:( BAD WEEK Super Flare up

Justacoffeenut

This week is just a bad week. Having a major flare up. Everything hurts, hurts to eat, hurts to breathe, hurts to have anything touch me. A MAJOR flare up. And the never ending circle has started. Stress, hurting, lose sleep, hurt more, more stress, repeat. I just can't break it. And now any breathing hurts, hurts to chew or swallow. Not eatting like I should cause just tring to eat what I can without crying to much. And that isn't the best stuff for healthy eatting really. The scale is showing it to.

Sorry to be a downer just need to vent and hopefully someone here will understand. I know Fibro is different for each person. Just hope someone can understand.

I hate feeling like this. I was doing well. Now just hurts to be. One of those times I just wish I could go to sleep and wake up fine. So much hurting. :sad:

Sorry words just can't express how I feel right now. :brokenheart:

What do you guys do when you get like this? Or am I the only one? Please don't let me be the only one! They can't find any meds to help. Everything either doesn't help or I have a reaction to it. And my new doctor (had to change due to insurance) don't believe in giving the medicine that even helped at all for fibromyalgia. I am really worried that it is going farther then fibro. I was told by my old doctor I was boarderline Lupus. Ok I am getting off now. Really getting depressed.

DawnMcUK

Hey, I understand completely how you must be feeling. I am having a tough time at the moment too. Stress always brings on my symptoms and I hurt all over and, unusually for me, I have been comfort eating. I dont have major issues with chewing , except that my jaw cracks very loudly, and can be uncomfortable; as for swallowing, it depends what I am eating. Bread, or doughy, chewy foods don't go down easily, and I need to drink something to help it go down.

I am concerned that you say 'breathing hurts'. Is this a common symptom for you? It is so frustrating when doctors either dismiss the condition as psychological, or don't believe it exists. They are there to help you through your illness, not to hold back on something that could alleviate symptoms! If the practice has more than one doctor, can you ask for a second opinion, or to be referred to a different specialist? Try to be assertive and tell them you NEED medication, and test to ensure you are breathing correctly.

I am so sorry that you are feeling this way, and you are definitely not alone in this. We all get flare ups and feel like just giving up sometimes, but remember we are in this together. Controlling our symptoms is a full time job in itself, so try eating soups (without bread), or even weight loss shakes as they have all the vitamins that you need.

Don't give in to the depression. Read something enjoyable, or watch an upbeat feel good film; spend time with people you love and gain inspiration from success stories. I wish you all the best and hope you start to feel a little more like yourself very soon.

deb_jones

You're not alone, sweetie. I've had a tiny little chest cold for the past week which of course has turned into a major flare. I take tons of supplements and watch what I eat and that usually keeps things under control, but that's not helping now. And of course it effects my weight because all I want is "comfort food". Just keep remembering this flare will pass. They always do. Sometimes it just seems like they won't. Have you called the doctor? If you're feeling so bad that it hurts to breath and he won't do anything, you need to find a new doctor and maybe in the meantime go to the ER.
If you need to talk or want to vent more, message me. I'll more than likely be here since it hurts too much to do much else that hang out on the computer. LOL

Justacoffeenut

When I have these major flares my breast bone is sooo sore. And breathing hurts. One doctor told me I have pleurisy. My old regular doctor told me this can be a symptom of fibro in extreme cases. When he sort of went into early retirement and started limiting his practice I no longer fit into the group he was taking and I was to see a nurse practictoner. We she as the personality of a cactus and then our insurance cahanged and they were not even part of our insurance. So I switched to a Internist an he really only give ibroprofen for fibromyalgia. Yeah I take tramadol for head aches. Major pain ibroprofen isn't going to help besides it bothers my stomach. You go to the hospital and ask for the medicine that will help you and they look at you like you are addicted to drugs. My husband even caught one calling other hospitals about me to see when I was there last and what they gave me. And even though I hadn't been anywhere in over a year they still wouldn't give me what I needed. Just a tramadol shot so I just went home climb in a hot tub and cried. When I get warm enough it almost helps the pain I go into an asthma attack. So now I just deal the best I can for as long as I can. So much they try to give me for fibro I have reactions to. So they just tell me to not get stressed out. HA HA HA Sounds easy to do right. :noway:

DawnMcUK

You go to the hospital and ask for the medicine that will help you and they look at you like you are addicted to drugs. My husband even caught one calling other hospitals about me to see when I was there last and what they gave me. And even though I hadn't been anywhere in over a year they still wouldn't give me what I needed. Just a tramadol shot so I just went home climb in a hot tub and cried. When I get warm enough it almost helps the pain I go into an asthma attack. So now I just deal the best I can for as long as I can. So much they try to give me for fibro I have reactions to. So they just tell me to not get stressed out. HA HA HA Sounds easy to do right. :noway:

This makes me soooo mad! You have genuine pain caused by a genuine syndrome yet these so called doctors aren't even taught about it, let alone understand it. Ask to be referred to a rheumatologist, if they won't do that, then look for a practice that has maybe treated Fibro before, or has knowledge of it a bit more than an intern does.

