sedavis62

In the past couple of years, I've had buzzing in one side of my tongue. The first time it happened, it just made me laugh. I knew it was MS; what else would do such a bizarro thing? It went away in a day and I didn't tell anyone. Since then, it's returned with varying intensity and duration. It's annoying, but doesn't seem…

I use the Luna bars for my late afternoon long aerobic workout. I cut them in half and eat a half just after my workout. It staves off the shakes I usually get from low blood sugar and hold me until dinner. I also eat a half a bar sometimes for a quick breakfast (along with fruit). They keep well, taste great and hold me…

When I'm certain I'm relapsing, I go on a short (4 day) course of high-dose oral steroids. They work, but the sides can be tough (I have meds to help with stomach upset and sleep during the course). For me, the roids typically end the flare in about a week. It takes about 2 more weeks to get over the side-effects and about…

I'm so sorry you're going through this now. Not knowing what is wrong is scary and stressful. If you can, try to stay off google until you have a diagnosis. As you already know, MS is very hard to diagnose, even today with MRI. To answer one of your questions, yes, it's possible to have MS with no lesions showing up on MRI…

Five doctors later and now I know it's swelling of the Bartholin gland. The doctors don't know what is causing it as it's not behaving as a normal cyst or anything else on their radar. But they assure me it's nothing to worry about, and don't think Copaxone has anything to do with it. Personally, I don't know. How can they…

One of the symptoms I had on the flare that got me my MS dx was my right forearm feeling ice cold. It would come and go, and sometimes when it was feeling really cold, I'd have goose bumps, just on that part of my arm. It was really weird. After about a week, it went away and has never come back. Other than feeling weird,…

I had trouble getting into exercise myself, but now I feel worse when I don't. Fatigue is a big part of my life, but over time I've found ways to manage it, like telecommuting one day a week, or only taking on one "extra" thing a day (like a trip to the bank). I started regular exercise in hopes that it would help me gain…

I have a desk job and experience this all the time, but it's definitely worse when I'm flaring. Consequently, I believe it's an aspect of spasticity, for which there are medications. It's not painful for me and I'm able to manage it by getting up and moving around (walking laps at work for example). However, overall, my…

Sort of off-topic, I know, but ... Benji49 ... Thanks for saying this!!! For years, I have had this trouble with grocery stores! My husband has graciously stepped in and does the groceries now, but I don't think he understands what it's like for me. It can get so bad that I have panic attacks right there in the frozen food…

Hello Everyone :) I'm glad I found this group. It's been a long time since I've talked to others dealing with MS. I was dx'd in 1994 after two bouts of numbness and MRI apparent lesions. In 1997, I lost the vision in my left eye which scared me enough to try the *new* drug Copaxone. I've been on Copaxone since December…

I tried taking it, 1000 units a day (plus whatever's in my multi-vitamin) and had terrible side effects from it ... headache, dry-eyes (that was the worst part) and other stuff I can't remember at the moment. I looked up the symptoms of Vit D overdose and I had 18 of 20. Clearly, 1000 units isn't anywhere close to…

Everyone has their own agenda. You're getting healthy, which puts a spotlight on what's not healthy around you, including family. That's uncomfortable for them and they want it to stop. That's their own issue. Keep the focus on yourself. You've done an excellent job losing all that weight in a healthy and responsible way.…

Good Morning :) I'm new to MFP and stumbled upon this wonderful thread. I'd love to join this friendly & supportive group. I tend to be a lurker, but will jump in from time to time. Thanks for being here! Sue from MA

Cool topic. I'm new and have kept mine private until it makes sense to do otherwise. Reading these replies has given me a lot to think about. I'm not good with criticism and know there are Food Police out there, just like with anything else. But I eat generally healthy stuff and think maybe my choices might help others,…

Thanks for the welcome Shirlann! I like the idea of "unorganized exercise" :) I used to wear a pedometer. I think I should get a new battery for it and wear it again. It'll get me up and moving through the day.

Good Morning! Thanks for the replies and warm welcome :) My slowing metabolism is the result of two things: natural aging AND a change in my thyroid medication. Years ago, I was treated for a malfunctioning thyroid and have been on a replacement med ever since. My doc changed the dose of that med just over a year ago and…