Autoimmune Disorder Thread
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GaleHawkins wrote: »@neohdiver I hate to hear that. After being stuck in the 20's for years finally over the last year I finally got my Vit D level into the 90's. It seems from some articles that I have read with Vit D levels in the 70-90 range most diseases do not show up and if we can get our levels up into that range after the fact that it may even help reverse things like cancer, etc. Keep in mind taking Vit D3 without taking enough Vit K2 (not talking about Vit K/K1) can lead to heart disease I read. Vit D3 will move calcium very well but K2 tells calcium where to go. Without enough K2 the calcium can wind up in the arteries and heart valves. Thankfully there seems to be no way to over dose on Vit K2.
Below are a few random Vit D articles.
hypothyroidmom.com/92-of-hashimotos-patients-with-vitamin-d-deficiency/
About impact of Vit D killing cancer cells abcnews.go.com/GMA/OnCall/study-vitamin-d-kills-cancer-cells/story?id=9904415
Japan is one country that is leading in new low cost ways for better health.worldhealth.net/forum/thread/99358/vitamin-d-proven-more-effective-than-bo/?page=1
Wow, good to know! My MS specialist has had me taking megadoses of Vitamin D for a good 6 or 7 years and I'd never heard that about Vitamin K2.0 -
Not sure if the link will work, but today's email had this from Dr. Isabella Wentz, who researches thyroid and AIP -- Website: www.thyroidpharmacist.com.
Many of you were able to download the free thyroid cookbook! We've since made some improvements to the Thyroid Bundle Cookbook. Make sure to download the updated copy below.
Click this link to download the Updated Cookbook
https://s3-us-west-2.amazonaws.com/thyroidbundle/Thyroid_Bundle_CookBook.pdf?inf_contact_key=731ce44371f5925c9150433a09bc9bfa62a18b2fbc9b681a923ae7ef2eb06f61
I haven't used the cookbook, but collect the links just in case!3 -
Hi Everyone!
My name is Bonnie in Canada. I don't have an any autoimmune problems but I wanted to pass on some info that I recently learned that I know is not really mainstream. Take what you will, leave the rest.
My partner and I have started following the endeavors of a man named Wim Hof from the Netherlands.
He is better known as the Ice Man. A guy who can control his core temperature to withstand hours in freezing temperatures. What does that have to do with you? Well, he is no longer just a stunt person. A few universities have started studying him to see what it's all about and in his last round of testing he not only showed that with his method he was able to control his temperature but also his immune system, inflammation response AND stop pain signals in his body!! Not only that but to prove it was his method and not that he's a freak of nature, he taught 12 other people to do it as well who were also tested!!! Even the universities are saying this could prove helpful for people with autoimmune disorders, depression, anxiety and a handful of other things.
The best part is, his method is relatively easy. It has 3 parts consisting of breathing, concentrating and exposure to cold (most people use cold showers). Don't worry you don't have to jump in all at once. He actually encourages you to take it really slow with the cold starting maybe only with your feet and not actually completely cold water. People have known for years that cold showers help to stimulate white blood cell production.
The breathing is simple and consists of 30 particular breaths, then holding the breath. This sequence repeated 4 times to complete a session. Easy and doesn't take too too long. Take it with a grain of salt but I figure it can't hurt. There is a section where he suggests doing push ups, but if you can't for various reasons, don't. It will still work.
So not only do they know that this method does work they also now know WHY it works. I can't remember all the brain chemicals and the why's and hows but I'm putting a link to a youtube interview he did with Dr. Rhonda Patrick that explains it. It is definitely a bit long and tedious in beginning. It's around the middle where the WHY starts to be explained. Definitely worth a listen.
https://www.youtube.com/watch?v=389c31dD9xg - Interview with Rhonda Patrick PH.D.
He has a website www.wimhofmethod.com that I found not really good but if you watch a few of his videos he is NOT in this for money. That's why it's a little hard to follow. He does have his full course available for $200 but he will send if you click the link there he'll send you the 3 free videos that get you started and really... I think that's all you need to get going and see if it's something you'll be able to follow/use. He's really just into what his does, not so much the marketing. And since his wife died of depression and mental illness, he's really into sharing this with people to help as many as he can. There is also a useful facebook group that is quite active, just google Wim Hof method.
