Need your help! Armour Thyroid / Cytomel (T3)

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  • ginnylee74
    ginnylee74 Posts: 398 Member
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    My doctor called me yesterday after leaving him a message, he was on vacation for 2 weeks and agreed to change me to Armour. He said not to discount the labs as they are important. I agreed but said I was still having symptoms. (He is not an advocate of Armour.) He said he would start me with 1 grain and test and go from there. He seems to be willing to work with me. We'll see how it goes.

    Ginny:flowerforyou:
  • hsrunningmom
    hsrunningmom Posts: 132 Member
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    That is great news! Hope you find that you start feeling better! :)
  • tecallahan
    tecallahan Posts: 732 Member
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    My doctor called me yesterday after leaving him a message, he was on vacation for 2 weeks and agreed to change me to Armour. He said not to discount the labs as they are important. I agreed but said I was still having symptoms. (He is not an advocate of Armour.) He said he would start me with 1 grain and test and go from there. He seems to be willing to work with me. We'll see how it goes.

    Ginny:flowerforyou:

    Ginny - not sure what dose of Synthroid you were on.... but one grain of Armour is a good start. One grain - 60 mcg. I got my prescription in 30 mcg tablets and take one early - like 4am. and one around 5pm. Spreading out the dose throughout the day helps me to feel better all day.

    If he didn't give you 1/2 grain tablets - just cut it in half and spread it out. Oh, and Armour works best if you chew it up, then douse it down with a glass of water. It helps it to get into your system better.

    The other thing though is not to stay on too low a dose for too long --
    I found this on stopthethyroidmadness.com:

    MISTAKES THYROID PATIENTS AND THEIR DOCTORS MAKE:

    STICKING WITH TOO LOW A DOSE. For a myriad of reasons, this happens often. Have one of these been true of you?
    1) being held on a starting dose (such as one grain, less, or slightly more) longer than two weeks
    2) being bound by the directives of a TSH-obsessed doctor
    3) failing to get a raise of desiccated thyroid until the “next labwork”, which can be weeks and months away
    4) following an inaccurate Synthroid-to-Armour conversion equivalence chart
    5) being forced to lower a dose due to a high free T3 with continuing hypo symptoms, which is a sign of low cortisol or low iron, not too much desiccated thyroid, or
    6) being afraid to go higher!

    For example, a doctor has his patient make her way up to 1-2 grains, notices great improvements, but also has continuing problems. OR, a patient makes her way up to 2 grains and notices NO improvement. And it’s common to think that desiccated thyroid is not working! In reality, it may simply mean a patient isn’t on enough! It can also be very wise to check adrenal function, since low cortisol can prevent thyroid hormones from making it to the cells….and you will still feel bad.

    BEING ON AN OPTIMAL DOSE and FEELING GREAT, BUT BEING LOWERED DUE TO THE TSH LAB RANGE Similar to #2 above, this is the person that made his/her way up to an optimal dose, or the dose that simply made them feel very good and removed symptoms, but having the dose lowered by a doctor who saw your suppressed TSH (i.e. below the range). This is doctor who thinks that ink spots on a piece of paper tell the truth more than your symptoms! When on an optimal dose of desiccated thyroid (or being very near), you WILL have a suppressed TSH without being hyper.

    THINKING YOU ARE ON TOO MUCH BECAUSE OF HYPER-SYMPTOMS Yes, a doctor can guide you to go too high with desiccated thyroid and you’ll have hyper symptoms. You would then want to decrease your amount. But even more common is having hyper-like symptoms (anxiety, shakiness, fast heart rate, etc), especially on doses lower than 3 grains, because of underlying low-functioning adrenals (i.e. not enough cortisol), or even a low Ferritin or iron—-each and/or both of which can be quite common in hypothyroid patients.

    FAILING TO MULTI-DOSE Occasionally, some patients take their natural thyroid all at once in the morning and say they do fine. But, most individuals will notice much better results by multi-dosing. For example, a person on 3 1/2 grains might take 2 grains in the morning, one grain by noon or in the early afternoon, and 1/2 grain by mid-afternoon. Multi-dosing better imitates what your own thyroid would be doing, and gives you the direct T3 throughout the day when you most need it. Spreading out the Armour also prevents stress on your adrenals.

    SWALLOWING NATURAL THYROID WITH ESTROGEN, CALCIUM or IRON. Estrogen, calcium and iron bind some of the thyroid hormones and makes them unusable. So, it’s wise to avoid swallowing these at the same time you swallow your natural thyroid.

