Friendship & Intro Thread

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Replies

  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Kris & Des,
    Please, please, please check out stopthethyroidmadness.com
    You are both voicing the exact same problems with synthetic thyroid meds.
    * The synthetic did that to me too, made me start sweating at night :grumble:
    * It's not true about the meds helping you lose wt. ~ I'm surprised that you don't know if you're hyper or hypo... :ohwell:
    There is so much more to it. You will realize that it is harder for people with thyroid conditions to lose wt.
    We have to approach food with an education of what "blocks" the thyroid... (goitergens)...
    plus supplements that we NEED...
    Exercise also is slightly different... heavy-high aerobics is not good for us... will not help, but we NEED to exercise daily, steadily, to lose wt.
    Most people do better on gluten-free, low-carb, plus good oils (coconut oil) diets.
    Please check out the links, read, study, research.
    Many of the threads on this forum are full of helpful dialog as well.
    Hope it helps you as much as it has me. You're among those who understand & fight the same battle. :smile:
  • dancingdeer
    dancingdeer Posts: 373 Member
    Hi all,

    Just discovered this group. Although my numbers have always been in range, I do have two nodules that I have been having monitored for almost 5 years now. I have had two biopsies and everything is okay in that regard, as well as having a ultrasound once a year to monitor. I have a new doctor and she asked if I would like to go on supplementation - as I have been feeling more tired lately. My TSH has never been over 2, but I feel better when it is around 1. I just finished my first four weeks of Synthroid (which made me eat like a horse), and just changed over to Armour yesterday. (Yay!) I already feel better - at least I don't think it's all in my head. I'm not starving for one thing! I go back for more blood work in 2 weeks. Hopefully I can get my numbers where they should be.

    Glad to be here!

    ~ Jana
  • LizGozza
    LizGozza Posts: 45
    Hey everyone, my name is Mostly im 24 and I reside in Seattle. I was finally diagnosed with hypo on Saturday after being told it was just depression. My TSH originally came back a 2.2, but I requested a referral to and Endo who ROCKS and it came back a 6.5! Along with low t4. Luckily (or not) I have a serious family history of thyroid issues and have long suspected I had hypo so I had already done a ton of research and felt very prepared. My Endo was more then happy to prescribe Armour right off the bat and I took my first dose this morning. I'm really looking forward to getting this sorted out and dropping the 60! Odd pounds I gained in a year and a half despite walking over 5 hours a day and eating mostly SB phase 2. Plus getting rid of the fatigue, dry skin, thinning hair, foggy brain, and mood swings. So happy to have found this group!
  • debbylee22
    debbylee22 Posts: 456 Member
    Welcome Liz & Jana :flowerforyou:
    So happy for you both, that you've already been put on Armour. Hope you feel great soon!
  • teresa7926
    teresa7926 Posts: 121 Member
    Hi Everyone,


    I'm Kris, I was diagnosed with Hashimoto's Thyroiditis last week. So at this point I'm still trying to understand all of the implications. I started taking 50mcg of levothyroxine and so far I feel like my body temperature has increased. I'm sweaty in the morning after I take my the meds.

    Is that normal?

    I was diagnosed with Hashimotos last year - after referal to numerous specialists for various symptoms over the past few years. Before that my gp just said my thyroid was hypo and put me on levothroxine 50mcg. My endo took me off this and put me on levoxyl because unless you take the same manufactorer of levothroxine (which is generic) each time you refill, it is not consistent because of the non active agents. Well now we cannot get levoxyl so I start Synthroid tomorrow and am up to 125mcg. Not thrilled about this, so I will be asking on my next appt for Armour as I have heard about the good results. Just beginniing to explore various websites and discussion boards on facebook and beginning to research our special dietary needs. Things my endo never brought up at our appts, so my list of questions for her at my next appt is getting longer. One thing I have learned over the past few months is that we must be our own advocate when we are diagnosed with a disease. I am grateful that I have a few friends who have lupus so they understand some of what I am dealing with symptom wise - otherwise I might feel like I am going insane. Support is so important. Check out Hashimotos 411 on facebook. This is a private discussion group and I have found lots of help there.
  • Hi everyone:

    I'm Lou (female). I've had hashi's since I was 15 years old...I'm 47 now. I had my thyroid removed 8 years ago.

