Reactions to gluten
Replies
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Many of these are allergy symptoms rather than celiac symptoms. Of course, there's no reason you can't have both.
Pam
Celiac disease, syndrome, whatever you want to call it - is an autoimmune disorder. Allergies are something else. I guess it's hard to tell the difference -- you might "get over" an allergy, but your inability to digest gluten isn't going away.0 -
I'm still not sure if my issue is wheat or gluten, but a gluten-free diet covers it for me:
- WEIGHT GAIN 5+ pounds overnight that takes weeks to go away. I tried some during this pregnancy cause I heard some women lose their allergies while preggo and the overnight weight never came off! :noway:
- Skin rash/acne especially on my face
- bloating/constipation
- extreme fatigue
Everything lasts for weeks. I always forget how bad it is until I get exposed again :frown:0 -
I have pretty severe reactions... all the digestive issues, brain fog where I get really angry and over-emotional, and I fall a lot. My joints don't work and I end up on the floor, or I am just so exhausted that I can't go on.
Interesting; I'm like this (the over-emotional and falling) and never thought it could be related to gluten.
My main reaction is diarrhea/bloating/pain, but I also get migraines. My migraines have been reduced significantly since going gluten-free. I had (have?) a seizure disorder and haven't had any seizures either, but I'm also on meds. I think it could be related to my b-12 being so low, but no neurologist will confirm this for me. I want to try starting to wean off meds eventually and see what happens.
I also get itchy/ezcema, but no blisters.
I've actually gained weight since going off gluten because I don't have constant diarrhea. That's the only thing I dislike.0 -
Hi! Brand new here!
I am not a diagnosed Celiac, but the GI I saw last year thought I probably was. Unfortuantly (?? Maybe for her, lol) I went gluten free before I could get tested. I simply couldn't go through the pain and frustration of going off the diet to find out for sure!
I have dealt with arthritis type pain for years. I had a head fog that wouldn't go away, ever. I constantly felt like I was seeing my whole life through a haze that I couldn't even actively participate in. I was extremely fatigued, but was just told I needed to exercise more (hard to do when you're exhausted, and in pain!). Digestive issues up the wazzoo. It was ridiculous. I hated that NO DOCTOR would listen to me! Complain of being tired? Your hair is falling out?? Oh, it must be your thyroid. Nope, that's not it. Sorry, I guess we just don't know!
At any rate, when my oldest was an infant he had a plethora of food allergies/intolerances. He couldn't eat much of anything! I was nursing, so I went Top 8 allergens free, + corn. He finally started doing really well! Then he was tested, she said that gluten and all were fine - he was *just* allergic to dairy and peanuts. I added all those foods back in, and went back to feeling like crap.
He was diagnosed with Autism 2 1/2 years later. A year after that, I decided to try the GF diet with him, to see if it would help. The turn around in the kid was amazing. He went from barely being able to speak, to not ever stopping!! His behaviour improved, he stopped tantruming all the time. And his stools went from green and frothy, to totally normal.
I started the diet too. I had started having monster migraines several times a week. I hurt, everywhere. I couldn't stand it. I was so exhausted, I'd fall asleep standing up.
It's been 3 years, and I've learned SO much. I can make almost anything GF... which is now why I need to lose some weight, lol. Now, if I get glutened, its pretty subtle at first. I guess I'm lucky in that regard. I'll have an ever-loving headache for a few weeks, and the arthritis will come back with a vengenance! I'll get super constipated too. And nauseaus.
My son, though. Turns into a little monster!
I should try taking my son off gluten too. I want it out of my house anyway. It's soooo hard to feed him already (he's on the typical very limited autie diet).0 -
I've heard from many parents whose self-limiting eaters expand their repertoire and start eating more once on a GFCF diet. Corn and soy can also be problems, so you have to watch that too. Dairy has a hugely negative effect on my son's behaviour.I should try taking my son off gluten too. I want it out of my house anyway. It's soooo hard to feed him already (he's on the typical very limited autie diet).0
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Finding all of this very interesting. I am in the process of being tested for Celiac disease. INitially the doctors thought it was my thyroid, but it came back normal. I have elevated liver enzymes, itchy skin, very fatigued, and IBS. Since eliminating gluten my belly bloat has gone way down, which is encouraging although I haven't noticed any improvement in my fatigue.
