Announcements
So, what’s up...Care to tell?
I know some people, don’t like to let others know what their dealing with which I can understand. But, I have always been very honest and open about what my condition(s) are because I think the more that we talk about them, more people will become aware, new research will come and maybe a cure one day. So, if you feel…
I don’t want to go down a rabbit hole!
Hey everyone! I hope everyone is well! So, here’s my dilemma. About 3-4 moths ago, I noticed that every time I was driving and at a stoplight or stop sign, my legs would shake on the break. I brushed it off until I remember saying to myself aloud in the car. “man, my leg is shaking.” I guess sometimes we have to say things…
Breathe and relax...
Is what I have to tell myself every first of the month. That’s when I get my medication for the month. While, I am grateful that I have insurance (while others are not as fortunate) BUT damn, $450 a month for a pill that probably costs 45 cents to make. :s I try to be humble, but damn. Really?
Just Let It Out!!!
I know we're a pretty small group right now and maybe that's how it will stay, but I hope that we grow and reach out to others. Ok...so anyways... As the creator of this group (that sounds so bougie, but I'm not) BUT, I can make threads that stay at the top... I wanted to make an ongoing thread to just say what you want.…
Say something Nice about you Illness
So, many times, illness is seen as a negative thing. But, I have exactly learned a lot about myself and I feel I've grown as a person. So, I wanted to dedicated this thread to being about positivity. I'll go first :) I learn about my priorities. Things, that I thought were so important (that I stressed about) aren't really…
Invisible Illnesses
Sometimes, it’s hard for people to understand those that are dealing with health issues because often times, we look healthy on the outside, but often are really feeling miserable on the inside. Some people only think a person can have an illness/disease IF they SEE it on the outside. We shouldn’t have to prove ourselves…
Discussions
Fatigue 😏
I struggle really badly with my fatigue thanks to crohns disease. How do people push through? I want to be much fitter. I used to be so much fitter 😐 my crohns sad made me sad and fat. I've got a very poor support system. Help? X
J tube
I now have a dangler j tube and had open surgery. It hurts a lot and I want to pull it out lol.
Sigmoidectomy Surgery
I have a surgery coming up in July..This is my first and I'm going through with it because the symptoms are getting to hard to manage. My sigmoid is pretty messed up, pushing on my other organs, narrowing and just on its last leg..I am nervous about it...
Botox
As a last ditch effort before more invasive methods my GI is going to be giving me a botox injection via gastroscopy on monday. Anyone have this before?
GP kicking me in my non existant rectum
I have been having a very bad time digesting this weekend. Pain is a 8 at least. I would have went to the ER but from past experiences I know it's pointless as "there's nothing more we can do about your gp". Ivr been begging for a tube but my GI is ultra conservative. Grrr frustrated.
A new weight loss procedure- freezing vagus nerve grrrr
So there is a bariatric dr in the states that is doing a clinical study on and promotes freezing of the vagus nerve so that obese patients will never feel hungry and therefore eat less. This makes me angry. It's crazy that a dr would cause a patient to have gastroparesis on purpose. That's playing with fire.
Roller coaster ride!
I have to say, it's been a terrible roller coaster ride trying to figure out what I can eat, and not get sick. I'm following a low FODMAP diet, and even staying very close to the elimination phase can still produce the worst symptoms. I find that bland foods, and carbs sit best with my digestive tract, but staying within…
