Gluten Intollerant and Coeliacs
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meganb2506
Posts: 24 Member
Not too long ago I found out I am wheat intollerant at the very least (suggested to cut out all gluten and undergoing further tests later this month), I am still trying to adjust to my new lifestyle.
I am looking for some guidance as to what people in this situation grab on the go, I try to avoid this as much as possible and have started to plan dinners and lunches at work. I find however when I am out running around the shops all day, or a day packed full of chores where I would normally grab a sandwhich or something to eat on the go I struggle to just pick something up.
Also I am heading on holiday and worry about the lack of gluten free foods I will be able to find out in Spain.
Any advice or tasty recipies would be great
I am looking for some guidance as to what people in this situation grab on the go, I try to avoid this as much as possible and have started to plan dinners and lunches at work. I find however when I am out running around the shops all day, or a day packed full of chores where I would normally grab a sandwhich or something to eat on the go I struggle to just pick something up.
Also I am heading on holiday and worry about the lack of gluten free foods I will be able to find out in Spain.
Any advice or tasty recipies would be great
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Replies
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Off topic - Sorry! Just a side note - check your make up and lotion and stuff for gluten. I don't know if you have skin redness/rash type stuff, but gluten is a common binding agent used in make ups and lotion. They are still researching if gluten on the skin has the same effect as when consumed, and there is no conclusive evidence yet. However, some of my friends with gluten issues swear by buying products that are gluten free. :flowerforyou:
As for snacks on the go, maybe stop in a grocery store instead of a restaurant and grab the cut up fruits and veggies?0 -
You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
Sorry, maybe you misunderstood, I didn't want to start a discussion on what I or others am suffering from, as I have said I am undergoing tests so don't have all the correct info yet. Just wanted some food tips etc. Thanks for your input though, very helpful.0 -
Off topic - Sorry! Just a side note - check your make up and lotion and stuff for gluten. I don't know if you have skin redness/rash type stuff, but gluten is a common binding agent used in make ups and lotion. They are still researching if gluten on the skin has the same effect as when consumed, and there is no conclusive evidence yet. However, some of my friends with gluten issues swear by buying products that are gluten free. :flowerforyou:
As for snacks on the go, maybe stop in a grocery store instead of a restaurant and grab the cut up fruits and veggies?
Thank you I will check it all out 0 -
You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
Sorry, maybe you misunderstood, I didn't want to start a discussion on what I or others am suffering from, as I have said I am undergoing tests so don't have all the correct info yet. Just wanted some food tips etc. Thanks for your input though, very helpful.
Do NOT eliminate gluten until you are tested for celiac. The test works by detecting antibodies that are present when ingesting gluten. If you eliminate gluten before being tested, you may get a false-negative result.0 -
I am not a diagnosed coeliac but I do get stomach aches if I eat too much wheat, so I tend to avoid it in most meals.
You do have to be a bit more prepared i,e take lunch to work but quite a few places now sell GF sandwiches (boots, m & S, starbucks, costa are the ones I have found). Or choose a salad instead of a sandwich. You can buy lots of snack type food which are GF i.e carrot sticks, grapes, fruit etc but I do tend to have a couple of GF cereal bars/snacks etc in my bag most of the time.
Bread options are getting better- you can now get wraps/rolls/bread etc but they are more pricey.
I would be surprised to find GF stuff on holiday- you may have to work around it as much as you can.
The good thing, though is it is pretty easy to eat GF if you eat a healthy diet- you just have to find GF carbs and you are pretty much ok and it is more about cooking from scratch to avoid gluten which can only be a good thing!
Good luck :-)0 -
You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
Sorry, maybe you misunderstood, I didn't want to start a discussion on what I or others am suffering from, as I have said I am undergoing tests so don't have all the correct info yet. Just wanted some food tips etc. Thanks for your input though, very helpful.
Do NOT eliminate gluten until you are tested for celiac. The test works by detecting antibodies that are present when ingesting gluten. If you eliminate gluten before being tested, you may get a false-negative result.
Thank you - Just for everyone's info:
I ate gluten and I had my blood test done, it showed raised numbers - something scientific about 'inconclusive results which could be either way', Doc said cut out all wheat, in 3 months we will reintroduce wheat and redo the tests. It hasn't been 3 months yet and I am still have issues, am booked in for an intestine biopsy at the end of the month.0 -
Sorry if I've taken your last post up wrong, but you are off gluten at the moment and getting a biopsy at the end of THIS month, when you'll still be off gluten? That's very unusual. I've several coeliacs in my family and they all had to stay ON gluten until the biopsy or it wouldn't be accurate.0
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Gluten causes inflammation in your body, so therefore I am intolerant to it as well. I have forestier's disease, its a spine condition that allows new bony to grow and pull at my muscle ligaments..which causes inflammation. So yes, people can be intolerant and allergic as well.0
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You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
Sorry, maybe you misunderstood, I didn't want to start a discussion on what I or others am suffering from, as I have said I am undergoing tests so don't have all the correct info yet. Just wanted some food tips etc. Thanks for your input though, very helpful.
