Going off Levrothroxin

sherryat
sherryat Posts: 8 Member
edited November 16 in Social Groups
Has anyone been weened off thyroid medication by focusing on their diet and losing weight? Or is it once on medication, always on medication. I really want to stop taking it. Yesterday i forgot my pill and felt so alive! I had so much energy!!! Daily i just feel tired and groggy when i take my pills, the opposite of what it should be. i just had my blood drawn and my doc says my blood work is fine, to keep the same dosage.

Replies

  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Hormones are free cycling, so lowering dosage is quite common as an individual loses weight.

    Whatever you felt was placebo. It takes over a week for you body to respond and use levothyroxine.
  • snickerscharlie
    snickerscharlie Posts: 8,578 Member
    edited February 2017
    If you have an underactive thyroid, unfortunately diet will not magically 'heal' it.

    Have you been diagnosed with Hashimoto's? Hashi can make the levels of hormones produced by your thyroid fluctuate - sometimes quite dramatically - making frequent testing to make certain your medication level is correct for your thyroid's current functionality a necessity.
  • dianalorey
    dianalorey Posts: 5 Member
    I have my blood drawn every three months. I'm so fed up with working my but off and not losing any weight. I have been gaining. I'm so stressed out about it, my BFF from school in another state is dieing from cancer, my husband and I are looking for a bigger house to rent closers to his work. I did quit smoking it has been a year and I am proud of that. I give up!! Thanks for listening
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    You could try reading up on ideas from functional medicine, much can be done with dietary supliments. There are several American practices who are putting out information these days. Make sure you look into their qualifications before you accept all that is said. There is a video, thyroid secret, being put out on line from today, by someone who titles herself the hypo pharmacist or similar, she says she used her background to build up a wider picture of hypo situations. I've seen this referenced from two places.

    There is nothing simple about being hypo. Being Hashi, identified by antibodies is very different to being hypo from being deficient in some essential mineral or vitamin. Discovering what triggers ones antibodies is helpful as is addressing other digestive function issues. In both situations stress is a powerful player. I'm sure most doctors give us the idea, "just take this, and all will be well", true it helps some but others need more to address their own quirks and with some 300 possible symptoms to have our own selections it makes each case very different. INV.
  • dianalorey
    dianalorey Posts: 5 Member
    Hi well my thyroid counts are with in normal! With that said my doctor won't change anything. The fat in my blood is all good. I am so frustrated. I think I am going to find a specialist. I am going through the change also, so that's going on too!! Thanks for lending a ear. Have a blessed day
  • sruv
    sruv Posts: 27 Member
    Yes, I weaned off of medication after being on them for 10 years. I was at a point where I was eating very "clean" and was within 20 lbs of my ideal weight. At the time I went off the meds, I felt like the meds made me anxious. My doctor supported me in my experiment. Important note: I was initially prescribed meds in my early 40's due to symptoms including a thyroid nodule - blood tests for hormone levels were within normal ranges (never showed a deficiency). Going off of the meds, in my 50's, was a bit of a jolt - I felt very tired at first, but then adjusted. I was definitely less anxious, and happy overall, that I made the decision to stop taking the medication. Now in my 60's, recent tests indicated that my thyroid is still producing acceptable levels of hormone. On the other hand, the nodule that I have has enlarged tremendously. I am now scheduled to have half of my thyroid surgically removed. Not sure how I will feel afterwards, but I can update within a few months. I know I will be prescribed meds again, and am curious to see how I feel afterwards. I have felt sluggish the past few years, but attributed that to life events and less healthy eating habits.
  • llbreuer2006
    llbreuer2006 Posts: 29 Member
    sherryat wrote: »
    Has anyone been weened off thyroid medication by focusing on their diet and losing weight? Or is it once on medication, always on medication. I really want to stop taking it. Yesterday i forgot my pill and felt so alive! I had so much energy!!! Daily i just feel tired and groggy when i take my pills, the opposite of what it should be. i just had my blood drawn and my doc says my blood work is fine, to keep the same dosage.

    Does your doctor do a full thyroid panel or just TSH?
    I was on levothyroxine and my TSH levels were completely normal, but I was still having severe hypo symptoms. After researching extensively, I found that most patients seem to do much better on natural thyroid.
    I asked my doctor about switching, but she refused to prescribe the natural thyroid and wouldn't even run additional thyroid tests.
    I switched to a naturopath to treat my thyroid. She ran a full thyroid panel and found that my reverse T3 was high (which cancels out your free T3). That's why I was still symptomatic in spite of all the other numbers being in the normal range. She switched me to natural thyroid and I have greatly improved.
    We're still working on finding my ideal dose, but it is definitely a step in the right direction for me. I would encourage you to do your own research to find what works best for you.
    I would think it's unlikely that not taking thyroid meds would ever be an option because in spite of eating right, exercising, etc. Your thyroid will still not make adequate amounts of thyroid hormone.
  • TorrizzleWillSizzle
    TorrizzleWillSizzle Posts: 119 Member
    I would think it's unlikely that not taking thyroid meds would ever be an option because in spite of eating right, exercising, etc. Your thyroid will still not make adequate amounts of thyroid hormone.

    ^^ this! I have no thyroid at all, had it removed due to thyroid cancer this past march. And talk to your Dr before doing anything
  • yirara
    yirara Posts: 9,985 Member
    If you are hypothyroid then stopping with the meds is a very stupid idea. It's a hormone, one that your body needs but cannot produce in sufficient amounts anymore. Have a look at what T3, the hormone levo gets converted to is needed for: cognitive functioning, muscles, were you ever so hypo that your diaphragm nearly stopped doing its thing? You need it for breathing. Those are just a few things T3 is absolutely essential for, and there is no functional medicine that will make your thyroid magically work again. As you lose weight you might need less hormone, but that's all.
  • SummerSkier
    SummerSkier Posts: 5,188 Member
    As one poster above said, the meds may help keep nodules in check. I take it due to some very tiny nodules the doc felt about 10 years ago and it has kept them stable - sono every other year or so to check. So, although my levels are within normal range without the synthroid, it does held to keep the nodules in check. It is possible that just with age, they may get worse anyway which is why we check....
  • Pinupdollrawr
    Pinupdollrawr Posts: 137 Member
    @sherryat I would talk to your doctor or pcp about your symptoms. It took a year of bitc**** to finally make my doctor realize it is NOT in my head and I am having symptoms even though my numbers are in good range. ALL OF THEM, I make him test it all. So finally he started to see how crazy my weight gain was and my hair loss and he said you know levothyroxine can cause alopecia etc no more generic lets do Syntroid name brand. Did, I do feel better and not as sluggish. My hair hasn't drastically grown back, but it is not falling out like it use to. Weight still sucks. He refuses to put me on a natural thyroid hormone bc HE says the supportive scientific information does not out weigh being on Synthroid or Levo etc.
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