Baby with milk protein allergy HELP

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SweetMegz04
SweetMegz04 Posts: 459 Member
in Food and Nutrition
MFP FRIENDS!! HELP

My friends 1 year old has a milk protein allergy and can't eat or drink the following:

"No whey, casein, lactose, ghee, lactabumin, diacetyl, lactoferrin, lactulose, tagatose, or recaldent"

You wouldn't believe how many products have this in it! Even hotdogs

Anyone have any recommendations food wise?

Whole foods and organic locations in stores are obviously key- but any input is much appreciated

Replies

  • tegalicious
    tegalicious Posts: 629
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    Sounds like a vegan style diet would be a good start. And then add on meat proteins and possibly seed butters and maybe nut and legume butters if the child doesn't have the potential for nut and legume allergies. Meat proteins being unproccessed meat (fresh chicken, beef, pork, and other poultry from a butcher, not frozen or packaged fridge section. The child's doctor should be able to refer the family to a dietician or allergist that could help develop a list of acceptable foods.
  • skylark94
    skylark94 Posts: 2,036 Member
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    Your friend needs to be asking these questions of her child's physician and get a referral to a dietitian who has knowledge of pediatric needs. The internet can be a vast source of really, really bad information. Nutrition in a child that age is not something to be messing with.
  • callie006
    callie006 Posts: 151 Member
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    My nephew had a milk and soy protein allergy as a baby and young toddler and finding anything he could eat was a struggle. We always tried to keep coconut butter on hand to cook for him. He really liked dumplings, so I used to make them without milk and cook them in chicken broth with carrots and other veggies and keep them on hand to feed him. Amy's organic had some cookies and other stuff that were totally dairy free, so we used to get those a lot. Happy Baby also makes baby and toddler food without dairy, and he really like the puffs.
  • Sapporo
    Sapporo Posts: 693 Member
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    Are they sure it is an actual allergy already? An intolerance at age 1 is pretty common, especially if they were breastfed and not formula fed. My daughter grew out of it within a couple months, around 14 months could tolerate cow milk products and all that stuff but it made her really sick at 1 year old. We weren't meant to be ingesting this stuff.
  • haroon_awan
    haroon_awan Posts: 1,208 Member
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    Hey, the NHS as very reliable and scientific information that's useful:
    http://www.nhs.uk/Conditions/pregnancy-and-baby/Pages/food-allergies-in-children.aspx
    http://www.nhs.uk/Conditions/pregnancy-and-baby/Pages/vegetarian-vegan-children.aspx

    HIPP also have a good range of baby foods that my workplace sells to parents.
    http://www.hipp.co.uk/

    Hope it helps.
  • Howdoyoufeeltoday
    Howdoyoufeeltoday Posts: 481 Member
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    I didn't have the allergy as a baby but I developed it at the age of 22....:( which is a piss off believe me. there's milk powder in Italian sausage and margarine. Any animal protein or eggs will work. so will beans, vegetables (cans, fresh frozen) and fruit. avoid kraft dinner and any prepared meal/ food. and avoid things breaded (milk in bread crumbs). for milk I believe they have "milk" for kids with allergies or if he's old enough then try him on soy or almond milk. regular pasta is good with tomato based sauces. so is oatmeal. basically, if she cooks most of the kids food at home she'll be ok. Make as much as you can so you know what goes into it. Good luck!
  • QuietBloom
    QuietBloom Posts: 5,413 Member
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    Your friend needs to consult a pediatric nutritionist if she has concerns over and above what her child's doctor has prescribed.
  • fruttibiscotti
    fruttibiscotti Posts: 987 Member
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    Yikes! We are talking about a baby here. Please consult pediatric professional for advice, not public forum.
  • callie006
    callie006 Posts: 151 Member
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    Are they sure it is an actual allergy already? An intolerance at age 1 is pretty common, especially if they were breastfed and not formula fed. My daughter grew out of it within a couple months, around 14 months could tolerate cow milk products and all that stuff but it made her really sick at 1 year old. We weren't meant to be ingesting this stuff.

    Actual IgE-mediated milk protein allergies (vs intolerances) are actually fairly common in babies (estimates are about 2 to 3% of babies in Western countries). Most kids (almost 90%) outgrow them by the time they are 3 or 4. Seventy five percect outgrow them by 2, and half outgrow them by 1. My nephew had this, so he spent some time with a pediatric allergist as a baby, but by the time he was about 18 months he had outgrown it.

