Looking for PCOS friends

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Replies

  • SereneRose
    SereneRose Posts: 500 Member
    I have it too and it is a struggle to lose weight but it can happen. I'm not on met but I do take b vitamins and vitamin c, e and folic acid and the docs confirmed I have extremely high bp which with weight loss should lower.

    I'm trying to follow a low carb keto diet and this helps loads.
    All add me if you would like support and encouragement i'm positive we will succeed.

    Serene
  • Hi Everybody! I just recently joined My Fitness Pal and I am so excited to see there is a section for those of us with PCOS. I am 42 years old and was diagnosed with this when I was about 26. I had the worst trouble with my periods, I would go months without one and then would go for literally months with my period. At one point, I weighed 288 lbs. I lost 80lbs just by being more active and I can say that it helped with the periods and other symptoms of PCOS. For the last two years, I've had my period regularly every month. I plateau'd about a year or so ago though. Haven't lost or gained more than 2lbs at a time. I'm on here to hopefully kick that plateau. Great to meet all of you!!!
  • SneakyBat
    SneakyBat Posts: 55 Member
    I was diagnosed with PCOS in August 2012. I've lost 48lbs so far since then (with the help of a wonderful dietician and therapist) by cutting out certain foods, controlling portion size and examining why I was overeating in the first place..progress is fairly slow but I'm not finding it difficult at all. I feel tons better already and my PCOS symptoms have all but vanished :)
  • BeckyS32
    BeckyS32 Posts: 66 Member
    Most times I've been to the hospital and Endocrinologist they've given me papers and pamphlets on PCOS and haven't given me an ultrasound, but I have every symptom. I don't know why they haven't made sure I have it, maybe my insurance, eh, don't know... I'm really trying to combat the Hirsutism!


    This is where I am at also. I am hoping that losing weight will help with the other symptoms. I was able to lose about 17 pounds about 4 and a half years ago, which allowed me to get pregnant after trying for 6 years. Time to do it again, but not get pregnant this time!! :)
  • roncygal
    roncygal Posts: 8 Member
    Hi there,

    I was diagnosed with PCOS about a month ago and have just been figuring out the implications for weight loss and other health concerns. I'm not taking anything other than birth control at the moment. People in this thread have shared some great links and resources - thanks. Relatively new to MFP and looking for friends - feel free to add me!
  • Athena125
    Athena125 Posts: 102 Member
    Feel free to add me (anyone on this thread!)
    I too have PCOS. I was VERY thin in high school but had bad periods when I had them (often they were late or skipped). They were so bad, my mother used to let me drink brandy so I'd fall asleep. But then, upon my 23rd birthday year, I gained 25-30 pounds very rapidly. Then everything got MUCH worse.

    It took me many years to get a doctor to diagnose me properly because even though I was sure i had it, back then they just gave you bcp's which make it WORSE. They mess up your blood sugar and really don't solve the core issue with the blood sugar and insulin resistance. No one would believe I had it because even with the 30 pound weight gain, I was only a little (5-10 pounds) overweight. I felt very overweight because my stomach was enormous - I looked 5 mos pregnant! But I craved sugar like a demon! Right now I weight 149 (down from 160 this summer), and I would like to at the very most weigh 135 (preferably 120-125).

    The ONLY way I lose weight/keep it off is by exercising virtually every day for at least an hour. I do yoga, strength train and aerobics. AND I have to cut out breads, sugars, white flour products almost completely. I replace them with mostly veggies and some low GI fruits. I get in trouble when I eat out because I can't resist all the stuff I want to eat...so I am trying to eat out only 1 time per week right now.