Another really good interview with him is on the Joe Rogan Podcast, but be forwarned, Jor Rogan does swear a lot. So if that bothers you, you might want to skip it or just hold your judgement in favor of the valueable information that he shares.
https://www.youtube.com/watch?v=A9zS94x2nd8 - Joe Rogan Podcast #712
And finally here is a short video with Wim explaining the basis of his method.
https://www.youtube.com/watch?v=Y1ial3Rc7Xg
I hope it helps someone!
Be well,
Bonnie2 -
@macchiatto somehow I missed the need for K2 MK4 and MK7 for years then found info about it in a small book someone mentioned then Google lead to many articles that K2 needs to be taken if taking Vit D3 to prevent calcium build up in arteries and heart valves, teeth and joints because without K2 calcium does not know where to go like into bones and teeth.
I read about a doctor in Brazil using up to 115K units daily to "cure" MS. I did take 40K units for a short while then dropped back to 20K units of D3 to get my levels finally out of the 20's once I understood next to no one dies prematurely with Vit D levels in the 70-90 range. When I tested this year I finally was in the low 90's.
The best thought I read about the cause of MS is that the mother has low levels of Vit D when carrying the child. I knew one girl growing up who developed MS and had a son that developed MS so there may very well be a genetic/environment component as well.
To help prevent/control cancer with Vit D3 I see most often the levels mentioned are in the 70-90+ range. I plan to work to stay in the 70-100 range (USA).
Did high dose Vit D3 help with your MS symptoms?
The simple way I read to know if one is short on Vitamin D/K2 is by talking with your tech who cleans your teeth. If there is hard plaque that has to be scrapped off then one is low in Vitamin K2. The last I read there was not a good test for Vit K2. Coupled with the info that one can not overdose on K2 I now error on using more than 150 mcg daily of MK-7.
With my Vit D level in the 90's taking high levels of K2 the hard plaque build up one my teeth has gone away. I hope the same happened to any calcium build up I may have had in my arteries and heart valves. I just started Wobenzym systemic enzymes that is to clean out arteries, heart, etc too.1 -
GaleHawkins wrote: »@macchiatto somehow I missed the need for K2 MK4 and MK7 for years then found info about it in a small book someone mentioned then Google lead to many articles that K2 needs to be taken if taking Vit D3 to prevent calcium build up in arteries and heart valves, teeth and joints because without K2 calcium does not know where to go like into bones and teeth.
Thanks for the reminder -- I need to eat more natto! Apparently lots of MK7 in fermented soybeans (natto).
edit to add: Searched around and found the Natto association page in English. There is a comparison between amount spent on buying natto per person, and the amount of bone fractures ... In western Japan, people hate the stuff. In eastern Japan (Tokyo area and up to Hokkaido), they love it. So it seems to correlate, but hey, we all know that correlation is not causation...
http://j-nattokinase.org/en/jnka_nattou_03.html
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Interesting to hear so many with D deficiency. I also have D and B12 deficiency. Docs atrribute it to autoimmune effecting my stomach & causing malabsorption. Leaky gut syndrome? Despite supplementing both in megadoses, my levels stay low. (D increased from 11 to 20) I'm hoping that being on Keto & being grain free will lead to healing and improved absorption. Time will tell! I'm in NH, so similar weather to those in Canada. (I can cross the border in 2 hours) We do run low here, particularly in the winter.1
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Hashimoto's & vitamin D deficiency are linked, and thyroid disease is often linked with diabetes. So it makes sense to me - and those with vitamin D deficiency might want to consider getting a thyroid test, if they haven't already. One of the theories of Hashimoto's is that it is genetic with an environmental trigger (one of which is thought to be a vitamin D deficiency).0
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I've never been diagnosed with anything. But I'm convinced that I have had moderate Chronic Fatigue since I was 19 after a 1.5 month long battle with mono. I was never the same after. All the time exhausted no matter how much rest I got and rapidly gained 80lb. Occasionally there was a pain/ache component to it. Doctors here always just said "depression" and gave me antidepressants. All those things did was make me unstable mentally. Still tired. Which made me depressed for real. Then I dropped the antidepressants that didn't work and started keto. It helped some. What depression I legitimately had is long gone. But I sleep poorly, and even if I do sleep, I'm still tired when I wake up and have waves of chronic-fatigue-tired that smacks me throughout the day. And during a certain part of my cycle, it comes back pretty strongly and brings the aches with it. I've yet to find anyone who will actually investigate anything, even do D and B vite testing. My insurance is a joke and covers nothing until I pay out $7000, so there's no doing anything anyway. (Affordable health care...hahaha) I suck down 2 cups of coffee a day and drink a Mio-generic with b-vites and caffeine. I take probiotics and ACV. The only thing that perks me up temporarily is exercise. And I feel great for awhile after, but then I get tired again.
