Someone did post about this recently, but sadly, I can't recall whom... The second article says that Lymphedema is typically isolated to one limb and very imbalanced. In both limbs similarly, is typically lipedema....and they two are often confused. The first link tends to list out a decent program, resources, and ways to find help locally.

Here are some of the google results I've found...

http://www.lipomadoc.org/lipedema.html

http://fatdisorders.org/fat-disorders/lipedema-lipoedema-description

https://ww2.kqed.org/futureofyou/2016/09/19/lipedema-the-fat-disorder-that-millions-have-but-no-one-has-heard-of/

http://lipedema-simplified.org/

http://www.curelipedema.org/

You have made amazing progress. Sadly I have no words of wisdom and hope you find some helpful insight soon. In the meantime, don't let it discourage your progress!

Im glad you bumped this. Your photos show my legs are identical to yours. @ketogirl83
I was only told about 6 months ago it is from my lymth glands. Im interested to follow your link for more info. No Dr has even mentioned medication. I have shed 42kg (95lb) and have another 50kgs left but will still be in tth over weight BMI range then. I am down to my weight of 25 years ago at present.

you can try cypress oil if you are into essential oil treatments

KetoGirl83 wrote: »

I'm bumping this for the chance that more people will see it and to ask for an extra help with the medication.

Like I said, I'm ok with starting Glucophage again but what about adding Moduretic and Forxiga, anyone has any experience with them? I would really welcome first hand experiences.

It looks like Moduretic is a diuretic, which makes sense, except that it has so many side effects and I thought keeping very low carb was a diuretic per se so I'm not sure the risk is worth it.
And Forxiga I really, really do not understand the benefit for me. It is an anti-diabetic but my BG is non diabetic and has been for more than a year and the Endo knows this, why would she want me to take this now (and on top of Glucophage)? Side effects are too scary for me to jump in without more research, it's the kind of medication that says "do not stop without talking with your doctor".

This is the information in the package leaflet:
MODURETIC is "used to treat high blood pressure (hypertension), heart failure, or extra fluid in the body (edema). [...] This product contains two medications: amiloride and hydrochlorothiazide. Both medications are "water pills" (diuretics) and cause your body to get rid of extra salt and water. This effect may increase the amount of urine you make when you first start the product. Amiloride also helps to treat or prevent low blood potassium levels."
https://medicines.org.uk/emc/medicine/18951

FORXIGA "contains the active substance dapagliflozin. It belongs to a group of medicines called “oral anti-diabetics”.
[...]Forxiga works by removing excess sugar from your body via your urine.
Forxiga is used if your diabetes cannot be controlled with other medicines for diabetes, diet and exercise.
Your doctor may ask you to take Forxiga on its own if you are intolerant to metformin or together with other medicines to treat diabetes.
https://medicines.org.uk/emc/medicine/27191

Please help if you can. Thank you.

Note: my name keeps going back and forth, not sure why. KetoGirl83 or KetoGirl_ZC is the same me and the same account.

::flowerforyou::

@KetoGirl83 - I think from reading about all of this that I would avoid both of those medications have to do with fluid based edema, as nearly everything I've researched from the person before and this above is that those are FAT deposits that got out of the normal "corral" for lack of a better explanation - so I don't understand how reducing FLUIDS will help removing FAT DEPOSITS.....???? Can someone clear this up for me???

@KetoGirl83 Call her, your endo, and please tell her what you've told us. She can't be as effective without complete info. She should be able to see what low carb has done for you and hopefully will work with you. Have courage!

Well, a lot of the "standard" advice says to avoid fats, but I didn't dig deep enough to see if it was the standard american diet advice crappola or if it is for a specific reason with this condition, but I agree, I would definitely update your doctor, @KetoGirl83 (your name is not switching on my screen at all, btw)...

I would probably tell her that you've used a lowER carb diet to manage, control, and reverse your diabetes. Because of this, you are not willing to increase your carbs back to levels that will send you back to a diabetic state, but that you ARE willing to consider increasing nutritionally sound vegetable carbs to elevate your nutritional profile.

I would give her the data that shows which grains, foods, sugars, whatever spike your glucose numbers - and that those foods are permanently banned, etc. But, the more research I personally do, the more I am finding out how absolutely crucial the MICRO-nutrients are to whole body health. Dr. Weston Price did a study showing that overall, there are many more points of flexibility within the MACROS, but less so within the MICROS. When we adopt a dietary plan, say keto after the Inuits, if we do not also adapt the location specific and cultural adaptations that allow the Inuit to live successfully with their dietary plan. The combination of location and cultural specific adaptations actually tend to fill in the gaps left in most dietary plans (when looking at "days of old," so to speak.).

I know that when i first went low carb and then keto, I had ZERO concept of needing things like zinc that were added to grains and cereal that I was dropping out. It's taken me almost 2 years to realize I needed to increase whatever nutrients I wasn't taking into my body.

Because so many of us no longer eat "head to tail," we are often missing crucial nutritional components. Eggs are one of the more commonly acceptable items that fit this bill. As are things like sardines, and such. Basically, the comment was, "if my culture used to eat whole frogs or crickets, and I choose not to eat those things, how am I going to compensate to get those nutrients into my diet in a form I can accept on a regular basis?" Things like pate and making a spread from sardines or anchovies and roasted garlic sound amazing...and can help partially fill that nutritional gap.

So, in informing your doctor how you've been able to reducing your diabetes to a monitoring situation or what have you, you can go as simple as "drop the whites" or reducing glucose spiking carbs or whatever. But tell her. And tell her what you aren't willing to compromise on, but pair it with things you ARE willing to consider, as long as monitoring your glucose levels doesn't identify those things as problematic. I think you'll be surprised.

I also find that the quality of carbs make a HUGE difference. I got a free coupon for some meals from Hello Fresh, and each meal was at least 40 grams of carbs, and I was able to eat those meals, maintaining a level of nutritional ketosis or fat adaption, no cravings, etc., all because the foods were paired in certain ways, organically sourced, non-GMO, and all that jazz. So it is worth experimenting at this point, in my opinion, if it can possibly help ease your current condition. But that one doctor site I listed above seemed to show many resources that you can possibly find locally...

I wish you some luck on this!!!