What do you hate the most?
arcana7609
Posts: 212 Member
I can deal with losing the outside of my eyebrows and even my hair thinning. I am so tired of being cold ALL the freaking time. At home I have my thermostat set on 80 and sleep with 2 comforters and today I had my boyfriend throw this California KIng quilt we have on top of me. I just cant get warm.
At work I am so cold my teeth are chattering. Cold like this has put my heart into a-fib in the past...before I went on thryoid meds. I am sitting here with my coat on and a blanket wrapped around me watching me fingers shake.
GRRRRRR
So how has thyroid affected your life?
At work I am so cold my teeth are chattering. Cold like this has put my heart into a-fib in the past...before I went on thryoid meds. I am sitting here with my coat on and a blanket wrapped around me watching me fingers shake.
GRRRRRR
So how has thyroid affected your life?
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Replies
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I like this topic! Sometimes it's nice to vent a little and see what others are experiencing.
I was diagnosed hypothyroid last summer. Thin outer eyebrows, brittle hair, weight gain, cold extremities, the works. One of the hardest things to deal with is the lack of control. I can run miles, eat perfectly and still not get closer to my goals. Crazy food allergies and a form of autoimmunity are hard- when I eat out, if I unknowingly eat an allergen, I get an inflammatory reaction: water retention, weight shoots up, etc. I also go through periods of lower energy, I would liken it to a depression.
My medication keeps going up, but I appreciate that I have a doctor that is proactive. So that's my rant and I second Arcana's Grrrrrrr.0 -
I don't like how a small reduction in my medication (from .125 to .100) made me gain 3 lbs that I cannot lose and dropped my TDEE down from ~1950 cals/day to ~1600. That makes me grumpy! The thin hair is no fun either, but yeah, the cold... I was actually blaming that more on my weight loss, assuming that less body fat was to blame, but it may well be the thyroid. Also, feeling my energy at a lower ebb than I had prior to the medication adjustment; during exercise, it feels like I get tired sooner now.0
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the hair thinning and the eye brows are a nuicence, the brain fog and tiredness suck but what really gets me is the constant bleeding
i have periods that just wont stop when my meds need upping but the doc wont up them till my tsh is over 6
last change it took a 4 month long period before she upped them. before they diagnosed me i had an 18 month long period
because of this i ofen end up iron deficient or anemic0 -
I have the problem with being cold ALL of the time. I have found something that helps a bit. I have gotten quite creative with neck scarfs & pashminas. For me, having fabric around my neck helps tremendously. Everybody compliments me on my "fashion" but it is mostly for warmth. I am still cold but not as bad as without. Does not have to be tight against the neck just touching.
I do have some of the "brain fog" too. I did chemo 13 years ago which gives you "chemo brain" very similar to what I am now experiencing with thyroid issues.
Weight loss is slow, weight gain comes fast.0 -
Anyone have any tips on how to really and actually lose weight being hypo? I have been hypo for 15 years now, but always have been thin. I was always 115-120 pounds until 2 years ago. I have been trying to lose weight with no luck...And yes always COLD0
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Eating at a deficit over an extended period of time.Anyone have any tips on how to really and actually lose weight being hypo?
Took me a whole year to lose 20 lbs.0 -
I was diagnosed with Hashimoto's 7 years ago when I was 18 years old. ( I suspect that I had this prior to my diagnosis because as a teenager I would go from sleeping anytime that I could to being a complete insomniac)
What I hate the most is mostly being cold. I live in Las Vegas, and while it doesn't necessarily get seriously cold here, there are a few months out of the year when I can hardly tolerate it. If my hands and/or feet are cold, that's it. Now in the summer when its 100+ degrees outside, its pretty much the same. The heat gets to me and I cannot to stand to be out in it too long.
Also, my hair is really thin and falls out like mad! My meds were just increased to 125mcg from 112mcg because my TSH went up to 5.75 (which isn't terribly high, but enough to warrant a med change) after it being stable for 2 years on 112mcg. Also I do find it harder to lose weight even though my endocrinologist essentially told me that if my levels were normal that I shouldn't have any issues.
