Help! My labs are not normal but dr. Doesn't change meds

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bclampff
bclampff Posts: 12 Member
I have had hypo for over 20 years. I started on synthyroid and have been on it only since then just increasing my dose to 200mcg. For the past year, I have have been at my highest weight around 300 pds and also extremely tired with no energy. At my most recent dr. Appts. My labs were T4 (free) 1.17 which is normal, T4 Thyroxine 11.50 which is considered high, T7 (free uptake) 3.00 normal range, T3 uptake 26.00 which is low, and most alarming is my TSH which is 13.150 which is considered very high for the normal range of less than 4.5. My question is the dr.seem a little curious about the TSH but otherwise they say I am fine. I a considering seeking out an endocrinologist but don't know if I should. Are my numbers similar to anyone else? What supplement would help?

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  • debbylee22
    debbylee22 Posts: 456 Member
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    Hi!
    I'm not too "up on the numbers" will let someone else answer that. The TSH looks very bad. I'm new to the whole thyroid thing. But I started taking synthroid a couple of months ago. At the same time I also came here & learned about supplements. They helped so much that I am now off of the meds, will see if my levels are still good after a month this way.

    What I found really helped was Virgin Coconut Oil. Vitamin D3, Selenium. I also take Evening primrose oil (helps hair-loss), and multi-vit's, flaxseed oil.

    I'm gluten-free, many have found that helps, as well as avoiding the other foods that slow your thyroid.

    Read through the posts here, there is lots of info. Also www.stopthethyroidmadness.com is very informative.
  • bclampff
    bclampff Posts: 12 Member
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    Thanks! What supplements are best? I take a multivitamin, recenty started D3, and also a omega 3.
  • luvjab1
    luvjab1 Posts: 2
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    Just because your numbers are normal, doesn't mean that's normal for you. I had to end up going to an endocrinologist and they changed my meds. That helped me. Might want to look into other things as well. I just had blood work and my Rheumatoid factor was high, which suggest rheumatoid arthritis, which can also make you very tired.
  • debbylee22
    debbylee22 Posts: 456 Member
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    Thanks! What supplements are best? I take a multivitamin, recenty started D3, and also a omega 3.
    I'd say the Virgin Coconut Oil is the best... recommended to eat 1 TBS per 50 lbs body wt. But start slowly, use instead of other fats. I mix it into things.

    The D3 & selenium are essential too.
  • firstsip
    firstsip Posts: 8,399 Member
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    Holy crap--your TSH is over 13?! That's not normal by any book or means. As someone who was told I was "normal" with TSH of 0.02 for years (and I don't even have a thyroid, so it was clearly dose related), get a second opinion!! If you don't feel normal and tests show normal, get a second opinion. If tests AREN'T normal, and you also don't feel normal, GET THE HELL OUTTA THERE!
  • tecallahan
    tecallahan Posts: 732 Member
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    Check out my post about Adrenal stress and fatigue. After so many years on Synthroid, I would not be surprised if your adrenals are fatigued - and no amount of thyroid meds is going to help until they are better.
  • kllyeve
    kllyeve Posts: 18 Member
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    If your Estrogen is high it will also interferes with thyroid hormone function - so your TSH is high because it is trying to compensate for the amount of estrogen. See if you can find and endocronologist to help you get all three working together like they are supposed to - Adrenals, Thyroid and Estrogen.
  • nspink
    nspink Posts: 65
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    You should book an appointment right away with an endo doctor!
  • shvits
    shvits Posts: 249 Member
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    my best advice is to change to a specialist ASAP. I you don't like the first one change again. My endo started me on cytomel and I have more energy, but she says it does not work for everyone. You need someone who is a specialist, a G.P. or internist does NOT know how to deal with these issues I have found that out over the years (45) of dealing with thyroid problems.