Coconut Oil, MCTs, Ketones & Alzheimer's

RalfLott
RalfLott Posts: 5,036 Member
edited November 2024 in Social Groups
FYI - Just ran across this gripping presentation by neonatologist Dr. Mary Newport on the revival of some aspects of her husband's cognitive abilities and personality after starting him on coconut oil (an idea stimulated by federal MCT therapy trials):

https://youtu.be/feyydeMFWy4

There's also a website....
http://www.coconutketones.com/

...and a book:
https://www.amazon.com/Alzheimers-Disease-There-Story-Ketones/dp/1591202930

[Ahoy, @dragonwolf @baconslave - possible Launchpad items]
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Replies

  • kirkor
    kirkor Posts: 2,530 Member
    Good stuff, thanks for sharing!
  • RalfLott
    RalfLott Posts: 5,036 Member
    edited June 2016
    @GaleHawkins - Interesting to hear. I have often wondered how many different routes (direct or otherwise) the various ketophiles here have taken to reach the same general neck of the woods.

    If you had to name your 5 or 10 most influential resources (people, books, lectures, etc) - what might they be?
  • canadjineh
    canadjineh Posts: 5,396 Member
    It's a lovely idea if you can get the person with dementia to eat it. Right now that is the problem that my parents are having. Mom has dementia (still moderate) and her tastes change drastically from day to day. It can be hard to get any nutrition into her at all sometimes. She swings wildly from not even being able to look at meat or eggs to only wanting certain types of fruit to eating only shrimp, etc. 'Treatment' isn't always that simple.
  • Time2LoseWeightNOW
    Time2LoseWeightNOW Posts: 1,730 Member
    Thanks for the links, @RalfLott....I will try to look at them after work...I saw a small photo of this somewhere, or a close second...It showed how her husband's brain had multiplied in size after adding coconut oil...and his symptoms had improved greatly...
    I believe we are starving our brains due to years of low fat plus all the chemicals and preservatives...and memory is fading.... so this should be an interesting read.
    I came about LCHF after a T2D diagnosis. I had started trying to cut out sugars and carbs, same as @GaleHawkins and realized there was a" group for that"!! : )
  • kpk54
    kpk54 Posts: 4,474 Member
    RalfLott wrote: »
    @GaleHawkins - Interesting to hear. I have often wondered how many different routes (direct or otherwise) the various ketophiles here have taken to reach the same general neck of the woods.

    If you had to name your 5 or 10 most influential resources (people, books, lectures, etc) - what might they be?

    That would be interesting to hear. I joined the forum to read personal experiences as to how LCHF effected individual's cholesterol. I was shocked when 2 women mentioned Cervical Dystonia aka Spasmodic Torticollis (considered a rare disorder) and was even more shocked that both indicated LCHF eating minimizes their involuntary muscle contractions.

    I too have Cervical Dystonia/Spasmodic Torticollis. I have hope.
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    I haven't seen that video yet. I will watch it later. Thank you for the link.

    Her book is great! Good reading for anyone with Alzheimer's in the family, or who is getting older, really....
    RalfLott wrote: »
    @GaleHawkins - Interesting to hear. I have often wondered how many different routes (direct or otherwise) the various ketophiles here have taken to reach the same general neck of the woods.

    If you had to name your 5 or 10 most influential resources (people, books, lectures, etc) - what might they be?

    Excellent questions! I am going to steal this and start another thread on it. Great idea!
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    nvmomketo wrote: »
    I haven't seen that video yet. I will watch it later. Thank you for the link.

    Her book is great! Good reading for anyone with Alzheimer's in the family, or who is getting older, really....
    RalfLott wrote: »
    @GaleHawkins - Interesting to hear. I have often wondered how many different routes (direct or otherwise) the various ketophiles here have taken to reach the same general neck of the woods.

    If you had to name your 5 or 10 most influential resources (people, books, lectures, etc) - what might they be?

    Excellent questions! I am going to steal this and start another thread on it. Great idea!

    Please post the link when you do.
  • KnitOrMiss
    KnitOrMiss Posts: 10,103 Member
    canadjineh wrote: »
    It's a lovely idea if you can get the person with dementia to eat it. Right now that is the problem that my parents are having. Mom has dementia (still moderate) and her tastes change drastically from day to day. It can be hard to get any nutrition into her at all sometimes. She swings wildly from not even being able to look at meat or eggs to only wanting certain types of fruit to eating only shrimp, etc. 'Treatment' isn't always that simple.

    @canadjineh - Have you tried having a bevy of frozen or refrigerated fat bombs available - in both sweet and savory applications? Most can use a significant bit of coconut oil in them. I've had them in faux yogurt form, cheesecake form (unflavored, strawberry, peach, raspberry, etc.), meltaways in chocolate/lemon/cinnamon/peanut butter form, egg form, bacon/guacamole form, and so many others... If you have multiple options available, it might make it easier. If in doubt, they make coconut oil in capsule form, if she can do that. Rubbing it into the skin in a lotion is a lower absorption, but still works, etc.


    kpk54 wrote: »
    RalfLott wrote: »
    @GaleHawkins - Interesting to hear. I have often wondered how many different routes (direct or otherwise) the various ketophiles here have taken to reach the same general neck of the woods.

