So, this is embarrassing. And possibly TMI, but please help.

124

Replies

  • @ DavidCHobby, Very good advice! especially the keeping the food diary part. I had similar issues, however my reactions weren't Crohn's or Celiac's mine are more allergy based, to wheat and nuts go figure! :-( After I figured out what it was, my symptoms (vomiting diarrhea, acne, upset stomach and fatigue) stopped as well and like you mentioned that stopped quickly!
  • LittleRed987
    LittleRed987 Posts: 1 Member
    GI Dr. is a gastro intestinal Dr.
    My husband suffers the same thing... Try to cut back on your caffeine intake and on the size of your meals. So eating more meals, just less food at each sitting. You could start out on a very limited foods diet (foods that you know are not stressing your system) and add new foods each week. Keeping a food journal is key.
    Limiting or cutting out those items that cause you more distress is optimal. So, you may want to try altenative dairy options like almond milk or goats milk or soya milk. The goat milk and soy have cheese options too. You can try taking out gluten. This can't hurt. There are many options to trade out your normal foods for gluten free. (rice noodles cook up in a flash, esp. vermicelli, quinoa and rice, using spagettii squash is also a great way to increase your vegetable intake)
    I agree with the rest, you need to seek medical assessment too.
    Best of luck to you.
  • rainbowbow
    rainbowbow Posts: 7,490 Member
    It could be a number of things. You need to see a GI specialist.

    A general doctor wouldn't help? I couldn't go before because of money and no insurance. But I have insurance as of this month.

    Under the new health care provisions, you are able to receive a full physical every year at no cost to you or your deductible. I would schedule a physical first, then allow your physician to make recommendations regarding your symptoms.

    Unfortunately, it is only free if it is "preventative care". If the doctor has to suggest, diagnose, or treat an actual problem it is considered diagnostic care. You WILL be billed for the visit in that case. :(

    OP, see a Gastroenterologist. Good luck!
  • castlerobber
    castlerobber Posts: 528 Member
    Milk upsets my stomach, but not yogurt or cheese. So I don't think I'm lactose intolerant, or at least not badly.

    ...

    It happens regardless of my food choices or fiber. I've tried high fiber, fiber supplements, etc. Not even Imodium helps.

    This isn't normal. Go see a GI doc ASAP. You may be gluten intolerant, lactose intolerant, have food allergies...or something else entirely. We aren't qualified here to say.
  • dejavuohlala
    dejavuohlala Posts: 1,786 Member
    you need to see a Gastroenterologist you may have Colitis or inflammatory illness
  • @Nessa-

    Thank you! I find my symptoms track pretty closely with my weight and my eating habits. As I lose weight and eat clean, things are getting much better.

    Who knows, I may well have been allergic to one or more of the bad foods I cut out, too!
  • blswilliams
    blswilliams Posts: 3 Member
    I agree, you need to see a doctor. I have had this same problem. First they said it was my gall bladder. Finally had to have it removed but did not solve the problem. Only thing they say is IBS. That's the only answer I get. I did a clinical trial and the medication did help. But I don't know if it was ever approved because if misused can cause constipation and colitis.

    Just know you have others out here with the same problem. Hang in there. Keeping the food diary always helps too when seeing a doctor.
  • LH85DC
    LH85DC Posts: 231 Member
    Definitely see a doctor, but just as an aside- I had very similar problems for years. It could definitely be IBS or a more serious problem, but give lactose intolerance a second look.

    I didn't think I was lactose intolerant, because I tried eliminating it and still had problems. It turns out that I was also soy-intolerant, so all the soy milk that I drank when I gave up regular dairy was masking the problem. I'm severely lactose intolerant, and moderately soy-intolerant. Now I drink lactose-free milk or almond milk, stick to greek yogurt (which doesn't seem to upset my stomach) and lactose free cheese (Cabot brand makes cheese that is lactose free but still made with real dairy), and make sure to take plenty of Lactaid pills when I want to have ice cream or real cheese, and I've been doing SO much better.
  • selfepidemic1
    selfepidemic1 Posts: 159 Member
    A lot of people actually are intolerant to lactose. Just because cheese doesn't cause it doesn't mean you aren't, it could just be the quantity.

