what type of meds do you take
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hashimotos here. i've been levo for...6 years now. i was up and down on dosage for a while, but now on 75 for almost a year i stayed on levo because it's always been only $10 for 3 months worth. never been established with an endo, just got my levels checked at the ENT office that I can audiologist for. my hair is much thinner than it use, and losing weight is definitely a...science. if i am not RIGHT on with cals and exercise, nothing comes off! i'm looking forward to getting an endo and try other things. what i would do to feel awesome and lose weight easily!!!!0
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Hashimoto's here, too. Almost two years after diagnosis, I'm down to 1/4 grain of Armor -- any more sends me through the roof with heart palpitations, shaky hands, that raw feeling, etc. Also experienced hair loss and eyebrow thinning in the beginning -- and a strange rash on my face. My naturopath put me on a zillion supplements and tested me for food allergies. For about a year, I've avoided dairy, gluten, and nuts like the plague. Still, kept gaining weight around the middle. Someone told me about MFP, and once I saw how much I was shoveling in my mouth everyday -- thinking it would help my fatigue and shakes -- I cut out sugar entirely (raisins were my nemesis). I've also cut out most grains, even quinoa, unless they're sprouted. I'm finally losing weight!!! And my hair is growing back!!!!! Hope this is the ticket and my levels stay sane.
My heart is with all of you! Best of luck -- this is a hard one to balance, darn it -- and I'm just beginning this journey compared to so many of you.0 -
Oh, yes -- I'm mostly plant-based. Not entirely, but I'm heading in that direction. MFP is helping me do this as wisely as I can right now. My biggest hurdle is exercise. I have a lot more energy and know I can do it now!0
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I was diagnosed less than a month ago. I was put on 100 Synthroid which was too high of a starting dose. All I did was either sleep or be jittery. My doctor told me to cut back to 50 which I did for a week and just went back to 100 a few days ago. I go back in about a month to get my levels retested but my doctor says do not be surprised if I go up to 125.0
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I take levothyroxine and I'm on 50mcgs per day, I think. Just 1 tablet anyway.0
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I have postpartum Hashimoto's. I take 125mcg of levothyroxine daily, and even though my 'levels' are good, I still feel like crud. I have started a gluten free diet, and seem to feel a little better. My gastroenterologist told me that I definitely do not have a gluten allergy, but going off the gluten seemed to help. From what I've read, gluten can trigger the autoimmune reactions that cause you to have Hashi’s. You might try that!
For the longest time I was eating 1200 calories a day, breastfeeding full time, running 10-15 miles per week and GAINING weight. Talk about ticking me off! I finally just gave up! For the new year, I cut out all gluten, sugars and starches and started running again. I am finally losing some weight. I don't know if my Hashimoto's is in remission or if maybe (please, please, please!) it's gone, but I'll take whatever it is!
I hope you can figure out what you need to do to feel better. I know right now you are probably tired, sore and just worn out. Keep on your doctor and MAKE him listen to you!!! Keep a list of your symptoms, too! Sometimes that helps them see just what is going on. Heck, I had memory loss, dizziness, weight gain, headaches, body aches, you name it!!! It took me writing them all down, handing the list to my doc and actually bursting into tears for him to take me seriously. Good luck!0 -
I have both Graves Disease and Hashimoto's. Had a complete thyroidectomy in 2010, and have been through 4 Endocrinologists so far in my 4 year journey. Thankfully my latest endocrinologist actually listens to me, and is willing to look at the big picture, rather than try to fit me into their cookie mold.
I had been on Synthroid alone since my thyroidectomy, and I have never felt normal on it. It was impossible for me to lose weight, I had no libido, extreme irritability, felt cold all the time, etc. even though my labwork showed that I was in the normal ranges. My last appointment with my endo, she added Cytomel T3 to my daily routine, and the change was instantaneous. I felt like a brand new woman.0 -
I am on 250mcg of Synthroid and 25mcg of Cytomel daily. I take them both in the morning with a glass of water 60min before I eat or drink (other than water) anything.
