Introduce Yourself
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Welcome to the group! What has helped me is the constant tracking and exercise. I am post rai and throidectomy by two years. I am feeling great. I have a weight goal of forty more pounds, having lost thirteen so far. I have a follicular Huerthle cell Cancer which is currently under control. My docotor monitors my blood pretty regularly and is still adjusting me levo medicine. Since I still have weight to lose, monitoring will be a part of life for while.
Find yourself a good endocrinologist who listens to you and that will benefit you in the long run! Keep in touch and friend me if you like.0 -
Hi everyone! Newbie here, to this group.
A little about me My name is Julie, I am 29 years old going to be 30 in March, I am a dog groomer, and a nature lover. I have 3 dogs, a cat, and a rat. My hubby and I have been together 10 years.
My diagnoses:
A few years ago moved down to Texas and had a rapid weight gain was about 260 then jumped to 411 lbs by 2013, wasn't really sure why other than my job changed from very active (factory work) to little to no movement (call center). I was also going through a bad depression too so I attributed most of it to that but then I moved back to Michigan and things started to get better and I started monitoring my calorie intake and started a different more active career that helped me lose some of the weight I put on and I was down to 360s then I got a very bad cold and went to see the doctor, and he felt my neck and realized it wasn't a lymph node sticking out of my neck, like I thought they were just super swollen but it wasn't the case. He sent me to an endocrinologist who did a biopsy in December of 2014- Biopsy came back that it was cancer so they sent me for cat scans, and a second biopsy to see if it spread to my lymph nodes which I am very lucky it hadn't because my tumor was massive the biggest tumor my surgeon had seen it was 11 cm and all entwined in one of my vocal chords on the side of my thyroid. We finally did surgery on June 1st however he only was able to take half my thyroid out cause it ended up paralyzing my vocal chord in the process of surgery so he left half the thyroid in and would go back in later for another surgery -two months passed with little improvement to my speech and my vocal chord still wasn't full functioning so they decided to do the I-131 radiation to obliterate the other half of my thyroid, and hopefully destroy remaining cancer cells. My voice is back to normal now it still isn't great when singing but other than that not bad. I still get winded pretty easily though, if walking a lot or too fast. I am still awaiting my results on the I-131 treatment had that done on Oct. 13. I have gained a little bit of my weight back I am in 380s now but committed to getting back on track.
Also has anyone ever felt really dizzy from levothyroxine? Like extremely dizzy? I advised my endocrinologist of this and he just ignored me, and basically thought I was making it up .... but I read it could be a side effect of medicine, so wanted to know if anyone else experience it?0 -
Welcome to the group Julie. Sorry I"m so late in this, I've been very intermittent with my MFP account. Chalk it up to work and going to school on top of all the other duties we all do in a day lol. I also get dizzy from the levothyroxine. I'm now on name brand and it's still not any better. Don't let your doctor ignore you! Good luck with everything, you can do this. We can all do this!0
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Hi, my name is Linda. I was diagnosed with papillary thyca (tall cell variant) in January 2001. I had a TT and 100 millicuries RAI in March 2001. We thought everything was fine - it wasn't and thankfully I found a new endo doctor that actually knew how to handle thyca.
After my first pregnancy, I had 5 neck dissections (about 1 a year for the next 5 years) and external beam (ext) radiation to my neck in 2010. I had another round of RAI of 150 in 2014 and it didn't work, so we knew for sure I was RAI resistant. The EXT worked on my neck, but it was too late as it spread to my lungs. We are watching them grow (which is pure stress) and I'm not sure what is next. There is no cure so I will likely go into clinical trials and maybe some type of radiation.
What I do know is that I am depressed and I let my weight problems get out of control. I try to stay positive for my kids (ages 10 and 11) but it's hard when you don't feel good all the time.
I have no friends to talk to (except for my husband) but I don't want to burden him with one more thing. I have to make this time work with the weight loss. Thanks for listening.0 -
Hi, my name is Linda. I was diagnosed with papillary thyca (tall cell variant) in January 2001. I had a TT and 100 millicuries RAI in March 2001. We thought everything was fine - it wasn't and thankfully I found a new endo doctor that actually knew how to handle thyca.
After my first pregnancy, I had 5 neck dissections (about 1 a year for the next 5 years) and external beam (ext) radiation to my neck in 2010. I had another round of RAI of 150 in 2014 and it didn't work, so we knew for sure I was RAI resistant. The EXT worked on my neck, but it was too late as it spread to my lungs. We are watching them grow (which is pure stress) and I'm not sure what is next. There is no cure so I will likely go into clinical trials and maybe some type of radiation.
What I do know is that I am depressed and I let my weight problems get out of control. I try to stay positive for my kids (ages 10 and 11) but it's hard when you don't feel good all the time.
I have no friends to talk to (except for my husband) but I don't want to burden him with one more thing. I have to make this time work with the weight loss. Thanks for listening.
So absolutely sorry to hear this. It is hard for people to understand the struggle is real. If you need some additional support thyca.org and american cancer society have support groups almost everywhere. There is a facebook page called thyroid cancer awareness that is ran by an oncologist who also has had thyroid cancer. She was diagnosed about the same time I was (3 years ago). I've had 2 years of great scans and now a mass has been found in my scar tissue that needs to be removed in February. You NEED a support system of some sort. Don't get down on yourself, just take it one day at a time
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Thanks!0
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Ditto. I'm here too lkrajain. You have certainly been through a lot more than I have, but there is one thing I can say and that's that even in the three short years since my first diagnosis, TT, and RAI there have been crazy leaps in the science. Keep positive, ask a thousand questions, and keep pushing those doctors.0
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Hey everyone, my name is Katherine. I was diagnosed with thyca in February and had a tt in March. I'm suffering through the low-iodine diet at the moment. Really glad to find this group, hope everything is going well for you all!0
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Hi! That diet is the worst. I've done it twice. I wish I had discovered Pinterest the first time, there are a ton of great recipes there. Keep us updated and I'll send a friend request if you're interested.0
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MeepleMuppet wrote: »Hi! That diet is the worst. I've done it twice. I wish I had discovered Pinterest the first time, there are a ton of great recipes there. Keep us updated and I'll send a friend request if you're interested.
Accepted, thanks! I'll be sure to check out Pinterest. 0 -
There is a Facebook group that has done a ton of research and getting data from manufacturers about ingredients.... low iodine was in the title of the group and it was a closed group too.1
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Hello. I see a lot of these posts are old. Is this still an active group? Fingers crossed.0
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Yes I am here.0