I am curious about those of you who say you are vomiting. I have always thought I was very succeptible to stomach viruses as I am throwing up quite frequently. I never knew it could be a reaction to gluten.
Wow, this is the only one I read that mentioned elevated liver enzymes! I, too, have (had?) this, but never associated it with gluten. My dr kept telling me to stop drinking, but I don't drink all that much to begin with!! I haven't been back to the dr since changing my diet, but now I'm curious if my liver enzymes are back in the "normal" range now. I'd thought that maybe it was due to fructose intolerance, so I've been limiting my intake of fruit (I don't drink any sodas or juices or anything else with added fructose, either). My liver enzymes had been slowly increasing over the past couple of years - my dr checked it every year along with all my other yearly checks.
I came across my gluten intolerance by chance - I started a primal/paleo type diet back in August. I still cheat occasionally, and just in the past couple months discovered that when I did cheat and it included something with wheat/gluten, I'd get IBS symptoms (depends on how much I've eaten, sometimes just a little bloating and diarrhea, other times bad stomach cramps, too). I've always had these symptoms, but never associated it with wheat products. I've also noticed my eczema symptoms have gone away - it comes back when I've ingested a moderate amount or more. What's interesting, last month my sister asked if I had problems with eczema - when I said I did, but I fixed mine by going GF - she said she liked carbs too much to do that!! :noway:
It was also interesting to read about people's change in nails - I've noticed a change there as well, that makes sense now! And the fatigue part also makes sense, now - I was totally wiped out yesterday! (Still recovering from some gravy I had out at dinner on Sunday.)
Glad I have friends here on MFP to help guide me along - I don't know anyone IRL that has a gluten intolerance.0 -
Bump for my mom to read0
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I don't have Celiac disease (not that I know of) but I have been diagnosed with a severe allergy. The doctor told me to avoid is as I can't really build up an immunity to it. It's too strong.
Anyway, these are my symptoms:
Skin Rash/Hives - the type that don't heal easily and are painful and all over the body
Headaches/Migraines
Nasal Congestion
Tiredness
Bathroom issues - noticed I seem to be having fewer issues since I gave it up
Stomach irritation at times
For me, the worst part of my allergy is constantly feeling like I have a cold and developing rashes that won't disappear. They get worse and worse so I finally said no more and now I'm totally gluten free. My sister told me the other day, as I volunteered to help her cut bread, that she said no to me because she was worried I'd try to eat some and she had noticed how different I am now and didn't want me to relapse. Luckily, I don't seem to have a contact allergy - just get the reaction when I ingest it. I did tell her that at this point I wouldn't touch it ever again considering my accidental contact with it about a week ago that made me realize how much it affected me. They can eat it but to me - it's poison.0 -
I have horrible, horrible stomach cramping and bloating within a half an hour of ingesting gluten. I also wind up feeling so lethargic that I wind up having to take a nap.0
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I have severe brain fog (ADHD-like), lose my ability to access my depth perception, have acid reflux, bloat, have stomach cramps, and I feel absolutely lethargic.0
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You know, I have acid reflux but I never really thought of it maybe being connected to my allergy. Hmmm.0
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I have severe brain fog (ADHD-like), lose my ability to access my depth perception, have acid reflux, bloat, have stomach cramps, and I feel absolutely lethargic.
OMG, I thought I was the only one with depth perception problems when I get glutenated. My husband says I am like a robot who is trying to leave a room and run into the door frame. I fall more often too-balance gets way off
I, too, get severe brain fog, constipation, joint pain oh the joint pain is horrible, severe fatigue, blackouts ( i totally lose track of where and how I get places even I am attempting to concentrate). Oh and the mood swings.0 -
I do not have celiac, but a wheat intolerance. I ate some breaded stuff at a deli yesterday. By the time I got home, I had to take a 2 hour nap. Then went to bed at 10 and slept 9 1/2 hours. This morning, my joints still hurt and I had a nose bleed. I think it is time that I learned I just cannot eat wheat! I am also diabetic. I have not been formally diagnosed, but my doctor thinks I should avoid all wheat. MY daughter has been diagnosed with the wheat intolerance.