    Go to the doctor, this is NOT healthy. Your body is washing out all of the bacteria and other things it needs, I'm surprised you're not overly dehydrated along with other awful symptoms.

    I know its a bit embarrassing. However doctors have seen it all!
  • imjolly
    imjolly Posts: 176 Member
    Sounds like you have IBS (irritable bowel syndrome). I would make an appointment with a Dr since you may be losing important nutrients. They can run test and determine why you are having this issue. Good Luck!!
  • Anybody reading this that has similar issues as the OP and is embarrassed by it - please don't be, and please go see a Gastroenterologist ASAP. It could save your life.

    I had similar issues as OP. I went to the doctor regularly from the age of 13 on complaining of these symptoms and was blown off every time. I was told I was probably lactose intolerant, probably wheat sensitive, maybe under a lot of teenage stress I was suppressing, on and on with the possibilities, but it was always treated as not that big a deal - like I should just grin and bear it. So I did. Until I was 21. Thanksgiving day, I woke up with HORRIFIC pain. But after 8 years of being told to grin and bear it and being made to feel embarrassed and whiny every time I went to the doctor for help, I tried to work through the pain and ignore it. I was in excruciating pain for half a day, but trying my best to be a tough guy about it. Finally, I went on Web MD and came up with "burst appendix" and how serious that could be, so decided I should maybe go to the ER. It was a tough decision. I told the nurse checking me in that it was probably just gas and I felt so ridiculous even being there. Turns out my intestines had perforated, among other things, and I needed emergency surgery - I was told if I'd waited even an hour longer, I may not have survived. After an extended stay at the hospital and tons of missed work, I was left with a pile of bills, a massive ugly scar, and a diagnosis. All those years of suffering - turns out I had Crohn's Disease. If it had been caught earlier, if someone had listened to me, if I'd pushed harder - there are medications that can help you live a more normal life and even keep you in remission. All the pain and financial burden could have been avoided if I'd been more proactive, if I'd pushed back on doctors instead of just accepting their dismissive attitude.

    Don't let it go, don't tough it out. Your body is letting you know something is wrong - listen to it. Please.
  • kelsully
    kelsully Posts: 1,008 Member
    Doctor is a definite. Get whatever testing they recommend but also ask about an appropriately guided elimination diet. Elimination diets can identify a food intolerance that might not show up on a blood test. Not all medical practitioners will examine possibilities that cannot be tested with a blood test or medicated so see if you can find one that will run the tests, keep medications as an option if necessary but will also examine lifestyle changes. I have avoided medications by avoiding gluten and dairy for the last 10 months. My symptoms and blood tests would not have indicated celiacs or a lactose issue BUT by visiting a medical doctor who also subscribes to a holistic view I was able to change my diet and fix my symptoms etc.
  • SanteMulberry
    SanteMulberry Posts: 3,202 Member
    I have the same problem but I have tried all kinds of diets to make it stop. Nothing has worked and I've been to doctors they have labled it I B S. If you find something that works let me know.

    I was plagued with the same problem for a number of years--especially after I upped my vegetables and fruits. Then I discovered kefir. It is fermented milk (sounds awful I know). Taste is similar to yogurt but it is much more effective than is yogurt and it contains a LOT more strains of beneficial bacteria than does yogurt. If you can't handle dairy, you can make your own water kefir using a bit of sugar water (the sugar is for the bacteria to feed on). I believe coconut water kefir is now available too. I have tried the water kefir but I think the milk kefir is more effective. It has eliminated my IBS. A half-cup in the morning and a half-cup at dinner is just fine for me. The nutrient content is in the database--it is similar to yogurt in terms of protein, carbs and fat (depending bf% of the milk. For Paleo folk, it is unfortunately hard to find anything with a higher fat content than 2%). If you can't handle the plain kefir (available now at most grocery stores) there is flavored kefir but I don't think it is as effective either. Good luck.
  • I didn't read through all of the replies so sorry if I'm repeating what someone else has said, but cheese has very little lactose and many yogurts are lactose free. Don't discount lactose intolerance because you can handle them ok.

    Maybe you could try lactose free milk and see if that makes a difference.

