fibromyalgia
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janstacey
Posts: 24 Member
Good morning,
I am new to this and am hoping to meet up with people who struggle with the daily issues of living with fibromyalgia.
I was diagnosed formally last year and have gained about 15 pounds that I am struggling to lose. I love this ap and am hoping
it is the right fit for me and I can be on my way to living a better, healthier life! I would love to talk with anyone dealing with
this as well... have a terrifc day!
I am new to this and am hoping to meet up with people who struggle with the daily issues of living with fibromyalgia.
I was diagnosed formally last year and have gained about 15 pounds that I am struggling to lose. I love this ap and am hoping
it is the right fit for me and I can be on my way to living a better, healthier life! I would love to talk with anyone dealing with
this as well... have a terrifc day!
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Replies
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Hey
I am new too! I struggle with pain and have for 7 years now. I am hoping that losing weight will help with that. 0 -
glad to hear from you, i know for me it's all about baby steps, i used to be quite active and when my symptoms were at their worst ,2 years ago, i had to start with small walks gradually building up the time....there are days it is a struggle but i know if i don't go i will feel worse...i have been able to do a little more exercise lately, keep waiting for the " shoe to fall " as it always seems to . If i feel like i am getting ahead and on track with exercise, the pain will get worse and i usually end up right bakc where i started...so frustrating...0
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I totally understand. The last few days I have been riding the stationary bike with no problems at all then today, I did 5 minutes and I am hurting so bad I almost can't stand it
I have heard of people being pain free after they lost weight and that is the hope I am clinging to. I quit taking meds for it a few years ago because we lost our insurance and I just couldn't afford it anymore. Now I pop Aleive like tic-tacs. lol It doesn't do much but it does take the sharpness of the pain away for a bit. Good luck to you and keep in touch, I will always listen 0 -
Hi there ladies! I also have fibromyalgia. I just signed up with this website tonight so happy to find other people going through not only the weight loss journey, but the fibro as well. Although, its a double-edged sword, because I also hate to know that other people feel the affects of this crappy illness! Anyways, I totally understand the exercise issues. I did the same thing with walking. Starting slow and building up to longer distances. At the same time I have a 4 yo son at home during the day with me and found it much, much harder to really get into my exercise while worrying about him as well. So, I signed up with a local health club where they offer free daycare for 90 mins a day. TOTAL LIFESAVER! I started doing the treadmill and stationary bike, but got really bored after a couple of weeks. About 3 weeks ago I started taking the group exercise classes and absolutely love it. One is part cardio/weights/core training and the other one is a mix of yoga and pilates. It has really helped so much...even though I am still in alot of pain, I can feel myself getting stronger little by little. I am also hopeful that once I get down a decent amount of weight the pain will lessen as well! I wish you both the best and hope to keep in touch.
Nicole0 -
I have been doing alot of reading up on food triggers and found that as long as we avoid meats, poultry, most fish, breads, dairy, pretty much everything except fruits and veggies, we will feel better. I say with a diet like that I'm bound to lose weight right:laugh: Either way, paying attention to what you eat and what triggers pain or headaches is just the beginning to feeling better. I'm hoping with this new knowledge and gentle workouts I will be feeling fit as a fiddle. One can hope right???:happy:0
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Nice to meet you Nicole and Ethel! Nicole, I am encourage by how well you are doing. Right now I am only using the stationary bike and yoga. Can't wait to move up to some weights! Ethel, I didn't know that what you eat triggers pain. That makes total sense though as to why I am feeling alot better. I started on protein shakes using soy milk, I guess I have found the perfect diet for me Thank you for sharing the info !
