do you count carbs . anything with sugar drives my suagr up . I take metformin ex 500 mg with dinner . morning blood sugars have come down to 130s were in the 170 and up . I ate yogurt at 9 am and at 11 am I was feeling jittrry . good sugar was 96 .. Perfect but felt horrible . are lunch and was OK. I guess yogurt was not enough ..
    I guess I will have to get up earlier and make a breakfast
    How many carbs is enough but not to much
  • LCSt68
    LCSt68 Posts: 67 Member
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    Yes. Diabetes Type 2 here. Diagnosed about a year and a half ago. I take 1000mg Metformin twice a day and my doctor says it's well controlled, but I still feel it when I eat the wrong things. Constant fatigue, the jitters, just yucky. I've still got a lot to learn about how diabetics should and shouldn't eat. I've had very little patient training about that. I guess they expect you to dig and learn it all yourself. I wouldn't even know where to begin.
  • ClarissaCLD
    ClarissaCLD Posts: 212 Member
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    LCSt68 wrote: »
    Yes. Diabetes Type 2 here. Diagnosed about a year and a half ago. I take 1000mg Metformin twice a day and my doctor says it's well controlled, but I still feel it when I eat the wrong things. Constant fatigue, the jitters, just yucky. I've still got a lot to learn about how diabetics should and shouldn't eat. I've had very little patient training about that. I guess they expect you to dig and learn it all yourself. I wouldn't even know where to begin.

    There are a lot of forums for people with diabetes that I found very useful. When I was first diagnosed 9 years ago the advice was to follow the British Heart Foundation healthy heart diet. But that advised to base every meal around carbs. I found if i did that I would always run high. I read a lot of forums and did a lot of research and I know the lower the carbs the better control. It is also about the type of carbs though. Fruit and veg don't really affect me, but bread and pasta really do.

    I was in a good position that my sister also has diabetes and she went crazy mad on research and even runs her own forum. So I would just ask her ;)
  • katdanash
    katdanash Posts: 1,390 Member
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    Carbs hate me . I did great yesterday until I ate an apple with some pb and this morning it was 155 . still a little on the high side . shooting for under 130 . today I have had a total of 55 grms of carb so far so good . dinner is planned I just got to cook it .. I miss bread !!! But I can't seem to stop at just one serving so ..
  • LCSt68
    LCSt68 Posts: 67 Member
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    When I was newly diagnosed I went through a DT2 nutrition class, six weeks, three hours per week, in German. I'm a native English speaker so you can imagine. The instructor withheld the book the entire class period and concentrated on defining diabetes, educating us on the process and its effects on the body. I came away with a decent knowledge of what uncontrolled diabetes will mean long term and no idea about nutrition whatsoever.

    Afterward I worked with a diabetic nutritionist for four sessions, also in German (I'm in Germany so who knew), during which we struggled to understand each other more than info was exchanged. Finally she gave me a two page sheet with a sample diet showing examples of what my day should look like, what I should limit and so on. No exaggeration whatsoever, it looked like something a hamster would struggle to remain alive on. For example two pieces of bread per day when in reality copious amounts of bread and refined flour products seem to form the basis of every mealtime. And avoid carbs at all cost, when how? Everything is carbs!

    Though I consider those two events a total fail it helps me define my goals for right now combined with your responses. 1.) I need to improve my German posthaste, 2.) I need to get back in that book and see if there's anything helpful, 3.) I need to find a way of eating that works for my body and not expect anyone else's plan to improve me. Bodies are tricky that way. And 4.) I need to educate myself on nutrition on my own because no Nutrition Fairy has shown up on my door to hold up placards and lead me through my day.
  • katdanash
    katdanash Posts: 1,390 Member
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    Balancing your blood sugar when sick . no appetite, can't aste anything , do you force yourself to eat , or what
  • readytochange42
    readytochange42 Posts: 43 Member
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    I was officially diagnosed about 2 months ago. I had carried an A1C of 6.1 for a long time. I reduced it to 5.7 on my own just with some dietary changes. But when my mom got really sick and subsequently died this past January, it was a stressful time for me and. I ate.... a lot! I gained 24 pounds in 6 months and my A1C jumped to 7.2. I'm now taking 500mg of metformin and obsessively testing myself to see how different foods affect me. So far, my highest number is a 160 peak, but I consistently wake up with it hovering right around 100.

    I know I have a lot to learn. My mom had uncontrolled type 2 and it definitely contributed to her death at just 66 years old.
  • katdanash
    katdanash Posts: 1,390 Member
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    100 is good for a morning number . My peak was 234 at least that i know of , I now take metformin er 500 mg every evening. I test at least 3 to 4 times per day. My husband is now insulin dependent . and I dont want to get there I hate needles . I have found that carbs really affect mine. So i am trying to stay lower carb and healthy carb. My biggest problem is bread .. I love Bread ... ugh. My mom also had diabetes. she took 4 medications for it. I dont want that either. She passed away in 2009 from hodgekins lymphoma. Trying to get healthy for me . I always put me last. We can do this.
  • LCSt68
    LCSt68 Posts: 67 Member
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    I seem to be taking a whole lot more Metformin than everyone else. :-/ 2000mg per day.