I still feel like crap most of the time but I feel a thousand times better than I did before the Cytomel, I can function now at least!0 -
I am on 250mcg of Synthroid and 25mcg of Cytomel daily. I take them both in the morning with a glass of water 60min before I eat or drink (other than water) anything.
I still feel like crap most of the time but I feel a thousand times better than I did before the Cytomel, I can function now at least!
Wow 250 mcg of Synthroid is a big dose! I was on a dose that large several years ago and really felt bad. That's why I am so happy to finally be on Armour dessicated thyroid. It's got both T4 and T3 and not synthetic. I hope you feel better soon!0 -
I am on 250mcg of Synthroid and 25mcg of Cytomel daily. I take them both in the morning with a glass of water 60min before I eat or drink (other than water) anything.
I still feel like crap most of the time but I feel a thousand times better than I did before the Cytomel, I can function now at least!
Wow 250 mcg of Synthroid is a big dose! I was on a dose that large several years ago and really felt bad. That's why I am so happy to finally be on Armour dessicated thyroid. It's got both T4 and T3 and not synthetic. I hope you feel better soon!
I know. I talked to my endo about trying Armour but he just doesn't want to try it for some reason. I don't know if it has anything to do with my pituitary tumor or what? I'm just glad I am on Cytomel because no matter how bad I feel now, I felt a million times worse before the Cytomel!0 -
Just found this group.
Also a Hashimoto's girl, since age 10. Now 38. Current med- Levothyroxine (I think) 112mcg 2 tabs for a total of 224mcg- yes its a hefty dose! And I still feel tired all the time. I am not always the best at taking the medication...so I have really been trying to stay on top of it the last few weeks. It was interesting to read about some of the various medications people take. I have never even heard of some of them. Maybe I need to have a talk with my Endo. I hope to lose 35 pounds and feel better down the road.0 -
I continue to be amazed at how many people were diagnosed at such a young age!! Welcome, Dogwood!! If you talk to your endo, don't be surprised if he poo-poos what we have been talking about. The majority of doctors does us with synthetic T4 based on our TSH levels. They don't bother to test Free T3, Free T4, Reverse T3 or antibodies. And most think Armour Dessicated Thyroid is "unstable" -- even though it was the medication of choice before the big pharmaceutical companies came out with a synthetic T4 replacement.
But if they were really treating us and our symptoms, we wouldn't feel so lousy when our labs are "normal".0 -
I was diagnosed with hyperthyroidism lst winter. I take PTU. It has caused me aches and pains and weight gain. Not to mention it's damaging my liver! Anyone else on PTU?
I used to take PTU before I had to have my thyroid totally removed. I'm pretty certain it damaged my liver. I absolutely hated it. The weight gain, the distended feeling all the time. And, it did nothing for my TSH levels. Once I had my surgery it took about 8 months for my distention to alleviate.
I have met several people who do well on the stuff, but I sure as heck didn't.0 -
I have Hashimotos and for the past 4 years have been on 125 mg of levoxthrine. I still feel all the hypo symptoms, even on meds. Last week the doctor did my yearly blood work for my thyroid and said based on my levels they want to lower my meds. Has that ever happened to anyone else?0
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Hi, I was diagnosed with under active thyroid last year. I am on 150mg of levothyroxine which i take in the morning with water and leave an hour before breakfast.
I am still symtomatic and feel really low about it all but feel the thyroxine has made a huge difference to how i felt from last year.
At the momment my tsh is supressed at 0.06 and my gp has just taken bloods to test for t4 (labs dont always do t4, dont ask lol) He said as long as my t4 is within range and i am still symptomatic he will increase aslong as i am aware of the possibility of becoming over medicated.
I am really hoping for a 25mg increase next week as my last increase i have felt no effect at all.
