90% of hypo symptoms, but no true diagnosis....help!
natalieszapton
Posts: 6
I recently called my obgyn because I've been overly exhausted, losing my hair, constantly feeling down even though I think I'm happy. I have a constant fog in my head. I can't think straight. I feel very hormonal and keep gaining weight despite my efforts. He told me that one of my blood tests from 2009 when I was pregnant showed indications of hypothyroidism. He suggested I get blood work. I ended up going to my family doctor who told me tht a blood test in 2010 showed nothing. He gave me an ultrasound and said my thyroid looks ok then sent me on my way to go get blood work. He said he doubted me and my symptoms! I cant do it anymore. I'm exhausted. I'm so tired that last week instead of getting out of my car, I figured since my daughter was sleeping in the car, I would too. It's progressively getting worse. I feel like a Narcoleptic. I can fall asleep anywhere, but occasionally when bedtime comes, I normally stare at the ceiling for hours. Nap time has turned from never needing a nap ( about 3 years ago) to requiring a nap. it started with an hour power nap about a year ago to 4 hour naps today. Just doing one load of laundry exhausts me. I am looking to see if anyone had a similar situation.
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I feel your pain, I went for a physical for a new job and the woman said as soon as I get insurance to get tested for Hypothyroid...so as soon as I got insurance I found a pcp and went and he sent me for test twice, and tells me i'm normal and yet can't tell me why i feel the way I do, so finally i went and found an endo, and he tells me he will do a test to compare and than if nothing shows and i really feel like the meds will help that he will put me on them and see what happens. Cause I have a history of it in the family an such0
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I encourage you both to check out the website stopthethyroidmadness.com (STTM)
Also, google Mary Shomon and you will find a wealth of information about thyroid issues.
STTM explains the full testing necessary to determine what is going on in easy to understand terms. Many doctors do not run the full panel of thyroid and adrenal tests and based on incorrect information fail to diagnose and treat thyroid issues.
You have to educate yourself, be your own advocate and change doctors (many of us have switched many times over the years) until you find someone who has a full understanding of thyroid and related hormonal issues. If your internist sends you to an endocrinologist, you can't assume the specialist will be much better. So again, educate yourself so you can better explain what is going on and ask the right questions.
Good luck!0 -
Find a new doctor, yours is obviously not listening to you. My wife has similar issues and our family doctor and an endo both said she was "fine" and "normal", and that her symptoms must be because she's lazy.
I went on a quest of sorts to find a doctor that would listen and found a naturopath that looked over the same blood work results from the last 2 years that we provided to her and she immediately knew my wife had a host of issues:
Hypothyroid
VERY low B12
Low Vitamin D
Potential Adrenal gland issues
High blood sugar (even though she's been low carbing for almost a year...but not loosing weight)
Long story short, she's now on a thyroid medication and I'm starting to see subtle changes, she sleeps better at night, wants but doesn't require a nap during the day and is overall in a better mood.0 -
I encourage you both to check out the website stopthethyroidmadness.com (STTM)
Also, google Mary Shomon and you will find a wealth of information about thyroid issues.
STTM explains the full testing necessary to determine what is going on in easy to understand terms. Many doctors do not run the full panel of thyroid and adrenal tests and based on incorrect information fail to diagnose and treat thyroid issues.
You have to educate yourself, be your own advocate and change doctors (many of us have switched many times over the years) until you find someone who has a full understanding of thyroid and related hormonal issues. If your internist sends you to an endocrinologist, you can't assume the specialist will be much better. So again, educate yourself so you can better explain what is going on and ask the right questions.
Good luck!
I went to the endo by my own choice. He was referred to me by a co-worker with the same issue and I have to say he was 300% better than my primary and agreed to to a T3 and reverse T3 and agreed that I'm not crazy and that sometime the tests aren't always accurate0 -
Find a new doctor, yours is obviously not listening to you. My wife has similar issues and our family doctor and an endo both said she was "fine" and "normal", and that her symptoms must be because she's lazy.
I went on a quest of sorts to find a doctor that would listen and found a naturopath that looked over the same blood work results from the last 2 years that we provided to her and she immediately knew my wife had a host of issues:
Hypothyroid
VERY low B12
Low Vitamin D
Potential Adrenal gland issues
High blood sugar (even though she's been low carbing for almost a year...but not loosing weight)
Long story short, she's now on a thyroid medication and I'm starting to see subtle changes, she sleeps better at night, wants but doesn't require a nap during the day and is overall in a better mood.
My stupid primary never did a B12 or Vit D test, instead tested me for syliac, lymes and crap like that which came back negative...thats why I chose to go to an endo, so waiting to see what he says and than will see where to go from there0 -
It's practically criminal how so many doctors just don't run tests against the symptoms that their patients are describing to them. I've said it before but I haven't met a doctor that I liked until this recent naturopath that we started seeing and quite frankly if I was as bad at my job as all the doctors my wife has seen I'd be unemployable.0
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Wow! Thank you! I do live a natural lifestyle so I can't believe I didn't think about at naturopathic doctor. Making an appointment. Thanks for all the help and support.0
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Natalie -- I think Naturopaths are GREAT -- mine is helping me deal with Hypothroid, Hashimoto and Reverse T3.
It's important to find a doctor that will treat your symptoms, not just your lab tests.
Sometimes, you can ask your pharmacy if they know of any physicians that prescribe Natural Dessicated Thyroid. There are some endos and GPs that will prescribe it, but Naturopaths will always go that route first.
The other thyroid meds are synthetic and don't really get rid of your symptoms -- but they can make your labs look normal.
Best of luck to you in finding your diagnosis and some relief!0 -
Thank you all! I am going to seek alternative medicine. I spoke with several doctors who are in the practice to offer natural remedies first. One even spent the time over the phone helping me get together a vitamin blend before I can see him since he is booked until April. Thanks again!0
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Yes, find a new doctor who can diagnosis. These symptoms can be for hypothyroid, but they can also be for numerous other diseases as Lymes, Chronic Fatigue syndrome, Sarcoidosis, to name just a few. I wish you the best in finding a good doctor! I have had fatigue for about 16 years....learned how to live with it. The most important is to get a diagnosis. I was ill with severe fatigue for over a year before my famous, but not good doctor ordered a chest x-ray and then a biopsy. I was able to start treatment and after another year my symptoms got better. I now have a doctor who can diagnosis---this is a rare bird you will find out.0
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