I believe stated that you had a wheat sensitivity in your post, which is quite common, even for those without celiac.
I have the same thing, and do much better without wheat in my diet. I simply cut as much bread products out of my diet as possible. At restaurants I simply skip over the bread and order grilled chicken or fish. If I want a burger, I just take off the bun. When we go to Subway, I will order a foot long sandwich and just eat the insides as a salad.
I have a great flax seed roll recipe that I make sometimes and use to make sandwiches. It is easy and low carb as well as wheat and gluten free.
You can sub rice flour or oatmeal for many recipes that call for flour. There are tons of websites online with Gluten free recipes. Just google 'gluten free recipes' and start reading thru them.
I feel tons better after eliminating wheat. Best wishes.0 -
You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
Sorry, maybe you misunderstood, I didn't want to start a discussion on what I or others am suffering from, as I have said I am undergoing tests so don't have all the correct info yet. Just wanted some food tips etc. Thanks for your input though, very helpful.
I believe stated that you had a wheat sensitivity in your post, which is quite common, even for those without celiac.
I have the same thing, and do much better without wheat in my diet. I simply cut as much bread products out of my diet as possible. At restaurants I simply skip over the bread and order grilled chicken or fish. If I want a burger, I just take off the bun. When we go to Subway, I will order a foot long sandwich and just eat the insides as a salad.
I have a great flax seed roll recipe that I make sometimes and use to make sandwiches. It is easy and low carb as well as wheat and gluten free.
You can sub rice flour or oatmeal for many recipes that call for flour. There are tons of websites online with Gluten free recipes. Just google 'gluten free recipes' and start reading thru them.
I feel tons better after eliminating wheat. Best wishes.
Thanks for this, Subway is the one i really miss, might have to start making my own bread to make my own now.0 -
Sorry if I've taken your last post up wrong, but you are off gluten at the moment and getting a biopsy at the end of THIS month, when you'll still be off gluten? That's very unusual. I've several coeliacs in my family and they all had to stay ON gluten until the biopsy or it wouldn't be accurate.
Hoping the doc - who is a specialist in the UK - will be able to give me more info on what to eat in the run up to the biospy.0 -
You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
That isn't actually true. People have sensitivities to lots of different things and might still have the ability to digest it. I have a sensitivity to dairy. My body can *digest* it, but I get some uncomfortable side effects if I consume dairy in large amounts (think ice cream, or straight milk from a glass).0 -
Hi Megan,
Subway in the UK will make you a salad rather than a sub. More lettuce, no bread, but otherwise the same... :-)
Pizza Express and others do gluten free bases too!
My history sounds very similar to yours... I had a colonoscopy, polyps removed and a biopsy, which luckily showed nothing of concern. I'm not celiac, but was still advised to avoid as much wheat as possible. I feel so much better if I do!
I did have to eat gluten before the procedures, but I'm sure you will get appropriate advice from your specialist. Best of luck!
I find the following good on the go snacks:
take with you stuff - I always have 1 or more of these in my bag
beef or chicken jerky or biltong (dried meat basically, chewy and an aquired taste, but great for an on the go snack)
fresh fruit
dried fruit and/ or nuts - I mostly bulk buy these from a discounter like HomeBargains, as they are really cheap there
GF snack bars ( bars, EN gluten free etc.) - most larger supermarkets now have a "freefrom" section
Popcorn - again, supermarkets have multipacks (individual servings) of sweet or savoury flavours (but double check the ingredients), or make your own
Buy out and about
sushi
boiled eggs
salad bowls
as others have said, many stores now do lunch food that does not contain gluten - the M&S mouli wraps are yummy
cooked meats/ cheese if I am desperate!
Hope that helps...0 -
I have coeliac. You must include gluten in your diet every single day 6 weeks or more before your biopsy, or some inflammation may go down and give the gut the appearance of not being very damaged. You're doing what some call 'the gluten challenge' which a lot of doctors here in the UK disapprove of, as you start to feel better and then get an almighty crash in your health when you reintroduce it. Having high markers in your blood for anti-gluten antibodies does suggest coeliac, but as someone else said you may get a false result from the biopsy if you've cut out all gluten already. Best of luck though, I hope it works out well for you, being diagnosed and going gluten-free was the best thing that ever happened to me, after years of terrible stomach pain and lethargy and missing a massive chunk of high school and a life in general, I feel so much better.0
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Hi Megan,
Subway in the UK will make you a salad rather than a sub. More lettuce, no bread, but otherwise the same... :-)
Pizza Express and others do gluten free bases too!
