Diabetic distance runner...

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So I'm getting annoyed.
First off, YES, I am talking with my endocrinologist about this...my old endo was not fantastic/as involved as I'd like...I have an appointment with a new endocrinologist (diabetes specialist/hormone specialist) in December.

In the meantime, I'm starting my run with high sugars...it seems to be the only way to not have to stop in the middle because of low blood sugars.
Today for instance, I started with a blood sugar of 298 mg/dL...a pretty darn high sugar. I bottomed out to 80...with double downward arrows on my continuous glucose monitor. So I didn't want to push it for the full 8.5 miles I really WANTED to do today...I cut it short at 7.6.

How do I increase mileage or are there any other fellow type I diabetics out there who do marathons/half marathons? I'd like to run my first half in the spring...but I'm struggling with the blood sugars so much that Increasing mileage has been super frustrating. :(
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  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    Really..."if you woke up in bed with the person above you" gets attention...but legitimate fitness questions don't. SMH
  • LornaB23
    LornaB23 Posts: 7 Member
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    Very legitimate question. But unfortunately as I don't have diabetes I can't offer you the help you need. I've been dating a Type 1 diabetic and still lots for me to learn. Just want to wish you luck! It is a process. You almost need a chemistry degree.
  • FitFroglet
    FitFroglet Posts: 219 Member
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    I'm type 1 diabetic but have only just started running, so I'm sorry, I can't help.
    Could you not take some glucose gel with you on your run and use that to keep your blood sugar up? Or maybe drink a sports drink with sugars in it?

    Sorry I couldn't help more.

    I don't think it's anything personal by the way - you're just asking for advice that very few are going to be able to give. I believe type 1 diabetes affects about 1 in 200 people and then you're asking information only a subset of those 0.5% of the population are going to be able to answer. I don't think people are being purposefully unhelpful. :flowerforyou:
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    Thanks a lot-it is unpredictable is the most frustrating thing. I can do the exact thing two days in a row, but my blood sugar does completely different things...crazy.
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    I'm type 1 diabetic but have only just started running, so I'm sorry, I can't help.
    Could you not take some glucose gel with you on your run and use that to keep your blood sugar up? Or maybe drink a sports drink with sugars in it?

    Sorry I couldn't help more.

    I don't think it's anything personal by the way - you're just asking for advice that very few are going to be able to give. I believe type 1 diabetes affects about 1 in 200 people and then you're asking information only a subset of those 0.5% of the population are going to be able to answer. I don't think people are being purposefully unhelpful. :flowerforyou:

    Good point there.

    I have thought about glucose gel, glucose shots and/or powerade/gatorade...those all seem like good ideas. Biggest issue with the powerade/gatorade is you have to carry it. :(
  • FitFroglet
    FitFroglet Posts: 219 Member
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    Good point there.

    I have thought about glucose gel, glucose shots and/or powerade/gatorade...those all seem like good ideas. Biggest issue with the powerade/gatorade is you have to carry it. :(

    My husband runs and says maybe you could use a camelbak (or any of the other brands) - although then you get sweaty-back syndrome, but that way you'd have nothing to carry.

    I have a water bottle by nathansports that fits in the palm of my hand and it's great because it doesn't feel like you're carrying anything (but I only tend to run 3-4 miles).

    Hope you find something that works for you
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    Good point there.

    I have thought about glucose gel, glucose shots and/or powerade/gatorade...those all seem like good ideas. Biggest issue with the powerade/gatorade is you have to carry it. :(

    My husband runs and says maybe you could use a camelbak (or any of the other brands) - although then you get sweaty-back syndrome, but that way you'd have nothing to carry.

    I have a water bottle by nathansports that fits in the palm of my hand and it's great because it doesn't feel like you're carrying anything (but I only tend to run 3-4 miles).

    Hope you find something that works for you

    My little sister has one of those-I was thinking about either that or a small camelback.

    And 3-4 miles is where it starts man! I started with 1 mile without stopping, that was an accomplishment. Worked my way up from there! I could have gone 8-8.5 today easy if my sugar hadn't dropped. Once you learn what your stride is/what your pace is...it gets easier :)
  • yarngiant
    yarngiant Posts: 3 Member
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    My son has type 1 and a cgms - I don't have any experience with him being a runner but we attend a conference every year (Children With Diabetes: http://www.childrenwithdiabetes.com) and there are many athletes (including professional athletes) that attend and talk about exercising with type 1 - including doing ironman competitions, marathons and even climbing Mt. Everest. You might want to check out that website as there are many adults that attend and an adult program that runs concurrently with ones for kids and parents, etc.

