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  • CPReaves
    CPReaves Posts: 11 Member
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    Hi!

    My name is Carrie and while I'm not gluten intolerant, my husband and 3 of my kids are, so we are a completely gluten free house hold. I figured it out for them a little over a year ago. It took a bit to convince my husband that gluten might be his problem, but after we were gluten free for a couple weeks, he was convinced. Our daughter had PICA and extreme emotional issues, and once we removed the gluten, her PICA went away, her belly went flat, her digestive issues went away, and she became a happy child. Our youngest son has only had gluten once while the other kids were out of town. He got a piece of a pizza crust and ended up with a bad diaper rash that lasted 2 weeks, poor thing. As a side effect of removing the gluten from the household, I lost 45 lbs over the course of a year before joining MFP between being gluten-free and never eating outside of our home and removing most all processed foods.

    I have a very supportive family. Last year, most of the holiday dinners were gluten free, but my mom has decided that this year, everything will be GF, and every cookie she makes will be something that ALL of her grandkids can eat. Every get-together any one in my family has, they always think of my kids and my husband. My husband's family however refuse to care or think about it in any rational manner, despite the fact that they really need to look into it because we don't believe he magically developed this and passed it on to the kids. :)
  • rana_bear
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    Hi there. I'm another gluten free member (also dairy free and low sugar and grains). Have had various health problem since i was a little tacker but wasn't till a few years ago that i made the connection between gluten and the constant tiredness, brain fog, cramps, bloating, nutritional deficiencies (despite eating quite healthily), etc. I thought it was because i occasionally had small amounts of dairy (was diagnosed with dairy allergy at about 2yrs old), however i didn't get much better when i cut dairy out completely.

    A couple of years earlier my mum was diagnosed with Celiac disease so she suggested I try a gluten free diet and see how i felt. SOOO much better, although i wasn't heaps diligent and still had a few digestive problems and tiredness. Went and saw Dr's (plural) and had blood test after blood test. Long story short I eventually had the genetic test done and it came back positive. Tried doing the gluten challenge (introducing moderate-large amts of gluten for 4-6 wks) to get the endoscopy done. I lasted 2 days with moderate gluten intake before i gave up because i felt so sick. This was evidence enough for me that gluten was definitely the problem. It took 3 weeks till my energy returned and the bloating, etc subsided.

    I have been gluten free since and feel so much better. I have my occasional slip up but then i'm only human. I try to avoid too much processed gluten free products and limit my intake of starchy grains, beans and refined sugars because i've noticed that these have similar (but milder) effects. Eating out is getting easier because many restaurants now have gluten free menus and if i think they'll be nothing i can eat at parties/outings i'll take something along or have a stash of raw nuts or fruit in my bag.

    I've gotten used to the lifestyle change and really enjoy natural healthy foods. I'm working on building up my immunity by making sure i get enough important nutrients (through foods or supplements) and probiotics in my diet.

    So glad this group has been started :-)
  • PuddleRat
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    I am going gluten free to support my significant other through his dietary change. His body is covered nearly head to toe with plaque psoriasis and we heard that a gluten free diet can be extremely helpful in clearing it up. We have been gluten free since October 28th of this year (about 2 weeks now) and have not noticed a significant change in his skin as of yet but we are hopeful! (He does claim to be less itchy, though.) We are going to give it at least a 6 month run to give it a fair shot. A group on MFP for sharing recipes and tips will be extremely helpful to me as I do the grocery shopping and the cooking! I'm glad this group is here!
  • SarahMorganP
    SarahMorganP Posts: 921 Member
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    Hi everyone. I myself am not gluten free, but my husband one our of our daughters both have celiac disease so I do have to cook for them. I love my bread and pasta way too much to do gluten free myself, because all of the gluten free bread/pasta I have tried I find really nasty. My husband and daughter don't seem to mind though.

    So while it sucks to make 2 seperate meals most of the time, I am learning to deal with it. I hope I can find some great recipes from all of you here to make things a bit easier and maybe I will even learn to like some of them so I only have to make one dinner!
  • RmIIImc70
    RmIIImc70 Posts: 30 Member
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    Hi,
    Wow! So happy to have found this group. I have been GF for one year. No diagnosis but have some autoimmune issues so probably have celiac. I was sick for several years and realized that the last time I felt decent was when I was nursing my second child. I had to do an elimination diet because he was miserable. The last thing I eliminated was gluten. He was better in a week! He out grew the intolerance or so the Dr said and he went on table food and I resumed a normal diet. After that I slowly became sick. I was under lots of stress. 2 kids, job, elderly parents, lost both parent, sexhausted and always sick to my stomach. It took me 2 years to realize it was gluten! I feel so much better but still struggle with fatigue due to other autoimmune issues (sjogrens).

