New here, looking for AIPers...

Cheesy567
Cheesy567 Posts: 1,186 Member
edited November 2024 in Social Groups
Hi-
Is anyone following the Autoimmune Protocol?

I started it about 18 months ago when diagnosed with Myasthenia Gravis (MG) and put on high-dose prednisone. It kept me from gaining weight, but I never noticed a significant improvement with the MG symptoms. The reintroductions surprised me, it was eye-opening to see my reactions to almonds in particular.

The Myasthenia had been worsening when I first started the AIP, and that may have thrown off my assessment during the reintroductions. Also, I never stopped drinking coffee, because it's my main comfort food and the year leading up to diagnosis and the winter following the diagnosis (being homebound or bedbound) were the toughest times I've been through to date. I needed the comfort wherever I could get it!!

The MG is more stable now, on multiple medications. I'm at a point where I can walk 6-9 blocks most days, and I'm averaging 3000-4000 steps a day. I'm considering re-doing the elimination phase of the AIP, maybe for 8-12 weeks instead of the 4 weeks I originally did, and I'll go all-out and give up coffee this time, too.

Is anyone here on the AIP? Or anyone dealing with an autoimmune disorder or long-term high-dose steroids? It'd be great to find some support!

Replies

  • homesweeths
    homesweeths Posts: 792 Member
    Celiac dd and arthritic self are doing AIP together. Regarding coffee... I just bought dandelion root and something else (I forget, it's in the other room) to make AIP coffee substitute. We'll see how it works.

    My joint pain is 90% gone. I have been pretty much AIP for more than 2 years now. Have been able to add back in some nuts, dairy, and eggs, in moderation (not every day), though right now I'm doing strict AIP to support dd in her efforts.

    And today was the first day without a headache for her. It's been weeks! And just a few days AIP have already made a difference for her.
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