Botox
singingflutelady
Posts: 8,736 Member
As a last ditch effort before more invasive methods my GI is going to be giving me a botox injection via gastroscopy on monday. Anyone have this before?
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Replies
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Ok it went fine but it hasn't helped my solid food emptying speed yet. My pain level and symptoms are the same for solid food (which I barely tolerate) but I'm definitely dumping fluid. It is taking about 10-15 minutes from mouth into my ileostomy so I'm guessing I'm not absorbing liquid nutrition. Grr.0
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Ok didn't work. He wants to try it again in a month0
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I’m sorry @singingflutelady that I haven’t responded sooner. Do you know About Murphy’s Law? It means what can happen to you Will! I swear, everything that can could go wrong has, damnit! But, I’m here now!0
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@happykat5 oh it has. Ive been referred to the closest motility specialist - 800 day wait. I'm starting 10:10 cbd thc oil tonight again. I tried one dose last week but holy crap I had really bad reflux and regurgitating. It was like gp on steroids. It could have been the gastroparesis not the oil so trying again. It takes a few hours to work so hopefully I will have a good night's sleep. How are you and your arthritis issues? I have Crohn's related arthritis and have painful joints so I guess it is autoimmume arthritis. I don't shake because of my joints but I find my legs shake when my abdominal pain is very bad.0
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@singingflutelady I think I’m doing okay. I take that with a grain of salt though because others see me “not well” and try to tell me what I should do/or what I should try to feel better. Someone told me that I would be better if I did the 30 day Activa yoghurt challenge to help with my digestion.
Really?
Um, no thank you...but thanks for playing.
Try to remain positive.0 -
@happykat5 Activia definitely regenerates your vagus nerve and causes missing GI tract parts to regrow healthfully. I apparently who cure my Crohn's if I become a vegan keto. Um ouch fiber and fat.0
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@singingflutelady I’m a firm believer in trying whatever you can before more invasive things are done. At the time, I was too far for yogurt weekly to help me, but fast forward, I try to eat every natural probiotic that I can from beets to kimchi. I think that eating Whole Foods and plants (and doing juicing) has helped me tremendously even though those are the very food items that hurt me. It’s crazy. I crave lettuce. I eat lettuce, but stay in the bathroom most of the day if I eat it. But, damnit, I have to believe that’s better than a chicken nugget (that doesn’t make me sick) but I can’t pronounce half of the ingredients. I think it’s just finding out what you can do and tolerate.0
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I crave salad so much. I wasn't able to eat it during my Crohn's years and was finally able to post proctocolectomy than boom gastroparesis so no more salad (though I do eat it once in a while when I have nothing on my schedule). My diet is anything but healthy but at this point it is whatever I can get in.0
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@singingflutelady Fiber is my 2nd arch enemy (1st is sugar) but I have gradually started eating it again. I grew up on fruits (in their natural state) and vegetables and I missed them so much. I usually eat on the toilet (TMI) but we’re past that🤗😂. Anything leafy comes out within about 10 minutes. My husband made me a nice little toilet are, I have books, a nice lil plant and he bought me a really cushy toilet seat. Gotta love that! Fruits make me very full so I only drink the juice (no pulp) but can tolerate some cherries and watermelon. Thank goodness summer is here, produce is finally a lot less expensive. Yay!!0
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Yay! Sugar doesn't like me either. I don't live on the toilet anymore because of my ileostomy woohoo. It does have some advantages lol0
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Lol 😂 @singingflutelady Yup. It’s kinda neat to see your “actual” output. I have actually pulled out pills that didn’t dissolve and seriously thought about washing off my medication to re-take.
Did I? Or Didn’t I?
Hmmm...😂😂
An Ostomy bag makes you question yourself so many times! But, I was grateful that it worked. Forever humbled.0 -
Kinda funny seeing lots of stuff come out exactly as it did when it went in0
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@singingflutelady So true...I’ve seen whole leaf lettuce come thru!
Omg...this is so funny. If you are just reading this thread, you’re probably, “What?! Are they taking about?!”
😂 😂0 -
Lol yup but it's so nice to talk to someone who understands. Nothing is truly TMI in GI diseases0
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This is so sad to say (and I say this a lot) but it will take some “pretty” known actress or actor to put Digestive Disorders out there in the media. I think every disease should be shown. You never know what’s happening behind closed doors, so show everything! I have a close friend that has been type 1 diabetic for most of her life. I asked her how she felt about all the commercials that refer to being type 2. She has empathy but she’s like where are the commercials for type 1? Hmmm.
I remember seeing a commercial about 1 Crohn’s commercial in the last 2 months! But, I saw 10 commercials for heart disease, some mobility thing and life alert (I’m okay with that since my mom is elderly🤗). But really? Nothing about he other digestive disorders that affect so many.
BOO!!!!0
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