    If you had to name your 5 or 10 most influential resources (people, books, lectures, etc) - what might they be?

    That would be interesting to hear. I joined the forum to read personal experiences as to how LCHF effected individual's cholesterol. I was shocked when 2 women mentioned Cervical Dystonia aka Spasmodic Torticollis (considered a rare disorder) and was even more shocked that both indicated LCHF eating minimizes their involuntary muscle contractions.

    I too have Cervical Dystonia/Spasmodic Torticollis. I have hope.

    One of our members her, @kimbo8435, if I am not mistaken, has this condition and has had dramatic success on a ketogenic dietary plan!! I can't find the posts she made in group, but this is a partial status she made about 3 months ago. I believe she's working on research to help other patients, as well...

    It's official. I've been on keto for 10 weeks this week and I've had NO dystonic tremors. Zero. Nada. I've not even gotten a feeling like my body was going to tremor. 10 weeks means that it is not a "placebo effect" and that this is actually working. 20 carbs is where I'm at, and with all you guys's help... I'm finding this is the easiest solution. I didn't expect that the answer to my neuro problems was just changing the way I ate. I expected it to be deep brain stimulation or another brain surgery or something... instead I GET to take the easy, non-invasive route! I'm emailing my neurologists today!
  • kpk54
    kpk54 Posts: 4,474 Member
    @knitormiss, Thanks for posting the above. She was 1 of the 2 I mentioned but I've not seen anything else from her since regarding dystonia. Thank you!! Appreciate it!
  • bjwoodzy
    bjwoodzy Posts: 593 Member
    edited June 2016
    This is bittersweet. I'm happy for developments in this area of medicine, but hardly anyone in the local medical community even knew what kind of dementia my dad was suffering from over 12 years ago--which doesn't sound like a long time, but a lot has changed in this world, since 2004 (the year he died). I mean, Twitter didn't even exist yet, and FB was still just a few months old...and still exclusive to only certain people.
  • KarlaYP
    KarlaYP Posts: 4,436 Member
    Wonderful talk! Want to try this with my files! I've been telling my mil to increase his fat since reading "Grain Brain" but she is part of the low fat generation! Maybe this will convince her more!

    Thank you for posting!
  • Sunny_Bunny_
    Sunny_Bunny_ Posts: 7,140 Member
    Great video! I knew it would be! I love her husbands story!
    That story, along with everything else I've learned about ketones is what made me decide to be Keto for life. I don't have any health issues, but my ADHD symptoms are very apparent in my everyday life and have definitely held me back in many ways. Even after beginning a stimulant medication only since I've been an adult, it's only helped me focus but has limitations.
    Since adding a concentrated MCT oil daily, I was able to reduce the dosage of the stimulant medication by 1/3. Hopefully, it will not be necessary at all in the future. :smile:
  • kmn118
    kmn118 Posts: 313 Member
    I think I need to take more coconut oil daily, but cannot find a recommended amount, other than 1 TBSP 3x a day. Is that what everyone else takes? I have searched Launchpad and didn't see that topic.
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    @kmn118 for a long time I took 3-5 tablespoons in my first cup of coffee. When I recently stopped using dairy I stopped the coffee. Now I put 1 tablespoon in my first cup of tea each morning. I just never to get into MCT oil but love coconut oil.
  • kmn118
    kmn118 Posts: 313 Member
    Thank you, GaleHawkins. At last, specific information. :smile: I haven't bought MCT oil either, as coconut oil is readily available and reasonably priced.
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    With this hot weather I have ditched a lot of fats for my eating. Side effect I have lost 10 pounds in last 3 weeks.
  • Sunny_Bunny_
    Sunny_Bunny_ Posts: 7,140 Member
    kmn118 wrote: »
    Thank you, GaleHawkins. At last, specific information. :smile: I haven't bought MCT oil either, as coconut oil is readily available and reasonably priced.

    There's no specific "dosage" because it varies widely from person to person. Mostly due to varying amounts that cause digestive issues for some people. One person might be 1 teaspoon and running to the toilet. Another might take 8 tablespoons before that happens.
    And then there's wether or not you intend to count the calories. If you do, you might have trouble fitting more than a couple tablespoons a day in.
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    kmn118 wrote: »
    I think I need to take more coconut oil daily, but cannot find a recommended amount, other than 1 TBSP 3x a day. Is that what everyone else takes? I have searched Launchpad and didn't see that topic.