    I have information that I know will help a lot of people with thyroid issues but I'm worried someone is going to think I'm trying to sell a book...I'm not at all. I feel great since I found this information and I want to share.

    Google Stop the Thyroid Madness...I swear I'm not selling anything. Just trying to help.

    It's life changing for girls like us.
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Lou,
    So happy for you. Yes, I am always directing people to that web page & book... Many of us here have been helped by it. :happy:
  • film_grrl
    film_grrl Posts: 1 Member
    Hello everyone,
    My name is Marla and I'm 35. About a month ago my doctor came back with a hypothyroid diagnosis. She was happy for a diagnosis that explained my anxiety, depression, weight loss, sleeplessness, exhaustion, etc. I on the other hand was petrified! I'm still really just coming to terms with what this means and trying to get my head straight around tests and what I can do to help myself. It's been really overwhelming and I wasn't really sure where to turn for reliable information. Thanks so much to everyone sharing their experiences and to Debby for highlighting STTM website!
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Marla ((hugs))
    I feel your pain. I was just diagnosed one year ago. There is an awful lot of info to absorb & learn. I'm thankful for that STTM too. Actually bought the book & use it for a reference. Its been especially helpful to me for regulating thyroid & adrenal issues.

    Hope you find the support & help you need!
  • charleschip
    charleschip Posts: 31 Member
    Welcome everyone.
  • I just had a thyroid uptake done yesterday for suspected Grave's disease, which was found by my APRN gyno. When I'm not eating like crazy, I lose about a pound a day, like I am now. I am eating around 1200 cals and weight drops off me. But, I am 40 pounds overweight from all the eating I've done in the last year. I was so hungry all the time.
  • hstout89
    hstout89 Posts: 1 Member
    Hey everyone,
    My name is Hannah. I was diagnosed with graves about 9 months ago and happen to be part of the small group that gains weight. The meds help me feel better but it's very frustrating knowing that they slow the metabolism and usually cause weight gain. I've always struggled with my weight so this was just the icing on the cake! I would be very interested to talk to other people with graves+weight gain and see if they have any helpful hits for losing weight. My Dr was less then helpful when I asked him about it, he basically told me to cut back on sweets and work out.
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Hannah & Holly,
    Hope you find the support & encouragement you need.
    Dr.'s are pretty clueless on the weight loss things. Please read through the "links" for answers. We have to learn how to eat & move right for us.
    Blessings,
    Debby
  • leigh8679
    leigh8679 Posts: 19 Member
    Hi guys! My name's Leigh and I've struggled with thyroid problems for years. Starting around the time I was 19 my thyroid levels would be be a little high then back go back to normal. I would feel fine, but lose weight for no reason. Then about 5 years ago I went from 179 lbs to 103 lbs in just a few months. I couldn't sleep. My hair was falling out. I could be told something then immediately forget. I couldn't concentrate. I thought I was going crazy! My dr finally found out I was hyperthyroid. I was put on meds for a few months and gained about 60 lbs and felt MUCH better! My hair still hasn't all grown back. So I started mfp to try to help me lose a few lbs and nothing worked! I might lose a few then gain them right back. Just by chance my dr did a test and now I'm hypothyroid! I've been on Synthroid .75 for about 3 weeks. The thing that really irritates me is that this last time and when I lost so much weight, everybody thought I was crazy and eating way too much or starving myself, even my dr! I knew something was wrong. I just didn't feel right. I've read alot about this lately and think I'm going to try low carb and very gluten aware (I love barley). Fingers crossed!
  • debbylee22
    debbylee22 Posts: 456 Member
    Welcome Leigh :flowerforyou:
    Hope that you will get ideas & help here. I sure did!
    Please check through the links section & especially Stopthethyroidmadness.com it is a life-saver to us! You will find the answers your Dr doesn't have a clue about.
    Blessings,
    Debby
  • Mburk1986
    Mburk1986 Posts: 1 Member
    Hello! I am happy I just found this geoup. I am 2 years post TT. Had a follicular adenoma due to Hashimoto's. I am taking 150 mcg Levothyroxine (switched from Synthroid because it was not working for me) and my doctor recently prescribed generic Cytomel at my urging due to high reverse t3. I have been gluten free and sugar free since March 3rd and it has made such an amazing difference in my life. I do still have some bad days here and there but nothing like I used to have before March. I know this will be a lifelong balancing act since I have no thyroid or parathyroids. I take many supplements along with my thyroid meds. Calcium and Vitamin D 3 are required for me because of not having parathyroids, but the rest of my supplements are complimentary to those that are helpful to Hashi sufferers and to help with my reverse t3 issue. Stopthethyroidmadness.com and Gena Lee Nolan's facebook page Thyroid Sexy and Hypothyroidmom's facebook page have been sources of help and inspiration to me along with My Fitness Pal in helping with my lifestyle changes and keeping me on track and accountable. No excuses...... :smile:
  • debbylee22
    debbylee22 Posts: 456 Member
    Hi Michelle, :flowerforyou:
    Welcome to the club. Looks like you'll be an asset & help to others here.

