An out of control diabetes life....

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javonjay76
javonjay76 Posts: 48 Member
Its amazing I read so many stories here about how well people are doing with their diabetes and how they have it under control. But for me I'm so far from control it makes ask why can't I get this right!

Confession time: I am a non-compliant,out of control diabetic! I have to say that to face the facts. I keep saying I'm going to do better but I feel like attacks are coming out of the woodwork and I can't do anything to stop it.

I've been to my doctor, I've lied to her, I've rescheduled/cancelled appointments and I haven't taken my A1C test in a very long time. I'm only on 1 pill per day and I've made things sounds rosy just to stay on that one pill. She's a wonderful doctor but Ithink she's become too much of a friend that I feel like I want to impress than take care of my health. ( I know, SMH!) I have issues with that and I'm trying to work on them.

Since March 2014, life stress had gotten so bad, I was having heart palpitations. I went to see the nurse practitioner in my doctor's office. She recommended an EKG & echocardiogram & Zoloft. I put both tests off for so long but I finally got enough nerve and got the EKG done. (The results were normal). I take the echo tommorrow.

In March, the bank was trying to foreclose on my house. Husband honorably discharge with a disability from the Navy in 2012 but hasn't found work (A long stressful story). (However, through the Grace of God, the mortgage company allowed us to modify our loan which allowed us to keep our house.)

March - June, My son was failing 3rd grade and needed to be tested for ADD. (Results were inconclusive but he did pass to the next grade.)

In April, I gained a new boss but my job was in jeoparody due to some underhanded office politics that's another long stressful story. (Eventually, things have calmed down but I'm left leary and uncomfortable) (Most of the palpitations would happen at work).

So, for the last 3 weeks no heart palpitations, but I have been helping my husband since he had rotator cuff surgery in June. We had no idea how painful this surgery would be.

Now, that some things have calmed down a little, I take a look at my son (9 years old) and I notice he's gaining weight. I feel like I've let him down as a parent and I want to help stop his descent into obesity that my husband & I share. However, this is a huge problem. My husband does not think its a big deal.

I'm not sure what to do first but I know I need to do something. My first step is explaining to my boss that I need to go to a series of doctors appointment to get the help I need. Second step, enlist the help of a diabetes team. ( I love my family practice doctor but I think I need more help than she can give).

Just felt like getting some things off my chest.

Replies

  • amberj32
    amberj32 Posts: 663 Member
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    Thank you for sharing your story. There are a lot of diabetes on here that are doing well and controlling their diabetes. I'm sure there are others like you that have let it get out of control. It's very easy to do. It's a struggle every day. It's a huge hassle having diabetes - taking daily medication, testing your blood sugar multiple times a day, checking carb counts on food, all the doctor and lab appointments, etc.

    FYI - There will almost always be some sort of attack coming out of the woodwork and you won't be able to stop them. Everyone, diabetes or not, has stress and/or problems in their life. My life - my younger (35yo) brother died at the end of January under suspicious circumstances (police didn't investigate and ruled it a suicide), his two daughters that he had full custody of just went to live with their drug addict loser mother because CPS is useless, my daughter is in college and just got two "F"'s on two classes that she had already taken and is barely maintaining a 2.0, my SO hasn't been able to find a job in years, his mother moved in with us January 2013 for what was suppose to be 6 weeks, but she's still there. She doesn't cook, clean or do anything and I'm questioning whether she is really looking for a job or not. See so we all have our share of problems. We just can't make it our excuse!!

    You need to make your health one of the most important things. Your son and family are depending on you. I think you should change doctors. Get to an endocrinologist if you can. Get your A1C. Start testing your sugar daily. You said it was out of control. Not sure what number "out of control" equates to. Make your doctor appointments. I try and schedule mine as early or as late as the doctor office has so I miss minimal work. Then let your boss know. It's something you really need to do and your boss should understand.

    Start logging your food daily and try to stay within your macros. You will have to try out how many carbs per day are good for you. I try to stay 180 or less. There are others that are 100 or less. It's just what works for you. I've been staying under my calorie goals for the day and I've been losing weight. I don't believe in cheat days. If I want a treat that day I have it and fit it into my macros. It's all about moderation. If you add me as a friend you can view my diary. If you are the one that makes dinner you can gradually make healthier versions of your food, more veggies, etc. Eating better and excising will eventually wear off on your husband and son, probably your son first. You can go to the park, play sports, wii fit video games or just take a walk together. They always say it's a lifestyle change.

    I hope I didn't overstep my bounds. Sorry for the long winded reply. I'm sure these are things you already know. We are all in this together and to support one another. Diabetes sucks!
  • DenDweller
    DenDweller Posts: 1,438 Member
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    How do you eat an elephant?

    One bite at a time.

    Find something in your diet that a diabetic is better off not eating. Eliminate it.
    Find an activity that you like that is considered exercise. Do it.
    You said you're going to go to your doctor. Make the appointment and go.

