Prescription Steroids and Struggling!!!!

I have battled with breathing issues since November and have been on countless steroid injections as well as oral steroids. I am currently on Medrol for my breathing and will continue to be on it for 6 to 8 more weeks. As you can probably guess, my appetite is through the roof. I have not had any type of caffeinated drinks since December, the only beverage I drink is water, and I try to eat lots of protein during the day. My MFP set me to 1290 calories a day to lose 1 pound a week; however, I was literally starving all the time due to the medication. I changed my settings to lose .5 pounds a week and I am currently at 1590 calories a day and seem to still struggle to stay within the limits. I am not entirely concerned with losing weight while I am taking this medicine (although it would be nice), but rather keep from gaining any weight. I guess I am wondering if anyone else has struggled with taking medication that makes you hungry and how you stay within your limits. Any advice would be appreciated!

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Replies

  • Posts: 5,922 Member
    If you're not concerned with losing, set your calorie goal to your maintenace for now. Speaking from experience, the best way to make use of the steroids to correct breathing issues is to really make use of them; exercise often and push yourself (within safe boundaries ofc.)
  • Posts: 301 Member
    Yes, I've been on steroids...fortunately just short term, but they did make me really hungry. I didn't lose while I was on them, but didn't gain either.

    I would say exercise as much as you can...for one thing you can eat more. Also it distracts you from food...gives you something healthy to focus on.
  • Posts: 119 Member
    I have Severe asthma and allergies, I have had so many steroids in my life it has affected my bone density to the point I have ostiopenia. -2.0

    What worked for me is a protein that took longer to digest. I drank Casein protein shakes to keep my hunger at bay.
    I understand the hunger, it is a very bad side effect of Steroids.
  • Posts: 505 Member
    Your type of steroids is nothing like those used by athletes. Not even close so stop using that as an excuse for overeating.
  • Posts: 5,922 Member
    Your type of steroids is nothing like those used by athletes. Not even close so stop using that as an excuse for overeating.
    You've never been prescribed them, have you?
  • Posts: 19 Member
    Your type of steroids is nothing like those used by athletes. Not even close so stop using that as an excuse for overeating.

    Not very helpful - OP didn't claim to be an athlete, and prescription steroids are known to increase appetite.

    If you can maintain on a good daily amount of protein and unsaturated fats (nuts are your friends!), that would be what I would suggest.
  • Posts: 912 Member
    You've never been prescribed them, have you?

    Obviously not...

    OP, I'd set cals to maintenance and ride out the steroid storm.
  • Posts: 977 Member
    I would just work out more so that I would have more calories to eat. It sounds like this is something that you will have to live with.
  • Posts: 1,441 Member
    I'd work out but at a lower heart rate-i too have asthma. I find when my lungs are crappy I can swim slowly, walk slowly and bike. All will help burn calories and yet still allow me to breathe.
  • I am not interested in being a professional athlete, I am just interested in being healthy. If increased appetite was not a side effect, my doctor would not be monitoring me so closely. Taking these meds have been a priority for me my entire life and believe me, I try my best not to overeat; that is the reason I am using MFP. I merely asked for advice from those who HAVE gone through it, so please don't judge unless you have been there and done that.
  • To all the others who have posted, I will definitely try to exercise more now since my lungs are beginning to improve. So far my lung function has went from 62% to 80ish, so I should be able to tolerate a bit more now. Thank you for being encouraging!!!
  • Posts: 26,371 Member
    Just wanted to say I have asthma too and totally sympathize... I was hospitalized because of it two years ago and had to have steroids 14 months ago and I'm terrified it's going to happen again... I have a chest cold right now and really worried!
  • Posts: 505 Member
    You've never been prescribed them, have you?
    no, I've used the real stuff and know the difference
  • Posts: 793 Member
    If you're not concerned with losing, set your calorie goal to your maintenace for now. Speaking from experience, the best way to make use of the steroids to correct breathing issues is to really make use of them; exercise often and push yourself (within safe boundaries ofc.)

    Definitely this- I have battled with asthma and allergies my entire life and I call it the "Prednisone Rampage" because I want to eat all the things. Every last one of them and if I don't get them, I get hangry something fierce. And it sucks a lot when you can't breath enough to earn the calories to do it. Be kind to yourself right now, do what you can with what you've got and remember that as hard as it is... Cardio will improve and continue to improve your lung function. (I managed to get myself off of Singular and Advair daily to just a rescue inhaler and claritan as needed with lots of cardio).

    Good Luck and I hope you feel better soon.
  • Posts: 191 Member
    So sorry you're having to deal with this. I haven't had your issues but I can empathize. I've been really hungry lately and don't have an excuse. It's that achy, empty to the pit of your stomach hungry that almost hurts. I have also set myself to maintenance calories to try to get past this. My other go-to is the type of foods I eat. Along with raising my fat and protein percentages, I eat as many raw veggies and fruits as I can. I also do popcorn because it makes me fill full. Anything to fill me up. Good luck and hang in there!
  • Posts: 1,418 Member
    Your type of steroids is nothing like those used by athletes. Not even close so stop using that as an excuse for overeating.

    Corticosteroids have the side effect of turning off the "I'm full" switch, or at least damaging it.
    In the future shut up about topics about which you clearly know NOTHING.

