Food

keggen
keggen Posts: 102 Member
edited December 18 in Social Groups
What do you all eat? Do you follow the advice of low fiber, no whole grains during a flare? I have mild to moderate (I put it more like mild) ulcerative proctitis originally treated canasa and lialda, now just lialda. It's not bad to be on the lialda but I'm not completely normal, just not un-well if that makes any sense. So I thought I'd try some food approaches.
Here's where it gets fun. I don't eat meat (poultry, beef, pork). Plus I'm trying to get started on NROLFW where you are supposed to eat what seems like a ton of protein to me. I'm a bit perplexed as to what to eat if I'm not supposed to eat all the things I love: whole grains, beans, broccoli, almonds. Also throw in a 3 year old and a meat eating husband.
Any thoughts?

Replies

  • JPLYLER09
    JPLYLER09 Posts: 78 Member
    What do you all eat? Do you follow the advice of low fiber, no whole grains during a flare? I have mild to moderate (I put it more like mild) ulcerative proctitis originally treated canasa and lialda, now just lialda. It's not bad to be on the lialda but I'm not completely normal, just not un-well if that makes any sense. So I thought I'd try some food approaches.
    Here's where it gets fun. I don't eat meat (poultry, beef, pork). Plus I'm trying to get started on NROLFW where you are supposed to eat what seems like a ton of protein to me. I'm a bit perplexed as to what to eat if I'm not supposed to eat all the things I love: whole grains, beans, broccoli, almonds. Also throw in a 3 year old and a meat eating husband.
    Any thoughts?


    I'm also on Lialda 4 pills a day, and since I've also got a mild case of UC I pretty much eat whatever until it bothers me... I joined MFP to help see what food might trigger. I've been pretty good lately just tired, but with a 2 1/2 yr old & a 5 mth old, I guess thats what happens... lol
  • applebobbrush
    applebobbrush Posts: 235 Member
    Same here unfortunately I eat what I can till it bothers me, new things seem to pop up and bother me that I've eaten for years. I have drank coffee and soda since I was in 7th grade and last year out of the blue caused horrible stomach cramping and almost instant need to run for the nearest bathroom. I know I'm fine with lots of protein as long as I consume it slowly throughout the day or it causes nausea but doesn't seem related to the lower gi issues with UC.
  • keggen
    keggen Posts: 102 Member
    Thanks for the feedback. I think I'm just going to start with backing off the coffee, although I only drink one regular size mug. Since it adds no nutritional value seems like it should be the first to go.
    I have all this beautiful lettuce in my garden that I want to eat but I'm a bit afraid.
  • jiggy_gibby
    jiggy_gibby Posts: 197
    You can test lettuce out slowly. I found out I just can't eat romaine or iceberg. But I buy the spring mix or herb mix - the really soft lettuces don't seem to bother my UC. I eat it 2-3 times a week. It was a blessing to discover this because I LOVE salads and used to eat them all the time!
  • I have mild UC so I eat pretty much whatever until it bothers me. The only thing I really try to stay away from is carbonation. It kills me!!! Worst cramps ever!!!
  • keggen
    keggen Posts: 102 Member
    I have actually had good results in the last few days just switching from whole wheat bread english muffins in the morning to plain. It goes against every "healthy" fiber of my being to eat like that. Sigh. No lettuce in the last few days either.
  • chefsusan
    chefsusan Posts: 101 Member
    I find the more processed the food, the better for me. I can not eat anything that has fiber in it. If I am in remission I can handle some fiber is small doses. That goes for caffiene also. Dairy-I can not eat. It is silk milk, limited number of ice cream, etc. Ice berg lettuce I think I can handle. As long as I do not add nuts to my salad. Which I enjoy on them.

    I have just had to watch what I eat and in what portion size and how often. It is difficult while trying to loose weight. Especially when I feel good and want to eat more food.

    My UC is pretty bad. I can get a flare up pretty easy.
  • deebelky
    deebelky Posts: 32 Member
    i guess i am just lucky. i have had UC (lower intestine) since 1996. i have tried EVERY UC recommended diet under the sun over the years--to the point of the obsession over what i ate or didn't consumed my life. i finally rebelled and just decided diet did not help me. the only thing that has ever helped is the right medication. so now i pretty much eat whatever i want. i eat clean about 80% of the time and do just fine with all the whole grains and fiber. i am on cimzia, which keeps me pretty much in remission, although having a bit of a flare right now which i contribute to pain meds. beano is a fantastic product. remember--it is enzymes. it may do the work for you that your gut can't. anyway--just my two cents. have a great wednesday.
  • keggen
    keggen Posts: 102 Member
    Yes on the Beano. I'm vegetarian so I tend of eat a lot of beans. But I've started using dried beans and I must not be soaking/cooking quite long enough.
    Is alcohol a problem for anyone?
  • mjboswell
    mjboswell Posts: 114 Member
    When I'm in remission I can eat whatever I want, although coffee seems to upset my stomach lately. However when I am having a flare it seems like the only thing that doesn't cause me pain is processed and fast foods. It seems so odd to me that the stuff I try to avoid is the only thing I can eat during a flare. I have rum on occassion and it doesn't bother me at all. I've decided, starting tomorrow, to cut out all wheat from my diet. I'm hoping this will make a real difference. Lately, even when I'm not having a flare, I just feel tired and not right. You know not sick but not healthy. I'll let you know how that works out for me.
  • Fayve
    Fayve Posts: 406 Member
    I find it so strange - I've never found a food that particularly affected me, even during a flare. I've been in remission now for about a year, and still take 3 imuran a day, but I'm pretty thankful not to have any trigger foods (that I'm aware of yet).

