Ksc1269 Member

I did Copaxone 2 times for about 2 years each time. I found it easier to not use the autoject and just gave myself the shot. I had HSCT for my MS in May of this year and do not need MS drugs anymore. I did have some side effects from the Copaxone. Best of luck!

I am so sorry! I never saw any of your replies! I was just browsing and found my old post! We believe my HSCT was a success. I'm back at the gym and have had some great small improvements. Please friend me here if you have any questions! Or my email is mkcampbells@gmail.com

We have a Glasgow in Montana :) I am somewhat new here also.

Hi, I Just got back on here. I've been gone for awhile. I have MS and just had HSCT to stop it. So, after the Chemo and Stem cell transplant, I am having a hard time losing. I know Sarcoidosis and MS are similar. Oh, I am 45 :)

Hi, No, you can't run with it. Well, at least I don't think so. I haven't tried. My MS got worse the last few weeks - that's why I haven't been on MFP. I had to do a 3 day steroid drip and now am on the taper for 12 days. If you want me to get you the name of the foot thing, please let me know. I'll get it out of my hiking…

Hi, I am on Copaxone now and am having a relapse - we think. I had a new MRI yesterday, but have not heard about the results yet. If there are new active lesions, my Dr wants me to switch meds. What was it like to switch? My other option is Tysabri and I am scared of that.

This is what happens when I'm really tired or stressed. I'm sorry that you have it too. I wouldn't wish this on anyone!! Thanks for your reply!! I really appreciate the support. No one knows what it's like unless they have gone through it.

That's what I have! No fun at all. Well, the new device has now been tested. My husband and I took the dogs for a walk. I was able to keep up with him for much longer than usual without my foot dragging/dropping. It is not a miracle cure, but a bit of an improvement. I have to go for another MRI on Friday, so we'll see. A…

Thanks for the reply. I tried Ampyra. It didn't work at all. I've also tried weeks of PT and discovered that it is an old lesion that is causing the trouble. It is just very discouraging to not be able to walk for more than 10 minutes without tripping! But, maybe the device will help! I can only hope :smile: I go to get it…

I am a newbie. We are almost in the 'empty nest' stage! One is on his own after graduating from college and we have a Junior in HS that we never see! We are both trying to lose weight now. Very strange time of life!!

I'm 5'10" and my goal is 160. Have a great day everyone!!! Add me if you like :)

I am looking for friends here too! I am new here and feel that I have finally found a great way to lose this weight! Please add me :)

Feel free to add me too! I am 43 and I have 2 boys, well, 3 if you count my husband!

I take 5000 iu per day and have for about 10 years. My levels are good and are checked every year. My ND has recommended this dose and does for all of his MS patients. I also live in MT and only get about 6 months of sun!

Hi, I'm new here and just found your post. I've had MS for a little over 20 years. I'm sending you a friend request! I don't have any friends here yet, but am looking forward to getting to know you.

Hi, I am 5' 10" . All of my friends are about 5'6" and have no weight problems. I need to lose about 30 pounds. I am also new here and hope to find friends!! Have a beautiful day!!