  • Definitely this- I have battled with asthma and allergies my entire life and I call it the "Prednisone Rampage" because I want to eat all the things. Every last one of them and if I don't get them, I get hangry something fierce. And it sucks a lot when you can't breath enough to earn the calories to do it. Be kind to yourself right now, do what you can with what you've got and remember that as hard as it is... Cardio will improve and continue to improve your lung function. (I managed to get myself off of Singular and Advair daily to just a rescue inhaler and claritan as needed with lots of cardio).

    Good Luck and I hope you feel better soon.

    Congratulations on getting off of the meds. Thank you for your encouragement!!!!
  • I'll let you know when you can tell me what I can say princess.

    I am not really sure how we got from needing advice on how to cope with a lifelong illness to talking about stimulants used by athletes. But anyway . . . . I wish you the best!
  • So sorry you're having to deal with this. I haven't had your issues but I can empathize. I've been really hungry lately and don't have an excuse. It's that achy, empty to the pit of your stomach hungry that almost hurts. I have also set myself to maintenance calories to try to get past this. My other go-to is the type of foods I eat. Along with raising my fat and protein percentages, I eat as many raw veggies and fruits as I can. I also do popcorn because it makes me fill full. Anything to fill me up. Good luck and hang in there!

    It is pretty much the same nagging feeling on the steroids. I am trying to fill up on raw fruits and veggies and try to keep my meals packed with healthy proteins. Thank you for the encouragement and I wish you the best of luck . . . . you will make it through this rough patch :)
  • Posts: 34 Member
    It is definitely a struggle and I feel your pain. It's truly a situation that calls for mental fortitude and a mind-over-matter type of attitude. You have to train your mind to know the difference between the steroid hunger and the actual, genuine my-body-needs-nutrients hunger. Then you have to summon the willpower to ignore the steroid hunger. It's a challenge, to say the least.

    But it can be overcome...or at least managed.

    I've been on prednisone for over 13 months to treat an autoimmune disorder. I started taking it the same week I started counting calories here on MFP. Perhaps my ticker can give someone else a bit of encouragement to show that there is hope for success. Best wishes to you! You can totally do this.
  • Posts: 3,556 Member
    I've been on and off prednisone and other steroids for lung issues, when I started losing I was taking a very large dose daily and yes it does increase your hunger, for me this is where logging really helped.

    My body had no clue if I was hungry or not, but I set the amount of calories I was eating and when I hit that number I stopped. I lost about 50 lbs while on them, now luckily because my health has significantly improved I was able to stop taking them.

    Good Luck to you!
  • Posts: 1,706 Member
    I have battled with breathing issues since November and have been on countless steroid injections as well as oral steroids. I am currently on Medrol for my breathing and will continue to be on it for 6 to 8 more weeks. As you can probably guess, my appetite is through the roof. I have not had any type of caffeinated drinks since December, the only beverage I drink is water, and I try to eat lots of protein during the day. My MFP set me to 1290 calories a day to lose 1 pound a week; however, I was literally starving all the time due to the medication. I changed my settings to lose .5 pounds a week and I am currently at 1590 calories a day and seem to still struggle to stay within the limits. I am not entirely concerned with losing weight while I am taking this medicine (although it would be nice), but rather keep from gaining any weight. I guess I am wondering if anyone else has struggled with taking medication that makes you hungry and how you stay within your limits. Any advice would be appreciated!

    I understand 100% what you are saying ( just had my knee injected this morning with Cortisone, since I have Lupus and RA ).
    I belong to a Autoimmune Disease support group and for the last two years the facilitators have stressed over and over that the increase of appetite from certain medications is no indication of real hunger. This means that we have a choice; a choice to give in the artificial craving for food or to practice what they call " avoidance techniques " to not eat more thn the calories we need to stay well and healthy.
    I eat 1200 calories a day of whole foods ( which is a lot more food by volume than a diet that includes processed foods ) mainly because I am over 65 and under five feet and have lost over 45 pounds since the middle of last April, even though I take among other medicines several 100 mgs of cortisone/steroids and Dexemathasone not including the shots a day.
    Weight loss under those difficult circumstances was possible for me, once I realized that I could out trick my appetite and eat within my calorie deficit. My food log is open....in case you are interested. The low calorie days are " 5:2 " days.

    ETA: I should add that since Lupus has affected my lungs and RA my hips and knees I exercise modestly walking about 45 minutes each day. I do however really watch my food intake, since from past experience I know that the right diet allows a better weight loss than most exercise. I have since I started ten month ago not have had a cheat meal or day ( which I feel I don't need, because I eat exactly the things I like, having eaten whole foods all my life that is not a problem ) and have only gone over my calories maybe twice by no more than 200 calories. I can only speak for myself, but can say that that regimen has worked well for me.
    I know many people who have in the past told me that cheat meals and days are necessary to stay the course. Often those are younger people who do not have chronic/incurable illnesses who do not understand that under certain circumstances general rules do not always apply.
    I wish you the best of luck and success on your journey !
  • Posts: 119 Member
    no, I've used the real stuff and know the difference

    You don't even know what your talking about. So move on. The real stuff, she isn't talking about steroids that muscle heads take, she is talking about steroids for a medical condition. A totally different drug.
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