I AM NOT DEPRESSED. Good grief! I am happy, happy, happy. Just tired, tired, tired.
I have some B vit pills to take, but they give me a migraine. I don't know what they put in that brand, but there went $12. I take D3 but then DH fusses at me for taking it. He thinks I'm going to overdose. I read and hear all kinds of things. I take mag and melatonin before bed. I still wake a million times a night. My electrolytes are fine. It's not a deal breaker or anything, I mean I'm going to keep eating low-carb and exercising. I just get tired of feeling tired. Somebody says take Bs, some say take Ds, some say take d-ribose, some say take adrenal support. I'm tired of spending money on supplements. The B-Complex gives me headaches because of some additive, the adrenal support gave me acne and made me psychotic and messed up my cycle. I accidentally got the wrong kind of niacin so that's money in the trash. Money down the drain I don't have to waste.
I've just kind of given up on it and accepted it like I've accepted that I'm carb-sensitive and just live my life. The tiredness is still annoying though, but I push through.1 -
I was B12 deficient before my celiac diagnosis and needed shots. Now that I eat gluten free my levels are high with no supplementation. I am low on Vitamin D however. There is a correlation between RA and D deficiency.0
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I'm Cyndi from Arkansas. I have Fibromayalgia, Lupus, and RA. I have battled with the pain and inflammation for over a decade. I have tried almost every drug out there with little to no relief. 10 months into LCHF WOE my pain and inflammation have been cut by 90%. I do have a flare up if I indulge in sugar or go over about 50 net carbs per day. I'm guessing I'm just that carb intolerant...
However, I can tell you, a year ago I was barely functioning. Weekends and days off were spent in bed. I dragged myself to work each day and collapsed on the couch, with nothing left after work. I popped pain pills and anti-inflammatories all day, every day just to make it through the day.
Fast forward to now, I'm up and about early each day. I'm running at least 3 times a week, and I'm actually enjoying my weekends and days off with family and friends.
Yes, I have lost a lot of weight, but what I have gained means so much more!
BTW, thank you for the thread! I wondered how many others have seen improvement with auto-immune disorders and Keto.3 -
That's very encouraging Cyndi!!!
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Interesting to hear so many with D deficiency. I also have D and B12 deficiency. Docs atrribute it to autoimmune effecting my stomach & causing malabsorption. Leaky gut syndrome? Despite supplementing both in megadoses, my levels stay low. (D increased from 11 to 20) I'm hoping that being on Keto & being grain free will lead to healing and improved absorption. Time will tell! I'm in NH, so similar weather to those in Canada. (I can cross the border in 2 hours) We do run low here, particularly in the winter.
@ndvoice I think you are right that many things depend on a good digestive track. While daily I took 20,000 units of Vit D3 and Vit K2 for at least 6 months before my test that showed my Vit d levels in the low 90's it was at the same time my IBS cleared up which I expect was related to my leaking gut for years.
I do hope you get your Vit D level out of the danger zone ASAP.0 -
SamandaIndia wrote: »Hi there, forgot to introduce myself. Samanda here, now living in the Netherlands where the gorgeous autumn leaves are falling. I was in India for 4.5 years before this for work. An Aussie and a scientist that now manages IT projects. If that helps you pigeon hole me? Love helping people and making folk laugh.
Hi from Rotterdam. Just following along. When I transitioned to LCHF I had a terrible time getting regular again. I think that's also a function of intestinal changes in bacteria. I found that magnesium ascorbate, further supplementation with high dose Vitamin C and good probiotics can really help.0 -
SamandaIndia wrote: »Hi there, forgot to introduce myself. Samanda here, now living in the Netherlands where the gorgeous autumn leaves are falling. I was in India for 4.5 years before this for work. An Aussie and a scientist that now manages IT projects. If that helps you pigeon hole me? Love helping people and making folk laugh.
Hi from Rotterdam. Just following along. When I transitioned to LCHF I had a terrible time getting regular again. I think that's also a function of intestinal changes in bacteria. I found that magnesium ascorbate, further supplementation with high dose Vitamin C and good probiotics can really help.
