Share your Numbers
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Glad the car is on the mend! Much as we don’t want to be car owners it’s just unavoidable especially as we get older. Can’t imagine relying on public transportation (if it even existed here!) for my four days of doctors appointments. And it was ugly cold and raining too. And many more appointments in the future.
Unwanted advice for PAV - find a doctor you like and trust and go with it. Don’t know how Canadian medical system works so ….
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The local medical system has become much harder to work with during the past ~20 years. Multiple changes as to how easy it is to both access and change primary care providers (moving from relatively easy to the current status of "almost impossible") and of course primary care is who coordinates referrals to specialists. Gone are the days where you could walk in and get second opinions, or referrals for seconds opinions. Cost wise I am sure this is good for the system. Whether it makes individual care better... that is more of an open question! I am actually considering a private consult outside the system and have sent a private message to @Dante_80 (he seems "plugged in" over in Greece ). I suspect the message never made it through MFP
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Hey Dante answer PAVs private message! How’s that for motherly nagging?2
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Yuck, PAV. Have a bit more leaway here. Changed my primary care doctor a few times over the past decade until I found my superstar lady doc and was able to go for a second opinion and change specialists when things felt like they weren't going well with the breast cancer.
I understand it isn't the same in BC. My friend who just returned to Ontario after more than a decade there didn't manage to find a primary care doctor in ten years.2 -
I’m making some weight progress but it’s a daily fight for control. I picked up about ten pounds over the holidays, surgery and stress eating. 🥣. I’m definitely not one of those people who lose their appetite when worrying!!!
I wonder why the Canadian national health care system would differ so much among provinces? Is it possible to buy additional health insurance for private medical access? It may seem expensive but sometimes you might need more than is offered…..1 -
As far as in know, each province is constitutionally responsible to run their own system and are responsible for the delivery of local health care. The central government influences this by funding and the health care act; but health care is a provincial (state level) responsibility.
While there have been some moves towards some (and expensive at that) privatization and there are some privately billed health care transactions, there is no current infrastructure for private access, especially one that would attract insurance coverage. Workers compensation boards for workplace accidents and some sports teams seem to have a pay to play option
I suppose you could always present yourself as a non Canadian 100% pay to treat individual by concealing your identity.... but I am not sure about the legalities of that. And of course the stick would be that any consequences of non covered care you initiate could become ineligible for coverage even if reasonably you might think otherwise2 -
I have to admit that one of the thoughts that have crossed my mind is how much more difficult and expensive traveling to the USA has become / is likely to become for me to the degree of giving other destinations a significant preference. Because not having additional health insurance when traveling to the States is not really an option and all of a sudden I'm looking at pre existing conditions 🤷♂️1
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Geez - that sucks! But you must rattle the cage and advocate for yourself as best you can. Any relatives that might know how to navigate the system?
How do the fat cats in BC circumvent the rules? Obviously they aren’t standing in line!
I luckily have the generic government Medicare but also pay for a supplement that allows me to move around doctors and clinics easily.1 -
PAV have you asked your primary care doctor to be referred to another cardiologist for a second opinion?2
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It seems that you should be able to request one.
https://www.healthlinkbc.ca/health-topics/getting-second-opinion#2 -
Hmm. Slow down helpful peops we have more of a slow process and slow communications and do nothing issue and at least part of it is being addressed end of the month on a one on one in person wrestling match that I booked a few days ago!🤣
I am more likely to do an out of province paid private consult than change the base cardiologist, sadly. They are a founding member of the practice and the NP who provides the primary care operates under their umbrella. And they have already referred me to an electrophysiologist to whom they are deferring.
But the specialist I am almost sure (based on their lack of follow up reaction after the MRI they ordered other than the moa calling to say that they will schedule a call in early 2025) will take a "watch and see" posture.
