Any Lupus or PCOS buddies out there

I have PCOS, although I think mine is pretty mild. I have heard you really need to do low carb, but I've tried low fat/low calories with success in the past, and I LOVE carbs...so I'm going to try that and then if I find myself really plateuing for a long time I'll look into cutting the carbs.

Hey there,

I've had PCOS for almost 3 years now and have been on the Pill to control my hormones. Gained a bit of weight from the pill when I first started, and I have to admit that weight loss comes with a lot of sacrifices because of the hormonal imbalance that usually wreaks havoc on my appetite.

I'm on a mostly protein diet right now and it's been working for me so far. My ob told me that I need to lose a bit of weight and keep my sugar levels low to avoid diabetes which is associated with PCOS. So I'm going for a healthy diet and regular exercise to be more fit. Hopefully, my next trip to the doctor would show that the PCOS is gone!

Hi Ladies

I have PCOS too. I have had a hard time losing weight, let me tell you. I've lost a about 50 lbs but its taken like 2 years. I am really trying to lose another 60-75, and hopefully within this year. I have periods where I exercise ALOT and really watch what I eat but I never notice much of a difference from when I am moderately watching everything. I have read that with PCOS and Insulin resistance you have to really watch your starchy carbs to see steady weight loss. I HATE diet rules where you exclude whole food types. But I'm thinking if I do then maybe things would speed up a bit. Any tips or help I would love :-) Nice thread

Just been diagnosed with discoid lupus and have had PCOS for years! Am on metformin but am just exploring links between metformin and discoid lupus just in case I need to stop that.

Did weightwatchers for a long while and lost weight miraculously and then it began to slow and slow to a stop. Am on a lowish carb diet now - one slice of bread a day, free hand with lower carb veg (no parsnips or potatoes) and lots of protein but no cake, biscuits, pasta, rice etc etc and the weight is chipping off slowly. Am 44 years old, 5ft 2" and am down to 10st 11lbs - so just over a stone to go. Keep my carbs under 100g a day - aim for around 60g and the weight is chipping off VERY VERY slowly but it IS going. As long as I throw this last stone by Easter next year that'll do me.

Makes me mad when I read comments from people about 'you're only fat cause you eat too much and don't exercise enough" - PCOS is a battle in itself!!!! As for the discoid lups am determined to manage with creams cause if they give me steroids I am BOUND to gain weight. My body hates medicine - (have had problems with steroids and with any progesterone pills in the past).

Anyhoo that's me.

I have Lupus (MCTD = Mixed Connective Tissue Disease), and am just starting my weight-loss journey. So far, I have noticed that the hardest part for me is mustering the energy to exercise. I am always tired and achy from the disease, and the exercise seems to exacerbate those things for me.

Thanks so much for starting this thread! Please feel free to add me!

I'm 21 and was diagnosed with PCOS at 15 or 16. I don't take anything for it, I took birth control pills for a year from 16-17 but all they did was mess my body up in horrible ways that I've never recovered from. I've found a supplement that is specifically geared for PCOS, it's called Pregnitude. It's mainly for women trying to get pregnant, but I think you can use it either way. It's supposed to reduce insulin resistance and help regulate cycles. I only took it for a few days (gave me horrible mood swings) but once life settles down a bit (military family) I will try it once again. We've been trying to concieve our second baby for nearly 11 months now. I'm hoping that me losing weight will help us get pregnant again.

PCOS here and on metformin. I'm only on metformin again after a 4 year gap... but before I lost 100 pounds with its help so I'm looking to repeat that. Friend me if you like.

I had PCOS in my teens and 20s and had trouble getting pregnant with my first child. Clomid helped me get pregnant, and after delivery I learned to eat healthier with fewer carbs. Between diet changes and having one child, I had 2 more successful pregnancies.
Lower carb/Low Glycemic Index diet helps me a lot.

I also have mild RA, and an autoimmune type spinal cord disease and I found that strictly limiting my processed sugar helps me tremendously with inflammation, reduced pain, reduced fatigue.

haha I hope it works that way for me! Been TTC our second baby for 11 months now.

Sorry to hear you have both of these conditions! I have lean-type PCOS and my sister-in-law has lupus. My grandmother also had lupus, but I never knew her.

I'm trying to follow a low-glycemic diet, but it's tough and I have a lot to learn!

My lupus is in remission. My advice is to be patient with yourself and do as much exercise as you can without making things worse.

I have SLE. It has done really well since I went gluten free (After the drs figured out I had Celiac Disease too), and after years of inactivity I am able to exercise again and feel pretty optimistic about the whole weight loss thing. Feel free to add me if you need friends/ support!

I have Lupus-Mixed Connective Tissue Disease and just started to get serious about losing weight. I can't believe I have never heard of PCOS and so many people have it. I am 51 and the was diagnosed with MCTD 3 years ago but was sick for about 3 years before that. Unfortunately and maybe it is because of my age it hit hard and has not eased up in 3 years. Just last year I was diagnosed with COPD because of the Connective Tissue Disease. I never had asthma, have never smoked or had breathing problems before last year.

Exercise is very hard for me now because I get exhausted so easy and pushing it only makes me worse and in bed for a day or 2 but I am starting to make healthier food choices 1 meal at a time. I am so motivated that it seems everyone who logs in on here and logs their food loses so I am committed to logging in everyday.

I have always tried to do things the hard way - all or nothing so now I am learning to take baby step, relax and just commit to stick with it.

Please add me as a friend if you have SLE or Mixed Connective Tissue Disease. I do not know anyone personally that has it and it would be nice to talk to people who understand.

I have to admit having this disease has forced me to slow down (way down) lol and have the time to realize what is truly important in life. I actually stop and smells the flowers now so good things come out of everything.

Tammy

Lupus and PCOS. I was on metformin for a while but it quickly started to damage my kidneys. As of right now I am un-medicated. I feel like crap a lot but I'm trying to stay off meds as long as possible. As for losing weight..... Well I've been struggling with this for over 10 years. It's not been easy.

Good luck to you! ❤