So I hate the hot weather / cold weather sensitivity, the weight loss issues and the thinning hair.
This disease will only slow my weight loss journey, not stop it.0 -
Interesting--I am very hypo and have never felt cold at all. In fact, I am mostly too hot. I have a low body temperature too. Now that I take medication I am even hotter. Maybe its better then being cold, though?
The thing I have is the weight I can't lose (no matter how well I eat or excercise) and the puffiness in my face and eyes.0 -
I have had Hashi's for 6yrs. I wish I was cold. I am always so hot. 70 degrees and I'm sweating. I never wear long sleeves, I sleep on top of my blankets, can't even stand to be under a sheet half the time. But the worst part for me though is the brain fog and exhaustion. Every day, no matter how much or how little I sleep, I am dragging *kitten* tired. Takes me 4 or 5 alarms to crawl out of bed in the morning. Sometimes I feel like a zombie with Alzheimer's because I can't remember anything anymore either. I forget what I'm talking about halfway through my sentences even. I'm gonna have to start looking for yet another endo because this one insists I'm fine since my numbers are normal. I'm not fine.0
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I hate being cold! I can deal with brittle nails, digestive issues and all the other problems I have but being cold is the worst and the only one I complain about. I am always cold, and once I get really cold can not warm up.0
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I tend to run cold most of the time, tiredness, brain fog and I've lost half my hair thickness. Have not lost any of my eyebrows though.
I have found drinking/eating things with ginger, cinnamon, tarragon seems to help me feel less cold. I drink a lot more tea and less cold water, especially in the winter and when I'm in the office where I can't control the temperature. I can usually be found in my cubicle with multiple layers, to include blankets holding a tea cup.0 -
the hair thinning and the eye brows are a nuicence, the brain fog and tiredness suck but what really gets me is the constant bleeding
i have periods that just wont stop when my meds need upping but the doc wont up them till my tsh is over 6
last change it took a 4 month long period before she upped them. before they diagnosed me i had an 18 month long period
because of this i ofen end up iron deficient or anemic
You need a better doctor. The latest TSH level recommendations for people receiving treatment for thyroid disease is between .5 and 2.0. I took a copy of this http://www.nlm.nih.gov/medlineplus/ency/article/003684.htm to my doctor and he has been great. I just switched to Armour however, because even though my TSH is .53 I still have all my symptoms. My body is not converting T4 to T3 so hopefully taking meds with T3 will help the problem.
Make sure your doctor is checking your T3 regularly ... it is the one that actually does the work in the body.0 -
Thanks for that article link, Janalayn! I will definitely be taking that in to my next appointment.
For me the worst is the brain fog.
A close second is the leadlike brain density of too many medical professionals when it comes to thyroid issues. My endo telling me he has the same test values & symptoms, but he doesn't take meds, just pushes through it. Ummm, no. Because he'd be misprescribing, misreading, and misfiling patient info, and then sued and fired.
Grrrrr.0 -
ruqayyahsmum,
run, do not walk to a different doctor. Are you seeing a specialist? If you are find a different one and if not find a specialist. Many general doctors think they can deal with thyroid issues...they CAN NOT.. Sending Hug0 -
anyone suffering a dead libido? I mean seriously dead...no feelings at all. At first I thought it might be the bc pills, but no change since I've gone off them. Then I worried that I just might not like my boyfriend. But thinking back, I think the dampening started when my levothyroxine dosage was upped to 100mcg. So, is it a side effect of the levo or just being hypothyroid?0
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anyone suffering a dead libido? I mean seriously dead...no feelings at all. At first I thought it might be the bc pills, but no change since I've gone off them. Then I worried that I just might not like my boyfriend. But thinking back, I think the dampening started when my levothyroxine dosage was upped to 100mcg. So, is it a side effect of the levo or just being hypothyroid?
