Paleo and Crohns

auntstephie321
auntstephie321 Posts: 3,586 Member
edited November 2024 in Social Groups
Hi, I'm new to the group. Been doing LCHF for a little over a month. I've been doing some research on paleo and have seen many sites that people have had success treating or alleviating issues from crohns disease. I was wondering if anyone on here has any first hand experiece with paleo and crohns.

My boyfriend has had some serious flares for the past couple of years, he was first diagnosed about 15 years ago and nearly died before the figured out what it was and removed a foot of his intestines. We don't want that to happen again and he currently can't take any medication for it due to another illness. So I am looking for some support or evidence that he should try this and the more people that it's helped the more he will consider it.

Thanks all for your help!

Replies

  • Gianfranco_R
    Gianfranco_R Posts: 1,297 Member
    Please look into the SCD diet (and the GAPS, that is very similar).
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    He has the books for the SCD diet, my sister follows that as well for her ibs. He is just ultra stubborn. I feel like a nag cuz all he eats is sugar basically and i comment on it each time. I'll check out the GAPS diet I think he looked into that as well. Any advice on convincing him to give up his box of cereal and donuts a day.
  • Akimajuktuq
    Akimajuktuq Posts: 3,037 Member
    There is nothing you can do if he refuses to change. It doesn't take much information to know that cereal and donuts are not beneficial. I'm suspecting he eats lots of sugar even though he knows better. That's his choice.

    All you have power over is YOU. Set an example, eat as healthily as possible most of the time. If you show substantial improvements, maybe he will become interested; maybe not. Don't be a nag because it hurts you and will not change him.
  • cindytw
    cindytw Posts: 1,027 Member
    For my husband, I modeled and fed him only good food at home. Then when he was found to have heart damage I laid down the law, either do THIS with me or you can go on a worse restrictive diet that you will not like. He chose to eat with me. If that doesn't work, then he is choosing to be sick, and you can't do anything about that. You just can look out for you.

    BTW, SCD and GAPS are solid and WORK for bowel issues, I have used them in the past. The new website SCD Lifestyle maybe more appealing to him? It is more a stepwise diet to see what you can tolerate and feel good with than a blanket prescription. But it is still somewhat restrictive in the eyes of a sugar junkie, which is likely what is causing his distress anyway. So unless he wants to change there is nothing you can do. PS, one thing you can let him know is my husband, a sugar junkie too, craves sugar less with real foods as his foundation.
  • bluefish86
    bluefish86 Posts: 842 Member
    My husband thinks all my dietary advice is baloney. I cook most of the time anyway, so now I just cook what I want and don't tell him what's in it! I figure I can make sure he's eating healthy at least once a day!!
  • Dragonwolf
    Dragonwolf Posts: 5,600 Member
    cindytw wrote: »
    For my husband, I modeled and fed him only good food at home. Then when he was found to have heart damage I laid down the law, either do THIS with me or you can go on a worse restrictive diet that you will not like. He chose to eat with me. If that doesn't work, then he is choosing to be sick, and you can't do anything about that. You just can look out for you.

    My mother-in-law has had this kind of revelation just recently. She's been trying to stave off Diabetes for a while, her mom and husband are both pretty far advanced Diabetics, and she was only on oral medications. She did all the (low-fat) recommendations that CW told her she should do. Well, she just recently got told that her pancreas is essentially shot and she needs insulin shots now. She's finally starting to listen to what I've been saying about the fact that their dietary choices are making and keeping them sick and sending my father in law down a path of more and more surgeries for his back (which has been strained by the fact that most of his fat is in his stomach).
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    Thanks all, I know SCD would be perfect for him, it helped my sister with IBS a lot. It's like half the time he thinks what he eats doesn't affect him (which is insane) he's the reason I started going to school to get a degree in nutrition. I need to get him to realize what he is doing is slowly killing him. He was in the hospital in October last year for a flare and they put him on prednisone for two months. The day before christmas eve he got a fever of 103 and that off and on lasted for over a month. Finally his doctor ordered a chest xray and found lesions on his lungs and admitted him to the hospital. He spent the entire month of February in the hospital as they found the lesions in his lungs were caused by a blood infection from an abcess on his liver that also spread to his heart, the spot in his heart was so large the Dr's told him he was three weeks away from death or a heart transplant, but thank GOD they caught it.

    All of that was caused by the prednisone weakening his immune system so much that bacteria from his mouth set off a change reaction that nearly killed him. He can't take Humira which he was suppose to start in December but got sick, and he can't go on steroids again.

    He was all serious about making changes to his woe at the time but now it's like he completely forgot, though I don't know how he could since he still has a PICC line in to administer IV antibiotics.

