Treatments

tanniewannie
tanniewannie Posts: 13 Member
edited November 2024 in Social Groups
Hi there,

I'm new to this group and MFP, and i was diagnosed with extensive Endo 10 months ago. It was so bad when I had surgery that they couldn't remove it. I've been taking treatments of lupron now for 7 months, so I've had no periods just the symptoms. The moodiness, the bindge eating, etc. I've been eating well and exercising constantly but no change in weight. I'm up and down within the same 4 lbs. It's so depressing and discouraging. On a more positive note, If i wasnt' doing all this, I would probably be back up to where I was 3 years ago. I do have 54lbs gone, but now it's so hard. :(

Is anyone in this group having the same problems?? Or has anyone done the lupron treaments??

Replies

  • kristelpoole
    kristelpoole Posts: 440 Member
    Lupron sucks for a lot of people. I was one of them.

    How's it going now?
  • MNchick
    MNchick Posts: 371 Member
    I just got my first Lupron injection last month.

    I started the add-back therapy the same day and I seemed to be okay (had a couple of days where I was dizzy), but last week I started getting the sweats. Can't tell if it is because of 'hot flashes' or if it is because I'm in Georgia. I'm still feeling some of the pains associated with my endo, but am hopeful that those will subside.

    I think being on MFP has helped me overall keep things in check as far as eating and exercising, so I haven't seen any weight gain...yet (keep your fingers crossed)

    I had surgery back in February of 2009 and was pain-free for just over a year before my symptoms started to return again :(
  • glamorizeu
    glamorizeu Posts: 2 Member
    Hi,
    I am fairly new to MFP as well. I have been using lupron for almost 10 years...which is an extreme and unusually situation but I have very severe endo. complicated by adhesions and a genetic disposition to produce excess scar tissue. I have had several surgeries, including a colon resection to remove an endo cyst inside my colon. The lupron was the only safe option for me at the time. I have a frozen pelvis with my uterus and bladder fused and to make matters worse a pelvic kidney that sits in front of one of my ovaries. My situation is kind of unusual since I didn't have any symptoms until about age 27 when my son was 2 1/2. We were fortunate to have him...as my specialist put it "he is a really miracle and I need to thank God for him everyday" because he has no idea how I ever had children. For me the lupron with norethindrone was my best choice and it has many side effects (the hot flashes, mood swings, weigh issues, lowering good cholesterol levels,etc.) but at least I could function. Before the medication nothing worked for my pain. I was on 800 mg of vicodin every 4 hours and could still barely walk(and not because I felt high as a kite even though I did and hated it!). The injections gave me relief right away. I have recently stopped taking the injection to see how it goes. As I am getting older I am feeling changes in my body. So far so good...no cycles yet. If you are have the night sweating try asking your doctor if you can take a fish oil suppliment. In some women including myself, it can really help with the hot flashes and it is also good for your heart. :happy: Good Luck! I understand how you are feeling.
  • SalishSea
    SalishSea Posts: 373 Member
    Wow! Glamorizeu your story is amazing. I'm glad you are doing well now. I understand not being able to walk because of the Endo pain. I couldn't get out of bed for a year because the pain was so bad. Not to be an alarmist but I seriously considered jumping off a bridge to stop the pain. No medication on earth worked for me. Not Vicodin,not morphine, not dilaudid, not nothing. I have an opioid resistant receptor. Rare, but real for me. Lupron helped the Endo pain but the side effects were horrendous.

    Surgical removal was the only thing that really helped me. I hope to have more surgery (my fourth) in October.

    Be well.
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