    I also think you should visit your doc for tests to rule out other problems.
  • goldthistime
    goldthistime Posts: 3,213 Member
    I have had similar problems in the past but ultimately decided that my problem is food borne bacteria. Even in teeny tiny amounts. So everything goes instantly into the fridge and even then no leftover chicken or any food that has touched the chicken, no fast food chicken, no chili or crock pot food, no chicken added to my salad or wraps, even at expensive restaurants, and no finger food with meat at parties. No undercooked fish (including sushi obviously) etc. etc. I know one person personally like me but haven't read about any similar stories on the internet. Good luck.

    There is tiny bacteria everywhere, so not sure how you are totally eliminating it. Has your doctor confirmed this?

    And why is chicken the ultimate culprit? Pork has just as much risky bacteria (if not more) if it is undercooked as chicken. Unless you are completely disinfecting every surface in your kitchen after every time you cook chicken, you are still exposed. Raw, refrigerated chicken is safe up to 3 days. Fast food chicken is kept frozen until use and is actually safer than what you buy and use at home. Undercooked fish is much safer than undercooked beef.

    I have spoken to my doctor about it and she simply said to keep doing what I'm doing. It's been twenty-two years for me, and there is no doubt in my mind about the connection. If I'm running to the bathroom today at lunch time, I know that something at lunch yesterday is the culprit, most often chicken, but not exclusively. As to pork, very rarely eat it so I can't comment. Chicken is associated strongly with Campylobacteriosis. It's not impossible that campylobacter is a problem for me. The concept of bacteria being part of the problem is not that out there. Products like Align attempt to overcome bad bacteria in your system by inundating you with good bacteria. I've read on an IBS forum that some short term success can be had with Align, but if the problem returns they try a different probiotic treatment, rotating through a group of them. Stool transplants have been on the news lately too, once again trying to reset your intestinal flora. Everyone else in my family can eat the same food and not have a problem so bacteria levels that are safe for others are not okay for me. I will say that I have had no problems with McDonald's chicken in recent years so they must be doing something right.
  • My daughter was having the same issue and it turned out to be a parasite.
  • SanteMulberry
    SanteMulberry Posts: 3,202 Member
    I have had similar problems in the past but ultimately decided that my problem is food borne bacteria. Even in teeny tiny amounts. So everything goes instantly into the fridge and even then no leftover chicken or any food that has touched the chicken, no fast food chicken, no chili or crock pot food, no chicken added to my salad or wraps, even at expensive restaurants, and no finger food with meat at parties. No undercooked fish (including sushi obviously) etc. etc. I know one person personally like me but haven't read about any similar stories on the internet. Good luck.


    There is tiny bacteria everywhere, so not sure how you are totally eliminating it. Has your doctor confirmed this?

    And why is chicken the ultimate culprit? Pork has just as much risky bacteria (if not more) if it is undercooked as chicken. Unless you are completely disinfecting every surface in your kitchen after every time you cook chicken, you are still exposed. Raw, refrigerated chicken is safe up to 3 days. Fast food chicken is kept frozen until use and is actually safer than what you buy and use at home. Undercooked fish is much safer than undercooked beef.

    I have spoken to my doctor about it and she simply said to keep doing what I'm doing. It's been twenty-two years for me, and there is no doubt in my mind about the connection. If I'm running to the bathroom today at lunch time, I know that something at lunch yesterday is the culprit, most often chicken, but not exclusively. As to pork, very rarely eat it so I can't comment. Chicken is associated strongly with Campylobacteriosis. It's not impossible that campylobacter is a problem for me. The concept of bacteria being part of the problem is not that out there. Products like Align attempt to overcome bad bacteria in your system by inundating you with good bacteria. I've read on an IBS forum that some short term success can be had with Align, but if the problem returns they try a different probiotic treatment, rotating through a group of them. Stool transplants have been on the news lately too, once again trying to reset your intestinal flora. Everyone else in my family can eat the same food and not have a problem so bacteria levels that are safe for others are not okay for me. I will say that I have had no problems with McDonald's chicken in recent years so they must be doing something right.