Interesting. Mine ramped up quite a bit when I started taking Synthroid. In fact, for the first couple of weeks, ALL my energy levels were through the roof.
That said, I once conducted a 3-month trial of upping my dosage, and felt *less* energetic overall (not just libido). It felt like I'd reduced my dosage, which I thought was weird.
Have you googled or posted on any larger/more active (non-MFP) hypo forums? It's an interesting question.0 -
anyone suffering a dead libido? I mean seriously dead...no feelings at all. At first I thought it might be the bc pills, but no change since I've gone off them. Then I worried that I just might not like my boyfriend. But thinking back, I think the dampening started when my levothyroxine dosage was upped to 100mcg. So, is it a side effect of the levo or just being hypothyroid?
Low libido is a typical hypo symptom!
And ladies I am quite shocked about your tsh levels, your doctors should not only look at your TSH/T3/T4 but also at how you feel!! From a medical perspective your medication could be increased up to a level you feel good/ your TSH hits around 0.4/ you experience hyper-symptoms... I feel my best when my TSH is around or under 1..0 -
I was diagnosed with hypo when I was 11 years old.
And I hate the cold
the brain fog is horrible too, sometimes I forget what I'm doing while doing it, it can be even funny
And I need 1-2 little naps per day, if I don't I end up falling asleep even when I'm on my feet.
This monday I'm going to see my doctor, I did my annual blood-test, and I have the feeling that shes going to change my medication.
wish me luck!0 -
1. CONSTIPATION (omgoodness, I cannot even begin to explain (nor does anyone want to hear! ha!) the problems this has caused)
2. Brain fog/tiredness/exhaustion/body aches/dead tired every flippin' day, all day!
3. COLD cold cold cold cold!
4. Thinning hair
5. Very low libido (... and I just got married. ... and the plumbing seems to be broken! I.are.no.happy.)
6. Moodiness. I get on my OWN nerves sometimes.
Going to a new doctor this Thursday and cannot wait.
God bless all you guys.
Thyroid disorders are the pits; especially when you don't LOOK sick, but feel like death. No one really can understand that unless they've been in our shoes ... and I wouldn't wish this on anyone. 0 -
I hate that I don't look the same as I did 5 years ago before my diagnosis. I went from feeling pretty confident in my level of attractiveness, to being downright sad about how I look. I am not rocking the double chin or dull complexion. My hair has gone from being full of life to dry and frizzy. I really feel like I should be bald considering the amount of hair I have to wipe out of the tub every time I have a shower. Libido is nowhere to be found - results in a very frustrated husband. I can't remember anything! I looked at a box of frozen pizza to pop in the oven today for my little guy. Two minutes after looking at the instructions I could not remember how long it was supposed to go in for and had to go back to the box. I'm an accountant and this new aspect of my hashi's has not been very helpful I can tell you. It's actually a little scary. Never feel rested. It sucks.0
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1. CONSTIPATION (omgoodness, I cannot even begin to explain (nor does anyone want to hear! ha!) the problems this has caused)
2. Brain fog/tiredness/exhaustion/body aches/dead tired every flippin' day, all day!
3. COLD cold cold cold cold!
4. Thinning hair
5. Very low libido (... and I just got married. ... and the plumbing seems to be broken! I.are.no.happy.)
6. Moodiness. I get on my OWN nerves sometimes.
Going to a new doctor this Thursday and cannot wait.
God bless all you guys. Thyroid disorders are the pits; especially when you don't LOOK sick, but feel like death. No one really can understand that unless they've been in our shoes ... and I wouldn't wish this on anyone.
Constipation and brain fog are the worst. I also go through periods of insomnia when my meds are off also. No one understands thyriod issues unless they have them.0 -
After years and years and years, we finally got all of my levels down to "normal" and oh, the difference it has made! I can honestly thank my pregnancy for that, since I was getting regular blood work done and they were watching me so closely. But I can still tell the moment I fluctuate a bit and need adjustment, because my body likes to HURT. It feels like an elephant sat on a nerve in my arm. Something begins to ache, and I head right off to my doctor and make him take a blood sample. I've found that even a slight change causes this, which might be due to my mild cerebral palsy... or it may just be me!
