Trokendi Anyone?
jodyblanchard
Posts: 99 Member
At a regular check up appointment this morning my doctor gave me a month's worth of samples of Trokendi. Wants me to try it. I am currently counting calories and trying to exercise. The exercise is difficult because of a torn meniscus. I can't find any reviews of the drug from users, but lots of side effect info. Anyone have any advice? Thanks. (PS I have 100 pounds to lose. I have lost 15 so far.)
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Replies
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Do you have epilepsy?0
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Do you have epilepsy?
No. This is an epilepsy/migraine med repurposed for weight loss.0 -
Has the idea of by-passing the medication and working with a qualified dietitian been discussed between the two of you?0
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How will you keep off the weight when you lose it with these meds. Keep taking them for the rest of your life?
Why not learn a healthy lifestyle, and lose the weight with calorie deficit?0 -
Do you have epilepsy?
No. This is an epilepsy/migraine med repurposed for weight loss.
We are recycling pharmaceuticals along with glass and paper, now? :huh:2 -
I know all drugs have side effects, but these are the ones listed for trokendi. They are the most common. I could not take unnecessary drugs. There is another way. It is hard work and takes a while - but it has no side effects.
Double Vision Severe
Involuntary Eye Movement Severe
Painful Periods Severe
Irregular Periods Severe
Drowsiness Severe
Cannot Focus Thoughts Severe
Loss of Memory Severe
Dizzy Severe
Fever Severe
Difficulty Speaking Severe
Nervous Severe
Numbness and Tingling Severe
Feeling Weak Severe
Confused Severe
Problem Behavior Less Severe
Breast Tenderness Less Severe
Chronic Trouble Sleeping Less Severe
Low Energy Less Severe
Temporary Redness of Face and Neck Less Severe
Weight Loss Less Severe
Feel Like Throwing Up Less Severe0 -
I took Topiramate (Trokendi, Topamax) for migraines for a while. It was the new thing at the time. Yes it did have the side effect of less appetite. But the other side effects were horrible. Numbness and tingling in the hands, vision issues, nausea, and probably the worst, forgetfulness. A nickname for it is dopamax, because you can hardly remember your own name.
I would not take that med again unless there was no other option.
Oh and, when I stopped taking it, any weight that I lost came back, and it brought friends with it.0 -
Is it like Sodoku? I wonder how much 'encouragement' your doctors being given to push these0
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I took Topiramate (Trokendi, Topamax) for migraines for a while. It was the new thing at the time. Yes it did have the side effect of less appetite. But the other side effects were horrible. Numbness and tingling in the hands, vision issues, nausea, and probably the worst, forgetfulness. A nickname for it is dopamax, because you can hardly remember your own name.
I would not take that med again unless there was no other option.
Oh and, when I stopped taking it, any weight that I lost came back, and it brought friends with it.
For me, this just about sums up why these drugs are exactly the wrong approach.0 -
I took Topiramate (Trokendi, Topamax) for migraines for a while. It was the new thing at the time. Yes it did have the side effect of less appetite. But the other side effects were horrible. Numbness and tingling in the hands, vision issues, nausea, and probably the worst, forgetfulness. A nickname for it is dopamax, because you can hardly remember your own name.
I would not take that med again unless there was no other option.
Oh and, when I stopped taking it, any weight that I lost came back, and it brought friends with it.
For me, this just about sums up why these drugs are exactly the wrong approach.
Even scarier is the fact that they don't even know HOW they work. You are messing with your brain chemistry, and that has a multitude of effects. Marketing drugs based on side effects, as this one is--it's an anti-seizure med, repurposed, does not sound like such a great idea to me.0 -
I know all drugs have side effects, but these are the ones listed for trokendi. They are the most common. I could not take unnecessary drugs. There is another way. It is hard work and takes a while - but it has no side effects.
