What is your level and dose.........

I am just curious since all doctors seem to have different measures and ideas on what the proper dose of synthroid is what everyone is on. Last time I had my blood work done my t3 was 4.4 (she never tests my T4) I am on .75mg of synthroid. My doctor believes I am in the norm........however I think my dose should be increased. I have gained 20 pounds since I was diagnosed and no matter how much I exercise or how little I eat I can never drop more than 5 pounds......OH SO FRUSTRATED.
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Replies

  • vhines5
    vhines5 Posts: 63 Member
    I couldn't tell you the last time I had blood work done. I'm on Levothyroxin (Synthroid generic) and have been for almost 15 years. I take 150 mcg per day.

    It's funny, I didn't even notice many of the persistent symptoms until I joined this group! I plan to have a full physical with blood work done this fall.
  • BWinsto1
    BWinsto1 Posts: 46 Member
    I don't know my blood work results right now but I'm taking levothyroxin 50 mcg per day. I was diagnosed with hypothyroidism in January 2012.
  • emstethem
    emstethem Posts: 263 Member
    Synthroid (synthetic T4 only) did not work for me. Of course, my doctor started me out on it. For some reason, Synthroid is the go to medicine for doctors. Every 6 months my doc was having to increase my dosage. By the time we switched my medicine I was taking 125mcg of Synthroid. Now, I take Armour (all natural T1,2,3 & 4) (37.5 mcg I take two 15mcg and cut one in half) and I am finally seeing progress. I finally feel somewhat better. My doc does the cheap TSH test once a year and the expensive whole blood panel once a year (so basically I have blood work every 6 months). I am VERY happy with the Armour. But, everyone is different. Just because Armour works for me, doesn't mean that it will work for you. If synthroid isn't alleviating your symptoms try a different medicine, and don't let your doctor talk you out of it. If your doc won't let you switch, find a more open minded doctor. Good luck with your journey.
  • emstethem
    emstethem Posts: 263 Member
    Oh, and you asked about blood levels too...I felt like S#!T when my levels were around 4. I feel best when I'm humming along at a 1; however, right now my doc is having to adjust my medicine because my blood test came back hypER. My body really agrees with the Armour medicine. My doc just reduced my dosage from 45mcg to 37.5 mcg (I take two 15s and cut one of them in half which is very difficult because the pills are so tiny...)and she wants me to come back for more blood work in two months. I think I'm still hyper, and that she may reduce my dosage again when I follow up after my next blood test.
  • emstethem
    emstethem Posts: 263 Member
    Oh, and I've been suffering from hypothyroidism for about 7 years now. :(
  • emstethem
    emstethem Posts: 263 Member
    Oh, and I understand your frustration with the weight gain issues associated with hypothyroidism too...I went from a size 8 to a size 16/18. :( I was miserable. Now, on the Armour, I'm finally seeing progress as a result of my efforts instead of feeling like a hamster running on a wheel that doesn't move...haha Just eat clean and exercise. Avoid foods that aggravate your thyroid such as foods known as goitrogens. Limit these. Well, good luck.
  • Martina_Who
    Martina_Who Posts: 172 Member
    You really need to switch to armour

    Google it and make your case to your doc and dont leave until you have been switched over.

    I gained 38lbs before switching :(
  • tecallahan
    tecallahan Posts: 732 Member
    I took Synthroid for 15 years - they changed my dose several times a year - because the nitwit doctors didn't know I had Hashimoto and that my levels would swing wildly on Synthroid. I now take Armour Natural Thyroid -- I take 120 mcg divided in two doses during the day.

    When you look at your tests, TSH is meaningless and has almost nothing to do with your thyroid. Your T4 (inactive hormone) levels should be at the low end of the "normal" range or even below normal. Your T3 (active hormone) levels should be on the high side of normal or slightly above.

    Note, that many of us have adrenal stress/fatigue and/or low Ferritin/Iron levels... if either of these conditions are present, you can take thyroid meds all day long and they won't work properly.
  • Marll
    Marll Posts: 904 Member
    So I have a question for those that have been moved to Armour or other natural thryroid. My wife's doctor says that her current synthroid and cytomel doses are too high for her to be switched and he is giving her other thyroid supporting supplements to wean her off of the synthetics.

    Has anyone had this happen as well? You end up taking a smaller dose of the natural thyroid and it works better for you? If I remember correctly she's on 75mg of T4 and 17.5mg of T3 daily.
  • rickthexpreacher
    rickthexpreacher Posts: 57 Member
    No idea what my blood tests showed but I went up from 50 to 100m of thyroxine 10 days ago and I can feel a difference. already.
  • sparrow70
    sparrow70 Posts: 25 Member
    I take 250MCG of Levothyroxin. My doctor said I'm the only patient he has had on that high of dosage. I have no idea what my numbers run. Couldn't even tell u what they were when I was diagnosed more than 11 yrs ago.
  • epiphany29
    epiphany29 Posts: 122 Member
    I honestly don't know what my levels are. My dose is of Armour and I take 105 mg daily. I have stabilize at that dose for the past almost 2 years.
    As far as levels go, I think each person feels better at different ones. Personally my T3 and T4 need to be high normal to slightly high for me to feel good. Since I switched and my doc and I got me feeling where I want to be I haven't been as obsessed with that number. As long as I have good symptom control and my doc says things look good I haven't pushed for details.

    If that changes, I will be more attentive to numbers. You do have to be careful about doctors that treat the bloodwork and ignore the patient.

    As far as meds go, each person finds their own right. My sister can't take the Armour so she takes the synthetic T3 and the synthetic T4. I doubt you could hold a bullet to my head to go back to synthetic.
  • caro1275
    caro1275 Posts: 198 Member
    So what do you do or take if you have adrenal fatigue? And how can I find out if that is the case? I was only diagnosed 3 weeks ago, so I am trying to learn as much as I can.

    Thank you!!
    I took Synthroid for 15 years - they changed my dose several times a year - because the nitwit doctors didn't know I had Hashimoto and that my levels would swing wildly on Synthroid. I now take Armour Natural Thyroid -- I take 120 mcg divided in two doses during the day.

    When you look at your tests, TSH is meaningless and has almost nothing to do with your thyroid. Your T4 (inactive hormone) levels should be at the low end of the "normal" range or even below normal. Your T3 (active hormone) levels should be on the high side of normal or slightly above.

    Note, that many of us have adrenal stress/fatigue and/or low Ferritin/Iron levels... if either of these conditions are present, you can take thyroid meds all day long and they won't work properly.
  • kelly81082
    kelly81082 Posts: 59 Member
    I was just diagnosed last week and started on 50MCG of levo. My thyroid result from bloodwork was 4.77, I go in November for a TSH.
  • Marll
    Marll Posts: 904 Member
    Sorry, actually after checking dosage it looks like she's on 25mg T4 and 17.5mcg of T3.
  • shvits
    shvits Posts: 249 Member
    my endocrinologist figures out exactly how much synthroid and cytomel I should be taking. She was checking my blood every 4-6 weeks at first (after 1/2 of my thyroid was removed) and now is testing every 6 months. She tests for T3, T4, THS. I take 88mcg synthroid (brand name not generic) and 5 mg. cytomel in the A.M. and about 2.5mcg at about 12:30 (it is not a scored tablet and so I take about 1/2 of the pill or else I go to sleep for about 2 hours). There is some mathematical calculations that she does to get the exact dose. What the math is I have not a clue, but it works! She is very skilled. If you think your doc. is not so skilled then I suggest you get a second opinion.
  • RicoHuerta
    RicoHuerta Posts: 18 Member
    I have been wondering about all those who switched also. I'm up to 175mcg on synthroid and it seems like this level kind of works but I struggle with losing any weight despite low calories and moderate exercise. I moved from miami to tucson so hopefully the new doc at this base is open to using armour.
  • tawny75
    tawny75 Posts: 10 Member
    Double post
  • tawny75
    tawny75 Posts: 10 Member
    I take 250MCG of Levothyroxin. My doctor said I'm the only patient he has had on that high of dosage. I have no idea what my numbers run. Couldn't even tell u what they were when I was diagnosed more than 11 yrs ago.

    I take that too! Diagnosed with Graves at 18, nuked at 25, stable for 5+ years now
  • debbylee22
    debbylee22 Posts: 456 Member
    Got my test results back yesterday
    TSH 3.14
    T3 1.4
    T4 Free 15.4
    I am taking 30 mg of Natural Thyroid (Canadian version of Armour); but I am still getting things regulated. I am also being treated for Adrenal Fatigue, which is very common in people with hypo, and has been the source of many of my symptoms. Its so exciting to feel "almost" normal again! Energy returning! :bigsmile:
  • healthyJodi
    healthyJodi Posts: 31 Member
    thanks everyone, it was great to read what everyone wrote. I am still struggling my current number is 3.8 and I am on 100mg of Synthroid. Seriously considering the the Canadain version of Armour. Really trying to get back to writing down what I eat and moderating my wine consumption. I have not been here in awhile, lost my way but I am back at it and I am going to do this, I have to for me.... sick and tired of being sick and tired. Cheers, Lisa :))
  • Syriene
    Syriene Posts: 238
    @Caro1275- an option is to take a saliva test to measure your cortisol level (caution- this is not always covered by insurance, so good idea to check with them). You can also do a blood test, but if I understood correctly, they have to draw about 4-6 samples over the course of a day. Just have to decide which is the best option for you, money and time wise.
    I was prescribed a low dose of cortisone as a result of my almost non-existant levels, but treatment might vary from case to case.
    I too was told to start treating the adrenal fatigue first, then add in the thyroid meds. Trying the other way around left me feeling worse.
    So what do you do or take if you have adrenal fatigue? And how can I find out if that is the case? I was only diagnosed 3 weeks ago, so I am trying to learn as much as I can.

    Thank you!!
  • calliekitten9
    calliekitten9 Posts: 148 Member
    I am on 1.12 of Synthroid. I definitely struggle with feelings of being tired and have spoken to him about it....but he has been practicing for over 40+ years and won't switch me to anything else.
  • ashleyapplewhite
    ashleyapplewhite Posts: 83 Member
    TS
  • ashleyapplewhite
    ashleyapplewhite Posts: 83 Member
    TSH: .02
    FT3: 3.5 Range: 2.3-4.2 pg/mL
    FT4: 1.2 Range: 0.8-1.8 ng/dL

    I take 100 mg of tirosint and 30 mcg of Cytomel per day. I feel really good now, but the switch from Levoxyl to Tirosint was awful. I'm 6 weeks in on the tirosint, and feel MUCH better on this than I ever did on Levoxyl. The addition of a T3 drug was what helped the most though.
  • RozayJones
    RozayJones Posts: 409 Member
    I am not sure what my levels are but we could not get them to move, overtime I have reached 450mg of Synthroid (name brand) and 20mgs of Cytomel. I am hoping/praying I can lower my Synthroid soon. But I had a total thyroidectomy, maybe this is why.
  • go2grrl
    go2grrl Posts: 190 Member
    So I have a question for those that have been moved to Armour or other natural thryroid. My wife's doctor says that her current synthroid and cytomel doses are too high for her to be switched and he is giving her other thyroid supporting supplements to wean her off of the synthetics.

    Has anyone had this happen as well? You end up taking a smaller dose of the natural thyroid and it works better for you? If I remember correctly she's on 75mg of T4 and 17.5mg of T3 daily.

    I have no gland and over the course of 2 years my meds were raised over and over again, finally reaching 200 of Synthroid and 20 of Cytomel. I've been on Armour for just 2 weeks at a dose that would be equal to about 76 Synthroid and 18 Cytomel. I don't have a long list of hypo symptoms, but dropping the T4 that much and that quickly made no difference in how I feel. I've never heard of weaning off synthetics, esp if one is already taking T3. But as long as she feels fine, there's no reason to do differently.
  • RozayJones
    RozayJones Posts: 409 Member
    So I have a question for those that have been moved to Armour or other natural thryroid. My wife's doctor says that her current synthroid and cytomel doses are too high for her to be switched and he is giving her other thyroid supporting supplements to wean her off of the synthetics.

    Has anyone had this happen as well? You end up taking a smaller dose of the natural thyroid and it works better for you? If I remember correctly she's on 75mg of T4 and 17.5mg of T3 daily.

    I have no gland and over the course of 2 years my meds were raised over and over again, finally reaching 200 of Synthroid and 20 of Cytomel. I've been on Armour for just 2 weeks at a dose that would be equal to about 76 Synthroid and 18 Cytomel. I don't have a long list of hypo symptoms, but dropping the T4 that much and that quickly made no difference in how I feel. I've never heard of weaning off synthetics, esp if one is already taking T3. But as long as she feels fine, there's no reason to do differently.

    What I am hearing her is I could take less with Armour then I am with Synthroid???
  • mom2BandD
    mom2BandD Posts: 98 Member
    I have been hypo since about October 2009 (4 yrs). My dose of Eltroxcin was 50mcg for the first 3.5 yrs and I was getting tested every 6 months as I was going through a medical clinic. I started tracking my levels now that I have a doctor (no endocrinologist unless the doctor finds she cannot manage my case). When she first tested me in June my TSH was 5.34 and my T4 was 15.5. The doctor doubled my dose (ie. my dose went up to 100 mcg). She just retested me and it looks like they only did TSH and tested for antibodies. My TSH is down to 0.77 and the antibodies test is in progress as of when I was last in the doctor's office (the test was done a week ago). The funny thing is that the range for TSH differs so greatly, the lab within my doctor's office goes between 0.35-4.5 or so and the lab that did my test had normal range at 0.35-5.50...which explains why previous doctors did not change my dose (ie I presume they were using that second normal range).

    I found when I switched dose my body took at least 3 weeks to adjust to the new dose. Now things are fairly stable and aside from BP dips I am doing well and maintaining weight except when I overindulge...ie things are normal.

    We really need to be our own advocate when it comes to thyroid issues.
  • horselady34
    horselady34 Posts: 51 Member
    Hi all,
    I was born without the thyroid gland and I'm only on 50 mcgs and I feel horrible, I would love to be on 200 mcgs but I'll never see that day :(