    FAILING TO CHEW UP OR PULVERIZE ARMOUR OR NATURETHROID Both have too much cellulose due to reformulation, which binds the desiccated thyroid. Instead, you need to chew them up to release the desiccated thyroid, or use a mortar and pestle. You can also add honey or sugar to increase absorption

    TAKING DESICCATED THYROID BEFORE DOING LABWORK Bad idea! T3 starts moving up after you take desiccated thyroid, giving a false high serum result. And your doctor freaks out when he sees the lab result, and directs you to lower your thyroid. Patients have learned to take their normal desiccated thyroid the day before, then do labs the next morning.

    STAYING ON A STARTING DOSE TOO LONG. The key to understanding this mistake is with the word “starting dose”. When first starting on any natural desiccated thyroid product, it can be wise to start on one grain or less, which is lower than you will ultimately need. Why? To help your body adjust to the direct T3. BUT, patients have found it UNWISE to stay on that low dose much longer than 2 weeks without raising. Why? Because hypothyroid symptoms can return with a VENGEANCE due to the feedback loop between the hypothalamus, pituitary and thyroid gland, i.e your hypothalamus gland senses the addition of desiccated thyroid (thinking the thyroid sent it), then sends a message to the pituitary gland, which in turn sends a message to the thyroid gland to stop producing, making you even more hypothyroid than you began.

    THINKING DESICCATED THYROID IS NOT WORKING WHEN SOMETHING ARISES. Desiccated thyroid contains direct T3, and the T3 can initially aggravate certain conditions. When this happens, doctors have had patients stop the increase of their desiccated thyroid, or decreased it to give the reaction time to go away. An example is Mitral Valve Prolapse–one patient noted that with each raise, she had palps. But they went away within the first 5 days after each raise. One gal got itchy when she got on desiccated thyroid, and was so determined to blame Armour that she got off, got back on Synthroid, and is STILL itchy.

    ADDING T4 or T3 to DESICCATED THYROID, OR EVEN TOO SOON! Most patients report that they do perfectly fine on desiccated thyroid alone, especially when they have taken the time to raise and find their optimal dose, which is often over 3 grains and has removed all hypothyroid symptoms. But some patients and their doctors feel the need to add either synthetic T4 or T3 to their natural thyroid dose to achieve a certain result . The challenge is in not adding it too soon, otherwise you miss out on the benefits of the T4, T3, T2, T1 and Calcitonin. Instead, if they had simply upped their desiccated thyroid more, they might have gotten the results they desired. Occasionally, a patient may suspect they have thyroid hormone resistance when 5-6 grains of desiccated thyroid is not doing the job. At this point, they add T3, or Cytomel, to their dose, to achieve results. Additionally, since most patients on an optimal dose of desiccated thyroid only achieve a mid-range T4, some are adding a small amount of T4 to raise the level.

    GOING UP WITH DOSAGES WAY TOO FAST. This was observed a few years ago: a doctor put his patient on desiccated thyroid. One grain, then 2 grains, 3 grains, 4 grains, 5 grains, then 6 grains. But the problem was that he did this within 4-5 weeks! OUCH. He started to find himself majorly overdosed with symptoms to match (high heart rate, sweating). He had to stop for a few weeks… then resume again at one grain and do it the right way–approx. 1/2 grain raise every two weeks, slowing down in the 2-3 grain area (and for some, slowing down on even lower amounts).

    PAYING TOO STRICT ATTENTION TO LABS. As mentioned above, thyroid patients have noticed that doctors tend to treat lab results rather than treat PATIENTS. Labs are interesting, and labs are good adjuncts to the full spectrum of dosing. BUT… SYMPTOMS are IMPORTANT. For example, patients have learned that even if there is a very suppressed TSH, and/or a high free T3, yet symptoms continue, it’s important to look at one’s adrenal function, since low cortisol can make the free T3 go high while symptoms continue.

    BELIEVING THAT DESICCATED THYROID IS “HARD TO REGULATE”. Totally and completely false. Patients have found nothing hard about desiccated thyroid. You simply raise it high enough to rid yourself of symptoms, which in turn gives you a free T3 towards the top of the range and a suppressed TSH. Believing that desiccated thyroid is hard to regulate is akin to believing that tricycles are hard to ride.

    THINKING THAT SYNTHETIC T4 ALONG WITH SYNTHETIC T3 (aka Cytomel), OR THE COMBO OF THE TWO (Thyrolar) IS JUST AS ADEQUATE AS NATURAL DESICCATED THYROID Adding synthetic T3 to your Synthroid, Levoyxl or other T4 brands is definitely a step up from being on T4 alone! We applaud that addition. But….to say it’s equal to being on desiccated thyroid t’ain’t so. Too many patients who have been on the synthetic combo, and switched to desiccated thyroid, report that the results were even better. That’s impressive. Besides, with desiccated thyroid, you are getting exactly what your own thyroid gives you–T4, T3, T2, T1 and calcitonin. Makes a difference.