    He drinks coffee with like three tablespoons of sugar at least twice a day, plus sweet tea, donuts, boxes of cereal, etc. I cook what I am eating now and he eats it but he always adds in carbs or ice cream after or something and then gets sick and says it's from the chicken, or whatever I made.

    I know I can't force him to change but I don't want to sit there and watch him die, like I thought was going to happen in February. He's only 38 years old, i don't think his body can handle it anymore.

    Thank you for listening, i'm sorry I guess I just need support or I don't know what. I'm going to check out that website and see if he finds it simple enough to follow.

    He said he doesn't know what he would eat if he didn't eat the things he currently does but he doesn't like my suggestions either, so idk.
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    Oh, just looked at the website, he has two copies of "Breaking the Viscious Cycle" already. UGH! LOL maybe he needs a third to really hammer it home.
  • Akimajuktuq
    Akimajuktuq Posts: 3,037 Member
    Stress hurts YOU. You can only do you. Model how to be as healthy as possible to him, and otherwise love him, support him, but do not enable him. As in don't buy those things for him (stop buying anything but healthy foods to bring into the house), serve only the healthiest meals, don't make separate meals/dishes for him, etc. If he wants to eat that stuff, make him buy all his own (within a set budget) and store it in his own space. Don't eat the things you are expecting him not to eat (aka don't have them in the house) even if he offers from his own stash. If he starts asking about a healthier diet, then help him, otherwise leave it alone.

    From what you say, he clearly has no interest in changing. As heart-breaking as it is you have to accept it for your own sanity.

  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    So we are starting out our road trip today and I think we had a break through. I set up a mfp account for him to show him what he's eating. So far before lunch he's had 70 g of sugar and 160 carbs. His Dr called and wants to do another colonoscopy because his last ct showed a lesion. I think that did it! He said he's going to follow what I eat for a month but not as low carb and see how he feels. Wish us luck!
  • Akimajuktuq
    Akimajuktuq Posts: 3,037 Member
    Just be warned, if he doesn't cut the sugar substantially, his cravings will never abate. So, support him but don't have expectations (easier said than done!).
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    He knows, I told him it's gonna be easier to just cut it out rather than try to eat less. What he knows to be true and what he does are two different things though.
  • bluefish86
    bluefish86 Posts: 842 Member
    I definitely agree with cutting out sugar completely... at least until insulin sensitivity normalizes.

    Sugar is one of the hardest addictions to break, so kudos to him if he's at least talking about doing it. It's a big first step.
  • slowestBurpeesEver
    slowestBurpeesEver Posts: 16 Member
    At this point your boyfriend may be continuing to eat sugar to spite you.
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    At this point your boyfriend may be continuing to eat sugar to spite you.

    That seems unlikely, we don't do things to "spite" each other, that would be a strange relationship, lol. I think it is just very difficult for him to stop.
  • cindytw
    cindytw Posts: 1,027 Member
    Stbarber1 wrote: »
    Oh, just looked at the website, he has two copies of "Breaking the Viscious Cycle" already. UGH! LOL maybe he needs a third to really hammer it home.
    No the SCD LIFESTYLE site is different. scdlifestyle.com/?_ga=1.65341479.848389175.1430096447?_ga=1.65341479.848389175.1430096447
    It has a bit different approach. And has like a elimination diet type thing to try.
  • auntstephie321
    auntstephie321 Posts: 3,586 Member
    cindytw wrote: »
    Stbarber1 wrote: »
    Oh, just looked at the website, he has two copies of "Breaking the Viscious Cycle" already. UGH! LOL maybe he needs a third to really hammer it home.
    No the SCD LIFESTYLE site is different. scdlifestyle.com/?_ga=1.65341479.848389175.1430096447?_ga=1.65341479.848389175.1430096447
    It has a bit different approach. And has like a elimination diet type thing to try.

    Thank you, I found that one too and printed out the free get started guide, it does seem easier than focusing on all the things he shouldn't have and just focusing on what he can then add things in gradually
  • cindytw
    cindytw Posts: 1,027 Member
    Stbarber1 wrote: »
    cindytw wrote: »
    Stbarber1 wrote: »
    Oh, just looked at the website, he has two copies of "Breaking the Viscious Cycle" already. UGH! LOL maybe he needs a third to really hammer it home.
    No the SCD LIFESTYLE site is different. scdlifestyle.com/?_ga=1.65341479.848389175.1430096447?_ga=1.65341479.848389175.1430096447
    It has a bit different approach. And has like a elimination diet type thing to try.

    Thank you, I found that one too and printed out the free get started guide, it does seem easier than focusing on all the things he shouldn't have and just focusing on what he can then add things in gradually

    If it is the step-wise diet with pureed veggies that is what I did. It worked and it was good because it wasn't forever!

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