    Hope you find good support.
    Blessings,
    Debby
  • Luckay757
    Luckay757 Posts: 2
    Hey all! I'm Jessica From Williamsburg VA. I got diagnosed last August (2012) with Hashimoto's. The pre-diagnonsis was such a long process. The body aches, sleepiness, depression, the WEIGHT GAIN, snoring, cold intolerance! I felt every symptom at some point in time during the 3 months it took to figure out what my problem was. I gained 16 lbs in about 5 weeks. It was awful! When I started taking Synthroid my TSH was 35 I am now on 100 mcg of Synthroid and at a 7. My doctor says a good goal would be a 2. With every increase of the meds I start to feel a little better. I haven't gained any weight in months but am struggling to lose. I am happy with the mood improvements, but the inability to lose weight like a normal person is beyond frustrating. Sometimes I wish I could just be fat and happy, because having thyroid disease makes an already hard process that much harder. But I cannot be fat and happy. The last few months have been a test of my will power and a retraining of my brain. This will be a long slow process, but the end game will be worth it! I am currently 194lbs (when I started the meds I was 204) and the end game is to get into the 150's and maintain it. Besides a good diet and exercise is there any other advice you all could give?
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Jessica,
    I hope the synthroid continues to help. Many of us have found the natural thyroid meds to be much better. Because it also contains the T3, whereas the synthetic has only T4. It would be benificial for you to read through the links in the beginning of this site. It contains much good info. Dietary advice for people with thyroid issues. Moderate daily exercise (not hard aerobics), a clean diet, learn about goitergens... and gluten is not so good for most. I was able to get to my goal & stay there, but it took total dedication, clean diet, daily exercise (40 minutes). I'm maintaining with the same standards.
    Hope you find the support you need! :drinker:
  • cjaaron
    cjaaron Posts: 20
    Stop the Thyroid Madness has been a great help with understanding my disease - Yes! Go to STM there is sooo much real information about living with Thyroid Disease
  • dwn2erth
    dwn2erth Posts: 144 Member
    Has anyone ever tried any of Dr Brownsteins Holistic medicine books/ dvd/newsletters? I just ordered the thyroid book/ dvd.. Hope to get some more information about thyroid issues.
  • ChristyP0303
    ChristyP0303 Posts: 212 Member
    Hello, newbie here! I have been Hypothyroid since I was 15 years old, so for the past 17 years. About 2 years ago, I lost 85 pounds. Then the weightloss stalled and have since gained 30 pounds back! I began seeing a new endocronoligist, which just told me I have Hashimoto's Thyroiditis with TSH level of 23.4.