I get very tired
nasal congestion
headache
bad joint pain
nose bleed
dry eyes and mouth
If I have a lot, I get very itchy hives.0 -
I have no reactions at all, so in a way, it is worse because I could be having regular gluten exposure and not know.
I would actually hate that! I know I would eat gluten as if I weren't sick! Just out of curiosity though, how did you find out you have it without symptoms. I know if I hadn't gotten sick and went to my GI doc where she tested for celiac, I would just still be sick. What reason did you have for testing?
My symptoms are mostly tummy related. Cramping, vomiting, D. I also get brain fog, dizzy spells and joint pain. There is a supplement that I get at vitamin stores that helps. It's called GlutenEase. It doesn't save our guts from damage if we get glutened but if you accidentally get CC'd, it helps with symptoms.
I'm anxiously awaiting the magic pill that will help us!! LOL
No reactions here either which does cause anxiety because never know if you're being cross contaminated over the long run.0 -
My reaction is not as severe as many, fortunately. I will have digestive troubles for a few days, but no vomiting. My eczema flares up and lasts for a couple of weeks. But the most immediate and unpleasant reaction is the severe fatigue (It's what made me begin the search that lead to discovering the gluten sensitivity), along with irritability and an inability to focus or concentrate well, which lasts for several days or more..
It may not be eczema, it could be dermatitis herpetiformis. (That is the rash on my elbows I get when I eat gluten.)
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002451/0 -
I get really exhausted and foggy headed, I have trouble concentrating and it's usually accompanied with bloating and diarrhea (usually for several hours at a time.) I also get a skin rash on my elbows that usually lasts for weeks.0
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http://tucsoncitizen.com/natural-medicine-tips/2012/05/18/autoimmune-disease-and-allergies-immune-system-dysfunction/
This is an interesting article. It's a doctor that explains the difference between autoimmune disorders and allergies. Basically, the one (allergies) is treatable sometimes (unless it's a wheat allergy of mine - doc says it's permanent and untreatable). The difference is that allergies involve your body reacting against external things and people with autoimmune react to their own bodies.
"Now there are three types of substances (called antigens) that have the potential to provoke your specific immune system to make antibodies against them. There are soluble antigens (these come from your diet and your environment), insoluble antigens (these come from microbes and pathogens), and self antigens (these come from your own cells)."
The people with autoimmune disorders are reacting to insoluble antigens while we with allergies are reacting to soluble antigens. It's actually pretty interesting.
I do think that people run the range on both these. For some, allergies can kill; in essence, it depends on the gravity of the problem the person is experiencing. I unfortunately fall under the later - it won't kill but it will make my life hell and super unpleasant.
Monica0 -
You know, I have acid reflux but I never really thought of it maybe being connected to my allergy. Hmmm.
I stopped taking medicine for it after 7 years of Protonic/Aciphex/Prilosec, after I stopped eating gluten. And the eczema/whatever skin rash on my elbows and knees hasn't re-appeared unless I cheat. Brain fog, headaches, fatigue, stomach issues, nausea when the stomach cramps are really bad, joint pain. Stuffy nose. Last winter I was getting colds once a month - after I few months, I finally realized it was after ingesting gluten during PMS-cravings. Symptoms seem to vary based on source and amount ingested (but I try to avoid it as much as I can).
I haven't been tested, but I don't see a point in paying for a test when avoiding gluten is the only thing I can do. And I don't want to go back to eating it to get tested! But, people (mostly family) just think I'm making it up/following a fad diet. :grumble:0 -
It's interesting how a small amount can affect you. I've noticed recently, now that I've stopped eating gluten, that any accidental (even small) dose of wheat causes my stomach to get irritated. All it takes is eating out and having something marinated that I thought was gluten free. Weird.
Monica0 -
While your body is overloaded with gluten - eating it every day - then your body is at war all the time, trying to fight something that really shouldn't be dangerous to it. The reaction is dampened because there are only so many soldiers to fight the invaders. Once your body starts to heal, then the soldiers are having a good time on leave, and when they get called back in to fight, they are much stronger, very targeted, and they're gonna blast the heck out of the invaders (except unfortunately, this being an autoimmune disease, the soldiers don't just fight the gluten, they fight your body.)