    I can't stand even the smallest exposure to gluten now. It still seems crazy to me.

    I am just getting into baking and am so excited! Hope that doesn't slow my MFP progress!!! I will share some of my favorite recipes and links when I have a chance. maybe some more experienced cooks can share some thanksgiving tips here.

    be well everyone!
  • queenchlorine
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    Hi, I'm gluten free since January 2009. I am allergic to wheat and assume I am also allergic to other glutinous grains. It's pretty easy to live without flour since it makes my physically ill to consume it. I don't know if I have Celiac but don't see the point of diagnosis since I'm already taking the treatment. I avoid most all dairy products as well. Looking forward to the discussion here.
  • SyntonicGarden
    SyntonicGarden Posts: 944 Member
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    Hi!

    I've been doing the no-wheat thing for about 13 years. While I don't wish this lifestyle on anyone, I'm decidedly glad that there's been so much progress with wheat-free alternatives in the last two years. The stuff available even 5 years ago was dry, gritty, and just gross.

    Since removing most of the wheat from my diet my allergies and overall health have improved. I've tried doing the gluten-free vegetarian thing, but that's almost impossible, since many of the veggie substitutes use wheat gluten. I'm looking forward to being a part of this group!
  • Malissas
    Malissas Posts: 64 Member
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    Hi everyone!
    My name is Malissa from Perth, Australia and i am 41.
    For the last 5 years or so I've been incredibly tired, lethargic, depressed and my weight was just going up, up up! I was also very bloated and uncomfortable most of the time, even when eating healthy.
    Doctor results revealed that I did not have celiac or diabetes or thyroid issues but that we needed to test further on insulin resistance, intolerances and allergies.
    I went Paleo/primal for 6 months and felt absolutely amazing! However the fat content was a little high for me and I wanted more variation in my diet so I joined WW and at their insistance added some whole grains and dairy back into my diet.
    After 6 months of no grains, no dairy my body reacted terribly, prickly skin, bloated so much my stomach skin was shiny, sleepiness, bathroom complaints...
    so I gave ww the flick and currently eat clean, no gluten, little dairy. I can eat goats cheese, some brands of greek yoghurt, some brands of soy products. Maybe I have an allergy/intollerance to casein also?
    I let myself slip every now and then (I always use the 3 spoon rule) and occasionally suffer the consequences due to the small amount.
    I dislike just about every product made as a gluten free alternative it just tastes sandy and like cardboard, and just prefer natural real food these days. I have made the worst cakes and muffins with gf flour replacements haha!!
    I look forward to recipe sharing and sharing tips for restaurant ordering and going out etc.
    I keep an open food diary if you want to look, please friend me if you want to talk about it further. :)
  • CaraBeara1
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    Hi, I'm Cara. I've been gluten-free for over ten years. I'm so glad to see other celiacs interested in losing weight, and getting all fit and healthy. I see so many in other circles that just don't want to give anything else up. Good luck to everyone. :)
  • stephabef
    stephabef Posts: 936 Member
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    Hi, all! I'm Steph. My Celiac was triggered after a bout with Mono two years ago. My mother and uncle are both a-symptomatic Celiacs. After being diagnosed, my joint pain, GI issues, and neurological symptoms have pretty much dissipated! I'd be happy to share recipes, etc :)
  • amfeldhege
    amfeldhege Posts: 2 Member
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    Hi - I'm Amanda, and I have been gluten free for a little over a year. I also don't do soy or chickpeas (other legumes seem ok though), and dairy in small doses.

    I haven't had any issues sticking with the GF diet because I feel so horrible if I get any gluten.. I am super sensitive, I even had to switch to gluten free shampoo, conditioner and face wash recently because I was breaking out from my previously ok products.

    I would really really really love to loose some weight, but I have the added complication of Insulin Resistance (although going gluten free has allowed me to cut that med in half) so this an uphill battle. Any advice for a newbie to losing it gluten free would be fabulous. I know it is calories in calories out but sometimes there are snack tips, eat this with that to stay full longer, etc that keep us going.

