vestibular issues (dizziness?)

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  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    Cassieabc wrote: »
    Hello, wow reading this thread has reassured me a bit. I started having peri symptoms about a year or more ago and early this year had terrible dizziness. Was really worried, went to my Drs and she just referred me to a neurologist. No questions about menopause or anything. My mum had ms so that is always in back of my mind. I still get them but not as bad and not as frequent. I go next week to see the specialist and having ready the reviews on line about him I'm not sure how it will go!

    Dizziness is listed as one of the 34 symptoms of menopause.
  • KANGOOJUMPS
    KANGOOJUMPS Posts: 6,472 Member
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    oh yes,,,, severe anxiety and dizziness are my worst. sigh... I wish I was a man some days!!, like really, they need to get pregnant and fat, and get periods, I too have been to docs, all is fine,, it goes right back to perimenopause for me.
  • aamundsoncpa
    aamundsoncpa Posts: 77 Member
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    My vertigo was so bad this weekend! I think the added stress of my week made it worse. It's slowly subsiding but I decided to stay home from work today because it seems it's the worst mid-day....and I don't think driving while dizzy is a good move!
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
    edited October 2015
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    I just got back from seeing another otolaryngologist to review my test results. He says: it's not in my inner ear. He is pretty confident, based on my tests, and his assessment, that mine is vestibular migraine.
    Other migraines have ramped up for me, so i guess this shouldn't be a surprise.

    On the plus side, I haven't had an episode since I ramped up the progesterone, so that, and the accompanying great sleep I've been having have me thinking I'll stick with higher dose progesterone for a while.
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    My vertigo was so bad this weekend! I think the added stress of my week made it worse. It's slowly subsiding but I decided to stay home from work today because it seems it's the worst mid-day....and I don't think driving while dizzy is a good move!

    Not fun! Hope it subsidies totally!
  • TheGaudyMagpie
    TheGaudyMagpie Posts: 282 Member
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    I'm glad the progesterone is helping. I'm having a nerve ablation in my neck in a few weeks that we hope will cut down on my migraines. We've been having a lot of weather changes here in the past couple of weeks that have triggered the neck pain (probably from facet joint deterioration), which triggers the migraines. I've been having some dizziness with the migraines, but I think that mine are mostly basilar. I'm glad you are getting some answers. It seems like it takes a long time to whittle things down to a migraine diagnosis.
  • paddlegirl831
    paddlegirl831 Posts: 9 Member
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    I got this fixed!

    Exactly the same symptoms, quite extreme. I underwent a similar standard protocol with ENT, MRI, etc. Finally I saw a leading neurologist who let me know it was a type of migraine (without headaches). After testing a few medications, I ended up taking Topamax. It's not without side effects (mostly you don't feel as sharp), but it got rid of the vertigo.
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    I got this fixed!

    Exactly the same symptoms, quite extreme. I underwent a similar standard protocol with ENT, MRI, etc. Finally I saw a leading neurologist who let me know it was a type of migraine (without headaches). After testing a few medications, I ended up taking Topamax. It's not without side effects (mostly you don't feel as sharp), but it got rid of the vertigo.

    My ENT said the same thing a type of migraine! YAY for finding smoothing that works!
  • TheGaudyMagpie
    TheGaudyMagpie Posts: 282 Member
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    I had some pretty extreme side effects with Topamax, but I know a lot of people take it and it doesn't seem to affect them much. It's very effective for migraines if you can tolerate it. I take nortriptyline (Pamelor). It doesn't seem as effective, but I have virtually no side effects from it and I find it very energizing. My vertigo is gone, but I still get headaches, depending on the weather (they appear to be triggered by arthritis/neck facet joint degradation). They hit my sinuses pretty hard, especially on the left side. Yesterday I took a sudafed just to see what it would do, and my pain is soooo much better. I think it must help to knock out the sinus symptoms that come with the migraine, or maybe the stimulant effect is anti-inflammatory. I don't know, but I think I'm keeping this in my regimen until my nerve ablation on the 6th (that can't get here soon enough -- with our weird weather right now, my pain has been escalating).
  • klkarlen
    klkarlen Posts: 4,366 Member
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    tigerblue wrote: »
    I get it occaisionally. I thought it was more age than hormones. It hits out of the blue for me, with no warning and doesn't last more than a few seconds at a time. The first time it happened I thought I was having a stroke or something.

    I called the EMT's this morning because of my first and hopefully worst case of vertigo ever, complete with spinning room, sweating, chills, nausea. . . it was horrendous. And I don't have anyone that can drive me to an ER - on the ambulance I went. 5 hours later, and a full boat of expensive tests later, diagnosis was BPPV - and an Rx for anti-nausea meds, that make me bone tired.

    Oh the joys of old age.
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    klkarlen wrote: »
    tigerblue wrote: »
    I get it occaisionally. I thought it was more age than hormones. It hits out of the blue for me, with no warning and doesn't last more than a few seconds at a time. The first time it happened I thought I was having a stroke or something.

    I called the EMT's this morning because of my first and hopefully worst case of vertigo ever, complete with spinning room, sweating, chills, nausea. . . it was horrendous. And I don't have anyone that can drive me to an ER - on the ambulance I went. 5 hours later, and a full boat of expensive tests later, diagnosis was BPPV - and an Rx for anti-nausea meds, that make me bone tired.

    Oh the joys of old age.
    BPPV is the default diagnosis, yes. I was also prescribed the anti nausea meds, but I didn't take them (except for insomnia) as they didn't really help.

    So sorry you had that experience. It can be very frightening.
  • Kimberly_Harper
    Kimberly_Harper Posts: 406 Member
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    I guess for any strange thing I experience for the next five years, I'll just come to this forum first. So far, they're all here. Thanks again Sabine! haha
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    I guess for any strange thing I experience for the next five years, I'll just come to this forum first. So far, they're all here. Thanks again Sabine! haha

    smiles. It's on the list of 34 symptoms of menopause. But GAH, I wish my female relatives or friends had told me about this weird feeling.
  • Gosser
    Gosser Posts: 178 Member
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    I had to have three months off work because the world was going round and I couldn't fix on anything.

    It is only now, a year later that I realize it was all part of the joy of peri-menopause.

    Touch wood, it hasn't happened a second time. At least I'll know it isn't something dreadful if it does, last time I was imagining all sorts of deathly outcomes to the MRIs, xrays and such. Why they didn't tell me it could just be my hormones I don't know, would have saved me a lot of worry.
  • Sabine_Stroehm
    Sabine_Stroehm Posts: 19,263 Member
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    Gosser wrote: »
    I had to have three months off work because the world was going round and I couldn't fix on anything.

    It is only now, a year later that I realize it was all part of the joy of peri-menopause.

    Touch wood, it hasn't happened a second time. At least I'll know it isn't something dreadful if it does, last time I was imagining all sorts of deathly outcomes to the MRIs, xrays and such. Why they didn't tell me it could just be my hormones I don't know, would have saved me a lot of worry.

    If only they'd tell us that!!