    This guy comes to the CWD conferences and is currently running across Canada to raise money and awareness for type 1: http://www.outrundiabetes.ca

    The CWD website also has a forum (all focused on type 1) and I suggest you go there and ask the question because I think you'd get a lot of responses. I know one of the athletes (a world class biker) talked about how he got into biking because he liked to eat Snickers so the more he was on his bike the more Snickers he could eat (to keep up his BG)...lol!

    Best of luck to you...
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    Oh my gosh you rule...thanks so much for all the references! I'll look at them immediately!
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    My son has type 1 and a cgms - I don't have any experience with him being a runner but we attend a conference every year (Children With Diabetes: http://www.childrenwithdiabetes.com) and there are many athletes (including professional athletes) that attend and talk about exercising with type 1 - including doing ironman competitions, marathons and even climbing Mt. Everest. You might want to check out that website as there are many adults that attend and an adult program that runs concurrently with ones for kids and parents, etc.

    This guy comes to the CWD conferences and is currently running across Canada to raise money and awareness for type 1: http://www.outrundiabetes.ca

    The CWD website also has a forum (all focused on type 1) and I suggest you go there and ask the question because I think you'd get a lot of responses. I know one of the athletes (a world class biker) talked about how he got into biking because he liked to eat Snickers so the more he was on his bike the more Snickers he could eat (to keep up his BG)...lol!

    Best of luck to you...

    Thank you so much for the great information-I'll be sure to go check it out.
    It really is helpful. I'd love to, by this time next year, do a marathon...it may be longer than that before I can do one...maybe a half triathlon. My goal this year was to do the tough mudder, but my entire team quit so I'm going to try to join an established team next year to do that.
  • GlucernaBrand
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    There's a great book on exercise for people with diabetes by Sheri Colberg: The Diabetic Athlete's Handbook, that I think you'll find really helpful. ~Lynn /Glucerna
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    There's a great book on exercise for people with diabetes by Sheri Colberg: The Diabetic Athlete's Handbook, that I think you'll find really helpful. ~Lynn /Glucerna

    Thanks so much, Lynn!

    I also spoke with my sister yesterday (she did the Boston marathon a few years back) and everything I've read also says fueling is really important for all athletes, but for a Diabetic, timing might be a little different.

    I bought some fun size snickers bars so I'm going to see if one of those 20 minutes into the run doesn't make a difference toward the end.
    Also going to significantly reduce my basal rate, didn't take any insulin with my 1/2 cup cooked oatmeal and coffee. I really REALLY want that 8 miles today!
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    That worked!!!! Fueling, baby...a lot of fueling the whole time.
  • GlucernaBrand
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    It's great to hear that you're finding ways to fuel your body while you're running, and that it's helping you keep your blood sugar levels in the range you want. You might try keeping a log of your runs, noting the weather, time of day, how far you run, your pace, how you feel overall, as well as what and when you eat and your blood sugar levels. All this information will help you finetune everything so you can meet your running goals. Have fun! ~Lynn /Glucerna
  • tootsi8
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    Hello there. I googled "diabetes camelbak running" and guess where it landed me???

    I am now going to write a novel. 8 )

    I've been Type 1 (T1) since I was 13 so this disease was integrated into my life including the fitness/sports side of it. I ran a half marathon in May and got super pissed at my blood sugars (bs). I was fine the first 5 miles. I got low bs of 80 around mile 3.5 and ate a gel packs (25carbs) and ran on. I check my bs about every 1.5 miles or if its feeling high or low. My biggest issue with long distance running has been having to stop running so that I digest the carbs. My stomach wouldn't do it because I was using all my blood/energy to keep moving. So I began walking at mile 5. I ate another gel pack. A mile later I was at the aid station. I had 4 cups of watered down gatorade. Mile 7 it was still low. I was pissed and knew my time was shot so I went into a pub and slammed a Guinness and ate some pretzels. Guinness is the perfect beer when you need lots of carbs!!

    A mile later it was still low. I stopped into a Methodist church who had a coffee bar and pastries and ate 2 donuts and got 3 for the road since I was out of gel packs. Around mile 10 my bs was coming up to 95 so I took off and finished. It felt good finally getting to run again and passing all the folks who were walking. I know some of them may have had health issues too but the majority didn't. I get pissed off at people sometimes when I see them not living up to what they are capable of when I try so hard to keep my bs in check and even then it can go crazy for seemingly no reason. I keep pretty tight control and my A1c is 6.2.

    All us diabetics are different so take all I say below and integrate what you want and leave the rest.

