Endometriosis Diet
hbuffing
Posts: 23
Hi everyone!!! I have severe endometriosis at age 19. I have had it for over six years now. I have tried countless pills, shots, IUD's, and even had two surgeries. I am completly fed up!! I have been in pain again now for over six days and just ready to give up and crawl in a hole!!! (ha ha... not literally) My roommate told me about this endo diet where one eats basically only raw. No alcohol, sugar, honey, eggs, chocolate, soy, wheat, meat, dairy, caffeine. I can only have fish when it comes to meat and yogurt when it comes to dairy. I was wondering if anyone has tried this? Or if there is anyone else out there with endo as well?
(Btw, I was reading up about this diet online and about 80% of the ppl with severe endo that tried this after two months were completely pain free!!! ) (just hoping it is not to go to be true!)
(Btw, I was reading up about this diet online and about 80% of the ppl with severe endo that tried this after two months were completely pain free!!! ) (just hoping it is not to go to be true!)
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Replies
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To be honest, this sounds extremely dangerous. If you do decide to go this route, be sure to look at vitamin/mineral replacement and how to get your adequate daily requirements of macronutrients (protein, carb, fat) because it will be difficult to do on a raw diet. Is this diet meant to decrease exposure to estrogen or what? I'm not much for alternative medicine, but whatever works for you as long as it is safe! :flowerforyou:0
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Talk to your doctor they will be the most helpful. Some of my students are on special diets and it helps. But only do it under medical supervision.0
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To be honest, this sounds extremely dangerous. If you do decide to go this route, be sure to look at vitamin/mineral replacement and how to get your adequate daily requirements of macronutrients (protein, carb, fat) because it will be difficult to do on a raw diet. Is this diet meant to decrease exposure to estrogen or what? I'm not much for alternative medicine, but whatever works for you as long as it is safe! :flowerforyou:
Thanks for your concern. But, actually it is not dangerous... It is how people used to eat before there were factories processing our foods. And yes i would be on man vitamin supplements as well. It is all of the estrogen exposure that food has, that doctors are saying causes endo. Normally, I would be skeptical it is just I have tried everything else and nothing is working. I just do not know what to do?0 -
You should talk to your doctor before trying this diet. The diet sounds a bit extreme; however, I understand your frustration. I too suffered from severe endometriosis at your age. Have you considered laproscopic surgery? I had surgery and I haven't had the severe pain since. Furthermore, two years after I had the surgery I was told I would never be able to have children; however, at 31 I became pregnant with my son.....who is now almost three years old and the complete joy of my life. Once again, try talking to your doctor concerning a change in your diet, and ask questions about alternative methods of decreasing your endometriosis pain. Good luck.....hang in there!!0
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I'm 29 and been suffering from Endo since I was a teenager. I have never done the Endo diet, but I have read quite a bit about it. What I've realized, however, is that eating healthy in general (even if I eat the "no-nos" on the Endo diet) and getting frequent exercise has helped me immensely. Also, I take anti-inflammatories for 48 hours before I think I will actually need them and I am on hormonal BC. The combination of all these things, and cutting out alcohol and fried foods, seems to have helped tremendously. Two months ago was the first time in years that I was able to go through a cycle and control my pain with only occasional use of Advil. It was amazing!
At my worst, I would plan my entire life around when I knew I would be in pain. I wouldn't leave town, I would tell my friends I was unavailable, and I would even take off work if possible. I was taking about 5,000 mg of ibuprofen a day, more than 800 mg of naproxen, and then taking heavy dose prescription pain killers every four hours and sometimes even resorting to taking shots of vodka just to dull the pain. That was all in one day, and I was still in pain. I was completely unable to function. Taking the first part of the weight off made a huge difference as well. I wish you luck!
I wouldn't say that the Endo diet suggests you eat raw, but rather that you eat Vegan. You are allowed to cook your food on the Endo diet, but you must also cut out all soy products, alcohol, any kind of sweetener, and wheat and products containing wheat. This is incredibly difficult to do and maintain your caloric requirements and a proper macronutrient balance without a lot of time, research, and dedication. I would suggest simply phasing out foods that you find are triggers for you. For example, I spoke with Danna Korn, the founder of Gluten Freedom and author of Living Gluten Free for Dummies, about the suggestion that Endometriosis patients stop eating wheat. She said that there wasn't much research on the topic, but that in theory she thought it would be at least helpful (even if it didn't cure the problem) because of the inflammatory properties of wheat digestion, since Endo is related to the Autoimmune system. However, there are lots of other food sources of inflammation, including most vegetable oils. The elimination of soy has to do with the estrogen-like chemicals that it contains. I would have to look into it further, but on the surface the Endo diet seems to be similar to the Paleolithic diet.
Try keeping a strict journal throughout your cycle and record not only the foods you are eating and the types of fluids you are drinking, but the symptoms you are having. At the end of the month, look back over it and see if you can recognize any patters and determine which foods you should stay away from. For instance, the Endo diet recommends staying away from caffeine, but I know that my symptoms seem to improve if I ingest caffeine while I am in pain.
Feel free to friend request/message me if you like. Best of luck.0 -
You should talk to your doctor before trying this diet. The diet sounds a bit extreme; however, I understand your frustration. I too suffered from severe endometriosis at your age. Have you considered laproscopic surgery? I had surgery and I haven't had the severe pain since. Furthermore, two years after I had the surgery I was told I would never be able to have children; however, at 31 I became pregnant with my son.....who is now almost three years old and the complete joy of my life. Once again, try talking to your doctor concerning a change in your diet, and ask questions about alternative methods of decreasing your endometriosis pain. Good luck.....hang in there!!
As for the surgery as a cure/treatment for Endo, I am so thankful that it worked for you. Unfortunately most people aren't that lucky, with a signifciant amount finidng recurring lesions and pain within about two years. I was advised not to even attempt surgery because it didn't make sense in my case. I'm so happy for you that you were able to conceive - I hope that one day I will be as blessed! :flowerforyou:0 -
You should talk to your doctor before trying this diet. The diet sounds a bit extreme; however, I understand your frustration. I too suffered from severe endometriosis at your age. Have you considered laproscopic surgery? I had surgery and I haven't had the severe pain since. Furthermore, two years after I had the surgery I was told I would never be able to have children; however, at 31 I became pregnant with my son.....who is now almost three years old and the complete joy of my life. Once again, try talking to your doctor concerning a change in your diet, and ask questions about alternative methods of decreasing your endometriosis pain. Good luck.....hang in there!!
I have had two surgeries and they did nothing... unfortunately!0 -
I also have endometriosis. I have had the surgeries and taken most of the medications offered at one point in time or the other. I was lucky enought to concieve andhad my daughter 6 years ago for a couple of years after having her I started feeling better but now I am suffering worse then ever. So I have started following the endo diet as best as possible.
The endo diet is not a raw diet. It does promote eating as much organic as possible. You can have meat they don't recommend red meat unless it is organic. They recommend lots of legumes, nuts and beans, fruit, veggies and taking suplements. Also it states that diffrent women have diffrent triggers.
I am trying my best to follow the diet and have seen a diffrence. I am very lucky that my BF is very good about it and is very supportive.0
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