    A naturopath would likely put you on digestive enzymes and a hydrochloric acid supplement. When there is inadequate acid being produced in the stomach, food isn't digested properly and it upsets the microflora in the bowel. The other even worse problem is that normally, the strong acid produced in a healthy stomach kills off a lot of the bacterial content of the food. When there is not enough acid, nasty bugs (like C. Difficile) can take over. That is why proton-pump-inhibitor drugs like Nexium, Prevacid, etc. are so dangerous. Their main purpose is to inhibit stomach acid production. Even the FDA has issued warnings on PPI's--because of the problem of bowel infection. About 10% of the people who get a C. Difficile infection die.
  • Solar07
    Solar07 Posts: 83 Member
    You need to see a doctor. This happened to me and it turned out I had c-diff. I ended up being hospitalized. I'm not saying that is what you have but why take a chance. Plus I had it for 6 months and never said anything. I just thought it was anxiety or IBS - irritable bowel syndrome. Feel better and please see a doctor.
  • goldthistime
    goldthistime Posts: 3,213 Member
    I have spoken to my doctor about it and she simply said to keep doing what I'm doing. It's been twenty-two years for me, and there is no doubt in my mind about the connection. If I'm running to the bathroom today at lunch time, I know that something at lunch yesterday is the culprit, most often chicken, but not exclusively. As to pork, very rarely eat it so I can't comment. Chicken is associated strongly with Campylobacteriosis. It's not impossible that campylobacter is a problem for me. The concept of bacteria being part of the problem is not that out there. Products like Align attempt to overcome bad bacteria in your system by inundating you with good bacteria. I've read on an IBS forum that some short term success can be had with Align, but if the problem returns they try a different probiotic treatment, rotating through a group of them. Stool transplants have been on the news lately too, once again trying to reset your intestinal flora. Everyone else in my family can eat the same food and not have a problem so bacteria levels that are safe for others are not okay for me. I will say that I have had no problems with McDonald's chicken in recent years so they must be doing something right.

    A naturopath would likely put you on digestive enzymes and a hydrochloric acid supplement. When there is inadequate acid being produced in the stomach, food isn't digested properly and it upsets the microflora in the bowel. The other even worse problem is that normally, the strong acid produced in a healthy stomach kills off a lot of the bacterial content of the food. When there is not enough acid, nasty bugs (like C. Difficile) can take over. That is why proton-pump-inhibitor drugs like Nexium, Prevacid, etc. are so dangerous. Their main purpose is to inhibit stomach acid production. Even the FDA has issued warnings on PPI's--because of the problem of bowel infection. About 10% of the people who get a C. Difficile infection die.

    That makes sense. Thank you for taking the time to post. I would actually try that except I also get the odd bout of too much stomach acid (stress I guess, plus perhaps bad genes) leaving my stomach riddled with polyps (aka scar tissue). I HAVE taken Zantac for extended periods of time but never made a connection that it might make me more susceptible to bacterial infection. Good stuff, thanks.
  • wrcunningham
    wrcunningham Posts: 2 Member
    FYI...

    "Many people use probiotics to prevent diarrhea, gas, and cramping caused by antibiotics. Antibiotics kill "good" (beneficial) bacteria along with the bacteria that cause illness. A decrease in beneficial bacteria may lead to digestive problems. Taking probiotics may help replace the lost beneficial bacteria. This can help prevent diarrhea." - WebMD

    dietary supplement, not medication.
  • sydkel29
    sydkel29 Posts: 27 Member
    Stop what you are doing and make an appointment with a GI doctor. There are so many different things this could be. For me, I ignored it for so long. It ended up being a severe case of Ulcerative Colitis. You can get so many suggestions from people on here including me but the thing is until they run some blood work and certain tests, you will not know. You will spend more money trying to self diagnose than going straight to the doctor.

    Best of luck!
  • SoDamnHungry
    SoDamnHungry Posts: 6,998 Member
    Doctor.
  • madaleingericke
    madaleingericke Posts: 49 Member
    Try substituting all milk with almond milk - available in different "strengths."
    Yogurt is fermented, so probably will not have same reaction as the lactose in milk. It is worth the try, not so?
  • brewji
    brewji Posts: 752 Member
    It's not TMI, trust me.

    I used to have a similar problem. See a GI Specialist ASAP.