But I definitely hear the complaints about being cold, and tired, and thinning hair...! I'd complain about my libido, but my thyroid also sets off my depression, for which I'm on constant medication, so I have no libido to begin with. :P0 -
Cold legs/feet, constipation and dry face skin (water only helps with that).0
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I don't have issues with being cold. I'm usually too warm all the time. But hair loss IS my issue. My hair is nearly 3 feet long and you could read a book through it because it's gotten so thin. it will take 4-5 years for the new growth to catch up because it grows so slowly. I use the mascara wand to coat what few hairs I have left in my eyebrows. The pencil just looks too fake now with them being so thin.
Before meds, fatigue was my biggest complaint. My staircase has a landing before making a U-turn to go the rest of the way up. I always had to sit down and rest on the landing, then when I got upstairs I had to sit down again and catch my breath. I went through 4 doctors trying to tell them something was wrong. I was tired, gaining weight at a crazy rapid pace when I'd never been overweight before, my hair was falling out by the fistfuls, my cholesterol was over 300, my fingernails - oh my gosh, my fingernails! - they used to be naturally long ever since kindergarten and suddenly I couldn't get them grow past the nail bed.
All 4 doctors said it was all just a side effect of being in my 30s and dismissed me. I was so grateful (and angry with the others) when I finally found one willing to run a simple blood test. 2014 can only go up!0 -
I hate that my new insurance company will pay for cytomel, or synthroid, or the combination synthetic but refuses to cover the cost of armour thyroid. Thank you affordable care act!
By the way, I will pay for armour out of my pocket because I am not going through the ****storm of attempting to remanage things with the synthetics.
pip0 -
I mentioned this elsewhere but my biggest gripe isn't the cold or forgetfulness or foggy head or lack of eyebrow ends but
people who know I have hashimotos and know it causes me to be forgetful and get hangry if I forget to eat properly dismissing my upset or what I consider normal scatteredness as a
here eat some food
DUDE! I am PISSED because you are being a JERK not because I didn't eat0 -
I hate that my new insurance company will pay for cytomel, or synthroid, or the combination synthetic but refuses to cover the cost of armour thyroid. Thank you affordable care act!
By the way, I will pay for armour out of my pocket because I am not going through the ****storm of attempting to remanage things with the synthetics.
pip
My ex worked for a company that was tracking the success rate of various treatments for insurance companies. Most insurance companies will choose to pay or not pay for something based upon that information. I believe the info tracked was if Dr A gives patient A this treatment and Dr B gives patient B this treatment which treatment is most likely to be successful and cost effective. Which is why most will pay for generics but not a name brand that has a generic equivalent available. That whole affordable health care act that is now ranking hospitals on how frequently people return for same problem within a year also adds data as to what sort of treatment is most likely to work.
Having worked in a hospital {in a secretarial position not medical} as the manager or a step down unit for ICU I saw some patients return 2 times in a year post heart attacks. Yes. Heart Attack then surgery then ICU then step down unit then 4 months later another heart attack then surgery then ICU then step down unit then 6 months later another Heart Attack surgery ICU post op to step down unit. Diet and Exercise were not being embraced. And since I am obese I am not dogging people for not being fit but I do realize things need to change in my life without having had a heart attack... or two.
I know it sucks I am not saying it doesn't but it has nothing to do with affordable health care act. My ex was tracking this data at least 10 yrs ago per insurance company requests.0 -
how much are you paying for armour?I hate that my new insurance company will pay for cytomel, or synthroid, or the combination synthetic but refuses to cover the cost of armour thyroid. Thank you affordable care act!
By the way, I will pay for armour out of my pocket because I am not going through the ****storm of attempting to remanage things with the synthetics.
pip0
