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  • luluinca
    luluinca Posts: 2,899 Member
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    Okay, we finally found the right doc to help my husband. It's definitely a kidney problem and he's on a catheter for about 3 or 4 weeks right now to settle things down. It could be prostate but it also looks like his bladder may not be functioning, so we need some more tests once they stabilize things.

    Anyway, he was so relieved when we left the doctor's office this afternoon that I felt like crying. So weird to think that having a catheter would make you feel relieved...........hmmmm, there's a joke in there somewhere, and since he's something of a comedian anyway, the jokes have already begun.

    We still have more tests and an appointment with a nephrologist to go through, plus the catheter adventure to figure all this out, but we've gone from pulmonary fibrosis to malfunctioning kidneys in a fairly short amount of time......Wish us luck!
  • UncleMac
    UncleMac Posts: 13,162 Member
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    It sounds like you're finally moving in the right direction. I'm so glad!!
  • luluinca
    luluinca Posts: 2,899 Member
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    UncleMac wrote: »
    It sounds like you're finally moving in the right direction. I'm so glad!!

    Thanks..........we do feel relieved to be getting some real help and maybe a diagnosis.
  • marekdds
    marekdds Posts: 2,211 Member
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    Really happy you are getting somewhere. Once they figure out the problem, you can move on to treatment.
  • RodaRose
    RodaRose Posts: 9,562 Member
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    Good to hear that you are making progress in the diagnoses maze. Best of all, he is joking.
  • MostlyWater
    MostlyWater Posts: 4,294 Member
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    Oh wow .... bring us good news!!!
  • UncleMac
    UncleMac Posts: 13,162 Member
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    Getting rid of the water weight is bound to help his breathing and sleeping, not to mention the walking...

    Glad to hear he's feeling better!
  • AnnPT77
    AnnPT77 Posts: 32,883 Member
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    This definitely sounds like progress, at least - hoping for both your sakes that it's just the beginning of much progress in positive directions!
  • luluinca
    luluinca Posts: 2,899 Member
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    Thanks you guys.
  • luluinca
    luluinca Posts: 2,899 Member
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    Here's what we know so far, he's been diagnosed with Stage 3 Kidney Failure but some of that could reverse a little when they figure out if it's his prostate or bladder or both. If it's prostate they can do something about it, if it's bladder they can't.

    Since he's been on the catheter and lost all the extra fluid that was basically drowning him his symptoms are much better. He's breathing without the inhalers and eating better. His energy has improved somewhat as well. Some of the swelling has gone down in his kidneys so that was good news too.

    Next week he goes in for the bladder function test and at the end of August the prostate. He'll be on the catheter until they figure out what they can do for him. He's okay with that for now so I'm hoping he'll be able to get off of it once all is said and done but I suppose there are worse things in life.

    If they need to operate on his prostate it won't happen until after our daughter's wedding in CO at the end of September so he's not crazy about all the waiting but we have little choice in that I guess.
  • UncleMac
    UncleMac Posts: 13,162 Member
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    It sounds like they're narrowing in on the issue.

    I'm glad to hear his quality of life has improved. It's pretty hard to fight off illness while drowning.
  • klkarlen
    klkarlen Posts: 4,366 Member
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    Wow, what an experience, and not a good one, but good for you for continuing to pursue and get answers. Hoping for a good outcome from the upcoming tests.
  • luluinca
    luluinca Posts: 2,899 Member
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    Thanks guys...........we keep moving forward and getting answers.

    So strange that originally everyone though his lungs were shot when in reality it was a little further south. :#
  • UncleMac
    UncleMac Posts: 13,162 Member
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    Did the positive energy arrive? I sent it priority prayer... (((hug)))
  • luluinca
    luluinca Posts: 2,899 Member
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    Awwwww, thanks Mac. Unfortunately we don't know anything still on the kidney/bladder/prostate situation. Today's test is actually in conjunction with another test on Aug 31 (we didn't know that) so we won't get any results until after that. He felt like maybe he didn't do very well but I told him he doesn't really know what they're looking for so let's not worry about it until we know something for sure.

    We also saw his cardiologist this morning after the echo cardiogram and his heart health has declined. Not happy about that but he has zero symptoms so as long as he feels ok for now we're trying not to make ourselves sick worrying. We're seeing another heart specialist about having an internal defibrillator put in so another appointment and maybe more tests again.......uggghhhh.

    Staying tough and strong here though and he feels so much better since he's gotten rid of all the excess fluids that we're counting our blessings where we find them. ;)

    Thanks for the Priority Prayers...........I'm sure they're helping.
  • marekdds
    marekdds Posts: 2,211 Member
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    Very stressful situation, you are amazingly strong. I am happy to see you take some time for yourself (gym/swimming). We are with you in spirit.
  • MostlyWater
    MostlyWater Posts: 4,294 Member
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    yes we are !
  • luluinca
    luluinca Posts: 2,899 Member
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    Thanks guys........we'll be fine. That's what we do......LOL.......survive!

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