    I can't exceed about 3 TBS or I pay for it the next day, especially if I am taking a magnesium supplement too.
  • kmn118
    kmn118 Posts: 313 Member
    Thanks, @Sunny_Bunny and @nvmomketo, for the warnings... good thing I don't have plans this weekend. Lol
  • Sunny_Bunny_
    Sunny_Bunny_ Posts: 7,140 Member
    nvmomketo wrote: »
    kmn118 wrote: »
    I think I need to take more coconut oil daily, but cannot find a recommended amount, other than 1 TBSP 3x a day. Is that what everyone else takes? I have searched Launchpad and didn't see that topic.

    I can't exceed about 3 TBS or I pay for it the next day, especially if I am taking a magnesium supplement too.
    kmn118 wrote: »
    Thanks, @Sunny_Bunny and @nvmomketo, for the warnings... good thing I don't have plans this weekend. Lol

    And im one of those that could probably have 8tbs with no problem. Lol
  • KarlaYP
    KarlaYP Posts: 4,436 Member
    My gastrointestinal response to one tbsp, or less (mixed in a 24 oz. Size cup of coffee!), is almost immediate! So weird how we all respond differently!
  • Sk8Kate
    Sk8Kate Posts: 405 Member
    @Sunny_Bunny_ me too, but my mum can only handle 1 tbsp or less.
    @Karlottap you're so right!
  • V_Keto_V
    V_Keto_V Posts: 342 Member
    Re dosage for Axona (Nutriceutical): 10g/4-8oz H2O once daily postprandial/post meal titrated up by 10g (same volume H2O) every 2 days to a MAX of 40g/day. Rough estimate would be 10g is about equal to 10mL (2/3 tbsp)...density is 0.93-0.96g/mL
  • RalfLott
    RalfLott Posts: 5,036 Member
    nvmomketo wrote: »
    kmn118 wrote: »
    I think I need to take more coconut oil daily, but cannot find a recommended amount, other than 1 TBSP 3x a day. Is that what everyone else takes? I have searched Launchpad and didn't see that topic.

    I can't exceed about 3 TBS or I pay for it the next day, especially if I am taking a magnesium supplement too.

    @nvmomketo - Do the brands or types (refined v. unrefined) make any difference?
  • KnitOrMiss
    KnitOrMiss Posts: 10,103 Member
    edited July 2016
    I can do more when it's mixed with other fats into a fat bomb style consumption. I could tolerate some in my Loaded Tea when I was making it, but I was never a huge fan of it all. I really ought to start incorporating it again, now that I've resolved the worst of my digestive dramas with all my fats... I'm just not making many fat bombs lately, and not doing the tea anymore (histamines/migraines), so it's just gone to the back burner... I have MCT, too, and the only issues I had with it were on a empty stomach. I could tolerate 1-2TBSP easily of MCT... 1/2-1 TBSP was about my max with CO...though it did make a great sunscreen when combined with zinc oxide! LOL

    @RalfLott Refined or unrefined, organic, virgin, none of those things really made a noticeable difference for me. It was all volume. All of the CO consumption warnings and MCT directions suggest starting slowly and working up over a few days. The MCT I had said 1/2 tsp up to 3 times daily start, adjusting as needed.
  • RalfLott
    RalfLott Posts: 5,036 Member
    edited July 2016
    I am apparently able to suck down more coconut oil than many folks (up to 4 tbsps.), though metformin was my literal Water-loo.
  • batlott
    batlott Posts: 61 Member
    @SunnyBunny, you mentioned a concentrated source of MCT. What product do you use and do you get less calories than the usual from other oils. Thanks
  • genmon00
    genmon00 Posts: 604 Member
    kmn118 wrote: »
    Thank you, GaleHawkins. At last, specific information. :smile: I haven't bought MCT oil either, as coconut oil is readily available and reasonably priced.

    And then there's wether or not you intend to count the calories. If you do, you might have trouble fitting more than a couple tablespoons a day in.

    This is true. Bums me out. :( Since doubling my BPC coffee amount I thought to double the recipe ( 2 tbsp coconut oil, 2 tbsp butter, 2 tbsp hwc) but its eating up my calories. I'm scared of going too much over my calories. And I am listening to the Keto'ers advice to "EAT WHEN YOU ARE HUNGRY" which is not often with the BPC but I hate seeing those calories creeping :(
  • RalfLott
    RalfLott Posts: 5,036 Member
    genmon00 wrote: »
    This is true. Bums me out. :( Since doubling my BPC coffee amount I thought to double the recipe ( 2 tbsp coconut oil, 2 tbsp butter, 2 tbsp hwc) but its eating up my calories. I'm scared of going too much over my calories. And I am listening to the Keto'ers advice to "EAT WHEN YOU ARE HUNGRY" which is not often with the BPC but I hate seeing those calories creeping :(

    I'm with you. I count carbs, too, as I am pretty sure I've proven to myself that my weight will nudge up if I only count protein and carbs but not fat or calories.

    A rough application of "Eat (fat) when you're hungry" may be that once you've hit your carb limit and protein target, then IF you're hungry, you're ok if you concentrate on healthy fats, reasoning that if you're in ketosis and burning fat anyhow, then your body won't throw you onto the Jersey Turnpike if that's the fuel you give it.
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