    Once you get off the sugar, DON'T get back on! It's like a drug to us. I believe that PCOS women are more sensitive to the effects of sugar, and I am telling myself that for me, it is literally toxic. I can't even have a little bit because something in me just goes crazy and wants to keep on eating. If I don't eat sugar, I don't turn into that crazy lady!!!
  • seachelle84
    seachelle84 Posts: 5 Member
    @VanillaMilkyy

    DUDE! Me too! If you find a reasonable solution please, PLEASE let me know!!! Every option I know of is either- WAY outside my budget, has to be done daily (or multiple times daily), makes a mad crazy skin rash- which just makes it more obvious. Seriously, it's ridiculous..I could almost deal with just being fat... almost...but fat AND hairy?? This is just too much lol
  • rlwinton
    rlwinton Posts: 101
    Hey guys!
    I went for my first gyno appt today. I suggested to him that I may be exhibiting symptoms of some hormonal imbalance. Lots of internet research points to PCOS, but I'd rather wait for the doctor's opinion with lab results. I had a ruptured cyst back in October and that began my research into this subject. For ten + years, I have had issues with hormonal acne (wondering why nothing worked), thin hair (which is getting thinner), weight around my middle (also linked to bad eating habits, love of sugar and carbs and stress), hair on my face (embarassing!) and other not cool places, but the worst symptom of all that I've been dealing with is rage. I just rage at the drop of the hat and it feels like a surge in my body. I feel absolutely crazy when this happens. I went to the psychiatrist a few months ago and he prescribed anti psychotics that didn't work....helped a bit, but didn't work. The doctor I went to today is going to prescribe a monophasic birth control pill and go from there...I'll get results back in about a week and will report. Any feedback is welcome!! I can't believe I am posting all this because some of it is so embarrassing, but I want to get to the bottom of all of this!
  • @VanillaMilkyy

    DUDE! Me too! If you find a reasonable solution please, PLEASE let me know!!! Every option I know of is either- WAY outside my budget, has to be done daily (or multiple times daily), makes a mad crazy skin rash- which just makes it more obvious. Seriously, it's ridiculous..I could almost deal with just being fat... almost...but fat AND hairy?? This is just too much lol

    I'm trying a new thing (once the tea gets here) of drinking 2 cups of spearmint tea per day for hirsutism. I've read a lot of reports that it's helped people tremendously or completely gotten rid of excess facial hair after a few months (as well as acne problems). It has to be drank religiously but I'll take that over shaving my neck/chin 1-2 times per day! If you'd like just add me and check back in a month or so. I can't wait until it gets here and I can try it out! Had to order some from online because NONE of the grocery stores or health food stores here carry pure spearmint (without anything else). Here's hoping!
  • CrystalWalks
    CrystalWalks Posts: 84 Member
    I have PCOS but it doesn't have me... I AM DETERMINE TO LOSE THIS WEIGHT, right now im not trying to have a baby I just want to get healthy.... Good Luck on your journey..
  • mt2008
    mt2008 Posts: 46 Member
    I have PCOS too, so if anyone wants to add me, feel free to! I've known I've had it since I was 16, due to a cyst rupture. I'm not on medication currently, but it's something I'll be visiting with my doctor about next month.

    @Fuzzy, I'm really interested to see how your experiment goes! I'm so sick of tweezing, shaving, etc...it's like a never ending battle!
  • goody2shews
    goody2shews Posts: 129 Member
    bump
  • I'm totally looking for friends, so go ahead and add me. I've had PCOS for 12 years now, I have type 2 diabetes, and my doctors now think I have metabolic syndrome because all of these things are related to insulin resistance. I've been on the diet roller coaster for way too many years and I'm really trying to find motivation to start losing weight again.
  • My dr. has suggested I have the uterine ablation as well.
    How horrible was it? I am a big chicken...although I had
    2 children without aid of drugs...so maybe my pain tolerance is
    greater than I give myself credit for?

    Thanks for any help!

    Lori
  • Jacqmomof3
    Jacqmomof3 Posts: 24 Member
    Hi,

    I just joined today. i workout a lot but whenever I stop tracking my food I gain weight. So I was looking for a simple food tracker and found this site. I was diagnosed with PCOS over 10 years ago. I have many of the symptoms but did not have any real problem having my 3 children. It has been the last 10 years that have been worse and it is certainly the hormonal symptoms. It was nice to read several posts that talk about the rage. That was when my doctor put me on BCP, monophasic, and it worked.

    I find that if I don't restrict my simple carb intake (specifically bread, pasta & potatoes) then i spiral out of control. I am now a little confused as to how much carbs are ok. I was down to only eating simple bread carbs after working out 45 minutes. But that seems too restrictive to me. What are others doing?