    Your success in doing these three small things will build your confidence, and allow you to find out more about what you can do to further improve your diabetes management without worrying about "the big picture" overmuch.

    Take me for example. Step-by-step, I learned how to test my blood, eat, recommit to exercise, speak to people who know me about diabetes. Overwhelming, taken all together. Piece by piece, bite by bite. Not so much.

    A recent improvement: I didn't contribute significantly to this forum until a week ago. Now, it seems I can't shut up! :laugh:

    I am still new to this. I'm learning more and more. Some things still worry me, but there's also many pieces of low-hanging fruit for me yet to pick. I can do this.

    You can too.
  • cathylopez1975
    cathylopez1975 Posts: 191 Member
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    Last thing first, I had my general practice doctor handle my diabetes for many years without much success. Summer 2012 I went to an endocrinologist because I was worried about my future. BEST THING I EVER DID!!! Between the doctor who specializes in diabetic care and a registered dietitian who does the same, my life has totally changed. All the general practice doc did was throw drugs at me. The endo and dietitian really helped me get control of my blood glucose and because of that I have been able to lose weight.

    I started at 234 lbs and am now 139 - a total miracle. I mainly did it with diet - very little working out; just a little walking.

    It all started with getting control of blood glucose. I did it with medication, monitoring, and trying to clean up my eating. It was a huge commitment, but I was ready to make it.

    Sometimes when 'life' is happening, it feels like we have no control over what is happening to us. For me, when I can control nothing else, I know I can control what I eat. I can choose to eat right for me. It gives me something to anchor to.

    I hope things get better for you. You will have some great encouragers here on MFP so just 'hang in there'.
  • diabetesdieter
    diabetesdieter Posts: 47 Member
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    Thank you for sharing your story. You can do it. You deserve to be healthy and live a long, happy life.

    I think you should definitely see a specialist. Your doctor should be performing tests to monitor your diabetes. It can affect many body systems. I see a family practitioner, but she is very thorough. Do you live near the Joslin Clinic in Mass? If so, I know they are great.

    Small changes make big differences. I have been very good the past five months. I did have some high carb days where my BS was high. Unfortunately, I didn't really feel any different. However, I know it damages my body. I felt fine before I was diagnosed.

    Please message me if you want to talk!

    Kerri
  • mrron2u
    mrron2u Posts: 919 Member
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    Javonjay76 - you are right where I was 60 days ago. I had been ignoring my diabetes and hoping the meds would do all the work. The wake up call was the 9.4% A1C results. I had been on Januvia for 3 months after a 9.9% A1C result and found that the medicine was not keeping pace with my reckless abandon of eating whatever I felt like and not doing a bit of exercise. Well, I decided once and for all to act like a diabetic and read about my condition and see what I could do to get it under control. Thanks to the great people on this forum I found a lot of answers and resources that really helped get me on track once and for all! I learned that there are so many side effects to the medicines prescribed that I really wanted to work my way off of them! And the only way to do that is to eat way better and do a little exercise. Well 60 days later my fasting blood sugars have gone down from an average 200 to under 100 and I've lost 10% of my body weight so far and I just keep feeling better and better. It's a state of mind you have to find to get this going. It has to be super important to you to be healthier. It has become one of my top priorities. I log every single meal and snack. I don't do cheat meals - I track it all and make it fit my macro's. If it don't fit, I don't eat it. On days like yesterday when I had more carbs that I probably should have, I get up and do some sweating to bring things into balance.

    Tap into this community - there is support here and these people really do know a ton about living a healthy diabetic life - and they all really care about each other!
  • kamaperry
    kamaperry Posts: 885 Member
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    So glad you shared, I was diagnosed end of March, this year. I was terrified, depressed, angry I found this group and others (facebook) who really helped and encouraged me. Plug into these groups. Drink in what they have to say. By delving into your disease and learning about it, you are freeing yourself to really live. You can do this! And your son will be watching!!
  • ecclesse
    ecclesse Posts: 42 Member
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    One of the prior responses talked about small changes. When I was diagnosed, it seemed overwhelming the sheer number of things I needed to change. Add on to that, it is hard to see whether the actions you are taking are actually making a difference.

    One thing that I did was 2 hours after breakfast (Morning Break at work) I would test by BG and then go for a 10 min walk around the parking lot. When I got back, I would test again. My numbers would drop 10-30 points. For me, I could see the direct impact that this change made and that it was a positive one. I now take a walk during my morning and afternoon breaks knowing that this one thing is making a difference. You then move on to find the next change.

    I tell people that the hardest thing for me was the 50 little things that I needed to change. Each one does not seem like a big deal, but together they all add up.

