Uhrm.. Pituitary Tumor?

xSirensSong
xSirensSong Posts: 615 Member
edited November 2024 in Motivation and Support
Okee dokee, first, the fun stuff: I'm Meagen (Or you can call me Sirens), 23 from Indiana, & am into video games ~ League of Legends every night & for hours on end on the weekends, ESO, Guild Wars, Skyrim, Minecraft, silly games on Steam, Smite, Dawnstar, yada yada yada.. A goal of mine is to be able to cosplay once I get to my goal weight: so super excited about that!

I have around 75 more pounds to lose in total. I break my goals down into nerdy-licious mini goals in order to break up the large number that stares at me in the face. Every 5% of my body weight lost, I reward myself with something NOT food related. You can check out my profile if you'd like to see how I've got it goin' on. Also, I break down my ticker that way. Once I hit that goal, I'll redo my ticker & add on another 11 or so pounds to lose.

And now the not so fun stuff that brings me to this post: I was diagnosed with PCOS/Insulin Resistance & hypothyroidism last year around July. I didn't really start taking the diagnosis seriously until I was weighing in at 225 pounds & all that I saw was weight gain consistently. I went to my OB/GYN feeling so down, stuck, & like there was no way out. I felt so embarrassed breaking down in front of her, just crying because I didn't know what else to do. She was very comforting & has helped me every step of the way. I started feeling better, lost a little bit of weight, but now, I'm starting to get back to that very emotional place.

About a week ago, I had some more blood tests done because nothing is happening (7 pounds lost since last November). My levels in some areas came back very high & now I'll be going in to confirm the presence of a tumor on my Pituitary Gland in my brain. My doctor is 99% certain, the tests will just confirm this. I'm a bit scared at this point because I am so young & am having to deal with this, but on the other hand, this could be the 'answer' to everything that is going on with me.

Support is much needed & I'd love to meet new people along the way, anyway. Any takers or tips or pointers for someone going through this?

~Sirens :flowerforyou:

Replies

  • Point202
    Point202 Posts: 55 Member
    I have no pointers, but just wanted to say good luck. I can imagine how scary that must be.
  • goldengirl111
    goldengirl111 Posts: 684 Member
    Okee dokee, first, the fun stuff: I'm Meagen (Or you can call me Sirens), 23 from Indiana, & am into video games ~ League of Legends every night & for hours on end on the weekends, ESO, Guild Wars, Skyrim, Minecraft, silly games on Steam, Smite, Dawnstar, yada yada yada.. A goal of mine is to be able to cosplay once I get to my goal weight: so super excited about that!

    I have around 75 more pounds to lose in total. I break my goals down into nerdy-licious mini goals in order to break up the large number that stares at me in the face. Every 5% of my body weight lost, I reward myself with something NOT food related. You can check out my profile if you'd like to see how I've got it goin' on. Also, I break down my ticker that way. Once I hit that goal, I'll redo my ticker & add on another 11 or so pounds to lose.

    And now the not so fun stuff that brings me to this post: I was diagnosed with PCOS/Insulin Resistance & hypothyroidism last year around July. I didn't really start taking the diagnosis seriously until I was weighing in at 225 pounds & all that I saw was weight gain consistently. I went to my OB/GYN feeling so down, stuck, & like there was no way out. I felt so embarrassed breaking down in front of her, just crying because I didn't know what else to do. She was very comforting & has helped me every step of the way. I started feeling better, lost a little bit of weight, but now, I'm starting to get back to that very emotional place.

    About a week ago, I had some more blood tests done because nothing is happening (7 pounds lost since last November). My levels in some areas came back very high & now I'll be going in to confirm the presence of a tumor on my Pituitary Gland in my brain. My doctor is 99% certain, the tests will just confirm this. I'm a bit scared at this point because I am so young & am having to deal with this, but on the other hand, this could be the 'answer' to everything that is going on with me.

    Support is much needed & I'd love to meet new people along the way, anyway. Any takers or tips or pointers for someone going through this?

    ~Sirens :flowerforyou:

    How are you doing now? Friend me.
  • goldengirl111
    goldengirl111 Posts: 684 Member
    That type of tumor is usually benign. The dr will put you on meds...and schedule an MRI
  • azulvioleta6
    azulvioleta6 Posts: 4,195 Member
    It's a relatively minor surgery, as brain surgeries go. :)

    I had an aneurysm many years ago (two brain surgeries to fix that, including a full craniotomy) and my pituitary subsequently failed. So now I have hypopituitarism, which is what will likely happen to you after you have the tumor removed...if you aren't already there. I also have PCOS and thyroid problems.

    There are injections daily. Losing weight is difficult, but possible. You are already in the right place--exercise is important, as is eating a low-to-moderate carb diet. Tracking helps a lot to keep things under control.

    Start looking for an endocrinologist who is a pituitary specialist. They are hard to find, but you will need that specialized care.
  • nutmegoreo
    nutmegoreo Posts: 15,532 Member
    It's a relatively minor surgery, as brain surgeries go. :)

    I had an aneurysm many years ago (two brain surgeries to fix that, including a full craniotomy) and my pituitary subsequently failed. So now I have hypopituitarism, which is what will likely happen to you after you have the tumor removed...if you aren't already there. I also have PCOS and thyroid problems.

    There are injections daily. Losing weight is difficult, but possible. You are already in the right place--exercise is important, as is eating a low-to-moderate carb diet. Tracking helps a lot to keep things under control.

    Start looking for an endocrinologist who is a pituitary specialist. They are hard to find, but you will need that specialized care.

    It's a two year old thread. Hopefully OP has gotten the care she needed.
  • azulvioleta6
    azulvioleta6 Posts: 4,195 Member
    Oops...someone else dragged this up.
This discussion has been closed.