Double Vision Severe
Involuntary Eye Movement Severe
Painful Periods Severe
Irregular Periods Severe
Drowsiness Severe
Cannot Focus Thoughts Severe
Loss of Memory Severe
Dizzy Severe
Fever Severe
Difficulty Speaking Severe
Nervous Severe
Numbness and Tingling Severe
Feeling Weak Severe
Confused Severe
Problem Behavior Less Severe
Breast Tenderness Less Severe
Chronic Trouble Sleeping Less Severe
Low Energy Less Severe
Temporary Redness of Face and Neck Less Severe
Weight Loss Less Severe
Feel Like Throwing Up Less Severe
I have decided it's not for me. My doctor has lost 50 pounds on it, but as my daughter pointed out, counting calories doesn't have side effects, doesn't cost anything, and can be done forever. Much better option.7 -
Is it like Sodoku? I wonder how much 'encouragement' your doctors being given to push these
[/quote
My doctor is a personal friend as well as my doctor. I truly doubt he's pushing it where I'm concerned. He has had such success he just wanted me to try it, but I have decided not to. Thanks for your input. :-)0 -
I took Topiramate (Trokendi, Topamax) for migraines for a while. It was the new thing at the time. Yes it did have the side effect of less appetite. But the other side effects were horrible. Numbness and tingling in the hands, vision issues, nausea, and probably the worst, forgetfulness. A nickname for it is dopamax, because you can hardly remember your own name.
I would not take that med again unless there was no other option.
Oh and, when I stopped taking it, any weight that I lost came back, and it brought friends with it.
For me, this just about sums up why these drugs are exactly the wrong approach.
Even scarier is the fact that they don't even know HOW they work. You are messing with your brain chemistry, and that has a multitude of effects. Marketing drugs based on side effects, as this one is--it's an anti-seizure med, repurposed, does not sound like such a great idea to me.
I can't find any personal stories on line about it-only side effects, etc. It's very scary.0 -
In case you need some guidance, here is a link for you:
http://www.myfitnesspal.com/topics/show/1080242-a-guide-to-get-you-started-on-your-path-to-sexypants0 -
In case you need some guidance, here is a link for you:
http://www.myfitnesspal.com/topics/show/1080242-a-guide-to-get-you-started-on-your-path-to-sexypants
I read this lengthy post. It is wonderful information. Sensible. Thank you for taking the time to share it.0 -
Hi All,
I have epilepsy and severe migraines. I have taken Topamax on and off for many years. Yes, it does have side effects, but to be fair most medications do. Risk to benefit is always on the table for consideration where medication is concerned. Would I take any kind of topiramate solely for the purpose of weight loss? Absolutely not. First of all weight loss is not a guarantee with topiramate, and even if it was the cognitive effects and hair loss that can occur make it a "no" for me. However if it's taken for seizure control or migraine reduction, and weight loss is a side effect, I'm not going to complain. I found I didn't think about food as much- a welcomed side effect for someone that has suffered from binge eating my whole life. It is being used off-lable for this disorder. I have recently started taking Trokendi XR and don't feel the cognitive side effects I did with immediate release Topamax. I don't have the link here but there is a study on line showing the difference between the group taking Trokendi XR vs immediate release and the study results showed less cognitive side effects with the XR group. As for the pins and needles, drink lots of water. I've never had a problem with my eyes. Also, pharmaceutical companies take existing molecules and tweak them all the time. It's a way to extend patents and create "new" versions of old drugs. Example- Ambien and Ambien CR. They just took the same molecule and mirrored it to create a "new" drug and keep it in the company portfolio longer.0 -
When I was on it, we used to call it Dopamax....
Weirdest anticonvulsant I've taken, but lost 50 lbs in 6 months....the memory issues were surreal though. And I was so grumpy from being hyperglycemic.
Jcat, did you have the memory issues? I'm down to try an extended release version...0 -
It ALWAYS upsets me so much when I see people judge and criticize others for following a doctor's advice to use medication to aid in weight loss. At least that person is taking SOME MEASURE to try to lose weight. MY GOD.
