Here for a friend...

punkrockgoth
punkrockgoth Posts: 534 Member
edited November 13 in Social Groups
Hi! I just joined. I don't have fibro, however my partner does. We're trying to lose weight together and I know he struggles to get active because of his pain. I do a fair bit of reading, but reading research is not the same thing as hearing from people actually coping with it. So I hope you don't mind if I poke around a bit and read some of the discussions and learn ways I can support my parter's goals without being unrealistic or pushy.

Replies

  • canadjineh
    canadjineh Posts: 5,396 Member
    Welcome and ask away! This isn't a very active forum, lots of people with FM deal with intense fatigue, pain, and brain fog, so it does get in the way of posting and reading regularly. Tell him not to give up and keep trying to find what works for him to help him feel better. I hope he has a good understanding GP and/or Rheumatologist and/or Pain Specialist. It can be extra hard without that professional support. Good you are on his side! what most people don't understand is that it isn't 'lazy people who just want to hang out and live off the system and need an excuse' that are affected with this. It's generally Type A perfectionists who were constantly busy and active that suddenly get hit with it after a traumatic event (physical or emotional).
  • gavians
    gavians Posts: 72 Member
    The bitter pill is you need to be active in order for fibro to feel better. But of course this is an insurmountable task when you are in pain. But I can attest from my experience that it does work. For me, lowering gluten in my diet, taking Malic Acid pills (like Fibro-Response), and slowly working out starting with an elliptical worked. Just keep pushing yourself to do what you can and do a little more the next day. Once you break through the fibro barrier it does get easier. I went from barely able to walk through a grocery store for 10 minutes to running a half marathon. It took me about 3 years to get there, but it can be done. Good luck!
  • deeschange
    deeschange Posts: 186 Member
    Its great that you are willing to learn about your partners condition. Support is definitely needed and welcomed for those of us with FM
  • joey72talk
    joey72talk Posts: 23 Member
    Eating clean and minimising pharmaceuticals gain me higher brain function, more energy, more sleep and less weight....... Artificial sweeteners are like poison to us so avoid like the plague.... Cook from scratch using fresh ingredients (again processed foods cause us problems). less caffeine is helpful..... And a good quality Q10 is highly recommended as it assists with releasing energy from out cells......... I lost 18lb doing the above
  • melmerritt33
    melmerritt33 Posts: 1,097 Member
    @joey72talk That’s really interesting about the diet, I started a low carb diet a couple of years ago and have been experimenting with carb levels that in effect really limited the amount of processed food and sugar I eat and I’ve noticed a big improvement allowing me to stop taking daily medication (although I’m by no means cured). I think diet is really important for us.
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