    At any rate, a year in, I feel pretty darn good except the spare pounds I haul around... :-)
  • jpaw1002
    jpaw1002 Posts: 322 Member
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    Hello!!!!! I'm Jessie, um im new to this whole gluten free thing. I might have problems with it and my digestive system. not 100% sure yet, i've been to the doctor for it and im going to see a GI doctor soon. But in the mean time to try and make my life easier so i wont feel so sick all the time, im going to try and limit myself on the gluten things. any advice would be more than helpful! Feel free to message me or add me. :)
  • itsjustme77
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    Hello all,

    I am Heather and I was diagnosed 11 years ago. I spent 3 years being violently ill. My iron level was 3, and I had all the symptoms, but I was/am a fat girl, and doctors refused to test me for Celiac because I was clearly not malnourished according to doctors. Finally I yelled at my gastro and said test me for it, and sure enough I tested positive. I had my gallbladder out when I was 20 and the stress manifested the Celiac gene. All of this is a struggle, but at least it's manageable. Even today my mom referred to me as "her problem child" when discussing upcoming holidays. I told her to not even worry about it because I am fat and I don't need to eat at these things anyway. Yea... I've got no self-esteem left what so ever. Anyway, I do know a lot about products and whatnot since I have been doing this for a long time now, so I thought I would let you all know I am here as a resource.
  • G30Grrl
    G30Grrl Posts: 377 Member
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    Hi,
    I'm Tracey. I went back to school in my 30's and was shocked to find I was having terrible issues with focus, concentration, memory, and processing speed. Extensive testing resulted in my being diagnosed as having a learning disability. I relied heavily on tutors, extra credit, and ridiculous hours of struggling with homework to get through my science/math classes (as a geophysics major, I had a lot of those!). I had never had these troubles when I was in high school. Not long after (I'm guessing about 2003 or 2004), I was noticing that I often felt totally sedated for no reason, so I started monitoring/recording everything I ate. As it happened, I worked with autistic children, and when I mentioned to the aunt of one of my girls what I was doing and why, she suggested Celiac's as a possible issue. I Googled it, and was shocked. The list of symptoms and secondary disease processes related to gluten intolerance looked like a detailed medical history for my entire family. I had no insurance, so rather than get the blood test, I just eliminated gluten from my diet completely. The first people to notice the change were my calculus study partners. Instead of crying and swearing out of frustration, I was suddenly seeing the answers before anyone else, and helping them, instead of leaning on them for help. I firmly believe that if I were re-tested today (gluten-free) I would not be diagnosed with a learning disability.

    Benefits of going gluten-free for me have been a drastic reduction in my digestive issues (for which I had seen many specialists, but the only diagnosis was IBS), elimination of anemia issues, improvement in eczema outbreaks, tremendously increased ability to focus and concentrate, improved memory, and no more asthma!! I only wish some of my family members would consider looking at gluten as a possible issue causing many of their health problems.

    I'm totally thrilled that so many gluten-free products are becoming available. And the improvements in the taste and texture of gf foods in the past few years is amazing. (Udi's bread! Oh, heaven!) Now I can go out to eat in Reno, and order gluten free pasta in one of our favorite Italian restaurants. I live in a tiny town of 2500 people, and even the grocery store here carries gf crackers, cereals, and Betty Crocker gf cake mixes, brownie mixes, and Bisquick! If only I didn't have to drive an hour to find Udi's bread (and pay $7/loaf).

    Anyway, I'm amazed at how many people I now know who are aware that they have gluten issues. It used to be that when I mentioned it, nobody knew what I was talking about. So having this group where we can all share experience, support, and ideas is just a great idea. Thanks!
  • luvtabasco
    luvtabasco Posts: 11 Member
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    Hi, I am newly diagnosed with celiac disease. My symptoms were bloating and always had a small rash on my elbows. Now i
    know why! My scope did not show any intestinal damage, however the blood test showed positive. So i am now on the journey
    of gluten free living. I thought i would lose weight, but that just is not happening. I am reading labels carefully now. My first research
    showed that modified food starch is an ingredient to avoid, so i discarded everything that indicated that. Now i am reading that
    it is ok unless it specifically states modified wheat starch. So what's the deal? Any thoughts?
  • chocciechip
    chocciechip Posts: 207 Member
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    Hi Guys,

    My name is Claire and I have had to go wheat/gluten and sometimes dairy free due to IBS. I've cut out wheat from my diet entirely and what a difference it made! I can still eat Oats and small amounts of other grains so I'm not Coeliac but for all intents and purposes the damage it does if I don't stick to it then it's easier to say gluten free!

