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Yeah, I am in one of the fb groups and they have been tremendously helpful. I was just reaching out on a different social media. I was dx with ON about three years ago but I have been suffering for little more than a decade. I've received nerve blocks and Botox, and tried topamax and a muscle relaxers. But I have never…
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Goodness, you are going through a lot! I have ON as well, so I know a little of what you are going through. I can't speak for the rest, but changing my diet to focus more on anti-inflammatory foods has helped a little with the spasms for ON. Since, most anti-inflammatory foods are healthy, I have lost a little bit a weight…
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MelanieBenz, I too suffer from ON, so I know a little of what you are going through. Hope you have found some success in your weight loss since this post in March.