    This : http://www.ncbi.nlm.nih.gov/pubmed/12487202 is a good review article if anyone is interested.
  • Akimajuktuq
    Akimajuktuq Posts: 3,037 Member
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    Sounds like a vegan style diet would be a good start. And then add on meat proteins and possibly seed butters and maybe nut and legume butters if the child doesn't have the potential for nut and legume allergies. Meat proteins being unproccessed meat (fresh chicken, beef, pork, and other poultry from a butcher, not frozen or packaged fridge section. The child's doctor should be able to refer the family to a dietician or allergist that could help develop a list of acceptable foods.

    OMG please not VEGAN. Please, not soy. Also, pasteurized cow's milk doesn't have much in healthy nutrients to offer at all. It's highly processed and not biologically appropriate. Depending where you live, the milk may also contain contaminants such as growth hormones and antibiotics.

    There are entire lifestyles that are VERY healthy that do not have dairy. Try GAPS or Paleo. Really. An older baby should be able to be fully nourished without dairy. But they MUST have lots of healthy fats, and I mean animal based saturated fats. (Ideally the only dairy should have been breast milk anyway)

    Yes, get some professional advice, not just from a doctor who generally know nothing about nutrition. Find someone very qualified to address these health issues. And if needed, get a second or third or fourth opinion. Check out Dr. Campbell-McBride's book "Gut and Psychology Syndrome". The book has ideas and resources to help.
  • tegalicious
    tegalicious Posts: 629
    Options
    Sounds like a vegan style diet would be a good start. And then add on meat proteins and possibly seed butters and maybe nut and legume butters if the child doesn't have the potential for nut and legume allergies. Meat proteins being unproccessed meat (fresh chicken, beef, pork, and other poultry from a butcher, not frozen or packaged fridge section. The child's doctor should be able to refer the family to a dietician or allergist that could help develop a list of acceptable foods.

    OMG please not VEGAN. Please, not soy. Also, pasteurized cow's milk doesn't have much in healthy nutrients to offer at all. It's highly processed and not biologically appropriate. Depending where you live, the milk may also contain contaminants such as growth hormones and antibiotics.

    There are entire lifestyles that are VERY healthy that do not have dairy. Try GAPS or Paleo. Really. An older baby should be able to be fully nourished without dairy. But they MUST have lots of healthy fats, and I mean animal based saturated fats. (Ideally the only dairy should have been breast milk anyway)

    Yes, get some professional advice, not just from a doctor who generally know nothing about nutrition. Find someone very qualified to address these health issues. And if needed, get a second or third or fourth opinion. Check out Dr. Campbell-McBride's book "Gut and Psychology Syndrome". The book has ideas and resources to help.

    I meant vegan as a starting point for ideas for dairy free meals and then also giving the child animal meat protein as well. Should have been more specific, sorry. But really the parent needs to talk to the child's doctor. Sorry for the confusion.
  • SailorKnightWing
    SailorKnightWing Posts: 875 Member
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    Definitely send her to her pediatrician. I had this as a baby and outgrew it when I was about four and now have no problems with milk. Several children I babysit also have it and most outgrow it as well. It's pretty common, but a pediatrician will be able to give the best recommendations.
  • Aeriel
    Aeriel Posts: 864 Member
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    As the mother of a 6 year old with this dairy protein allergy issue (in addition to eggs and nuts) I know how she feels.

    Labels are your best friend, once you know which words to look for. If you search enough, you can find products that do not contain the dairy. I get chicken fingers from Costco that are potato breaded, no egg or dairy. High Liner family pack of fish sticks are safe as well. I buy lots of fresh meat and fish and cook from scratch so that I know things are okay. Maple Leaf products are generally dairy free, where as most Schneiders prodcuts contain dairy. We use Becel vegan margarine or Fleischmanns Lactose free, both of which have no dairy proteins. Tofutti soy based cheese has no milk protein in it.

    I tried to consult an allergy specialist with my son, and it took 2 years to get them to even respond to the request, so sometimes you do need to do it on your own. Cook fresh, get lots of vegetables, beans etc into them and don't be surprised if other protein allergies appear.
  • Whereismycoffee
    Whereismycoffee Posts: 130 Member
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    Are they sure it is an actual allergy already? An intolerance at age 1 is pretty common, especially if they were breastfed and not formula fed. My daughter grew out of it within a couple months, around 14 months could tolerate cow milk products and all that stuff but it made her really sick at 1 year old. We weren't meant to be ingesting this stuff.