    Good Luck
  • GlucernaBrand
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    I love how you broke down diabetes tasks into small, more manageable tasks. Seeing that a walk lowers your blood sugar can be really motivating, plus you're gaining a lot of knowledge about your body. Thanks for sharing what is working for you. ~Lynn /Glucerna
  • farfromthetree
    farfromthetree Posts: 982 Member
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    I love your honesty in this post. I also love how you are thinking of solutions and things you would like to change. All excellent ideas. It's crazy how stress and diet are like a vicious cycle. You have to break that cycle. It is the hardest thing I have ever done but once you do, the benefits are priceless. For the past 20 years I have been fairly overweight and out of shape. Stress would cause me heart palpitations, cause me to eat, drink more alcohol which would cause more palpitations. I was diagnosed borderline diabetic, but had a high fasting blood sugar. That was when I decided to go see an endocrinoligist who specialized in diabetes and weight loss. She put me on Metformin and Victoza which worked wonders for my weight. Now that I am 40 pounds less, I do not physically feel the stress that I did. I am much calmer, in control of my temper (most times haha) and very rarely do I get a palpitation. I am also off of my blood pressure meds. I think you should see a specialist. General practitioners are not equipped to deal with this. Go to a physician(endocrinologist) who has been educated in diabetes care/weight loss. It was the best thing I ever did. I can totally relate, I just wanted to let you know this can all get better, much better if you get the help you need from an aggressive, proactive physician. You would think I sell the stuff with how often I recommend it but Victoza was the best thing that ever worked for me. I wish you all the luck in the world. You seem very intelligent, I am sure you will figure this out:)
  • farfromthetree
    farfromthetree Posts: 982 Member
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    Last thing first, I had my general practice doctor handle my diabetes for many years without much success. Summer 2012 I went to an endocrinologist because I was worried about my future. BEST THING I EVER DID!!! Between the doctor who specializes in diabetic care and a registered dietitian who does the same, my life has totally changed. All the general practice doc did was throw drugs at me. The endo and dietitian really helped me get control of my blood glucose and because of that I have been able to lose weight.

    I started at 234 lbs and am now 139 - a total miracle. I mainly did it with diet - very little working out; just a little walking.

    It all started with getting control of blood glucose. I did it with medication, monitoring, and trying to clean up my eating. It was a huge commitment, but I was ready to make it.

    Sometimes when 'life' is happening, it feels like we have no control over what is happening to us. For me, when I can control nothing else, I know I can control what I eat. I can choose to eat right for me. It gives me something to anchor to.

    I hope things get better for you. You will have some great encouragers here on MFP so just 'hang in there'.







    So glad someone else said it too!! perfect!
  • earlnabby
    earlnabby Posts: 8,171 Member
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    First: regarding a health care professional. I am seeing a nurse practitioner who is a certified diabetes educator. Someone else suggested an endocrinologist. Both are good suggestions, you are probably better off seeing someone who specializes in diabetes management or metabolic disorders and keep your family practitioner for general purpose health issues.

    Second: baby steps. Each person will have a different approach but, for me, what worked was to start out logging my food and concentrating on limiting my carbs. Originally I was trying to stay between 200 and 225, then my APNP told me I would do better aiming for a max of 180. it really helped to just log and not worry about cutting out for awareness, then I started cutting down. Pick your battles and decide what is the first thing you can do, then add more as you grow more confident.

    Good luck, we are pulling for you!
  • trimminit
    trimminit Posts: 191 Member
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    ❤️
  • scubasuenc
    scubasuenc Posts: 626 Member
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    I think many of us go through periods where we let the diabetes get out of control. My A1C was up to 10.5 after a year or so of falling off the wagon. My doctor put me on insulin and that was my wake up call to take control and make a change. She actually told me about MFP and the knowledge and support I have gained here have helped me take control. Now I'm down to a 5.6 A1C and only 500mg of metformin a day. The plan is to go to no medications in September if my A1C is still in the normal range.

    You can take control by making small changes one day at a time. In a world of chaos, one of the few things we can control is how we eat and the choice whether or not to exercise. Even when everything else is going crazy, you can cling to those to help provide some sanity.
  • GlucernaBrand
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    I really like how you've regrouped and with your physician's encouragement are making healthier choices. Where often we feel overwhelmed by the chaos in life, you're taking control by making healthy food and exercise choices. That's fantastic! ~Lynn /Glucerna
  • pennell12
    pennell12 Posts: 190 Member
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    I am back. That's about all I can say. Off the wagon for the past year. Need to get back on now! :smokin:
  • bdubya55
    bdubya55 Posts: 506 Member
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    Welcome back penell12!

    Glad you've made the decision to return. It's a tough fight managing this condition and everything that comes with it. As a PWT2D, sinces the 80's, I clearly can relate to falling off the D wagon over the years, more times than I care to count.

    I wish you well as you move forward towards getting back on this wagon we call managing T2D.
  • amberj32
    amberj32 Posts: 663 Member
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    I am back. That's about all I can say. Off the wagon for the past year. Need to get back on now! :smokin:


    Welcome back!!