I have battled obesity my entire life. I have been successful at losing weight numerous times. I have also been successful at gaining it. I have been psychoanalyzed and I know I'm a stress eater, I've suffered from depression since age 12 and I eat when I'm depressed, I eat when I'm happy, I eat to celebrate, I eat just to eat. In my adult years I've learned how not to depend on food for emotional gain or loss. I've shrunk from 290 at my heaviest to 220 at my lightest. I ran my first 5K last year and I'm a very healthy and fit person. This year I started gaining weight unexpectedly. I managed to get up to 250 by Sept 9th. I was still working out. I was not eating excessively. I had no idea what was wrong. My fatigue levels were crazy, my body ached everywhere. I went to see an endocrinologist who tested me 5 ways from Sunday and discovered that I was severely Vitamin D deficient, causing my BONES to literally ache, and causing the fatigue. My doc said that other than that, my labs were those of an ATHLETE. He said I'm healthier than him! So what is wrong with me?? I have an almost 7 year old who's suffered from insomnia since age 2 1/2. He said the reason I cannot lose weight at 1200-1300 calories a day, and why I'm gaining weight at 1800-2000 a day is b/c I have a negative metabolism. He said I have to eat 800-1000 calories a day just to LOSE WEIGHT. HOW IS THAT POSSIBLE without a help of MEDICATION???
On 9/9/14 the new doctor started me on a combination of Phentermine (which I've taken about 10 times in the last 20 years with little to no success) and Trokendi XR (took once as Topomax in 2006 and hated it - forgot how to TYPE!). I've lost 20 lbs already with ZERO cognitive side effects. I'm eating 1000 healthy calories a day. I can guarantee you that if I was not on these meds, I would Not be able to stick to 1000 calories a day. Once the weight is off, how will I keep the weight off without the meds? The doc says that once the weight starts coming off my metabolism should correct itself and I can go back to a normal diet of 1600-1800 calories to sustain a healthy weight.
So BEFORE YOU JUDGE SOMEONE WHO CHOOSES TO USE MEDS TO LOSE WEIGHT, how about we just DO NOT JUDGE anyone at all, ever, period. You never know the whole story or what another person has gone through or the reason behind their issues. All the original poster was wanting to know is if someone has used the med and what it was like, but so many responders were blasting him for trying a med to lose weight. So sad. I for one am SO GLAD I decided to try Trokendi XR and for once in my 37 years I finally feel like I'm going to hit my goal weight, I won't have to worry about pre-mature arthritis, or diabetes, or any other obesity related illnesses. I will be able to run without my hip hurting, or my knees and ankles! It's an exciting new world to me!5 -
I was able to tolerate Trokendi for only 2 weeks. I felt very tired and my lungs felt funny, almost like it was difficult to breath. I am back to taking Topamax twice a day and my headaches have lessened. Weight loss has not been a side effect this time around. It would have been nice but oh well. The good news is my memory has not been impaired either. I wonder if it's because I'm not using the generic?0
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Took it, as topamax, for migraines a few years back would get rid of the migraine for about 6-8 hours which was nice. Problem was the migraine came back even worse once it wore off. Otherwise I had no side effects, not that I took it for very long the migraine returning worse than before ended that one quickly.0
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I found this thread in a Google search because I'm on it for migraines and want off it because it's so terrible and scary. After I see my neurologist tomorrow to switch off, I'm also switching to a different neurologist because I no longer trust him after my experience and after what I have read.
It makes me so dizzy, spacey, out of breath, and confused that I can't exercise. I've been angry, anxious, and suicidal. I'm normally a cheerful person. I am having trouble driving and almost got into a car wreck.
Yes, I lost weight, but it's interfering with my work, and I'm worried about my long-term physical health and brain health. The migraines were better than the drug. I also ran across this website that really scared me, and I was appalled that my doctor prescribed it after I read it.
http://www.hormonesmatter.com/topamax-drug-nine-lives/2 -
jodyblanchard wrote: »At a regular check up appointment this morning my doctor gave me a month's worth of samples of Trokendi. Wants me to try it. I am currently counting calories and trying to exercise. The exercise is difficult because of a torn meniscus. I can't find any reviews of the drug from users, but lots of side effect info. Anyone have any advice? Thanks. (PS I have 100 pounds to lose. I have lost 15 so far.)
I guess 1 question would be: is appetite actually even a problem for you? (A lot of people put weight on not due to excessive hunger or appetite..just not paying attention when lots of high-calorie foods are around, be it snacks or restaurants, or..., or snack out of boredom, etc, or the foods they tend to eat are high-calorie density/low satiety, or a few too many beers that add up over time, etc). If the answer is no, then most likely not worth the side effects to add a new medication.0 -
I actually thought this was going to be about some new game app.
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Necro3
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