My kiddo had strep throat all the time before he went gluten free. We'd just get him through one bout, and he'd have it again a few weeks later. Since going gluten free four years ago, he hasn't had strep throat one time. Does that mean that gluten causes strep? Absolutely not, but his body's defenses were so completely swamped with fighting gluten that they couldn't fight viruses or infections. Another example would be my celiac grandmother, who had every single childhood disease you can think of, as well as TB. She had no immunity to anything.0 -
For me its digestive distress for up to a week afterward. Most of mine is mental issues. I can become extremely depressed, anxious, and lethargic. Also have short term memory issues, and trouble concentrating. I was on Cymbalta for a while for the anxiety/depression, before we figured out what the real problem was.0
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I just started looking into gluten-free. I looked at glutenfreesociety.com and those are current positive signs (few more applied in the past):
•Craving baked goods (cake, cookies, brownies)
•Craving high sugar foods
•Frequent intestinal bloating or gas especially after eating (*definitely after eating certain carbs)
•heartburn
•frequent headaches and migraines
•poor memory
• difficulty recalling words (*ha English is my third language so I wonder)
•Brain fog
•Poor concentration
•Depression/anxiety/mood swings (*depending on cycle)
•Fatigue
• Inability to lose weight
•Difficulty falling asleep or staying asleep
•Infertility
• Menstrual problems – PMS (*PMDD)
• Endometriosis
• frequent colds (every 1.5-2 months this year)0 -
Cramps, bloating, my depression worsens, headaches, joint aches. In short, everything hurts.0
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Also brain fog and fatigue.0
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I'm not sure if I am gluten intolerant/Celiac, but these are my symptoms that I believe are associated with gluten:
Headache
Sinus pressure/pain
Sore, achy feeling all over (flu like)
Brain fog
“Crackly” sounds in ear
Ear “pounding” – this drives me nuts !
Fatigue (although taking a liquid B complex has helped a little)
Joint pain (right shoulder/neck area)
Tinnitus - don't know if this is related to gluten ?
I have had most of these symptoms for about 7-8 years now. Some for longer, like headaches and tinnitus. I've never had much of the digestive issues, but when I was eating wheat/gluten on a regular basis, I had a lot of bloating, I could look normal in the morning and by the end of the day, I looked pregnant !
I went off gluten for about 3 weeks a while ago, and was feeling SO much better. Then, during the holidays, I slipped up quite a few times and had gluten, and I started feeling bad again.
I am starting another one month (at least !) trial as of this week to see if it helps.0 -
Those can also be symptoms of a wheat allergy which is what I have. I get them if I eat wheat. You'll want to try taking Magnesium, B12, Zinc and Vitamin C and D. I know some vitamin deficiencies can cause tinnitus (ringing of the ears) as I've had it come and go and vitamins seem to help me.0
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It starts for me with cramping usually 15-30 minutes after eating it.. then that leads to severe cramping (the worst cramping I have ever experienced!) and gas, vomiting, I usually experience flu like symptoms too and break out in a cold sweat... I rarely experience these symptoms these days as I have 100% removed gluten from my diet.. though there has been once or twice I ate something that I thought was gluten free when in fact it was not.. and got all of these horrible symptoms... Hate it!0
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Hi everyone, new to MFP, and gluten free since August, thought I'd just jump right in.
I've been to doctor after doctor since my daughter was born 10 years ago. 10 YEARS of trying to find out why my iron levels would drop so severely and nothing we did brought them up, I had problems with my hemoglobin levels, major mood swings, diarrhea, constant nausea....10 years and 2 very serious hospitalizations later, they figured it out.
I refuse to do the Celiac test because the treatment is the same and there is no doubt about what is going on. My symptoms before being diagnosed were:
Mood swings. OMG I was miserable. My poor kids.
The biggest was the mas-absortion of iron/nutrients. That was the cause for concern.
Brain fog
Trouble concentrating
Really heavy, painful periods (tmi, sorry)
diarrhea - so much worse the last 2 years.
