Hello

MinMin97
MinMin97 Posts: 2,674 Member
Hi! I was invited to join this group, so thank-you for that!

Hope I can contribute information which will result in healing for you.

I have had problems with my colon before, but I am normal now, for which I am very grateful!
When I was 16 I was diagnosed with crohn's disease, and I remember how I did not agree with the doc. " I do not!" I thought.
I knew what my problem was, it was stress. Homelife was not too lovely.

Anyway, over the course of my life I have had what would probably be called IBS and I aways associated flare-ups with emotional issues. I have also discovered a few other factors causing the problem.

Long story short, I don't think colitis is forever. It needs healing. I am will to discuss healing. Hope you are feeling well today!

Replies

  • CamillaHerold
    CamillaHerold Posts: 60 Member
    My colitis seems to be strongly associated with emotional upsets. Other things too, but definitely with that type of stress. I am not good at diffusing stress, and I need to change that.
  • 6550mom
    6550mom Posts: 206 Member
    Colitis / Crohn's (IBD) and IBS are different. That's true.

    Some of us have nearly died from colitis, so every person's experience is different. Those of us who could not heal ourselves are not weaker or less able to deal with the disease (I don't think anyone here thinks that but it is a pretty common attitude so I am on a crusade (LOL) to make sure people understand that the pathophysiology of the disease isn't under one's control, while the emotional triggers of flares may be somewhat)- the inflammatory response is stronger and the immune system is more dysfunctional in some due to genetic and environmental factors. Some people get one bad flare and never again. Some have mild, rare flares, and some of us will die without surgery because our colons are so inflamed that they can rupture.

    I'm really, really happy every time I hear of anyone who had a diagnosis of colitis and got better :):flowerforyou:
  • chefsusan
    chefsusan Posts: 101 Member
    My GI doc and I fought my UC for 4 years and he put me on remicade last October and by my June colonoscopy my colon was a real pretty color of pink. Not red and inflamed, but a healthy pink. He said at my August appointment that I was in remission. I am trying really hard to stay that way. Exercise, watching what I eat, trying to lose weight. When things go wrong, now that I have insurance, I am going to the doctor and trying to stop things before they get to bad.

    I have been diagnosed with UC for 16 years now. The last 6-7 years were the worst, bad marriage, separation, divorce. Actually, once the separation occurred, my stress levels started going down some. Now they are very low, and I am trying to keep it that way.
  • ctalimenti
    ctalimenti Posts: 865 Member
    I've had colitis for 15 years "off and on" but it doesn't go away in most people. It seems once it rears its ugly head, it's here to stay.

    I've tried a myriad of treatments from the SCD diet to chiropractic to anti-depressant/anti-anxiety meds. I've had remissions lasting a couple years at the most. I too wasn't agreeing with my docs diagnosis and went off my meds several times. Now I'm on them to stay.