    THINKING YOUR DOCTOR KNOWS MORE THAN YOU DO. Granted, we have great respect for education, and we appreciate the knowledge that a medical school trained doctor brings to our health quest. It’s important! BUT… that education does NOT take away from our OWN knowledge and our OWN intuitive sense about our bodies… about what works, about what doesn’t work… no matter what that doctor says. This website, and even more the STTM book, represents just that! So, patients have discovered that the doctor-patient relationship is best as a TEAM, with respect going BOTH directions. Doctors are not “gods”. They can and DO make mistakes in judgment. TEAMWORK counts. Find a good doc!!
  • ginnylee74
    ginnylee74 Posts: 398 Member
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    Teri,
    I am on .75mg of Lavoxyl. I will see if he will test me in a couple of weeks. I think he expects me to test again in 3 months as he gave me 3 refills I haven't picked up the prescription yet but will check when I do. He's saying to take one each day. I printed out what you put in the above post so I can refer to it when I check with him. He wasn't interested in what I had to say about STTM. But, then again maybe I didn't present it very well. If he wants to see me each time we do a test and in order to adjust the meds, I will probably have to find someone else. He isn't in the office all that much and hard to get in to see. Guess I'll have to play it by ear. Not a lot of choices here and I can't afford a doctor that doesn't take my insurance.

    Thank you for your information.
    As usual you so helpful and knowledgeable.

    Ginny:flowerforyou:
  • Farfelue
    Farfelue Posts: 63
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    Hello,

    I'm picking up on Terri's informative post, sooo helpful as always.

    Who has switched from combo T4T3 to Armour?
    What do you have to say about the change?
    Should I consider it?

    Your opinions would be much appreciated.
  • candicejn
    candicejn Posts: 458 Member
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    I take Armour, 60mg/day. I took Synthroid for over a year with mixed results. My levels were good, but I felt just as badly as when I wasn't on anything. I also couldn't lose weight without starving myself, I was exhausted and grumpy, and my hair continued to fall out. It was bad. After researching alternatives, I got a referral to a naturopathic doctor and once she agreed that Armour would be a good try for me, my PCP worked with her and started me on it. I started at 15mg and after 2 increases I'm at my current level. I feel better than I have in YEARS. Now my PCP tests my levels every 6 months and we will make adjustments as necessary, but Synthroid just wasn't enough for me. I need the T3 - and the balance offered in Armour seems to be just right for me :)

    Good luck!
  • leeny78
    leeny78 Posts: 4 Member
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    Armour is not unstable. Docs will tell you that because they don't want to prescribe it. It has been used for over 100 years. My aunt has been on it since she was 12 and she will be 75 in February! I had a total thyroidectomy due to thyroid cancer in March of 2004 and was of course put on synthroid and that stuff did nothing for me! In 2009 I asked my doctor for armour and it was like night and day! I felt so much better! Then my dose was increased to 180mg and I really feel better! I started working out and lost 40lbs! Don't believe the doctors when they tell you it's unstable! It's no different than a synthetic form when it comes to stability. They tell you that because they are ignorant about it and a lot of docs get some kind of kickback from the makers of synthroid so of course they want to prescribe only synthroid. For a lot of doctors it's about the money and you have to be your own advocate. I am sure glad that I have an awesome doctor that I don't have to fight with to get armour.
  • jacki1976
    jacki1976 Posts: 15 Member
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    tecallahan wrote: »
    found this online:
    Possible Synthroid Side Effects
    Like all levothyroxine products, Synthroid can have side effects. Synthroid side effects may be caused by under-replacement (too little of the active ingredient levothyroxine) or over-replacement (too much levothyroxine). If you are not getting enough levothyroxine, you may continue to experience hypothyroidism symptoms. If you are getting too much levothyroxine, you'll experience hyperthyroidism (overactive thyroid) symptoms.

    Side effects* of over-replacement can include:

    Partial hair loss may occur rarely during the first few months of Synthroid therapy, but this is usually temporary.
    Rapid or irregular heartbeat
    Chest pain or shortness of breath
    Muscle weakness
    Nervousness
    Irritability
    Sleeplessness
    Tremors
    Change in appetite
    Weight loss -- {REALLY??? I don't think so :grumble: }
    Vomiting
    Frequent bowel movements
    Excessive sweating
    Heat intolerance
    Fever Impaired fertility
    Decreased bone density
    Changes in menstrual periods



    Can taking less than a week's worth of synthroid cause some of these problems? I took 4 synthroids and started getting the nervousness, irritability, and weird feeling in my chest. I stopped it at that point but I know I'm going to have to get my thyroid under control. It's not excessively high(5.16) but it will eventually get worse. Is there anything out there that won't cause me these problems or am I just danged if I do, danged if I don't? I get weird anxiety on it. I'm going to try to find an endocrinologist soon for some help but I don't want to take something that's just going to make me feel worse.