    WARM UP:
    It sounds like you've got a bunch of insulin on board if your bs is dropping that drastically. To make sure I've got all my fast acting insulin (I use humalog) out of my system I do active warm ups. I do sprints, high knees, butt kickers, dipsy doos (shuffling sideways switching my feet back and forth) and may walk a brisk half mile. I've read several articles/medical blogs saying that you SHOULD NOT exercise with a bs over 225 because it will really do some damage having that thick sugary blood slamming thru your veins and arteries. The warm up will get your bs into range (at least less than 200) so you can get the most out of your run.

    LOW BS TREATMENT:
    I run with juice and gel packs.
    My long acting insulin (Lantus) will drop my bs while I run. If my bs is 100-125 I'll drink 15 carbs to keep it in the sweet spot.
    If its below 100 I'll have a sports gel (25carbs) to raise it into the sweet spot (ironic humor!!) and keep it there.

    CARB LOADING???
    Being the diabetic that I am, I don't have the luxury of carb loading with tons of pasta days before a race. I have to eat things that have nutrition facts so I can be laser focused on my bs. We are TYPE 1 diabetics and, therefore, are blessed with plenty of pis and vinegar and motivation to do our thing regardless of circumstances. I'm 6'3" and 265lbs and have a gut but I can move it around when I need to. Playing rugby the last 15 years has helped with that. It gives me great pleasure to pick a target out that I outweigh by 85lbs and run past them especially when they look like a typical streamlined runner.

    I'm gonna get a marathon camelpak for a 25k trail run in February in the Ozark Mountains of northwest AR. It will be cold, icy and have 2 creek crossings. I'll keep a heavily watered down juice/water mix to drink on to keep my bs elevated throughout the race. In the front pockets I will have gel packs. Guess what'll be in the water proof shoulder pockets....my glucometer and insulin!!

    Since all us wonderful Type 1's are affected in different ways by different things, you're gonna have to experiment. You're doing the right things by doing research and those articles are great. I treat my diabetes like I cook dinner. I look at 3-4 recipes for the same thing and meld them together to make what I want. Take all the info and make your own way tailored to what affects you.

    You go kick that 1/2 marathon's butt. If you need to, you can listen to my life mantra song to aid your mindset:

    "Its a long way to the top if you wanna rock and roll" ~~AC/DC~~

    Sorry I had a lot on my mind. Plus I'm waiting on these granola bars and coffee to raise my low bs so I can go run 4-5 miles in the dark. I had to fill the time some way!!

    end novel 8 )
  • T1DCarnivoreRunner
    T1DCarnivoreRunner Posts: 11,502 Member
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    First, I suggest asking on the type 1 group... I'll come back and get you a link to the group. But remember that groups have been poorly attended since the change. I'm a type 1, but not a runner. I will spend a day hiking, though (I plan to hike 26.5 miles on Sat. - if that works out, it will be about the same distance but more time and while carrying a heavier load than one would in a marathon) and will speak based on my experience with cardio in general with type 1.

    Second, you don't tell us whether you are using a pump or if you are on MDI. If you are on a pump, you should look at suspending from before you run until afterwards. I would agree with starting high, but 298 is a bit too high if you also are going to suspend insulin. The reason is, of course, because no insulin creates a risk of ketones and ultimately DKA even when exercising (maybe more so when exercising). It also depends upon the length of the run... but a marathon would likely be too long (5 hours would be too long). So here is what I suggest:

    1. Start in the low to mid 200's (you are already starting high, so you know that)
    2. If you have a pump, suspend it 30 min. before starting. Start it again as soon as you are done.
    3. Get a ketone blood meter to test afterwards. If you have ketones, take insulin (and eat for the insulin).
    4. Eat a pizza (or as much of one as you can) about 90 min. before starting. You know why...
    5. Suck on hard candy, and of course carry glucose tabs.
  • T1DCarnivoreRunner
    T1DCarnivoreRunner Posts: 11,502 Member
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  • amybg1
    amybg1 Posts: 631 Member
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    I used to volunteer at the Canadian Diabetes Association and there was a lady working there who is a type 1 and was running Half marathons. unfortunately, it's more trial and error in terms of what will work for you but I agree with bringing gels or a sports drink with you in this instance and see if you can go with a watered down sports drink or if you need to just pace your carb intake and take one every 2.5-3 miles... Good luck, I know it isn't easy!
  • MSeel1984
    MSeel1984 Posts: 2,297 Member
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    Fortunately, after some trial and error, I think I've more or less got it down as far as maintaining safe blood glucose during a run. I know when to eat and fuel and have been able to maintain my sugar between 150-80 the whole time!