    I have not been put on any other medications than BCP and I am most worried about my risk of heart disease, less about my risk of T2DM as my blood sugars have been fine.
  • Hi all,
    I was diagnosed in 1990 when trying to conceive my first child. Took chlomid to get pregnant with her. She was born in 1992, followed by a 2nd daughter in 1994, who was conceived with out any help. Daughter 3 was born...and quite a surprise, in 2005.

    In the last few years since the youngest was born my problems have worsened. I have been having TERRIBLE periods, developed anemia, had surgery summer of 2011 to remove a cyst and do a D & C. That helped for a while...but things started escalating in Feb. 2012. Have tried going on the pill, but i am 49, I dont need the added risks and it isnt for birth control anymore plus it really didnt help anything. Dr. is now talking about a uterine ablation. I was thinking a hysterectomy, but he said, "You dont want that."

    Things do seem to be a little better when I lose weight, but as I get older the same 25-30 lbs is harder and harder to knock off and every Jan. I find myself right back where I started. Errrr!!!

    If anyone has had experience with the ablation, can you let me know how horrible it was and if it helped any?

    Thanks much!

    Lori G
  • nhiremy
    nhiremy Posts: 1 Member
    Hello everyone!
    I was diagnosed with PCOS last year, but I've had symptoms since I was 12. I decided to join MFP in hopes of guidance and some friends to help me figure out what I should and shouldn't do. My doctor has started me on 500 mg metformin & it seems to work but the side effects are kicking my butt. I've also been obese all my life & peaked at 240 lbs. I've lost 10 lbs since I started the metformin but I've kind of just been sitting on the fence and haven't lost or gained any. So hopefully I can gain some friends here. Thanks for reading!

    Nhi
  • Hi everyone! I'm a PCOS struggler. I constantly try to lose weight, but it's such a struggle I eat way less than other and still don't lose. I practically have to starve myself to get the weight off. Any sufggestions?
  • I have PCOS too. I was able to lose weight with a low carb diet plus exercise. I took the last year off as far as counting calories and was able to maintain my loss fairly well by making healthy low carb choices and working out. I would love to find some PCOS pals for motivation. My plan is to start logging again as I would really love to lose about 20 more lbs.

    I have tried the Metformin in the past, no weight loss but a lot of fatigue and tummy troubles. I just started bcp to combat the acne and hair growth. One of my best investments was a salon style wax heater, I had a friend teach me how to wax my face, what a life saver.

    It's hard ladies, but we can do this. My cycles did become normal after about 15 lbs of loss and have been normal ever since. Not ttc but my prayers are with those of you who are.
  • Athena125
    Athena125 Posts: 102 Member
    Please add me as a friend - that goes for everyone with PCOS...I need more friends on this site (and in life) who know what I'm going through.


    Since December when I upped my protein and workouts and cut out sugar, ALL DAIRY, soy, and gluten (I am about 95% compliant), my acne is a million times better, my tummy has gone way down, and I have lost 7 pounds.

    During the times when I am compliant with the above diet/workout plan, I have been a size 6 or 8. As soon as I start eating the normal American diet, I gain up to 25 pounds and go up to a size 12.

    So basically this is what I do: I am eating mainly protein, avoiding sugar as much as I can, and eating more veggies than fruits (I stick to one or fewer fruits per day). I only eat 1-2 grains a day and they are whole grains (brown rice, chia seed bread, etc.). I'm working to gain more muscle. I know that gaining muscle and doing exercise EVERY DAY is good for PCOS women. I try to do 60 minutes of exercise most days of the week. I do aqua aerobics (1x per week), Zumba (2x per week), Zumba Gold (1x per week), cardio/strength (1-2x per week), and am now adding one hour of weight lifting split into 2 sessions.
  • Hi Ladies

    I recently have also been told I have PCOS :(
    I had an emotional chat with my consultant regarding weight OMG I was made to feel like I was the biggest woman in his office, Im a uk size 12/14
    Now I don't know where to start, feel abit lonely and helpless...
    Love to chat to any of you
    xxx