Mine was removed a few years ago. I just wasn't responding to meds at the time, and because of Graves Eye Disease - radioactive iodine treatment was out of the question.

Yep, 2 sep surgeries ... one for nodule.. the olther bc oops. Nodule had papillary cancer. How are you doing? Do you have to have a thryoidectomy?

I had a hemithyroidectomy due to a golf-ball sized benign tumor in April 2011. Currently on 75mcg of Synthroid. Feel free to add me if you need friends

half of mine taken out. other half happy and still with me. Take synthroid and still trying to get the dose correct.

I had my thyroid removed 16 years ago in June because of thyroid cancer. Im always looking for new friends and motivation. Feel free to add me as a friend. Best wishes in your journey of life.

Hi,

Yes I had mine removed last month. In December I was diagnosed with enlarged thyroid, never on any medication prior to surgery. I went through the series of ultra sound, radiation uptake scan, and instead of biopsy my surgeon and I decided on removal.

After 4 1/2 hour surgery 4 weeks ago, I seem to be doing well.

Currently taking 100 mcg of Levothyroxine, had blood work yesterday and have a follow up visit this week to see how my levels are, and whether medication adjustment is necessary.

What others have experienced by way of ability to lose weight now would be awesome information.

Thanks

I had mine removed about 2 years ago. Graves disease, tried radio-active iodine 3 times.

Dr. said it was the biggest one he had ever removed (just about went ear to ear). He said it was covered in scar tissue, so the radiation treatments worked at killing part of it off but there was just too much of it.

Started on 137 of Levothyroxine and wished I'd never had the surgery, after a year switched to Synthroid same dose and life is much better. I still miss having the metabolism of three 16 year olds but getting to stay alive has its own benefits.

Went into surgery weighing 195 lbs, two months after I was up to 230 and have been hovering around there ever since.

The key is finding a great Dr. that is concerned about how you feel not what your numbers are, and I had an outstanding Dr. Sadly he recently moved back to Dubai, but he did brief the Dr. I'm seeing now before he left.

Reading other boards like this he did one major thing different than other peoples Dr's. He dosed me down as opposed to up, meaning he had me running a bit on the hyper side then reduced dosage to "normal" levels. He also gave me some very good advice by telling me to first get used to living with normal thyroid levels, then start working toward loosing the weight I slammed on after surgery.

So, it's been 2 years, I've become comfortable with my new "normal" now it's time to get rid of this extra 30-35 lbs I've been lugging around. Before the surgery that would have meant skipping lunch one day, from what I understand now "normal" people have to put in a bit more effort than that to loose weight.

I had nodule in one lobe and goiter in the other. They did the biopsies and ultrasounds and thought that the nodule was changing in ways that could be consistent with Thyroid Cancer. So when I was 41 they decided it would be best to do a complete thyroidectomy. The nodule ended up being a Follicular Adenoma (benign). During the months following surgery I gained a significant amount of weight. My TSH levels are pretty good usually. My other main issue from the sugery is low calcium and low Vitamin D. I take 50,000iu of D a week and 1800mg of Calcium a day. I noticed that I have had much more "bone pain" since all of that occured and I definitely do not lose weight very easily at all! Hopefully this is something that will improve as time goes by?

I had nodule in one lobe and goiter in the other. They did the biopsies and ultrasounds and thought that the nodule was changing in ways that could be consistent with Thyroid Cancer. So when I was 41 they decided it would be best to do a complete thyroidectomy. The nodule ended up being a Follicular Adenoma (benign). During the months following surgery I gained a significant amount of weight. My TSH levels are pretty good usually. My other main issue from the sugery is low calcium and low Vitamin D. I take 50,000iu of D a week and 1800mg of Calcium a day. I noticed that I have had much more "bone pain" since all of that occured and I definitely do not lose weight very easily at all! Hopefully this is something that will improve as time goes by?

So its been over a year since my surgery, and I also have low calcium. Was taking 2000mg a day but it's still too low so I went back on rocaltrol and 1000mg of calcium. I'm going to retest next week to see how the calcium levels are. I use to have horrible muscle cramps that had me in tears... (1 month right after surgery) but it got better. Now, I'm just struggling to get the right dosage for my thyroid meds and still trying to lose weight. So far, i'm losing at a very slooooooooooooow steady pace. It gets frustrating but I'm just happy to not see a gain on the scale.