    so Hiiii :-)
  • LiebeJ
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    Hi! My name is Carol, I was diagnosed with Celiac a little over a year ago. Prior to finding out that I was gluten intolorent, I was diagnosed with Hypothyroid and had horrible digestive and intestinal issues. It wasn't until I had a gallbladder attack and had to have my gallbladder removed that the doctor started looking into my medical problems more intently. When I was told I had Celiac and it was incurable, I thought the worse. Of course the doctor explained that I was not dying and the world would not stop, but I would have to make some changes. I immediately changed my diet to gluten-free and to my surprise my thyroid numbers started heading back towards normal. My last visit to the doctor, my thyroid was normal!!!!! My problem now is I want to be able to cook more gluten-free meals that ARE meals and not little snacks all the time. If anyone can give me some good recipes or even ideas it would be greatly appreciated.:smile:
  • jayliospecky
    jayliospecky Posts: 25,022 Member
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    Hello, everyone! I do not have celiac disease, but my husband does. He was severely ill almost two years ago, to the point where we were concerned he was dying from some type of cancer. It was a strange relief to find out it was something that could be dealt with. Because he was so sick, my husband had no difficulty giving up gluten, but it hasn't always been an easy road. He also has lactose issues, although they have improved somewhat as his body has healed. It still seems to be an emotional battle for him, though, as every time he has stomach issues, he has to worry about whether or not he was inadvertently "poisoned."

    I have not gone completely gluten-free in our house, but I seldom make two separate meals, unless we're having leftovers anyways or we're in a real time crunch. Usually I just make one meal for all of us, or just change one thing...like if we're having fajitas we all have flour tortillas and he has corn tortillas.

    Because his weight is not an issue, a lot of my gluten-free recipes are not really low-cal, but honestly, if I was eating like him I would lose weight. He eats very little bread, even when I have fresh made GF bread for him, and he usually reaches for fruit for snacks, and such. He's pretty naturally drawn to healthy foods.

    So, I am here to share experiences with you all, and to add my support. I also highly recommend glutenfreebetty.com. I have tried several of her recipes (warning...best for TREAT purposes only) and they are amazing! Brownies and a cinnabon cake and an impossible pumpkin pie (actually the pie isn't too bad for calories as it has such a minimal "crust.") I have never been disappointed in any of her recipes. Our kids like them, too.

    Look forward to sharing with you all!
  • LainMac
    LainMac Posts: 412 Member
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    Hi All,

    In May of this year, my 17 year old son had various tests to find out why he wasn't growing. As part of that he was found to have Celiac and that he had high DNA markers for the condition. Because of sonny's DNA markers, it was recommended that hubby and I get tested. And much to my mother in law's delight, I came back positive for Celiac ( . . ah,hah, you gave it to him) and hubby is in the clear (for now anyway.)

    My son has had all the proper followups and consultations. Myself, I've had to fight for every blood test and follow up, including taking my entire family of 6 with me to do an "Occupy" of the gastro's office late on a Friday afternoon. I had to fight for even the first basic blood test because,

    "You can't be a Celiac, you're fat."

    Sonny and I are largely asymptomatic. He says he feels a bit better mentally and I pass less gas, but that is all we see 6 and 4 months after going GF. I keep waiting for the "magic" to happen. And since we are not "sensitives", we don't know when we have been exposed to gluten.

    We live in "mixed" house. Hubby and my 3 other kids are "Gluties". Because one of them is an athletic 14.5 year old boy, going totally GF in the house isn't financially feasible right now. (His nickname is DOG - Devastator of Groceries.) So we keep a dual kitchen going. Two sets of cooking pans. Separate shelves for the glutie and non-glutie food. Separate counters for non glutie and glutie food prep. And a lot of yelling on my part to get the gluties not put death crumbs all over the house. (My 14.5 and 11 year think that eating of the plate some how makes them less manly).

    I'm currently unhappy about the lack of options in eating out safely. I don't want the damn salad, baked potato, or steak. I cook all those better at home. I wasn't much of dessert person, so all those GF cookies and cakes that are available don't make me happy. I've found a few pastas that I find acceptable however I'm not a big fan of the GF breads.

    I can cook but I resent that I HAVE to cook everything, Hubby will cook GF but only a few things that he can feed everyone. (Variations on Rice and Beans).

    So for now, just call me, LLC (Lain the Cranky Celiac)
  • er1nya
    er1nya Posts: 87
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    Hi everyone!

    I recently (VERY - a week and a half) started the FODMAP diet in an effort to curb IBS issues. After eliminating Gluten, dairy and fructose for a week I have felt better. The other day I got sushi thinking it would be a safe bet but I ended up in the bathroom for a half hour after. Turns out I shouldn't have ordered Spicy Tuna (mayo) or Soy sauce (Gluten). I am still learning but it's very hard!

    I think I'm going to have to permanently stop eating gluten. I'm having a really hard time coming to grips with this. I love cookies! I love pizza! I LOVE beer.

    Did anyone else experience this "denial" stage when they first gave up gluten? Was it hard?

    Thanks,

    Erin