    Also whenever I visit my diabetes doctor for a control, my A1C is 5.something and he calls that wonderful. He never prescribed a machine or told me to test, I asked for that on my own eventually and he was reluctant. He donated me a new machine they had around the office but said I'd have to supply the strips myself. So I guess he doesn't think testing is necessary?

    From the info the rest of you have given this seems a very nonchalant approach and I could be damaging myself and not be aware of it.

    The guidelines for DT2 are on the american diabetes association page, yes? Is that where you get your info?
  • katdanash
    katdanash Posts: 1,390 Member
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    I bought my own machine and strips at Walmart . my doctor told me for 6 years to monitor mine . I was diagnosed with pre diabetes then . test a random times. I did and that's how I found mine were going up. Being around my mom and husband helped too . ask to take a diabetes nutrition class
    Very informative . I took one about 7 years ago when mine would not stay above 70 no matter what I ate . need to redo it now that it's the opposite ..
  • readytochange42
    readytochange42 Posts: 43 Member
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    LCSt68 wrote: »
    I seem to be taking a whole lot more Metformin than everyone else. :-/ 2000mg per day.?

    An A1C in the 5s is great. That's what I am driving for.. I go back to Doctor next month to find out where I am.

    Do you know if your number was that low before taking the high doses of metformin? Or is it that low BECAUSE of the metformin? I think if you are on metformin, there is likely a problem and you should be testing. Im not sure why your doctor wouldn't give you a prescription for a testing machine. I. have found testing very helpful. It gives me a lot of knowledge about food, my body, and my eating habits. Also, my insurance covers my machine, needles, and test strips. I just have a copayment. I would suggest a second opinion.

  • LCSt68
    LCSt68 Posts: 67 Member
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    It was that low before the med so I don't know what the Metformin is for. Maybe an insurance against my greatly increased body weight.

    My GP sent me to the specialist because my yearly bloodwork was showing a high fasting worth. Should be less than 100, was first 110 then 115. At 110 he warned me, at 115 he sent me to the specialist.

    Specialist told me I was walking the line between diabetic and not, but decided to go ahead and diagnose me because at this age and weight combined with my values it was only a matter of time.

    But wow... that's still a lot of Metformin comparably, and I'm feeling it too. I'm still having side effects a year and something out. I reported that and he just shrugged. I think it's not that he's not incapable it's just that I'm ignorant of so many things and should be doing more for myself than I am. Definitely should be more knowledgeable.
  • katdanash
    katdanash Posts: 1,390 Member
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    You definitely need to be testing . my daughter takes metformin for insulin resistance . her highest number was 125 . she takes 500 mg 2 times a day ..
  • ClarissaCLD
    ClarissaCLD Posts: 212 Member
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    Last February my HbA1C was 67 (8.3%). It is now 53 (7%) :):):)
  • audrey13027
    audrey13027 Posts: 215 Member
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    LCSt68 wrote: »
    ...I reported that and he just shrugged. I think it's not that he's not incapable it's just that I'm ignorant of so many things and should be doing more for myself than I am. Definitely should be more knowledgeable.

    Just my .02 cents, but part of his duty to you as your physician is to HELP you to become more knowledgeable! Both about your health in general and about managing your diabetes specifically!

    I've spent a ridiculous amount of time (20 years+) seeing docs for treatment of a chronic immune disease (Sarcoidosis) & most offered helpful information, collaborative treatment plans and encouragement--but a few just shrugged when I asked questions or had concerns about symptoms, treatment, etc.Those were the ones that I told (in choice, VERY direct words) that they were not being helpful to or considerate of me OR my health...before I cut them loose! :)

    By all means, learn as much as you can on your own because knowledge truly is power when it comes to healthcare, but don't be afraid to demand that your provider actually provide you with the tools &/or information that you need to be able to take control of your health!

    Again, these are just my (somewhat knee-jerk) thoughts on your post...I do hope you get your #'s where they need to be!
  • Pepperh3ad
    Pepperh3ad Posts: 117 Member
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    I was diagnosed about 3 1/2 months ago. It really lit a fire in me, and I cut loose on it. I could blab on and on here, but I started a youtube channel about this yesterday. It's very light on content, since I'm just getting started, but please check it out, and if you would like, subscribe. I'm going to be telling my personal story in the second video, and will move on from there with advice, nutritional information, some recipes that I've come across, as well as other things to hopefully help people be motivated to get healthy.

    My first vid is linked below.
    No Sweat, No Get.
  • ClarissaCLD
    ClarissaCLD Posts: 212 Member
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    I am just watching Panarama about Type II Diabetes. It was on BBC One about 3 weeks ago and I am just getting around to watching it.

    I think I will be keeping this recording and rewatching it every time I'm tempted to eat rubbish. It really hit home what my future holds if I don't do something about it now!