Bottom line: two years after the routine baseline ECG ordered by the NP for our first physical found that I have a LBBB, I've managed to collect two 23 hour Holter monitor studies and three tests. A MIBI (less than two months), an echo (12 months for the cheap as borscht test!), and a cardiac MRI (less than 40 days due to a cancellation). All of them say that EF=lower than normal=45. Two say non ischemic cardiomyopathy. None say super dire. None say all good. None indicate what came first and if things are deteriorating, or not, and how long they've been going on (2 years or 22 or 59.2?). So some more contextual information is needed other than me reading and interpreting the results on my own. 🤷♂️
I've also been told to bring my normal range blood pressure into the normal range and to not hit high heart rates because "your heart is week". I've also been told to exercise as normal. Which given that if I do so I am likely to hit appreciably more than the 150 that raised the previous comment obviously cannot coexist unmodified.
In the meanwhile i am trying to sleep more and manage various stresses / stressors, and of course I'm wondering if the (not yet fully figured out under that conditions they occur) bouts of intense sleepiness after food (which for me usually follows activity) are a symptom of deterioration or just of de-tuning and the extra 5lbs I am carrying or ?????🤯🤯🤯
PS: yes it is very annoying that the cheapest test (the echocardiogram) caused the biggest delay, including an eight month delay for the specialist to open the file since they refused to do so before the basic series of tests were complete.2 -
And THAT Mr. PAV is why it’s called “practicing” medicine! There are no guarantees or perfect guidelines. You never get a 100%. Doctors are always surprised 😳 too. Seems like it’s being watched and evaluated. And not danger zone decisions yet - you are pushing 60 yrs when all this kind of stuff catches up with you. Supposedly it gets better after 70 but obviously not so for me.
I’m working through a discussion between my oncologist and radiologist who have different opinions on long term prevention. So I’m going with let’s do everything. Radiation, chemo and tamoxifen. Can’t hurt?1 -
Ouch. Not that aggressive counterattack doesn't make sense. My own initial inkling might be along the lines. But it does pile on.1
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Yooly. We all have to do what feels right to us but my two year dance with breast cancer and a lot of reading and a lot of talking to people who have undergone various treatments left me feeling that sometimes they do hurt. Sometimes in very serious ways.
I opted for the full mastectomy which I’m very happy about because they found many tumours in there that did not show up in the mammogram at all or very clearly in the MRI.
Despite my aggressive her2+ form of cancer Chemo seem to be a gray area that ultimately I was not offered. Because my lymph node dissections were clear and the 11 tumours found in my breast were very small and data was not available for that particular situation so the oncologist opted for not taking the risk.
Radiation was offered after my second partial mastectomy but after reading all of the possible complications from that I opted for a full mastectomy which seemed more definitive on the risk front.
The hormone treatment I declined because the benefits of that seemed much higher if I was much younger. And the possible complications and life-changing joint discomfort did not feel worthwhile.
I hesitate to write this sort of stuff because it feels like fear mongering. But I’m still in touch with many women who I met through this journey who are still reeling from the treatments.
But as you said Rarely is anything definitive in medicine or science for that matter. I had the very distinct feeling that a everyone was learning as they went. Which is good I guess but also terrifying.
PAV … You are in such a nerve-wracking spot. Some of the lingo you used went right over my head. But of anyone who I know I trust you to understand and you have done all the research possible. I hope more clarity comes soon. Stress is certainly not good for your heart.
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If you trust the doctor--and I've met as a patient, as a family member and through work doctors I would trust--then they definitely have the knowledge, the ability to synthesize the knowledge, and the experience to give valuable advice. And I would be very much swayed by such advice.
But If you get the feeling that the doctor hasn't even bothered to read the chart before talking to you and is just engaging in "pap" talk [and I don't mean pap smear but I do mean a piece of bland bread dunked in water till ready to dissolve type of talk....] then you don't really know if you have received (relevant) advice.
Unfortunately I have not researched enough, and even more so, do not have the knowledge and context to have enough of a grasp as to what's going on. AND, very annoyingly and maybe even thankfully, some of the values are at the cusp of classifications.
It doesn't help, in terms of confidence, that some of the imaging was not great: The echo had some issues and, more unfortunately since I suspect (and hope) that I won't be doing a lot of them, during the MRI I definitely experienced breath hold issues [that I more than 50% blame on the tech and over-tightened straps ] which degraded the images.