    I have this weird false sense of security since it's been so long since I had any symptoms. I feel like having UC never really happened, but I'm so nervous to get caught off guard and go back to the hospital again, haha.
  • deebelky
    deebelky Posts: 32 Member
    ...Is alcohol a problem for anyone?

    well--i guess i spoke too soon. have been fighting off a bad flare -- first in at least a year and a half. i know it'sfrom all the pain meds i had to take recently from an injury. anyway... love red wine... it kills me.

    and just restocked the beano. ;-)
  • Magenta15
    Magenta15 Posts: 850 Member
    when in remission I can eat anything, though do get bloated.
    when in a flare up... everything hurts lol... esp bready stuff. and spicy and everything lol...

    I would like to try to cut out wheat/gluten... I think I would feel less bloated all the time even in remission... just gotta wrap my head around it.
  • taintedbutterfly18
    taintedbutterfly18 Posts: 189 Member
    When I first got diagnosed 4 years ago, I could not hardly eat anything without getting sick. Now I can eat mostly anything I want in moderation. I find that extremely salty, greasy foods are to be avoided all the time and I do. I completely gave up drinking soda and I feel fantastic. I am finally in control.
  • iuew
    iuew Posts: 624 Member
    i'm also on lialda, and sometimes i am ok but not 100 percent. after having a massive flare that lasted months in 2009 and another one in 2010, though, being a little off doesn't bother me as much.

    i mostly eliminated caffeine, if i eat chocolate, i don't eat much, and i stopped taking fiber supplements a couple years ago. i think large amounts of candy can set me off, too. my birthday is on Halloween, so i made that my slip day in 2010. it did not work out well for me.

    if i feel the slightest hint of a flare, i don't eat big salads.

    other than that, i eat pretty normally (meat, bread, veggies, protein bars, etc.)
  • iuew
    iuew Posts: 624 Member
    Yes on the Beano. I'm vegetarian so I tend of eat a lot of beans. But I've started using dried beans and I must not be soaking/cooking quite long enough.
    Is alcohol a problem for anyone?

    depends on the alcohol. something sugar heavy in large amounts might be. vodka not really. the biggest problem for me is caffeine. i had to cut out a massive coffee habit in one day. now it's mostly decaf. i do have an occasional real diet coke, and that doesn't seem to hurt, but two real cups of coffee and my digestive system reacts very poorly.
  • SH1969
    SH1969 Posts: 13
    I think everyone is different and, from other support groups, I've learned different foods affect individual sufferers differently. For instance, I can drink coffee (cold) and it helps especially during flares, but for others this is a big no-no. I can eat some fruits sans skin, others cannot. Beans, broccoli, cabbage and sprouts also don't affect me as they do others either.

    I kept a food diary before I was diagnosed - actual diagnosis took 9 years - so I know what I can and can't eat. I don't rely on the advice of others having undertaken several "specialised" diets in that time. Now, I listen to my body. Only problem is how to combine what I know I can and can't eat with a healthy weight loss plan.
  • Mighty_Rabite
    Mighty_Rabite Posts: 581 Member
    I am lucky enough to have a fairly mild case of UC - I eat pretty much whatever I want, although if I go more than 2-3 days in a row eating more than a couple servings of fibrous vegetables, it can have adverse effects, to an extent at least.

    I am on Asacol HD 800mg twice daily. I have a few Canasa on hand but they are expensive as hell and I plan to only use them if I feel it really becomes a necessity.

    First symptoms in February 2012, had a checkup in March 2012 and a colonoscopy scheduled for April 20, but went to the ER on 4/10 with pretty much unbearable symptoms. Diagnosed 4/12 and back to relatively normal by about May or so. Dropped from 171lbs to 159lbs while in the hospital and lost a TON of strength and cardio conditioning during the ~10 days that I did not work out due to increasingly bad symptoms. Thankfully.. I am back and better than ever.. just hoping to avoid too many future flare-ups!
  • KenosFeoh
    KenosFeoh Posts: 1,837 Member
    Does anybody else have major issues with pasta? That is the one food that is guaranteed to have me doubled over, moaning with pain, even if I only eat a bite or two. My guts HATE pasta!
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