I am sending friend requests so keep an eye out
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my sister gave me a book last year on clean eating for fibro...i try hard to stick to it, not perfect but better than i used to be...my goal is to feel well enough to cut down on my meds, ridiculously expensive and a big cause of my weight gain...i am so glad to find others going through these daily struggles, i hope we can offer helpful suggestions and pats on the back as we go through this together,one of my frustrations is feeling good and doing extra exercise only to a few days later feel so sore that i don't want to do anything, it's like two steps forward and 3 steps back...i still make myself walk for a minimum of 20 minutes....ohh for the days when i could tackle anything head on with no negative effects...keep smiling everyone!0
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talk about 2 steps forward and 3 steps back, woke up this morning hardly being able to move, went for a 25 minute walk but definitely won't be as active today as i would like to be.....really dislike these days!0
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I could use a book like that janstacey. I'm going on articles after articles of advice. I am not being to strict about it but at the same time when I do cheat and eat something I know could trigger, low and behold I get a headache or just a bit achier than I was before. Maybe it's mental, maybe it is what I ate but at this point I'm willing to give up anything that might cause me more pain. The only thing I allow myself daily is my 2 cups (large cups) of coffee with cream and sugar. I did cut down on the amount of cream and sugar I use though. I just can't give up that coffee right now, maybe someday but not now. I'm finding it hard to eat all my calories alloted daily with this "fibro" diet. Does anyone have any suggestions, fixed income, cheap suggestions:noway:0
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It's good to swap ideas about food,exercise and this illness. Like most of you ladies I've gained weight which doesn't help with the fibro. I have tried several diets that are published here in the UK and so far they haven't helped. Like janstacey I would like to take a lot fewer meds as the side effects give me a lot more problems. I do find it encouraging that a lot of you seem to be doing well with exercising and are able to increase the amount over time. It's been hit & miss for me, but I have started again very recently doing small amounts of gentle exercise, so here's hoping that I can build up the types and amount. I met my sis today and we walked round the market in the sun at a slow pace and with plenty of rests. I'm in so much pain now and its hard to beleive that so little has caused so much, but it won't stop me. ( I may need reminding of that sometimes!). It's really good to see others overcoming a lot even when I'm not great, so keep it up ladies. Please add to your friends list me if you wish as its good to know that there are others out there who are in the same boat - we can all paddle together 0
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My aunt got me started on Body by Vi shakes. She said one of her ladies has Fibro and it has really helped her out alot. I was very skeptical ( frankly bc nothing I have tried worked) but thought what the heck it can't hurt and maybe I will lose a little weight. So far I have to say, I am feeling better than I have in years. It's only been a week so I'm going to check it out a little longer before I give it my stamp of approval but I must say, I am pretty impressed and I have lost 11 pounds.0
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Hey ladies so glad to see there is a group on here for fibro. I have been living with it for 12 years and have found things that work and things that don't. I am hoping this site will help me lose that weight. I was doing well for a while and then had a bad spell. I have found one thing that has help with pain for me and that is apple cider vinager pills 2 a day. They are suppose to help with weight loss as well, I think it has kept me at a base weight but need to get 100 of pounds off to feel really good.0
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Mouse, where do you find apple cider vinegar pills? I am very interested.0
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I buy them on line at drugstore.com or amazon.com They have really helped me.0
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Where do I find the Body by Vi shakes?0
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Thanks mouse Ethel, I sent you a message 0
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Hey ya'll. I too have fibromyalgia and it totally blows. Good work for trying to fight it! I commend all of you! I haven't tried the Body By Vi shakes but I do drink Shakology everyday and while it doesn't have any affect on my pain, it really helps with my energy levels by a lot!
If anyone needs someone to talk to or would like encouragement or help. Feel free to add my profile and you can leave me a message. I'll be your cheerleader if you need one! Good job. Fibro is hard enough with out having to lose weight on top of it!0 -
so glad to read everyone's posts, I really need a support system, living with fibro is so hard because you look 'normal" and people don't understand the struggles. Just when I feel like I am getting somewhere and on the right track I have done something to my leg and will have to just do my slow walks for now. I really have felt better in the past few months and I am hoping I can continue with my exercise. I started with small walks daily, my specialist told me to begin with 10 minutes a day, add 1 minute each week until I got up to 30 minutes. Seemed silly to me but it worked. Once I felt good with that I began a Biggest Loser workout DVD that has you "walking" a mile in your home. It's more like marching but it seemed to get me pushing forward and starting to drop a few pounds and inches...I have progressed in my workouts but now I think I am sidelined for awhile, just hope I haven;t pushed too far, I tend to do that as I refuse to accept that where I am now is it for me!!! Hoping everyone has a terrifc day... 0
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Hello All,
I'm so glad I found this group.I've had Fibro for 16 years and everyday is a struggle.Medications don't seem to help much.I try to stay active and avoid triggers as much as i can.. I'm a Toddler Teacher which helps keep me moving, something that keeps my pain under control for the most part..I struggle most with emotional eating.I get a good plan going then a flair up hits and I start feeling sorry for myself and throw everything out the door. I'm looking for help to stop this destructive pattern.I have a couple supportive friends but they don't understand the constant pain/struggle0 -
hope this group will help you!!! we are in this together because we "get it"...0