And, of course, different studies use different cut-offs. And, of course, while the risk difference may sound wonderful in a study.... 25% reduction in mortality, woohoo! But in actual fact it may mean that nothing changed for nine hundred and ninety nine thousand nine hundred and ninety NINE people. But for ONE person in a million EVERYTHING changed for better or worse. Because a risk reduction from 4 in a million to 3... is 25%! But then you have to also take into account which subset(s) of the million cohort you may be aligned closer to... because let's face it some of the studies include people in both better and worse shape at the onset.
Which brings us back to benefiting from the knowledge of a person who is both educated in the field and who you (believe) you can trust.
The AI's, even paid versions, are not there as of today--too much hallucination! So full circle.
But on the bright** side the AIs may make the whole future a non issue because they watch movies too!
**not sure that would be THAT bright for non AI's... but hey: it could terminally take care of any human worries about termination!2 -
I suppose I could have opted for a double mastectomy but at 77 yrs it’s major surgery and long recovery. So a lumpectomy/ partial removal with the inherent follow up decisions. Five radiation sessions - one week. Mild minimal chemo and five years of tamoxifen (something else could take me out sooner!). Being highly pain tolerant and non allergic to anything, it seems doable.
By the way I have my annual cardiologist appointment this week. Plenty of calcium deposits and stiff arteries there. What fresh hell will that doctor find? My mother lived to 96 by religiously avoiding doctors because she believed they would just discover things that didn’t necessarily need fixing. She took no meds and was completely lucid to her dying day! Knowledge might be a dangerous thing?2 -
I suspect you've got the jeans and genes to keep going... and discovering for yourself😎1
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Oh man I'm glad I'm on the otherside of that now, Yooly (hopefully for a good many years).
PAV. I've yet to find a doctor who gave me solid "you should do this" advice when grey areas were being discussed. For myself or my mom(s), mother in laws, dad, father in laws. The worse part is always trying to figure out the best route. Conflicting information certainly does nothing for the nerves.
On an entirely different note. I seem to have lost my Fit Bit Tracker. I couldn't locate it the other day, and since then I have torn down my desk area and rearranged everything. Yet still did not locate it. Hmm. Thank goodness for only having to worry about little things.2 -
Grrrrrrr1
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No need for proof. It is a semi-known problem where if the people are not friends direct messages will not work will come up with something when I wake up😝1
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I mean.... that's a lot of calories (thank you Cora) cause it is a (by the feel of it) quarter pounder, plus the bacon, plus the folded omelet, plus random cheese. The two slices of bread were Texas toast thick, and the potatoes were a surprise... some sort of Greek roasted potato (extra calories). Thankfully I turned down all additional sauces and the toast didn't appear to be buttered but still...
So I am opening the floor to eye ball estimates!
Cause I am wondering about eight hours later if I am just bored or actually wanting something!!!!
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This is not a reliable guess because I haven't eaten/tracked or even thought about the calories in meat in ???35ish years! I'm putting it at 1000 calorie (give or take 100). Can't really see how much bacon there is on there?
What do you think?1 -
I'm canvassing to figure out what others think.
I put the bacon in as three 6" slices at 112 Cal. The hamburger as a quarter lb on a bun to account for both meat and bread. I did leave a tiny bit of one slice uneaten but the slices were thick. The potatoes are a substantial portion of the whole too! And the omelette and some sneaky cheddar not nothing!!!🤯
Ultimately all of it is a guess. I was a bit higher than you on my guess. But I am wondering if enough so? Hence the public canvassing!!!0 -
I started off the cuff at 1200 and then broke it down by the individual components and thought maybe I had come in too high. Sneaky cheddar! Didn't see that. How much of an omelette is that? 2 eggs? Maybe less? lol - the obsessive part of my brain likes this game (on someone else's dime of course)1
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I went with 1278 in my log using approximations and it seems to have been "sufficiently high".
Basically yesterday still ended up as an approximately 500 Cal deficit based on logging and the slightly lower scale weight and resting HR this morning corroborate that this was probably a true reflection of reality 🤷♂️
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Pictures on MFP are hard to see. Portions were large. I used a university of Minnesota (similar to USDA derived entries) entry for egg omelette with cheese based on volume at 1.5 cups on the eyeball. You know my hamsters were not impressed 😁 but needs must 🤷♂️1