I take a drug called Gabapentin ( Neurontin) which really helps the muscular pain and can be taken alongside tramadol and paracetamol etc. it sounds like you may benefit from a dose of steroids also. I am so angry for you, and wish there was more we could do ( maybe a heat pad, or hot water bottle could help without triggering your asthma?

I sincerely hope this flare passes quickly for you xxx

weefreemen

In a really bad flare up I can experience chest wall spasms, they have been diagnosed by my doctor and believe me they are incredibly painful and can interfere with breathing. The first time I had one I though I was having a heart attack. Write down all your symptoms, what brings it one (if you are able to figure that out) and take the list back to the doctor. I don't know how the medical system works in the States, but can you not find a doctor who is more empathetic to the rigours of dealing with fibromyalgia?

I know this probably doesn't help right now, but you do know it will get better, it just may take a little time. Sleep when you can not by a 'what's normal' clock. If you continue to have chest pain stop wearing a bra, they can increase the pressure quite a lot. Relax, breathe deep, put some nice music on and have a treat of some food you really really like. Treat yourself well, we are all here for you and we have all been through this at one time or another, it sucks I know. My best wishes to you.

Justacoffeenut

Gabapentin they put me on that but I couldn't take it. I've been on so many med's or they have tried me on them. Some really seem off the wall but when you hurt like this you are will to try about anything. Today was the worse so far this week. And I didn't think that was possible. But rained and stormed all day today. And as you with fibro know you feel the weather, at least I do. I swear if wasn't for my family I would of laid in bed in a ball and just rocked all day. (I can't cry, well hardly ever, another medical issue). But I have to get up for them. They are what keeps me going when I just don't want to. If it wasn't for them I would of likely curled up to die along time ago.


Thank you all for your understanding and expressions of support. I love my family dearly but none of them can understand really how I feel. Some of them have issues with joint pain, But they can't understand Fibro. I look fine so I must be fine. Even though I am not. They even said once they didn't think I had it anymore. I wish it just went away. I told them if I acted like I felt they would never see me except in bed. I have one family member with Lupus. (Which doctor say I am boarderline) And I thought would get some understanding from them. Sadly no. Just turned into who has it worse off. I was worried about saying anything on here for fear that would happen again. I haven't really talked to that many cause it seems to turn into that. Thank you for not doing that with me. I know we all suffer and we all suffer differently. That is one of the things with this problem. But thank you for your understanding and support.

D

Pinknspooky

No you are not alone although I really get it feels like it alot of the time

Suggestion on the food front - when I have a flare up I switch to smoothies and juices and soups rather than trying to chew through solids and giving up cos I am too tired or in agony. It is much easier for your body to get the nutriants outs too so more of the good stuff gets into your body and helps to break the cycle

I found talking to a Natropath more effective than a GP as they look at the whole picture and not just the individual symptoms - I am lucky with my GP he gets my condition - there just isn't a whole heap he can do about it!

Hope things calm down soon and you get back on an even keel - and if you ever find out how to avoid stress 100% then please let me know :flowerforyou:

krisjnic

I'd just like to share that I take low dose naltrexone - it takes a special compounding pharmacy to put together such a low dose, and it's off-label use so you need a sympathetic and knowledgeable doctor to prescribe it, but it made a world of difference for my fibro pain over night. It works better than tramadol did for me. It's not a cure, but it sure has kept me more comfortable. Just another tidbit; hope you feel better soon!

Justacoffeenut

Thanks. I wish I could find a even ground. And I wish ones were understand. I joined a challenge. You know trying to get more motivated to move when I don't feel well. But somedays only the daily things are all I can do. Well now the daily things can not be counted toward this challenge. So my daily activites are being pushed to the back. Why can't ones just understand everyone on this sight is at different levels of abilities and what they can and can't do. Why can't people just work with ones who want to get healthy. No it is all there way or no way. Well my husband may make me quit if things don't start getting done around here more. And I hate to quit. But this person has put me in a tight spot. Which is making me stress which is making me hurt more. Isn't life such fun.

Justacoffeenut

Well after a couple days of hurting but not wanting to scream or cut off limbs here we go again. Really upsetting and really getting depressed. I made the mistake of getting on a couple challenges while I was feeling good. The one flat out will not let you count daily activites (rule made after I have already joined) the other which is starting soon is already talking about it. WHY PEOPLE!!! Good lord I know it is a hot topic. But why do ones have to feel they have to decide for everyone what is and what isn't exercise as a whole. For some do to time, health, pain, whatever daily activites is all they can get.

I know I am running a challenge and I don't mind. I have some that are very go getting and active But also have some with major health issues. And I didn't put a stop date either. I figure we are each on a journey and here to encourage and support each other. That is that. Each has to take the journey they can take.

Sorry rant over. On side note if anyone here wants to join the challenge I have let me know. It is a closed group and I am tring to keep it confrontational and bully free. Since it is a closed privite group I have told ones after their 2nd warning it they do it again they are kicked out. And if they are kicked out they can't return unless I invite them.