In 6th grade I was diagnosed with a stomach ulcer, as well as IBS-D. I am 51 now.

HappyKat5 wrote: »

What is so weird about this group is that we all seem to be random cases, but I think, patterns will soon emerge. I looked at my baby records and saw the words "gastric issues" on my baby chat, which was back in like 1973-ish. The doctor's writing was so bad, but I can clearly see that he indeed wrote that! I then got sick a few years later. They thought it was Lupus or Still'' disease. My doctor's now know think, I might have been been harboring my disease, but, its been dominant. Something, must have triggered me. SO, DONT rule anything out!

I was always constipated as a child, always until "ibs" (probably crohn's) hit me and i periids of massive diarrhea but was constipated in between. I'm so curious if that was mild gastroparesis and how long I actually had it and how long I actually have had Crohn's. I had an endoscopy a week before my first GES because I had an MRE (mr enterography) that showed inflammation and a gastric outlet obstruction which the radiologist thought was consistent with Crohn's. The obstruction was gone (probably undigested food from gp) but my stomach had characteristic patchy inflammation that looked like cobblestones (that's what crohn's looks like generally). Gatroduodenal crohn's is very rare (1% of people with Crohn's get it in that location) but crohn's likes to move post op. My GI is 99% certain that it is crohn's but the pahologist wasn't sure because of the rarity. (This was november). I had had an upper endoscopy 7 months earlier as a pre op check as a ct scan i had at first diagnosis had thickening (thickening usually indicates inflammation or scar tissue in crohn's) the duodenal but it was never checked out. In that scope the inflammation was gone except a little gastritis. I wonder if the bad inflammation kicked my Gastroparesis into overdrive? I'm thinking the inflammation must be better as I am on a biologic Humira and a steroid but who knows.

HappyKat5 wrote: »

What is so weird about this group is that we all seem to be random cases, but I think, patterns will soon emerge. I looked at my baby records and saw the words "gastric issues" on my baby chat, which was back in like 1973-ish. The doctor's writing was so bad, but I can clearly see that he indeed wrote that! I then got sick a few years later. They thought it was Lupus or Still'' disease. My doctor's now know think, I might have been been harboring my disease, but, its been dominant. Something, must have triggered me. SO, DONT rule anything out!

I'm so glad you mentioned this @HappyKat5! I've been trying to figure out if eggs are bothering me now. My mother told me I had food allergies as a baby. I threw up a lot of typical baby foods and didn't gain weight fast enough. I was extremely picky about foods. My parents found out I was allergic to wheat and barley, but they were told I'd probably grow out of it. (Barley and wheat not an issue for me now as with SCD diet, no grains are allowed.) I used to be vegan, but went back to eating eggs (cage free and organic) because my doctor said I wasn't getting enough protein. I seem to do okay if I include them in a recipe, but eating an egg sandwich or an omelet precedes bloating and some discomfort. I texted my mother tonight to ask if there were other foods and she mentioned egg yolks in my cereal. Back then, they didn't have food allergy tests, they just did elimination diets. So your post has me wondering if I've always had a problem with eggs or just egg yolks. Obviously I've struggled with food allergies and digestive issues from an early age.

Interesting reading things and having lots of little "AHA!" moments like gee, oh, this could be linked and all of this is making more and more sense (sadly)!

I was diagnosed with Gastroparesis (type 1 diabetic) on Monday of this week via EGD. I still have to have the GES done but they're 99% sure as my entire (fasting) stomach was completely filled with bilious fluid, which, apparently, isn't normal.

My symptoms have been around for so long that had you asked me, I would say "mild" but honestly, looking back (I just turned 40 this past weekend) I've probably had some problems with digestion since around 12 or 13 years old.

I've been overweight most of my adult life, with severe acid reflux, and intermittent bouts of IBS with diarrhea and constipation, nausea, vomiting. The vomiting almost always seemed worse during an asthma flare, so I blamed the coughing on asthma and the coughing for the middle of the night wake up vomiting.

I was diagnosed with Lupus 2 years ago, potentially as part of Mixed Connective Tissue Disease (MCTD) along with it's buddy, Fibro. I also was moved to "severe" asthma and am borderline for aspergillus bronchospasm so we're monitoring that. I basically have a lot of inflammation all over my body from everything!

I keep trying to eat healthy and gain weight, so finding out that all this healthy stuff I'm eating is making me blow up like a balloon is super ironic, dontcha think?

So now I've not seen the nutritionist yet but I'm sure they'll just confirm more of what I'm reading online, yay. I'm curious how this diet is going to work with being diabetic. Obviously I haven't been all that compliant or else maybe I wouldn't be here in the first place. I'm just hopeful that something is reversible, or at least, lessened, by strict compliance.

Nice to "meet" you all

- Julie

@HappyKat5 don't know if you are still around but now I'm severely underweight. I'm going on TPN soon to increase my weight while waiting to see a surgeon about a J tube. I hate gastroparesis.

@happykat5 I'm grtting my j tube hopefully tomorrow.

@krythie yes and no. I feel much better but I'm still losing/not gaining. I ended up with an obstruction and stayed in hospital until Dec 7th. I was discharged at 110 and today I'm 104 so back down to my admission weight (sept 11). I shouldn't be losing since I'm getting lots of calories and I'm sure it's mostly fluid but it is discouraging.