e9196tep Member

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  • Hi, I just had my first Rituxan infusion Friday after a few years of failing different biological for RA. Currently taking sulfasalazine, plaguenil, prednisone and leflonomide. I've lost 50lbs over 3 years. After the Rituxan I gained 2 lbs so I'm not happy about that. I just need 15 more lbs lost to be at my right BMI. If…
  • What a coincidence. I lost weight with WW but I stopped losing. I lost another 20lbs here but now I'm doing a cross reference/calculation with WW again. I stopped losing here too. Gained 10 back and I'm freaking out. Gotta keep that scale going down not up!
  • I'm so sorry you're in pain. It can cause extreme anxiety and distress. Each of us have our own personal experience with chronic pain. I hope you can find a resolution. We all want that.
  • For nearly 3 years I've been in deficit. I did WW for 6 months then found MFP. I did 1400 cal at first and lost another 10lbs but after that I started losing extremely slow. I dropped to 1200 then to 1100 or less the last year. At that point I'd lost 40lbs. In March I completely came to a stand still. I had surgery in June…
  • @CharlieBeansmomTracey: have your vitamin D levels checked that can cause pain and fatigue too. I have RA and if I keep my vitamin D3 up to par I notice a big difference also since I started lifting weights 4 years ago I have less pain and flare ups with it and so far I dont need meds fo.... @charliebeansmomtracy I do keep…
  • I finally got my Keto strips. I'm not in ketosis in spite of my net carbs being between 20-30 g. Maybe if I drop my protein down 5-10% more because it is my understanding that protein is 58% antiketogenic so technically that percentage will burn just like a carb. Any thoughts?
  • Ok. With macros in order and at 1200 to 1300 cal. I'm actually quite hungry. During my regular diet I typically stayed between 800 and 1000 and also tried keeping my carbs around 100g. I managed this status over a year. It seems counter intuitive to drop calories further. I try getting physical but as many of you know…
  • I have a form of uncontrolled inflammatory arthritis (rheumatoid) and am 1+ week into this Keto plan. Macros are all good from what I've studied. 75g protein, 15 net carbs and 95g fat. Keeping at 1200 cal as well. This has varied slightly over the week since this is new to me. I am also hypothyroid. I'm trying this woe…
  • I'm so sorry! I've been on methotrexate as well for 1 month but a much lower starting dose to see if my sensitive liver can handle it. I just want you to know it's made me very nauseous and fatigued. I really watch my intake and log my food faithfully. My weight has gone up 5 lbs. this may not sound like much but there…
  • Me too!
    in New! Comment by e9196tep August 2016
  • We have to hang in there. We don't have a choice. I'm very sorry this has happened to you. Sometimes it's good to know others are out there suffering just like we are yet so many are young and that is never a good thing. We are here to cheer you on. We are perfectly good human beings living in imperfect bodies. We can do…
  • That's so good that your coworkers seem understanding. Sometimes we are in situations that ppl completely can't get it. I wish you the best.
  • I've been on methotrexate 2 weeks and I'm having a hard time getting my calories over 1000 due to nausea. Taking other DMARDS for RA as well as prednisone. The fatigue is intense so exercise is always an afterthought. Just log everything! It's a long term effort. It took me 2 years to lose 40lbs. Slow, slow,slow. But the…
  • I'm so sorry to hear of everyone's trouble. It's such a disappointment to have to contend with a chronic illness and get on with life like a normal person. The thing is....the human spirit is a profound and inspiring entity. Maybe with a little motivation we can work together to encourage each other to be our very best.…
  • He may still care about you but the fact is he's with her. Choice made. You will find the right guy but you need to be able to see him clearly and not through the the hopeful rose colored glasses your looking through now. Be strong and get past this. It's a choice.
  • DX when I was 30. Surgeries and hormones failed. They have you pain meds!? Me.....only ibuprofen. I managed by Gods grace to have 2 wonderful children. Third was out of the question do to advance disease. At 35 a hysterectomy. I kept my cervix. Bad idea. Fast forward June 2016 at age 50 had surgery to remove suspicious…
  • I'm sorry Karlotta about what's happening to you. It's sad you had gone back to work with all the future hopes then have this stumbling block once again.
  • Hi, I'm 50 but trapped as well. I have RA and some other things but I'm keeping it short. All I can do is clean my house too. Somehow a couple hours feels pretty darn hard. Anyhow, in 2 years I've lost 40lbs. I still need to lose 20 or 30 more and I've not budged but I'm better weight wise than I was 2 years ago. So…
  • Way to go Rick!
  • I'm so sorry this has happened to you. You have made a great step joining MFP. Logging your food intake is such an important step toward regaining some control when you feel like you're losing it. I also have an inflammatory arthritis as well as disc herniations. The pain can be unbearable at times. Did I mention steroids?…
  • Yep, lots of home cooked foods. Veggies and some protein. It's really interesting how junk can make me sick. It has also taught me to snack reasonably. I haven't seen a huge change in my pain levels. I'm maintaining for now. Still need to lose more but things are real stressful right now. Added high fiber cereal with 1gm…
  • Boy oh boy! Can I relate! My appetite is down due to the rheumatoid pain. I don't think Xeljanz is working. Tramadol helps ...barely! What really helps is prednisone in larger doses. Unfortunately the doc won't give me more than 10mg per day. I feel pill choked too. When I look at my drawer I get kind of deflated. It seems…
    in Pain Thread Comment by e9196tep May 2016
  • I get it. RA here. You are in the right place. Keeping a food log can be eye opening. The only ppl that get how you feel are ppl who are actually in your predicament. There are peaks and valleys with inflammatory pain but take heart my dear. You will work through this and the sun will shine again.
  • No. You are not a failure! Keep going. You are still here so that means God has plans for you in spite of this illness. Why some are afflicted will disease is so very hard to comprehend but take heart my friend something beautiful is made from these ashes. Also, what you go through now is something that you will be able to…
  • Hey! I have RA. Still trying to quell the inflammation. I'd like to know how you do on your plan. I clean and cook but by the time I'm done I'm wiped out. I was walking for a while but my ankles and feet feel like they're being torn apart. On a good note I've lost a total of 40 pounds over 2 years in spite of everything.…
  • 5'8 180 ish. I fluctuate. Lol! Down from 225. My mom is 4'9". Most of my family on her side is small. I feel so out of place. My husband is 6' so in heels (when I'm brave enough to stand in them" I'm about eye to eye. Add me too!
  • It's tragic but true. There is a disconnect between doctors and patients.
  • I get it. Have RA. My alter ego is that of a mild mannered homemaker with a can do attitude that can clean, cook and nurture in a single bound but inside I'm in a battle for my life. A smoldering fire lurks and lightning comes from my fingertips. Get to close and I may jump out of my own skin. Who can tell? No one. It's a…
  • You're on the right track SugarB. I have RA. Before that was endometriosis then my thyroid died. Not good for my waistline ya know? I have stayed persistent. It's taken me 2 years to lose 40lb. I love sweets and carbs so lowering my intake to around 100gm a day is helping. My blood sugar is fantastic any my cholesterol is…
  • I don't get used to pain. Ever! Tired of it! Not only pain but the loss of self esteem, confidence and sense of well being. I rebel to a point. I have RA. Diagnosed last year but I've obviously had it much longer. They don't tell you how toxic the medications can be. You end up learning in your own. Doctors act like "hey…
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