    Actual IgE-mediated milk protein allergies (vs intolerances) are actually fairly common in babies (estimates are about 2 to 3% of babies in Western countries). Most kids (almost 90%) outgrow them by the time they are 3 or 4. Seventy five percect outgrow them by 2, and half outgrow them by 1. My nephew had this, so he spent some time with a pediatric allergist as a baby, but by the time he was about 18 months he had outgrown it.

    This : http://www.ncbi.nlm.nih.gov/pubmed/12487202 is a good review article if anyone is interested.


    Unfortunately, my son is one of those 10% or so who is truly allergic (not intolerant) to milk products and never grew out of it, he is 10 now.

    The best thing they can do is to see a nutritionist and come up with a plan. Also learn to read labels...they hide milk products under so many names it's not even funny. A lot of things made with milk can be made at home with substitutions too.

    I don't know for fact, but I have seen a lot of people that have a protein allergy have it from more then one source. Such as milk allergy then also being allergic to eggs. Not sure if there has been a study done on it. My son's allergist did warn me when we found out about the milk allergy to watch other protein sources, he might react to them too.

    Hope this helps.
  • Whereismycoffee
    Whereismycoffee Posts: 130 Member
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    As the mother of a 6 year old with this dairy protein allergy issue (in addition to eggs and nuts) I know how she feels...

    I tried to consult an allergy specialist with my son, and it took 2 years to get them to even respond to the request, so sometimes you do need to do it on your own. Cook fresh, get lots of vegetables, beans etc into them and don't be surprised if other protein allergies appear.

    I know how you feel, my son's list is so long I have to put it on a separate sheet of paper every school year. .... His allergist tried that with me, making me wait forever to get him in... I just walked in to the office and refused to leave til he was seen. Might not have been the smartest thing to do... but at least they didn't call the cops and have me arrested :bigsmile:
  • callie006
    callie006 Posts: 151 Member
    Options
    As the mother of a 6 year old with this dairy protein allergy issue (in addition to eggs and nuts) I know how she feels...

    I tried to consult an allergy specialist with my son, and it took 2 years to get them to even respond to the request, so sometimes you do need to do it on your own. Cook fresh, get lots of vegetables, beans etc into them and don't be surprised if other protein allergies appear.

    I know how you feel, my son's list is so long I have to put it on a separate sheet of paper every school year. .... His allergist tried that with me, making me wait forever to get him in... I just walked in to the office and refused to leave til he was seen. Might not have been the smartest thing to do... but at least they didn't call the cops and have me arrested :bigsmile:

    Oh wow good for you. My sister fought with the pediatrician to get a referral and had call around a bit, but we got him in pretty quickly, though not to her first choice Dr. I think I sometimes take for granted living in a part of the country with several university hospitals, including CHOP, and associated specialty practices within easy driving distance.
  • Whereismycoffee
    Whereismycoffee Posts: 130 Member
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    @ callie006 I grew up in an area where there were several major hospitals, but moved to a really rural area a few years before I had my son. Now its not just the fun of finding a doctor that takes our insurance, but knowing when I do it's at least going to be an hour or more drive one way to it. Wouldn't trade the rural for the city, but sometimes wish I could at least get doctors in a 25 mile radius.
  • neandermagnon
    neandermagnon Posts: 7,436 Member
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    Are they sure it is an actual allergy already? An intolerance at age 1 is pretty common, especially if they were breastfed and not formula fed. My daughter grew out of it within a couple months, around 14 months could tolerate cow milk products and all that stuff but it made her really sick at 1 year old. We weren't meant to be ingesting this stuff.

    I was breastfed and allergic to milk protein at that age. Both my kids had allergies as babies, the older one even reacted to my milk if I ate any dairy (that was fun... not). The older one outgrew them pretty quickly, the younger one still has them.

    I actually had a severe allergic reaction to formula milk at 5 hrs old. (this was back in the 70s when it was normal to give formula to babies without their mother's permssion, as my mum had already decided to exclusively breastfeed me but they treated her like she crazy... well the docs listened to her about breastfeeding me after that :laugh: )

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