My mom has MS.......
ChristinaOrtiz23
Posts: 1,546 Member
( just did a blog, just decided to post it here too)
My Mom has MS…
My mom was diagnosis with MS back in 2009. It was scary but we didn’t know much about it. It’s not curable but it’s manageable. She use to have bad episodes and would lose feeling on the right side of her body, then had to go to the ER and stay there for a couple days then get released. This was every couple months for about a year. She then got the gastric bypass surgery in 2010 and lost 100lbs. The MS “episodes” where not so intense and was manageable. She was tired all the time and didn’t have many “flares” like before. Then last night she had an overwhelming pain on her side and then it went numb. She went to the ER and her blood pressure was 210. They did a bunch of MRIs and found it. A lesion in her brain and it had some bleeding. They said she had a Mini Stroke! I couldn’t believe it, my mother, it can’t be. We had a rough time when I was growing up and we are now starting to build a relationship but she’s still my mother and I love her! I lost my father when I was 3 and my grandmother (2nd mom) when I was 14, I can’t lose my mom, I CANT!! They said she could go blind if it doesn’t get under control. They gave her blood thinners and a bunch MORE medication. She is at Yale with a specialist as I type to see what they can do!! I’m overwhelmed and stress and emotional and don’t know what to do! I have a brave face on right now but i'm dying in the inside!
I really needed to write this down because I don’t have many people to talk to! I do see a therapist for my anxiety and i’m going to schedule a session with her because this will make me have an anxiety attack and be just plain miserable!! Ok thanks for reading this, now I have to put my game brave face back on!!!
My Mom has MS…
My mom was diagnosis with MS back in 2009. It was scary but we didn’t know much about it. It’s not curable but it’s manageable. She use to have bad episodes and would lose feeling on the right side of her body, then had to go to the ER and stay there for a couple days then get released. This was every couple months for about a year. She then got the gastric bypass surgery in 2010 and lost 100lbs. The MS “episodes” where not so intense and was manageable. She was tired all the time and didn’t have many “flares” like before. Then last night she had an overwhelming pain on her side and then it went numb. She went to the ER and her blood pressure was 210. They did a bunch of MRIs and found it. A lesion in her brain and it had some bleeding. They said she had a Mini Stroke! I couldn’t believe it, my mother, it can’t be. We had a rough time when I was growing up and we are now starting to build a relationship but she’s still my mother and I love her! I lost my father when I was 3 and my grandmother (2nd mom) when I was 14, I can’t lose my mom, I CANT!! They said she could go blind if it doesn’t get under control. They gave her blood thinners and a bunch MORE medication. She is at Yale with a specialist as I type to see what they can do!! I’m overwhelmed and stress and emotional and don’t know what to do! I have a brave face on right now but i'm dying in the inside!
I really needed to write this down because I don’t have many people to talk to! I do see a therapist for my anxiety and i’m going to schedule a session with her because this will make me have an anxiety attack and be just plain miserable!! Ok thanks for reading this, now I have to put my game brave face back on!!!
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Replies
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Omg I'm so sorry you are going through this. I see a therapist as well (long story) and that helps. I don't know you very well from what I can tell you seem to have strength. Try to be strong for your mom. Have faith and pray. Bad situations have a way of turning around.0
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Omg I'm so sorry you are going through this. I see a therapist as well (long story) and that helps. I don't know you very well from what I can tell you seem to have strength. Try to be strong for your mom. Have faith and pray. Bad situations have a way of turning around.
thank you hun!! i appreciate you comment and support!! wish i new more people like you guys!!0 -
Tell your mom that you love her every day. Tell her about everything she has done for you that you are grateful for. Tell her everything, about how you are feeling about how you are going to be the greatest person you can be the rest of your life. You don't need to put on a brave face for her, it is ok to cry.
There is more to this life than our physical body. Unfortunately, the idea of spirituality has moved out of many of our minds. Realize that there is more to this universe than our taste, touch, smell, sight, and hearing. This isn't a God thing, this isn't a religious thing. This is human spirituality, which goes back much further than religion. There are deeper things in this world, deeper connections. Every time you look in the mirror for the rest of your life you will see your mother looking back at you. You will see her in your personality, in the way you act. Everything she has taught you will show through for the rest of your life. You and her are connected on a level that is much deeper than just genetics.
She will live forever though you. That alone should put a smile on your face and some warmth in your heart.
“In sorrow we must go, but not in despair. Behold! we are not bound for ever to the circles of the world, and beyond them is more than memory.”
― J.R.R. Tolkien0 -
Tell your mom that you love her every day. Tell her about everything she has done for you that you are grateful for. Tell her everything, about how you are feeling about how you are going to be the greatest person you can be the rest of your life. You don't need to put on a brave face for her, it is ok to cry.
There is more to this life than our physical body. Unfortunately, the idea of spirituality has moved out of many of our minds. Realize that there is more to this universe than our taste, touch, smell, sight, and hearing. This isn't a God thing, this isn't a religious thing. This is human spirituality, which goes back much further than religion. There are deeper things in this world, deeper connections. Every time you look in the mirror for the rest of your life you will see your mother looking back at you. You will see her in your personality, in the way you act. Everything she has taught you will show through for the rest of your life. You and her are connected on a level that is much deeper than just genetics.
She will live forever though you. That alone should put a smile on your face and some warmth in your heart.
“In sorrow we must go, but not in despair. Behold! we are not bound for ever to the circles of the world, and beyond them is more than memory.”
― J.R.R. Tolkien
I really needed this!!! She is a religous person so this is perfect! im actually going to show her this when i see her tomorrow!! I am like her in many ways, if i like it or not!! you are such a sweet person, thank you so much!!!0 -
I will keep your mom in my prayers Christina. Its ok to vent, everyone needs someone to listen when in need. You cant keep stuff inside if not it will break you down. I'm here if you need to talk/vent/sing/dance......0
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I will keep your mom in my prayers Christina. Its ok to vent, everyone needs someone to listen when in need. You cant keep stuff inside if not it will break you down. I'm here if you need to talk/vent/sing/dance......
Thank you hun!!0
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