In Den Haag and could just hug you! Thanks for the tips on getting regular -they are just what I need now.1 -
GaleHawkins wrote: »Autoimmune diseases have really impacted our home. I did not know what LCHF when I started it. I was just try to escape starting Enbrel for pain management due to it increase risk of cancer and other bad things. In my simple mind I thought perhaps cutting out grains and sugars would work and it did within the first 30 days.
While my pain dropped from around 7-8 to 2-3 in the first 30 days a year ago I have just started to work on the last 2-3 level. A week ago I started on Wobenzym N systemic immune enzymes and so far no side effects even taking 40 a day vs 6. From what I can read one needs to give them a month to see if the Wobenzym N will be helpful. Here are a few links that I read before in invested in a stock pile.
livestrong.com/article/161756-benefits-of-wobenzym/
https://mskcc.org/cancer-care/integrative-medicine/herbs/proteolytic-enzymes
advancedalternativescenter.com/Wobenzym_Systemic_Enzyme_Therapy_s/171.htm
This next one was very helpful with some of the science. It is a limited version of the book he sales $10. yourhormones.com/documents/Systemic_Enzyme_Therapy_Hormone_Health_Edition.pdf
While Wobenzym N is not a medicine the next like is similar to a drug insert with half-life, etc info. zdroj.mysteria.cz/files/WOBE.pdf
I have never be into enzymes before so I am clueless of the outcome of this trial of Wobenzym. It was developed about 50 years ago at a college in NY then Dr. Wolfe total it to Germany to produce and test it. 40 years later it is used worldwide by healthcare providers but not so much my MD's in the USA. I think they have like 100 million users worldwide. One thing that impressed me was there has been many clinical trials in the literature with no death related to Wobenzym N that has been reported.
Where it works or does not work for me I will report by the end of the year. Has another others had any experience with Wobenzym N. The price on eBay/Amazon runs $0.10 - $0.15 per tablet depending on the size bottle that can range from 100 to 800 tablets. The 200 count runs about $30.
I think there is a lot of rip off products aimed at those of us with autoimmune diseases. I am hoping with Wobenzym having been on the market in a major way for 40 years means it must work for more than not. Hopefully I will find the side effect of weight loss that some report with Wobenzym.
I do know LCHF works well to cut my arthritis pain down to where I can function OK.
bump this. This is so interesting....for anyone that's new like me...with auto-immune issues read back on the links on vitamin D. Very interesting stuff. My D level has been low for years and I just started taking 10,000IU and my level just got into the really low to low but normal range(31) (31-100 is considered normal). I really considering increasing my dose to 20,000IU until my levels are back up and bake in the sun a bit along with k2.
It pisses me off that this is not more readily available to the public. I shouldn't have to do so much research to find this. This should be promoted by PCP and GP.3 -
Does anyone have a rec for a good Vitamin K2?1
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check this out!
http://www.healthfeed.us/the-all-natural-way-to-reverse-rheumatoid-arthritis-doctors-are-in-complete-denial-about/5/
article highlights importance of vitamin D. I don't know if this was shared already but this has me excited.3 -
@rugged1529 thanks for the bump because last week I was trying to remember when we got on Wobenzym at our house. The wife and I still take Wobenzym daily.
I finally got my Vitamin D levels near 100 but it took the better part of a year doing 20,000+ units daily but I was down in the low 20's. Now 50 is considered the min levels per some with 75-100 being required to reverse health issues. Testing for D is mission critical in my view.
lifeextension.com/Vitamins-Supplements/itemLC120766/C-Reactive-Protein-CRP-Cardiac-Blood-Test
2.5 years into KETO I am convinced that the lowest CRP level is my basic tool to judge my WOE, movement, and supplements value to my health.
@macchiatto I do not buy a lot of supplements from Life Extension but I do use their Vit K2 because its blend mimics some used in testing results I have seen from other sources. While their prices are not super low I do trust their research of articles better than most supplement sales companies. They give their references used in all articles and that means a lot to me with my healthcare educational background.
On Vitamin D I personally think getting to levels of 90-100 is job one to reverse any health care concerns and drive CRP as low as possible. One can not go from 20 to 100 overnight either.1 -
I am 25 and I've had hashimoto's since 11 years old. I'm using keto for fat loss, and also I feel like crap when I eat sugar and carbs! I've tried numerous other methods and nothing worked. I've lost 15lbs since March 4th, and I have a lot more energy! This will be for life.3
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@GaleHawkins no problem. People need to know. What is the ratio of d3 to k2 that you take? or does it not matter as long as your taking K2...1