In the months before being diagnosed I had 3 separate joint "injuries" My flexor muscle was so injured that I couldn't lift my leg or walk for a week, I couldn't lift my shoulder, and I had "tendonitis" so badly in my arm that I couldln't bend it. It all magically went away after I went off gluten.
Now if I ingets something with gluten, like candy (oops) I get nausous, stomache pains, gas, bloating, diarrhea (though I'm on meds to control it because they think I also have a fairly rare reaction to having no gall bladder) brain fog, headaches, severe fatigue, mood swings, joint pain, back pain, dizziness....its not fun. Damn candy.
I also have an intolerance to corn and dairy, and a peanut/tree nut allergy. I don't like rice, so I"m 90% grain free. Once in awhile I"ll bake cookies with rice flour and have some.
And, since my kids are unlucky enough to not only have me, but my mom who is Celiac, they are also gluten free. For sure 2 of the kids need to be, my son (3) gets stomach pain, diarrhea, mood swings and dark allergy circles under his eyes, my oldest gets joint/neck pain and major behavioral issues. We're not sure about my middle child yet. My son also has an issue with corn.0 -
I kind of wish that my reactions to gluten had been as immediate of reactions as most of you describe. Because my gluten intolerance is a slow onset reaction that builds up, I had no idea for a very long time that gluten was the problem. I had ulcerative colitis since I was 15 and tried everything. I even got tested for celiacs and tested negative. My ulcerative colitis got so bad that when I was 21 I had to have a complete colectomy (had my full colon removed). Thankfully due to modern medicine, I do not have to wear an ileostomy since they made a "fake colon" out of my small intestines. However I do have some nasty scars that make me feel very ugly sometimes and I still have bad stomach problems.
About 3 months ago, even though I tested negative for celiacs, I decided to go gluten free and I have felt progressively better ever since. I have cheated a few times and it is obvious because I feel like crap. Also, I don't know about you guys, but I feel like anytime I eat gluten it creates a binge onset. It's so weird because here I am feeling like crap but wanting to eat everything around me. When I stay away from gluten, I have no problem sticking to my calories and not eating a bunch of junk food.
I always wonder if I had tried gluten free as a teenager, would I have had to have my colon removed and live with these hideous scars? I feel like the answer is no, and I'm so glad that more attention has been called to gluten intolerance outside of celiacs. I just wish more doctors would emphasize that just because you test negative for celiacs doesn't mean you aren't gluten intolerant.0 -
Idoes anyone have malabsorbtion syndrome related to their celiac?
I have just recently discovered that my issues are caused by gluten issues...blood test neg, but will be having the other test....I am GF one day then reg one day, I don't want to go for the test if I will just be neg...over the last 15 years, I had diarrhea, incontenance...solved this by changing GENERic meds tp Brand...that was my first success...over the last year or so, I have had at first meds interactions, then sensitivities, then EXTREME fafigue, brain fog, clumsiness, excema on my ebow, etc...which I discovered at the time would be helped by eating something NUTRIENT RICH or double my multi, which was already 500 % B vits...in it...then I had the EVENT...the day before Thanksgiving I had a strong urge for French Bread...so I found a small one at Walmart, small because I am trying to lose weight, afterall...and the next day I had major ZITS on my face and thigh, and I felt sick....and the excema was worse....I realized that the bread was a problem...I went to my family meal, but left early, and stayed in bed the rest of the weekend...now whenever I eat reg I feel sick, but no vomiting, and the diarrea is back...and the brain fog...and headaches...2 days ago I had a day with my grandkids and had 3 slices of pizza, mac & ch, and breaded chicken...on the way home, my brain started to shut down....Just before Christmas, the same thing happened after drinking a high protein shake...and WAS in an accident...don't know if it was the SOY shake or from gluten the day before....anyway I am on vacation for the next 2 weeks, so I am resting and having family time....
I have had some tests..overactive galbladder, minor gastritis, low thyroid, minor diverticulitis, low fat sol vits, high calcium, heart issues, kidney stones 8 yrs ago, so I am almost always having issues....
also, since I got a cortosone shot when I was a teenager, I'm 61 now, I have been sensitive to soaps, dyes, perfumes, chemicals, etc...and now this..!!!!0
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