My history sounds very similar to yours... I had a colonoscopy, polyps removed and a biopsy, which luckily showed nothing of concern. I'm not celiac, but was still advised to avoid as much wheat as possible. I feel so much better if I do!
I did have to eat gluten before the procedures, but I'm sure you will get appropriate advice from your specialist. Best of luck!
I find the following good on the go snacks:
take with you stuff - I always have 1 or more of these in my bag
beef or chicken jerky or biltong (dried meat basically, chewy and an aquired taste, but great for an on the go snack)
fresh fruit
dried fruit and/ or nuts - I mostly bulk buy these from a discounter like HomeBargains, as they are really cheap there
GF snack bars ( bars, EN gluten free etc.) - most larger supermarkets now have a "freefrom" section
Popcorn - again, supermarkets have multipacks (individual servings) of sweet or savoury flavours (but double check the ingredients), or make your own
Buy out and about
sushi
boiled eggs
salad bowls
as others have said, many stores now do lunch food that does not contain gluten - the M&S mouli wraps are yummy
cooked meats/ cheese if I am desperate!
Hope that helps...
Thank you M&S are going to be seeing me very soon! Some great ideas 0 -
Don't know if this will be any use but Sainsbury's have a list lf all their GF free products. You can download it here:
http://www.sainsburys-live-well-for-less.co.uk/recipes-inspiration/healthier-eating/health-advice/product-guidance-lists/0 -
Hey I actually bring with my own gluten free bread. Wraps can be made with only lettuce wrapping it. Popcorn can be a great snack. Focus on what you can eat! Fruits, Vegetables, Fish, Chicken, meat, dairy.0
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You have celiac disease, or you don't. Nobody is "sensitive" or 'allergic" to gluten. You either have the ability to digest gluten, or you don't. The end.
NOT TRUE!!! My 4 year old was tested via blood and scope for Celiac as she showed all signs and more. Both tests were negative. After 3 hospitalizations by the age of 3, testing for everything under the sun, and almost losing her they finally sent her to an allergist. He did food allergy tests (we already knew about an allergy to milk) and when he placed wheat and gluten pokes on her back (yes, 2 dif ones) the gluten rose/swelled/and created a rash within seconds..before he even left the room. The wheat also showed a severe reaction, but not as quick. (he left for 20 minutes and came back to check..wheat showed pretty much as soon as he left the room, gluten before he even left). She ended up deathly allergic to gluten and when (and a moderate reaction to milk) despite all celiac tests being negative. we have since taken her off ALL wheat and gluten products, essentially the celeiac diet, and she is now thriving. Therefore, allergies and celaic ARE TWO DIFFERENT THINGS.
The Dr explained it like this: think if HIV and aids...2 dif things but both related and HIV turns into the other. Celiac and gluten allergies are similar but different. He said she MAY end up with full blown Celiac, but may not. He said basically she is the HIV of the Celiac...0 -
Feel free to join the Gluten-free group here on MFP - lots of information on a gluten-free lifestyle! My husband has Celiac's, and it was quite a diet shift for us, since we used to eat out a lot. I won't question your doctor's advice, and will just say that when my husband's blood test came back indicating potential Celiac's, he was told to not change his diet until the colonoscopy and endoscopy about 2 months later. At that time our diet was full of gluten.
The good news is, most fresh foods are gluten-free by nature, except for barley, rye, wheat, and wheat-derivative grains (e.g. spelt). The biggest issue is that gluten is a good binder, so it gets used in quite a bit of processed items, including but not limited to: salad dressings, lunch meats, pre-packaged hot dogs and hamburgers, sauces, spice mixes, chips, tortillas, etc. It can be intimidating to go shopping for this reason, and is a major reason why I cook at home for 90% of our meals. I'm in the U.S., so I'm not sure what brands are available in the U.K. I do know that finding brands that were consistent and trustworthy really helped ease the shopping. Since "Gluten-free" is becoming more mainstream, many restaurants also have begun posting gluten-free options online.
For your upcoming holiday, I'd do some research along known paths of travel and see if you can identify any restaurants that will be able to fulfill your needs. When we end up at a place that may not be able to accomodate my husband, he either orders a plain steak grilled separately on aluminum foil or a salad sans croutons and with an oil-based dressing. Enjoy your holiday and best of luck with this new lifestyle!0
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