My Dad is hypo too and is on levothyroxine and on 100mg although he feels he would like an increase but his gp says no as his levels are within range (dont know what they are).0 -
I am on Synthroid 112 mg. Was raised to that in October. Just got my blood test results and my T4 Free is 1.5 ng/dL and my TSH is .15 which is low. I feel good though so she is going to retest in three months until I start have hyper symptoms. I take my medication at about 4 in the morning when I always seem to wake up having to go to the bathroom. I then go back to sleep and don't have to worry about waiting the hour to eat breakfast.0
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I am currently on Levothyroxin 75mcg. I take it as soon as I wake up. In 2000 my OB saw a lump in my throat during a post c-section appointment. I had a tumor on my thyroid. I had the tumor and 1/2 my thyroid removed. I was put on synthyroid (can't remember how much). I was okay for years but went to my family doc when my hands started to hurt. When I woke up, they were swollen, stiff, and sore. After many tests, turned out to be my thyroid levels were off. Took a few months of trial and error to find the right dose. But all is well now. I have blood work done when my script ends just to make sure i'm still on the right dose.0
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Synthroid .88 mg but stopped 10 days ago due to weight gain (10 lbs since November 2011!). Previously had been on .75 mg but also stopped due to weight gain (7 lbs over several months time) - the weight came off without me changing another thing - mostly good eating, some bad - mostly exercising, but no gym rat. This time I am tracking food and being faithful to 3 miles / day on elliptical trainer because of the bloated, uncomfortableness of the recent weight gain. History - I had no symptoms of hypothyroidism - only blood work due to age routine screening. Does this seem familiar to anyone else?0
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Synthroid .88 mg but stopped 10 days ago due to weight gain (10 lbs since November 2011!). Previously had been on .75 mg but also stopped due to weight gain (7 lbs over several months time) - the weight came off without me changing another thing - mostly good eating, some bad - mostly exercising, but no gym rat. This time I am tracking food and being faithful to 3 miles / day on elliptical trainer because of the bloated, uncomfortableness of the recent weight gain. History - I had no symptoms of hypothyroidism - only blood work due to age routine screening. Does this seem familiar to anyone else?
So what happens when you go off your meds? If I did that, my thyroid levels would go sky high and I wouldn't be able to get out of bed. I don't think it's the meds that cause the weight gan. It's your metabolism, controlled by your thyroid. Synthroid is just a replacement T4 (an inactive hormone). It really does nothing for your metabolism. If your body can convert the T4 to T3 (active hormone), your metabolism will probably be ok -- but in many, many cases the conversion to T3 is flawed. That's why you can take Syntrhoid and still have hypo symptoms.0 -
I really found no difference between "on meds" and "off meds" when I went off the meds before. This time, so far, the only thing I notice is the lack of hot flashes - which I think is a good thing. I am paying close attention...0
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If your body can convert the T4 to T3 (active hormone), your metabolism will probably be ok -- but in many, many cases the conversion to T3 is flawed. That's why you can take Syntrhoid and still have hypo symptoms.
After my most recent bloodwork (about 2 weeks ago) I asked my GP to switch me to Armour. He said that my T3 levels looked okay, and were almost on the high side so he didn't want to do that. However, I have not been able to lose any weight at all since starting on medication in April 2011. Does anyone know if your T3 can be high but still have a low T3/RT3 ratio? Also, is it normal to only test T3 and T4? Seemed odd to me.