    I was diagnosed with Crohn's, but as I was diagnosed early and quickly, I have been able to get off all medications and am living a more stable life! I lost 100lbs (from exercise, not sickness!) before I decided to start building muscle not too long ago.

    If I hadn't seen the GI Specialist, things would have gotten worse. I have friends who waited too long and their quality of life has dropped significantly.

    Good luck!
  • ILoveGingerNut
    ILoveGingerNut Posts: 367 Member
    No point in trying to guess. Don't pick the "diagnosis" that inspires you the most. Go and see a doctor. Now.
  • LifeNewandImproved
    LifeNewandImproved Posts: 125 Member
    I'd see a doctor and while you are there I would ask about doing an elimination diet. It's like where you basically eat just one safe thing and then slowly add back one food at a time to see if there is a particular food or group of foods that triggers you. Like, 3 days you eat nothing but rice (or whatever) and then every 3 days you add in a new food. Good luck I hope you can get a handle on it this is definitely not normal. Obv we all here are pulling for you.
  • Jenni129
    Jenni129 Posts: 692 Member
    I'm dealing with same issues with GI problems... I ignored it for months and figured why bother seeing a doctor if I'm not in pain, etc.? It was a good thing I went (yesterday as a matter of fact) because now I found out it could be a huge variety of things and LOTS of tests being done right now - all through my general practitioner. She said if she can't find a solution, then I will be referred to the GI specialist. Please go to the doctor and stop trying to diagnose yourself. You will save yourself a lot of wasted time and effort. They deal with this sort of stuff all the time so no reason to be embarrassed either.
  • eating4me
    eating4me Posts: 239 Member
    Not anything to be embarrassed about. I'm an RN. Please see a Dr. as soon as possible, preferably a GI specialist. In the meantime, get some probiotic supplements, and start those; they won't hurt, and they may help somewhat. You need to get an accurate diagnosis; please don't wait.
  • lynleeg88
    lynleeg88 Posts: 104 Member
    Anybody reading this that has similar issues as the OP and is embarrassed by it - please don't be, and please go see a Gastroenterologist ASAP. It could save your life.

    I had similar issues as OP. I went to the doctor regularly from the age of 13 on complaining of these symptoms and was blown off every time. I was told I was probably lactose intolerant, probably wheat sensitive, maybe under a lot of teenage stress I was suppressing, on and on with the possibilities, but it was always treated as not that big a deal - like I should just grin and bear it. So I did. Until I was 21. Thanksgiving day, I woke up with HORRIFIC pain. But after 8 years of being told to grin and bear it and being made to feel embarrassed and whiny every time I went to the doctor for help, I tried to work through the pain and ignore it. I was in excruciating pain for half a day, but trying my best to be a tough guy about it. Finally, I went on Web MD and came up with "burst appendix" and how serious that could be, so decided I should maybe go to the ER. It was a tough decision. I told the nurse checking me in that it was probably just gas and I felt so ridiculous even being there. Turns out my intestines had perforated, among other things, and I needed emergency surgery - I was told if I'd waited even an hour longer, I may not have survived. After an extended stay at the hospital and tons of missed work, I was left with a pile of bills, a massive ugly scar, and a diagnosis. All those years of suffering - turns out I had Crohn's Disease. If it had been caught earlier, if someone had listened to me, if I'd pushed harder - there are medications that can help you live a more normal life and even keep you in remission. All the pain and financial burden could have been avoided if I'd been more proactive, if I'd pushed back on doctors instead of just accepting their dismissive attitude.

    Don't let it go, don't tough it out. Your body is letting you know something is wrong - listen to it. Please.

    I did not know that Crohns Disease could do that! That is scary. I've told my husband alot of what everyone here said about this and that I want to go see a doctor soon, in the next two months max. We have little money, is why, and there is still co-pay. He is supportive of me in all, but I don't think he realizes as I do now how serious this can be. I figured the worse was IBS or a food allergy I'd have to figure out a away around. Like gluten, I would have noooo idea how to do a gluten free diet.
  • lynleeg88
    lynleeg88 Posts: 104 Member
    My daughter was having the same issue and it turned out to be a parasite.

    That is not pleasant sounding, I hope she made a full recovery.