    Losing weight has proven to be very difficult. It doesn't seem to matter what I do or try, nothing works. Or I will lose 5 pounds only to gain it right back the next week. So happy I found this group! I love hearing what worked or didn't work for someone with the same issues I face. Thank you, Christy.
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Kristy!
    Please read through the links & tips. Check out Stopthethyroidmadness.com... Its really important to get your thyroid regulated. They give great advice from personal experience. There's hope!! You can do it!
    Blessings,
    Debby
  • cortcort93
    cortcort93 Posts: 1
    Hello my name is Cortney and i'm 20 from Tennessee. I have struggled with my weight all my life, i was a pretty active kid, but ate very little. When i was born i weight 6oz and was only eating half an oz to an oz every 4 hours and two days later when my parents brought me home i was 7.5 oz and even at home i was only eating an oz or so every 4 hours and i would sleep a lot. I also never lost any of my birth weight, i've always been intolerant to cold, hair falling out, low energy and lots of problems with constipation and weight gain and no doctor would run any test to see why i was gaining the weight so easily when i ate so little even though my mom tried to find out the problem. Though luckily in late 2011 i was 18 5ft1in tall and around 220 when i was finally diagnosed with Hypothyroidism and i was put on 25mg of Levothyroxine and in a year or so of being on that i lost around 40 pounds. But now i have gained like 12 pounds back and so my thyroid levels were a bit high so i am now taking 50 mg of Levothyroxine. I joined my fitnesspal to help me lose weight and try to keep it off.
  • debbylee22
    debbylee22 Posts: 456 Member
    Hi Cortney :flowerforyou:
    Welcome! Hope you find the answers you're looking for & support. The links have several tips as do many discussions on here.
    Blessings,
    Debby
  • FiftyEight58
    FiftyEight58 Posts: 6 Member
    Hi!

    I was diagnosed with Hashimoto's thyroiditis during my subtotal thyroidectomy 5 days ago. I'm not looking forward to the hypothyroidism that's likely to follow the surgery. Can't wait to get back to running.

    I've not been prescribed with thyroid hormone replacement yet. Was wondering when I need to start? The follow-up session with the surgeon is in another 5 day's time.

    Will check out the links posted here for more info. :)

    Take care, everyone.
  • rosielko
    rosielko Posts: 81 Member
    Hi,
    I also was loosing weight without trying and diagnosed with Graves in Jan 2012. Endo put me on Methimazole/heart Dr had me on beta blockers for my a-fib. By May of 2012 i was 10 lbs from goal weight!! As my thyroid responded i started slowly putting weight on. They cautiously took me off all meds in Aug and said i was heading for remission.. They attributed my steadily gaining was because i was needed to rein in my diet even though I told her i was Sadly i gained back most of the 30 i had lost. In April my endo noted i was loosing weight again and my thyroid levels were heading hyper again...so back on pills 3 days a week to head off hopefully me getting so sick again(going into a-fib). She won't even consider removing my thyroid as i am one the" lucky ones" to have it affect my eyes also :( I am hoping that my lifestyle change (move more eat less), tracking, generally eating better is helping my weight loss and it will stick this time even when they stabilize my thyroid. This is just so frustrating...So sorry ya'll have to deal with this, but hoping to find support as well give support! Thanks for listening :)
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome Fifty & Rosie,
    Hope you do find the answers & support for your conditions. Sounds so different then hypo. Probably the same diet advice stands for you though... please read through the links, & threads.
    Blessings,
    Debby
  • dorthymcconnel
    dorthymcconnel Posts: 237 Member
    Hi!
    I'm Dottie, 41, married with one child, and I've had hypothyroidism for several years now. I'm doing what I thought was right to lose weight --eating healthier choices, eating at a deficit, exercising, etc. Since starting MFP I went from216 to 212, Now lately the weight is coming back on. I'm hoping to learn some here, as well as from my doctor, how to get the scale going back in the right direction.
  • KathleenSweetie
    KathleenSweetie Posts: 136 Member
    Hi Ladies! I'm 51 and from Chicagoland. I too have a thyroid issue, stemmed from a pituitary issue that's now affected my adrenal gland. I started my journey to loose weight last September at my heaviest wt, 211. That's also when I started hydrocortosone and levothyroxine. I'm now at 184. I often see plateaus and often my weight will go up before I can loose another pound. It's very, very frustrating. I'm hanging on to the belief that as my body balanced, I'll be able to establish a more healthy weight. Exercise is not easy for me, due to muscle fatigue from a medicine to shrink a pituitary tumor. It is nice to find others who share the same journey :flowerforyou: