Hypothyroidism

805_blondie
805_blondie Posts: 96 Member
edited November 16 in Social Groups
Hello there! I just found out I have hypothyroidism. My levels are at 24 whereas normal is at around 4.8. I posed this question to my MFP friends and now I'm posing this to you, does anyone here have experience in this area or can guide me on where to find information? My doctor has put me on 75mcg of levothyroxine and I'm starting it tomorrow. I did wonder why is was so difficult for me to lose weight and so easy to gain and why I'm always so tired and yet I'm not depressed at all. If anyone can help me on this new "adventure" I would greatly appreciate it.

Replies

  • Sunny_Bunny_
    Sunny_Bunny_ Posts: 7,140 Member
    edited March 2017
    I don't have any personal knowledge about thyroid but there are some links in this post that you might find helpful.
    I noticed at the end @KnitOrMiss linked a documentary series available for a limited time.
    https://community.myfitnesspal.com/en/discussion/10525994/anyone-with-hashis-or-any-auto-immune-condition#latest
  • ladipoet
    ladipoet Posts: 4,180 Member
    edited March 2017
    Tagging @KnitOrMiss for you as she is very knowledgeable on this subject too.

    In the meantime, this website is an awesome source of info:

    https://stopthethyroidmadness.com/
  • 1thankful_momma
    1thankful_momma Posts: 298 Member
    edited March 2017
    I have hashimotos which lead to being hypo. I also got thyroid cancer which lead to complete removal of my thyroid. So... I go back and forth between hyper and hypo until my dose gets set.
    Don't settle for 4.8. Find the number in the range that is optimal for you. I still have hypo symptoms at 3.
    Take your Meds consistently. There are some foods/drinks that effect absorption. Coffee and calcium affect it, but Since I always have the same amount of it followed by 30 mins and then Meds, the same amount of medicine gets absorbed and then we adjusted until I leveled out to 1. Consistency is the key.
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    ladipoet wrote: »
    In the meantime, this website is an awesome source of info:

    https://stopthethyroidmadness.com/

    Love that site. Their book is good too.

    I found that having my thyroid hypo affected my weight somewaht but I could still lose weight when I really tried. This fall into winter, my thyroid function took another dip, and I gained about 5-10 lbs. That's where thyroid issues affect me - it's the sudden slow down in metabolism when not expecting it or compensating for it. KWIM?

    I agree that settling for 4.8 for TSH is not good. Most need their TSH to be very close to a one, or possibly lower if they take T3 too. Going by freeT4 and free T3 is usually a better idea, by keeping within the 50-75% range (approx) of their normal ranges.

    Good luck. :)
  • 805_blondie
    805_blondie Posts: 96 Member
    Thank you so much everyone! I'm going to check out these sites tonight. There is so much I don't know. It's good to know that I shouldn't settle for 4.8 and to get as close to 1 as possible. My mom had thyroid cancer too and had her thyroid removed as well but I was 4 years old when it happened. She told me to take my meds when I woke up with a glass of water but she never mentioned how coffee or calcium can affect it. I can't thank you enough. I will more than likely have more questions, if you all don't mind, once I check out these sites.
  • 2t9nty
    2t9nty Posts: 1,631 Member
    I will more than likely have more questions, if you all don't mind, once I check out these sites.

    I have nothing to add on the thyroid business, but I can assure you that no minds the questions. We are all at a different point on the learning curve and benefit from questions. Sometimes we have answers and sometimes we are just filing it away as we sort things our for ourselves.

  • SuperCarLori
    SuperCarLori Posts: 1,248 Member
    I'm bumping this. It seems like there should have been more response....
  • 805_blondie
    805_blondie Posts: 96 Member
    Thanks Lori!
  • SuperCarLori
    SuperCarLori Posts: 1,248 Member
  • hmikkola92
    hmikkola92 Posts: 169 Member
    I have hashimoto's disease, which is autoimmune hypothyroidism. I was diagnosed at 11 years old and I'm 25 now. Ive only been taking my pills regularly for the past yead, and I just started keto last month. The pills don't help me lose weight without doing anything, so I'm eagerly waiting to see what will happen on keto. I'm doing and extremely strict diet because I'm sick of being so big.
  • krystlemacdougall1
    krystlemacdougall1 Posts: 1 Member
    Hi I have an under active thyroid and am starting keto, please add me
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    I forgot to add that I spread out my meds. I take a third at bedtime (around 10pm, another third when I get up around 6:30, and the last bit later in the morning. Mine have T3 in it, which has a shorter half life, so spreading it out seemed wise. It works for me, although some may have a hard time sleeping if they took 60 mcg of natural desiccated thyroid at bedtime.
  • bametels
    bametels Posts: 950 Member
    I have hypothyroidism, too. My doctor started me on levothyroxine, but later when my symptoms got worse she sent me to endocrinologist who switched me to the name brand Synthroid and increased the dosage. As others have noted, it was not until my TSH level got down to almost 1.0, that I began to feel better and could eat a reasonable amount of calories without gaining weight. MFP has a Hypothyroidism and Hyperthyroidism group. It's not as active as this group but there are some very knowledgeable members who are great about responding to questions. I'll send you a friend request.
  • youngmomtaz
    youngmomtaz Posts: 1,075 Member
    I was officially diagnosed this past spring after suspecting it for about 13 years. It got to the point where on two separate occasions I was slurring, mixing up my words, and had such a hard time coordinating my arm and leg movement that I could not hide it. I was so tired I could not compensate any longer. On both those occasions I had lovely strangers offer to call me an ambulance because they thought I was having a stroke. My nurse practitioner(don't get me started, I would love to see an endo) started me on 15mg of natural dessicated thyroid. I had to request the NDT, and was told outright it was not reccomended. I had done my research and knew what I wanted though. I am up to 90mg now and feeling much better. No more blood pressure drops and I can exercise 2-4 times a week without complete exhaustion. We are still fighting to get my free T3 to stay in range, hopefully it actually falls into line or she refers me on to someone who cares.

    Make sure they check your blood ferritin levels as well as the complete thyroid panel not just TSH, and don't be afraid to ask lots of questions of your doc and others in the know. There is so much to learn! Keep reading, research everything, look at all the references of everything you read, and again, ask lots of questions.
  • KnitOrMiss
    KnitOrMiss Posts: 10,103 Member
    Sorry, for everyone who tagged me. I'm not on much over the weekends, and I don't get notifications for the forums on my phone at all, which is all I have access to on weekends. (PM on here is fabulous, email or text is better, if you have those ways to contact me...)

    The information you've gotten above is brilliant. At this point, with a TSH that far out of the norm, I personally would request more tests in addition to what has already been done. You're going to want to rule out whether or not it's auto-immune, and if it is auto-immune, which type it is. This will be CRUCIAL to your treatment plan. Things that work well for some types are anathema to other types - and can actually trigger them to ramp up and worsen badly.

    stopthethyroidmadness.com does a great job suggesting the additional tests. mariamindbodyhealth.com/thyroid-madness/ along side her book, "Keto Adapted," is another awesome resource. I could probably list a page of just good ideas. Specifically antibodies tests and the in depth thyroid panels I would consider absolutely essential.

    I would also suggest, just for your own clarity, writing down every symptom of not feeling well, like yourself, etc. that you have EVER had. And I do mean EVER. Just in listening to that forum that was linked above initially, I've discovered that some of my history includes some concerning symptoms I'd not realized were related, but that DESPITE THE PRESENCE OF NO POSITIVE ANTIBODIES FOR HASHIMOTO'S, that I could still have Hastimoto's Auto-Immune Thyroiditis. Until this weekend, I had not known that this was an issue in any regard. I'd falsely and blithely thought, "My results were negative, I can make this concern off the checklist!" I was so wrong. I think it was up to 15% (or something, I don't recall the exact number) of patient suffering from Hashimoto's actually have no presence of antibodies. And they've no real reason to understand why yet, though it's being studied. This is not intended to scare you, as this is relatively rare. I just wanted to share a jumping off point for down the road, if you still don't get back to feeling right...and to make sure you write it all out... I've gone several years now, thinking I was good and in the clear...only to have the rug yanked from under me...

    So, I'm back to being concerned, because with any untreated auto-immune issue, it can trigger other reactions. Which means that my insulin resistance could actually be a deeper issue... But that's for another discussion. :)

    If anyone is wondering what issue raised this concern for me specifically, it was a combination of concerns about vertigo and about migraines/eye-ears issues. Sometime around my heaviest weight in 2009, through a series of tests, I was diagnosed with Benign Positional Vertigo, also known as shopping cart syndrome, where movement in my periphery would actually make me motion sick. So as a driver in a car, I was okay, but motion on the TV screen could make me sick, or being a passenger in a car triggered it, too, etc. Further testing lead me to finding out that another related issue was that my brain did not seem to be receiving proper input from my feet, ears, and eyes as far as maintaining balance. It typically only happened when I was stationary and with my eyes closed...unless I was attempting a non-normal balance stance. Also, I've always been sensitive to bright lights, and that points to a adrenal side to this issue. With my insulin resistance seeming to present itself more as a whole "cellular energy resistance" to all macros, my stuff is a little wacky and out there. I am FAR from the common thyroid patient.

    I'm blessed to have a great PCP (whom I'm now having to transition away from, as I can't drive 45 minutes each way to see, now that I've moved) and a great Endocrinologist willing to treat my symptoms, even when the labs don't point clearly to an issue, because he said with women in particular, so many issues are interrelated, symptoms tend to hide, be mirrored, or get confused amongst other more "vocal" issues.

    Also, know that your dose is pretty low considering your TSH, but that seems to be a fairly standard starting type dose, so as not to adjust you too quickly. However, long term you may not want to be on a synthetic medication. There is more info on that in those links above. I'm still taking the synthetic medication, but I'm having a really hard time getting level, despite having increased my T4 medicine (levo, like what you are being prescribed) 3 separate times, plus adding a separate T3 medication in and and adjusting it 3-4 times already as well, usually at 3-6 month markers in between... When starting medication, you may have a 2 week honeymoon period of feeling fantastic, then feeling worse somewhat for a few weeks before feeling better again - due to the initial reduction in inflammation...

    So please, as 1,000,000 questions if you have them. @805_blondie Even if the question has been asked before, it can always be asked again. And you just might ask a question in a way that teaches us ALL something new! It's happened before, and I'm sure it will happen again. There are so many comorbid conditions to this... So please, don't stop fighting as an advocate for your own health until you feel good being yourself again. I can and will happen eventually if you don't give up... There is so much knowledge in this forum, and while most of us are not medically trained (some are, but this may not be their specialty), many of us have been on this journey through Hades right along side others just like you! So any information should be used as the basis of your own research to be addressed with your medical team to test and find the best program to address your own personal set of issues and conditions.

    Best of luck to finding the Best You underneath all the health mess! (hugs)
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