I had an appointment with a new doctor yesterday and she gave me a prescription for Armour alternating between 15 and 30 mg every other day. She told me she wanted to get my thyroid in check before checking adrenals.0 -
I'm on 2.5 grains of Efra (Armour type) and finally starting to feel human again! Levo really didn't help me at all which is why I was switched by my amazing thyroid specialist to natural as the synthetic doesn't help everyone. It's so frustrating for everyone who suffers from this as you think you've found the cure but diagnosis is only the start and it often takes up to a year maybe more to get the correct dose for you, but you will find that point and life will seem so much better, good luck everyone0
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I'm on 2.5 grains of Efra (Armour type) and finally starting to feel human again! Levo really didn't help me at all which is why I was switched by my amazing thyroid specialist to natural as the synthetic doesn't help everyone. It's so frustrating for everyone who suffers from this as you think you've found the cure but diagnosis is only the start and it often takes up to a year maybe more to get the correct dose for you, but you will find that point and life will seem so much better, good luck everyone
great to know there is hope! I had just started on Armour, but it's not agreeing with me. So he told me today to stop - he's going back to the drawing board :-(... I am yearning for the solution to my thyroid -- it's been 15 years!!0 -
Hi, my name is Phyllis. I take one levothyroxine 125 mcg pill the first thing each morning. I was told I had a thyroid condition in 2002, It took a couple years to find the proper medication for me, but since then I've had no problems. I seem to be tired a lot but my doctor says I need to walk on the treadmill more. I try!!! :ohwell:0
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I take methimizole, 10 mg daily.0
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I take levothryoxine in the AM an hour before food. I have read where there are many if not all of you that take it with a glass of water. WHY is that?? My dr. says to take it before I get out of bed, so that is what I do. There are months I loose the weight and then there are months that I have trouble. "Santa" is bringing a Wii fit so I hoping that helps me shed the pounds faster and keep me on track better.
I take Levoxyl 0.05mg. I am just starting to take medication after thyroid surgery. My Dr. said to take it with water because he wants it disolving in the stomach not the throat. He also said not to eat anything with calcium for 4 hours. It may interfer with the way the thyroid med's act on your body. So no milk, yogurt etc till later.
He wanted me to take the brand as the generic may not be as consistant. He had to put the request on the script. My insurance charges $6.00 more per month for the Levoxyl then the generic levothryoxine :ohwell:
Bump0 -
I have Hypothyroid (hashi's)
I take 30 mg of Armour Thyroid. I've been on it since Feb 2. So far I have no bad side effects, and a lot more energy than I had 2 weeks ago. I didn't think I'd ever be able to get my butt off the couch.
My dr gave me the option between synthroid and armour thyroid, I told him to give me whatever he thought I should have. He told me to go home and do some research, and then let him know. Thank god he told me that, or I would have probably chosen synthroid because everyone I know with hypo is on synthroid. I don't think it would have worked as well as fast for me.0 -
I'm on 100mcg of levothyroxine, I had it upped a few months back. I was terrified that losing weight was going to be really really difficult because of my underactive thyroid, but somehow I've found the weight has come off quite easily?! I was diagnosed 5 years ago and have been on medication since then and maybe that's got something to do with it, but I've lost 19lbs since November
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I was taking 112 Synthyorid till 3 weeks ago when I finally talked my nurse practioner into letting me try Armour. I am taking 90 mg of it (equivalent of 150 Synthyroid) It is working so much better for me! (In fact I am up at 3:13 AM & just did 1.25 miles on the treadmill.) I haven't read all the posts here yet but do be aware that the TSH normal ranges are so wide that just being "in range" does not mean you are well. I feel best with mine at around 1.0... if mine hits 2.0 or higher I'm exhausted. I also quit smoking 10 weeks ago which caused me to gain the usual 10 pounds so I've come back to Myfitnesspal... lost 30 pounds between 7/2010 & Jan. 2011 using weight watchers & MFP. My goal is to lose 25 pounds by May 12 (my vacation).
EDIT: After looking through some of your posts may I suggest the Facebook pages : Stop the thryoid madness and Thryoid Sexy. Both these groups are filled with amazing people who can help with support and knoweledge regarding Hashi's & any other thryoid issues. I was able to find so much help there & am finally getting to the point of feeling alive again due to being able to talk to others with the symptoms & finding a doctor (nurse practioner) that will listen to symptoms & not just your TSH levels.0
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